So you tell me...is it likely I'm gluten intolerant?

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VioletteWing
New Member


Date Joined Sep 2014
Total Posts : 4
   Posted 9/19/2014 6:11 PM (GMT -6)   
Look, I feel silly for being here simply because people tease you when you say you're trying a gluten free diet. It has become so trendy that it's not taken seriously. The truth is, though, I've been having digestive issues since I was a kid and only now has gluten intolerance really gotten much attention so now is the time when I have the awareness to try it.

I had a blood test done a few years ago that came back negative but from what I understand, that isn't the most effective test? You may know more about that than I do.

So I'm twenty-four and female. I found this checklist on a gluten free website that said if you have four or more of these symptoms then it's likely you're intolerant. I have like 20 of them on a fairly regular basis. This is boring, but here they are if you care to read:

Frequent intestinal bloating/gas especially after eating (This is the worst symptom I have. Painful gas that makes me toss and turn and keeps me up at night. Sometimes I literally walk bent over because it's so bad and for some reason that helps. Mostly this happens at night after eating.)

IBS
Indigestion
Constipation
Diarrhea (Honestly, my system seems to go back and forth between the two constantly.)
Vertigo/Dizziness (As a kid, sometimes I'd get spells that kept me in bed all day. Not as bad now.)
Difficulty recalling words/Brain fog/Poor concentration
Anxiety
Irrational Irritability (This is a big one for me.)
Mood swings (Oh yeah. Minute by minute.)
Restless leg syndrome
Joint pains
Chronic UTIs (though none recently, thank the Lord)
Mouth ulcers (I almost always have one or two.)
Skin rash (sometimes I get an itchy bumpy rash and it can show up anywhere and goes away within a few hours)
Eczema (since I was a kid and my sister and aunt have psoriasis)
Vitiligo (when you have patches of lighter and/or darker skin - I have both, noticeably)

So I dunno, what do you think? Is there something significant here or am I just looking for attention?

Kudos to you if you're still reading this and want to help me. Thanks!

Sam

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8381
   Posted 9/20/2014 8:20 AM (GMT -6)   
Why don't you just try a gluten free diet and see what happens? give it a few weeks and tell your friends to leave you alone while you figure out how to feel better.
*******************
52 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day) generic Colazal (9 6 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), psyllium (2 tsp daily), mesalamine enema as needed. Gluten free as of 5/30/11. Scope in 8/11 found no evidence of inflammation!

VioletteWing
New Member


Date Joined Sep 2014
Total Posts : 4
   Posted 9/20/2014 9:34 AM (GMT -6)   
Well that's what I'm doing. Just thought I would also look for input from people who have experience. Thanks for your reply.

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8381
   Posted 9/20/2014 12:28 PM (GMT -6)   
Let us know how it goes. How long have you been GF? And are you really GF? Gluten-lite is not going to do it.
*******************
52 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day) generic Colazal (9 6 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), psyllium (2 tsp daily), mesalamine enema as needed. Gluten free as of 5/30/11. Scope in 8/11 found no evidence of inflammation!

VioletteWing
New Member


Date Joined Sep 2014
Total Posts : 4
   Posted 9/20/2014 8:13 PM (GMT -6)   
I'm going totally gluten free for a month. I understand cutting back basically does nothing. I had done two and a half weeks gf earlier this month and think I noticed significant changes. So now I'm trying again and for a longer period. It's interesting, to say the least, because I'm a pastry chef in a bakery, but I'm sticking to it. It has given me the opportunity to try some gluten free pastry recipes.

kazbern
Veteran Member


Date Joined May 2010
Total Posts : 8381
   Posted 9/23/2014 9:45 AM (GMT -6)   
For me the differences between being GF and eating gluten were stark and undeniable. If you had 2.5 weeks of being GF and noticed significant changes, why did you go back to eating gluten?

One thing you might consider is a gluten challenge. After you've been GF for a while (3 weeks? 1 month?) plan a day or several days of a high gluten diet. It seems to me that a lot of people who think they have celiac disease used to do this for testing purposes. You can find info online about doing a gluten challenge.

Personally I have chosen not to do a gluten challenge or even do further testing to establish whether I have celiac disease. My rheumatologist tested me in 2007 and the bloodwork did not indicate celiac. My GI has done several endoscopies over the past decade and never mentioned celiac disease. But when I quit eating gluten in 2011 I stopped having soft stools and crampy urgency and got some relief from chronic knee pain. So, not going back to eating gluten!
*******************
52 yrs old, IBD diagnosis in spring '01. Proctitis, gastritis, ileitis.
Currently taking Pentasa (3g/day) generic Colazal (9 6 pills/day), Sulfazine (1.5 g/day), Prevacid, folic acid, vit. D (2K iu), flax seed oil (2 tsp/day), psyllium (2 tsp daily), mesalamine enema as needed. Gluten free as of 5/30/11. Scope in 8/11 found no evidence of inflammation!

VioletteWing
New Member


Date Joined Sep 2014
Total Posts : 4
   Posted 9/23/2014 3:31 PM (GMT -6)   
That's interesting that you mention the knee pain! Same thing here. During the 2.5 weeks gf it was gone(coincedence maybe?) But the morning after I had my first gluten meal (Olive Garden), my knee pain came back so bad I could hardly use it (putting weight on it while it's bent).

jeanneac
Veteran Member


Date Joined Feb 2009
Total Posts : 1877
   Posted 10/28/2014 1:01 PM (GMT -6)   
I'd check with an expert about this but if you are exposed to a lot of flour, aren't you going to absorb some of that through your skin?? I thought people with celiac had to eat certified gluten free food items b/c even small amounts could make a difference. Once you go gluten free, the test will go negative from what I understand.
d 1/09 with colitis sigmoid colon with some diverticular disease as well, Colon resection Nov. 2010, now in remission!
seronegative RA, type 2 d, asthma, skin scleroderma, VSL#3 probiotic, Vit. D, nexium, synthroid,
Positive ANA speckled pattern 1:180, high sed r
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