Newly Diagnosed, Synthroid Side Effects

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DanST
New Member


Date Joined Aug 2012
Total Posts : 12
   Posted 8/19/2012 6:08 PM (GMT -7)   
Hello everyone,

I was diagnosed hypothyroid about 4 weeks ago. I've been on Synthroid 88 for 3 weeks. This last week I've started feeling worse than before I started taking the med.
The first two weeks I started taking it I was feeling better each day. Then this past Monday the fatigue hit me like a brick. I then could not sleep well, nausea, nervousness, dizziness, and really bad migrine headaches. I took the synthroid with food one day and it helped the nausea but still having the other effects.

Well I called the doctor on Thursday and nurse told me that doctor said to stop taking it for four days to see if the nausea will go away and I can get back to sleep. I told her about taking the medicine with food and how I was not really suppose to. She told me to do whatever worked.

This whole weekend I have felt like a zombie. Like I said I feel worse than I did before I took it. So today I did not take it at all. Still feel like crap. Add on that I have Irritable Bowel Syndrome.

I've been going to this doctor for years but I feel like I got the brush off with what he told the nurse. Feel like I need another opinion.

Are these normal side effects of synthroid? or am I not getting enough?

I am so frustrated and feel so bad.

I would appreciate any input.

Thank you
DAny

maggiemay
Regular Member


Date Joined Feb 2011
Total Posts : 153
   Posted 8/19/2012 9:42 PM (GMT -7)   
Hi DAny,

Welcome to the the forum. Do you know if you have Hashimoto's? Also, is your doctor
an endocrinologist? Do you know what your lab test results were? Did they check free
T3 and free T4 besides TSH?

DanST
New Member


Date Joined Aug 2012
Total Posts : 12
   Posted 8/19/2012 10:21 PM (GMT -7)   
Hi,

Thanks for the welcome.

I don't know if I have Hashimoto's, actually just learning about it. Pretty sure the blood test did not check for it.

Doctor is my regular family physician. Been going to him for a very long time. I believe I have been sick for over a year. He said I was depressed... but never did a blood test until I mentioned it to his nurse by way of heart doc. I have been to a heart doctor because my heart rate will go high when I first get up every day. Over 100 beats and then comes down slowly. Stress test found nothing wrong with my heart. But heart doc said my resting heart rate seems to be on the high side. From 88 to 96. Blood presssure is low... well to me. From top number being 99-114 to bottom number staying around 60-67.

My TSH was 6.980. T3 & T4 was not checked on the blood test. B-12 was very high at 1,998. Was taking 2,000 mcg of B-12 a day. Family doc told me the amount did not matter because it would be eliminated through my kidneys. After I saw how high it was on the blood test stopped taking the B-12.

Bad cholesterol was slightly high at 112, which from my understanding can be from the hypothyroid.

Dany

hypoHashimoto
Regular Member


Date Joined Jul 2012
Total Posts : 328
   Posted 8/20/2012 5:10 AM (GMT -7)   
Hello,
Are you taking Armour or synthroid?
I think that the cause to your symptoms is that the initial dose you were put on is very high, with that TSH I think that you should have been put on 100 mcg per week as an initial dose.

To give you an example, when I was diagnosed I had a TSH around 11, and was put on 350 mcg/week, and that was alittle bit high.

Stoping the meds for four days will decay the amount in your body and will eventually alleviate the symptoms that you are experiencing.

I think that you should ask your doctor to reduce your dose and reevaluate in about 6 weeks.

Notice also that if the casue to your hypo is hashi, then it will take you a while to reach the proper dose, since your antibodies will continue to destry your gland, and as a result you will need to increase alittle.

Good luck,
S

DanST
New Member


Date Joined Aug 2012
Total Posts : 12
   Posted 8/20/2012 4:55 PM (GMT -7)   
I am on Synthyriod 88 which I believe is .088 mcg. The one right below 100 mcg. My mom has taken the 100 mcg for years and never had any side effects like I am having.

So do you think I was put on too high of a does or too low? I am wondering if it was too low and that is the reason my hypo symptoms came back alot worse than before I started taking it? Or is it side effects of the Synthyriod? I've read headache, nausea, and dizziness is side effects.

