Can someone help?

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Xianghua17
Regular Member


Date Joined Jun 2003
Total Posts : 79
   Posted 3/10/2014 5:43 PM (GMT -6)   
I am from the Crohn's disease and ostomy forums on here. I have been relatively healthy for the last 10 or so years. Recently, about a month ago, I started having pain in my upper abdomen, just under my ribs. It started like a dull ache but has gotten progressively worse. It's at it's worst about 15 to 30 minutes after I eat. Now the pain is not only in the upper abdomen but has moved also into my left side as well. I've also been getting headaches, sometimes migraines that effect my vision after some meals. Back aches, joint aches, and just general muscle soreness have recently started(don't know if that's related to the stomach though.) I get fatigued extremely easily. I have been out of work going on a month now.

I had a HIDA scan, CT scan, Gallbladder ultrasound, Blood tests, EGD, and Ileoscopy...all normal. I am at my wits end...Do any of my symptoms sound like your experiences? I started keeping a food-pain journal hoping to find a link. Celiac disease was all I could come up with and since I already have an autoimmune disease I thought maybe I was more prone to getting another.

If anyone has any advice I'd love to hear it...I just want help...Thank you in advance...

Jean luc
New Member


Date Joined Mar 2014
Total Posts : 5
   Posted 3/10/2014 6:29 PM (GMT -6)   
the simple way to check for celiac disease is for your provider to order a celiac panel on the lab sheet. It takes time but you could start on a gluten free diet which is the current treatment Some stores have "gluten free" tv dinners. Interestingly, antibodies from gluten can attack endocrine gland mimicking several autoimmune diseases. If you find that you do have celiac or gluten intolerance the gluten antibodies may be precipitating your autoimmune disease with resultant symptom relief when you start a gluten free diet.

If you think it may be an ulcerative colitis you might try nicotine patches for about 3 to 4 days to see if you get relief JL

Xianghua17
Regular Member


Date Joined Jun 2003
Total Posts : 79
   Posted 3/11/2014 11:22 AM (GMT -6)   
Thank you Jean luc...My family dr. is referring me to a GI specialist...Crossing my fingers for some results.

ezgoindude
New Member


Date Joined Mar 2014
Total Posts : 12
   Posted 4/3/2014 7:36 PM (GMT -6)   
Out of curiosity xianghua how did the doctor confirmed you had crohns in the first place? Or what your daily symptoms had been like?

I ask because I have very vague symptoms and the doc has me like a lab rat and coming up short. I could get into detail but I'm saving that for my own thread... Ugh.

I can at least add that I had very similar discomfort in the upper right quadrant shortly after eating, and I've managed to keep it down by chewing food thuroughly and complete digestive enzyme tablets. I am also cutting back off my ppi, which calmed my gurgle stomach but did cause discomfort also in the right side after eating.....

Xianghua17
Regular Member


Date Joined Jun 2003
Total Posts : 79
   Posted 4/8/2014 4:37 PM (GMT -6)   
ezgoindude-I was diagnosed with Crohn's about 14 years ago. It started with some stomach cramps, all over, and a sore that would not heal(turns out that was a fistula.) It just esculated from there. They used a blood test and a colonoscopy to diagnose me.

guyfeelsgood
Regular Member


Date Joined Apr 2014
Total Posts : 161
   Posted 4/11/2014 11:58 AM (GMT -6)   
when you see your GI doc

1)do all the CELIAC panels
2) HLA disease association
******* make sure to add this one****
if in the USA
3) IBD EXPANDED PANEL
there is a IBD PANEL that most docs do ....BUT do the EXPANDED PANEL it tells more

Xianghua17
Regular Member


Date Joined Jun 2003
Total Posts : 79
   Posted 4/15/2014 2:54 PM (GMT -6)   
Just got back from my GI...he says to go to the specialist but sounds like my Crohn's is flaring again... :(
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