Anyone had the genetic testing done?

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cappuccinocurls
Regular Member


Date Joined Jun 2014
Total Posts : 230
   Posted 6/17/2014 1:44 PM (GMT -6)   
I am not celiac, my sister is. I've been tested via blood work a couple times. I recently read about genetic testing and how it can be helpful, but not necesarily a diagnosis tool.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 6/28/2014 12:39 PM (GMT -6)   
Yes. I'm positive for one copy of the HLA-DQ2 Celiac gene, though the regular Celiac tests were all negative. EnteroLab said my stool test suggested possible Celiac or non-Celiac Gluten Sensitivity.

I did a gluten-free diet trial for 6 months, and when I tried a small amount of gluten after that, I immediately knew I needed to stay off of gluten permanently.

Having a family member with Celiac increases the likelihood of you having the gene that predisposes to development of Celiac, and increases the chances that you'll actually develop Celiac.

I do think genetic testing in your case is a good idea so you know if you should be on the lookout for Celiac symptoms...
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube; TPN-dependent
Meds: Flagyl, Zofran, Essential Oils, etc.

cappuccinocurls
Regular Member


Date Joined Jun 2014
Total Posts : 230
   Posted 6/30/2014 7:59 AM (GMT -6)   
Hi!


1. Is that lab the only one who does the genetic testing?

2. Did you ask your GI for the genetic test? Or did you have to find a specific doctor to do it?

cappuccinocurls
Regular Member


Date Joined Jun 2014
Total Posts : 230
   Posted 9/6/2014 11:04 AM (GMT -6)   
Bump!

I also have CDC + Lyme. My RDW was low on my last test and my PCP wants me to get retested for celiacs. Yeah for me? Ugh.

Razzle
Veteran Member


Date Joined Aug 2007
Total Posts : 4399
   Posted 9/29/2014 11:33 PM (GMT -6)   
Lyme can activate latent Celiac. Given you have an immediate family member with it, there is a good chance that, if you have the gene for it, the Lyme may have activated the gene and you should at the very least stay off gluten during Lyme treatment.

Any regular lab can test you for Celiac genes, doesn't have to be EnteroLab.

EnteroLab did not require a doctor to get the test done, hence why I did it through them. I did not have typical Celiac symptoms, so none of my doctors were willing to entertain the possibility once the biopsy came back negative.
-Razzle

Chronic Lyme, Bart., Gluten & Sulfite Sensitivity, Many Food/Inhalant/Medication/Chemical Allergies & Intolerances, Asthma, Gut dysmotility & non-specific inflammation, Lupus, Osteoporosis, etc.; G-Tube; TPN-dependent
Meds: Zofran, Domperidone, Hydrocortisone, Essential Oils, Homeopathy, Herbs, etc.
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