THank you
Dany

hypoHashimoto
Regular Member


Date Joined Jul 2012
Total Posts : 328
   Posted 8/20/2012 9:28 PM (GMT -7)   
Hi,
Synthroid contains a hormone that exists in the body so theoretically it should not cause side effects, side effects can be caused by the fillers, or being over medicated.

To know for sure if you are hypo or hyper, you should take one dose (either 88 or lower dose) for 6 weeks, and then to do blood test, I think that you are hyper, but I might be wrong.

The symptoms that you gave above are consistent with hypER.

S

DanST
New Member


Date Joined Aug 2012
Total Posts : 12
   Posted 8/20/2012 10:36 PM (GMT -7)   
I guess I will just stay off the Synthroid for two more days and call the doctor to see.

I asked this question on justanswer to see what a doctor there would say. One said that 88 mcg is not that much and that I am just not adjusting to the effects of the drug. To try splitting it into and taking it twice a day. Then see how I feel a week later. To take Xanax for sleeping. If not better then take another blood test. Well I already take Xanax. I did did split it into lowering the dosage. I can't go around feeling like a zombie. Dizzy, migraine headaches, and sick at my stomach.

Ugg :( Thank you all for talking to me about this. It does help.

maggiemay
Regular Member


Date Joined Feb 2011
Total Posts : 153
   Posted 8/21/2012 9:53 PM (GMT -7)   
If it were me, I would ask your doctor to run the thyroid antibody tests (Thyroid peroxidase
antibody and Thyroglobulin antibody) to see if you have Hashimoto's. He should also check
your free T3, free T4 and TSH although the results will be different since you are taking
Synthroid. But if you have low T3, you might have trouble converting T4 to T3.
 
A lot of people feel better if they take some T3 along with the Synthroid (T4). Your doctor
might prescribe a synthetic T3 (Cytomel) to take with the Synthroid or just take ARmour.
I take ARmour and I know that I feel much better on ARmour than on Synthroid. You could
check the website for information:
 
 
Mary Shomon has information about finding a good thyroid doctor, what to expect, etc.
She also has a directory of the top thyroid doctors in the US by state so if you decide to
change doctors, you might look at the list and see if any are listed near you. The link is:
 
 
There is also an interesting discussion about Synthroid entitled "What to do about unwanted
Synthroid side effects" that I thought of when I read your post. The link is:
 
 
Scroll down the page. I think that discussion is about half-way down.
 
Good luck. I really hope you find relief. Don't give up until you find some answers and some help.

DanST
New Member


Date Joined Aug 2012
Total Posts : 12
   Posted 8/23/2012 6:55 PM (GMT -7)   
Thanks so much for the great information.

Well I called my doc and requested a super low dose of Synthroid... 25 mcg. I read where someone else started on a low dose and then worked up to 100 mcg to avoid the side effects. I thought it might work for me. Then again I probably can't take it all and will have to request the Armour.

I am on my fifth day of being off of synthroid and just started feeling a little at myself. After I stopped taking it my energy was zero and I was having dizzy spells. My parents don't want me to take the Synthroid at all but I feel like I need to give it another try. Nurse told me if this caused side effects they will try another medicine. She did not say what it was. I will be seeing my doctor in September so I will have to wait until them to request any additional blood tests.

Dany

hypoHashimoto
Regular Member


Date Joined Jul 2012
Total Posts : 328
   Posted 8/23/2012 11:40 PM (GMT -7)   
Hello,
If I were you, I would continue with the 25 mcg per week for about six weeks and then to test your levels.

good luck,
S

maggiemay
Regular Member


Date Joined Feb 2011
Total Posts : 153
   Posted 8/24/2012 10:13 AM (GMT -7)   
I just remembered something I read about taking synthroid. This is from Alexander Haskell's book
Hope for Hashimoto's. He provides an in-depth description of how T4 works in the body which is
very interesting but I won't copy it here. However he ends the chapter with the following:

Remember, the first goal of treating Hashimoto's is to reduce TSH without creating a situation
of having too much T4. For this reason the initial dose of thyroid medication must be very low,
about one-third to one-fourth of what the normal dose would be for hypthyroidism. The desired
effect of prescribing in this way is to help steady the production of TSH as it slowly declines.
This decline in TSH will slow the thyroid's production of thyroid hormones along with with a
decline in hydrogen peroxide production and thyroid inflammation. Every 7-10 days, after
evaluating the person's symptoms, the thyroid prescription is again increased by another
small increment.

