Celiac AND Crohn's??

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2815
New Member


Date Joined Feb 2015
Total Posts : 2
   Posted 2/12/2015 11:10 AM (GMT -6)   
Hi all,
This is my first post.  I was diagnosed with Celiac Disease 8 years ago.  I was seen quickly by a GI dr because my barium swallow and follow-through showed signs of Crohn's.  The GI dr brushed that off and I didn't think of it again after my gastroscopy showed Celiac.
I have followed a GF diet since then with little dairy and pretty much no fried foods.  Even still, I would get diarrhea sometimes with blood and vomitting every few months for a day or two with stomach cramps and pains.  I always chalked it up to a mistake in my diet even though I have always been so careful.
 
Now I have had two weeks of bloody diarrhea, severe cramps and pains, alternating constipation with diarrhea, rashes and extreme fatigue. 
Is it possible that i could have had Crohn's and Celiac this whole time??  Anyone else have both?  Is it possible that my really strict diet kept Crohn's masked for longer?
 
Help.

FamilyGuy
Forum Moderator


Date Joined Jan 2004
Total Posts : 3378
   Posted 2/12/2015 12:02 PM (GMT -6)   
I think you need to get a second opinion. If you are getting glutened, that should show up in the blood work.

Like you, I have both and struggle to get proper treatment.

BTW, welcome to the forum!
Jon, Co-moderator for Crohn's Disease & Celiac Disease forums

IamCurious
Veteran Member


Date Joined Jan 2010
Total Posts : 3037
   Posted 3/29/2015 4:04 PM (GMT -6)   
I do not have Celiac but Crohn's colitis, and I am very sensitive to gluten. But my problem isn't just with gluten. After closely following a food diary I was able to determine that my symptoms are also aggravated by shellfish, seaweed, and even cruciferous vegetables like kale and broccoli.

Maybe you also have multiple food sensitivities. Everyone is different so you need to find out for yourself. BTW probiotics help to get me back into remission.
Male/63 DX IBD in Feb08. No meds, allergic to Mesalamine. Remission since Mar2010. Psyllium Seed mixed with VSL3DS is very helpful. Food diary instead of SCD or Paleo.

Lactobacillus Reuteri (NCIMB 30242), Lactobacillus GG (Culturelle), Fish oil, magnesium, multivitamin, extra D3. When needed: DGL, boswellia, curcumin, E complex.

Resistant Starch and lots of fruit & vegetables (but no cruciferous), No Gluten, no soda, no HFCS, no xylitol or sorbitol, no trans fat, no shellfish, no carrageenan, no GMO foods saturated with Roundup.
Nature created all of the locks, therefore Nature has all of the keys

Canada Mark
Veteran Member


Date Joined Jan 2013
Total Posts : 3479
   Posted 4/30/2015 4:36 PM (GMT -6)   
I'm the same as IamCurious and also have Crohn's-Colitis. Although all my main symptoms are gone now (mucus, blood, pain, urgency) I still have many foods aside from Gluten that strongly effect me. Certain rices, milk, certain probiotics, some starches (from rice and gluten alternatives) and some yeasts used to make gluten free products.

I takes a while to figure them all out. Everyone is a little different.

Crohn's-Colitis just so you are aware is Crohn's Disease, but isolated to the colon. So no small bowel involvement.

Have you tried the SCD diet? There may be some basic foods you can tolerate on that and see if it helps reduce your symptoms. It's perhaps worth a shot, but very difficult to stick to. At least going through the intro diet might help flush out items that bother you.

www.breakingtheviciouscycle.info

Here are two great cookbooks that makes SCD life somewhat tolerable -www.grainfreegourmet.com/buygrainfree.html Some of the recipes my 'normal' relatives now cook. It's that good.
Diagnosed Crohns-Colitis 12-13 years ago - Past Meds: Antibiotics, Prednisone, Methotrexate, Imuran, Remicade - Current Meds: Imuran 150mg/daily, Natural: WOO/Thyme Oil, All organic food no additives as best as possible. I stopped taking probiotics as I felt they were not helping much.

“The only person you're destined to become, is the person you decide to be"
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