From Hypo to Hyper

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grandma08
Regular Member


Date Joined Mar 2011
Total Posts : 30
   Posted 8/8/2011 9:41 PM (GMT -6)   
Anybody else out there gone from being Hypo to Hyper? My labs and my symptoms now show I am hyper after being hypo for years. My TSH is .001 but my antibodies and other tests were high. Any input?

couchtater
Elite Member


Date Joined Jul 2009
Total Posts : 12084
   Posted 8/9/2011 6:15 PM (GMT -6)   
What is the dosage of your medicine?
Joy

BethW
Regular Member


Date Joined Mar 2010
Total Posts : 132
   Posted 8/10/2011 10:33 AM (GMT -6)   
If your antibodies are high, you might have Hashimoto's, and that causes hypo to hyper swings until it settles completely hypo before it completely shuts down the thyroid. At least, that's how my endo explained it to me.
DDD (4 levels- L2-3 thru L5-S1), Hashimoto's Disease/ thyroid cancer (thyroid removed 6/11),

grandma08
Regular Member


Date Joined Mar 2011
Total Posts : 30
   Posted 8/12/2011 8:49 AM (GMT -6)   
Hi Joy, They have taken me off my synthroid completely. They kept cutting my dosage back little by little with no change in my labs. So i have been off totally for a month.

I am having the iodine uptake test next week. Hopefully get some results from that.

Beth, that is very interesting. I am going to talk to my endo about that. I just know I didn't like it when I had hypo but this hyper stuff is awful! The meds for my heart and the shakes are helping somewhat so I am thankful for that. But the way my heart beats I am afraid permanent damage is going to be done.

Thanks for your input ladies!






Celiac Disease, Fibromyalgia, Thyroid Disease

cfs
Regular Member


Date Joined Aug 2011
Total Posts : 76
   Posted 8/16/2011 6:02 PM (GMT -6)   
grandma, I assume you're on beta blockers. I don't think you have to worry about permanent damage. The big question is if you need to decide on a treatment for the hyperthyroidism if the doctor won't have you wait a bit. Should you have to do so, please take time to make a fully informed decision as to what treatment you opt for. Good luck!
(Oh, I should introduce myself. I found HealingWell to get some input for another family member and thought I'd swing by the thyroid board, having been hyper myself.)

grandma08
Regular Member


Date Joined Mar 2011
Total Posts : 30
   Posted 8/18/2011 10:31 AM (GMT -6)   
Well the results are in....

Good news: the scan showed an enlarged thyroid but not nodules, lumps, bumps or any other issues.
Bad news: thyroid uptake showed definate hyperthyroidism.

So, I go to endo dr next week to discuss options.

I am on beta blockers that help somewhat. Can't live like this much longer. But I want to make an informed decision. Thankfully I have access to some doctors that I will be getting input from.

I would also like input from anyone here that had to choose treatment for hyperthyroidism.

THANKS!!

Judy2
Forum Moderator


Date Joined Mar 2003
Total Posts : 9294
   Posted 8/18/2011 11:30 AM (GMT -6)   
At the time my hyperthyroidism was diagnosed I urgently needed surgery, so had to go with the supposedly quickest way.

I had radioactive iodine treatment. It was quick, painless, and I didn't set off any radiation detectors. However, my levels were going down so slowly from their astronomical level that they put me on propylthiouricil to help block the hormone production. That worked, but it completely took away my sense of taste. I ended up after major surgery having trouble eating because everything just tasted nasty.