I wish I would have remembered this before. I kind of think you probably have Hashimoto's so it
sounds like you are on the right track, cutting down to 25, and increasing every 7-10 days.
Let us know how it works for you.

luckydog1977
Regular Member


Date Joined Aug 2012
Total Posts : 121
   Posted 8/26/2012 8:53 AM (GMT -7)   
Stopping the b12 can cause fatigue. I take 2000mcg a day also. Its a water soluble vitamin...doesn't get stored in the body and whatever you don't need is eliminated thru the kidneys. I take that dose to fight fatigue from fibromyalgia with my docs blessing.
GAD, panic disorder, bipolar1, GERD migraine with aura, hemiplegic migraine, prolonged q t interval, tachycardia, arrhythmia, fibromyalgia, polycystic ovarian disease, PTSD

Klonopin, Cymbalta, Abilify, Eskalith,Lyrica, Flexeril, TalwinNX, Prilosec, Verapamil, Toprol XL, Synthroid, Lipitor, Phenergan, Melatonin, Multivitamin, B12, b complex, vitamin c, magnesium, vitamin d (50,000iu's prescribed)

DanST
New Member


Date Joined Aug 2012
Total Posts : 12
   Posted 8/28/2012 7:06 PM (GMT -7)   
Thank you all for posting.

I've been on 12.5 mcg of Synthyroid since Saturday. I thought I would start even lower and then work up. I must say I feel terrible. I went to the grocery store Sunday and could hardly make it around the whole store. My head was woozy/light headed and heart was beating hard. I was doing this some before the Synthroid but seems like I am even worse. I was so give out Sunday. Seems like I can not do anything at all without it giving me out. My heart rate also seems to have increased staying around 90-99. I know that don't seem like much but I can really tell when it is beating hard and fast. I am just so so tired.

I've started back on the B-12 2000mcg just in hope for some relief.

How long does it take for the hypo symptoms to go away? I've been reading several things on Google and some people talked like it took them 6 months to a year to get worked out.

Dany

mrsbugzy
Veteran Member


Date Joined May 2012
Total Posts : 641
   Posted 8/30/2012 4:44 PM (GMT -7)   
Dany,
The fact that you have irritable bowel is what struck a chord with me..One of the first things you will see on any information site is that celiac disease or a gluten intolerance can throw off your thyroid as well...I would suggest being checked for it. It is a simple blood test, also, if it comes back negative you may want to try going gluten free for a couple of weeks to see how you feel.
I am only suggesting this because I have thyroid problems, and when my gut is out of whack..my numbers go crazy and I feel terrible.
Again, just a suggestion, but everything you are describing sounds just like what I have gone thru.
Good luck, I would be interested to know what you find out :)
Celiac
total colectomy with ileo rectal anastomosis 1/12

maggiemay
Regular Member


Date Joined Feb 2011
Total Posts : 153
   Posted 8/30/2012 8:56 PM (GMT -7)   
Mrsbugzy is right, there is research that shows a correlation between gluten and Hahimoto's. But if
you are feeling so terrible on a small amount of synthroid, I wonder if you should quit taking it. Something
doesn't seem right. I would ask your doctor about it again and if they give you a brush-off again, then
you really should find a new doctor. In my opinion you shouldn't be feeling that bad.

DanST
New Member


Date Joined Aug 2012
Total Posts : 12
   Posted 8/30/2012 9:50 PM (GMT -7)   
I've had IBS since my early 20s brought on by taking too much antibiotics when I was younger. Chronic sinus infections. I've read some about gluten free diet when doing research on the hypothyroid. I need to find out if I have Hashi.

That week that I was off of Synthroid I can't say that I felt much better. I was sleeping better is all.
It was strange. The first 2 weeks I took the 88 mcg I was doing good and feeling better. Then bang, the third week is when I started having the problems sleeping, headaches, etc.

Like I said I am only taking 12.5 mcg and I am still feeling bad. Plus I now have a new side effect... my face is broke out. Like bad acne. I've never had a break out like this before. Plus I have missed my menstrual cycle this month. I feel like a mess.