As soon as my levels got down to normal I stopped the PTU (ticked off my snooty endocrinologist), and then all was well, It did take a couple of years for my levels to completely stabilize, but I've been on the same dose of levothyroxine for years now.
Ulcerative colitis diagnosed in 2001; symptoms as early as 1992. In remission since 2006 with Remicade.
Inflammatory osteoarthritis; osteonecrosis from steroids
Grave's disease successfully treated with radioactive iodine and now on Levothyroxine.
Type II diabetes induced by steroids.
Meds: Remicade, Colazal, Levothyroxine, Mobic, Metformin

Co-moderator thyroid forum

grandma08
Regular Member


Date Joined Mar 2011
Total Posts : 30
   Posted 8/24/2011 7:09 PM (GMT -6)   
 
 
Well, the verdict is in....i will be having RAI on Friday.  I have a really good endo and together we feel this is the best decision.  Any info about your experiences would be appreciate!

mscrowbar
Veteran Member


Date Joined Nov 2010
Total Posts : 877
   Posted 8/25/2011 8:25 AM (GMT -6)   
I walked into the hospital, swallowed a pill with plenty of water, walked out, went home and shut myself in my room and stayed there a total of 5 days. Because I live with small children I had to distance myself from them for a total of 7 days. I could not sleep with my husband for 2 nights and I used a seperate bathroom from the rest of the household for those 5 nights. Except for not being able to get close and hold the little ones life resumed to normal after the 5 day confinement.
Monday night I go for my 6 month thyroid scan to make sure the therapy worked. I see the endo (with my blood work too) on Sept. 12. I had thyroid cancer and have malabsorption issues so I will be seeing alot of the endo.

All in all, I would say it was a fairly simple, easy process. Good luck
Denita
**************************************
Rheumatoid arthritis with secondary Sjogrens, Fibromyalgia, meniscus tears in left knee, Cancer survivor

BethW
Regular Member


Date Joined Mar 2010
Total Posts : 132
   Posted 8/25/2011 12:57 PM (GMT -6)   
I had RAI on July 25th. Like Denita, I took a pill, went home, and stay there for several days. My doctor told me that I needed to be by myself in there for 7 days- hubby crashed on the couch all week. My sense of taste dulled for a couple of weeks (it's almost back completely, though) and my tongue felt "burned" for a week or so. Those were my only side effects (besides the boredom of being shut off by myself).

Good luck! You should do fine.

grandma08
Regular Member


Date Joined Mar 2011
Total Posts : 30
   Posted 8/25/2011 7:52 PM (GMT -6)   
7 days? Whoa, I didn't think it would be that long! I thought it was more like 2. Guess I will see in the a.m. what they say. I think it depends on the level of radioactive iodine you get.

I am sending my teenaged boys to stay with my adult daughter across town for a few days. Hubby will be at work all day Friday and Sat. so I will kind of enjoy some alone time. I won't be seeing my grandbabies for a few days...sigh

My mom is worried about our 2 small dogs. I will ask in the morning to see what they say.

Hope I can sleep tonight....wait a minute...I never sleep much, so tonite probably won't be any different :)






Celiac Disease
Fibromyalgia
Thyroid Disease

BethW
Regular Member


Date Joined Mar 2010
Total Posts : 132
   Posted 8/25/2011 10:55 PM (GMT -6)   
We have 3 small dogs, and they had to stay out of the room. My doctor said to pretend that they are babies and follow that protocol.

My doctor was pretty adamant about the 7 days. I guess it does depend on the dose, though.
DDD (4 levels- L2-3 thru L5-S1), Hashimoto's Disease/ thyroid cancer (thyroid removed 6/11),

grandma08
Regular Member


Date Joined Mar 2011
Total Posts : 30
   Posted 8/27/2011 6:32 AM (GMT -6)   
Woke up this morning after RAI treatment yesterday a.m. and I have a temp of 100.5. I hurt all over. Any idea if this has anything to do with RAI. In all my research I haven't seen anything like this.

cfs
Regular Member


Date Joined Aug 2011
Total Posts : 76
   Posted 9/1/2011 8:38 AM (GMT -6)   
Enjoy not being hyper! You have an advantage over many people who have RAI in that you have experience with treating hypothyroidism. From what I've seen on other boards, not all doctors treat hypothyroidism well, or help their patients transition gently to hypo past RAI.
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