I thought about calling the doc/nurse tomorrow. More than likely I will have to change Docs. It will be the middle of September before I see him. I am not sure if I should wait though. It seems like all he goes by is TSH. If I ask for these other blood tests and he does not give them then I am in a bad position.

I am thinking it is time to call an endo.

I thought about going up to the 25 mcg tomorrow to see if the increase will help me. My mom take synthriod and never had such problems as I am having.

thanks for your support,
Dany

hypoHashimoto
Regular Member


Date Joined Jul 2012
Total Posts : 328
   Posted 8/31/2012 2:39 AM (GMT -7)   
Hello,
The most important think with thyroid problems is consistency,
if I were you, I will continue with 12.5 till the next blood work,
and then increase if necessary, this way you can know for sure where your numbers fall.
how long have you been taking 12.5?

S

DanST
New Member


Date Joined Aug 2012
Total Posts : 12
   Posted 8/31/2012 3:19 AM (GMT -7)   
It will be 7 days tomorrow.
Going by what MaggieMay quoted from that book regarding Hashimoto I thought I would go up to the 25 mcg. But then again I don't know if I have Hashimotos.

cfs
Regular Member


Date Joined Aug 2011
Total Posts : 80
   Posted 9/3/2012 5:37 PM (GMT -7)   
Yeah, I hate to say this but if your dr only does TSH and refuses to do more, you need a new one. And you might want to check in with your state thyroid support group for referrals, and to pass on this info.

mrsbugzy
Veteran Member


Date Joined May 2012
Total Posts : 641
   Posted 9/19/2012 6:41 PM (GMT -7)   
Dany,
Just wondering how things are going for you now?
Are you feeling better? Have you been able to have any other tests done?
Hope you are feeling better :)
Celiac
total colectomy with ileo rectal anastomosis 1/12

DanST
New Member


Date Joined Aug 2012
Total Posts : 12
   Posted 9/19/2012 9:07 PM (GMT -7)   
Hi,

Thanks for following up :) I was going to post when I got my blood test back.

Well I went Monday to the GP. He gave me Armour 1/4 grain to take once a day. I was totally surprised because he does not believe in giving it. Nurse said she talked to him about it before hand. So I guess he is atleast willing to try something else. Only thing is he really does not know as much as an Endo. I could tell by the questions I asked. He is a good doc but...
The nurse did take my blood and is getting a full thyroid panel that will test me for the hoshimotos, free t3/t4, and adrenal glands.

I continued to take the 12.5 mcg of Synthroid for two weeks. I went up to 18.5 mcg on the second week and started having side effects by the end of that week. I got so frustrated and I quit taking anything. I've been off any medicine for about 10 days. My period started when I stopped taking the Synthroid.

I asked my GP what if I did not treat they hypothryoidism at all. He said that mine was not that high at 6.980. It was considered mild hypo. If I can't take the Armour then don't take anything at all. He did say I could go to a Endo if I wanted too. Then added that he thought it was more depression than hypo thryoid.

So right now I am just waiting for the blood test results. I am leaning towards no medicine at all.

Feeling some better since off Synthroid but fatigue is still there.

Thanks for checking in :)
Dany

maggiemay
Regular Member


Date Joined Feb 2011
Total Posts : 153
   Posted 9/22/2012 10:55 AM (GMT -7)   
Hi Dany,

The first thing that I thought of when I read your post is that depression IS a symptom of
hypothyroidism. I would take just the Armour and see how you feel or maybe it would be
best to wait until you get the results of the rest of the thryoid tests. I know doctors feel
that a TSH of 6.98 is "not that high", but there is lot of disagreement about the TSH test
and the range of "normal" values. Let us know what your test results are.

mrsbugzy
Veteran Member


Date Joined May 2012
Total Posts : 641
   Posted 9/24/2012 7:28 PM (GMT -7)   
Dany,

Glad you are feeling a bit better...I am not sure how all the numbers work, I just know when I get chastised and told to
take my medicine!!!! lol... I have been on 0.10 for a month now, and my numbers are still out of whack.. so I go to an endo tomorrow. We shall see what this turns up :)
Definately keep up with any anti-depressants. I was shocked when the doc asked me if I was stressed, and I laughed and said no more than anyone else.. So she made me tell her what was up with my life, and after I went into it all without even a lot of detail...she just stood there with her mouth open and finally said "Most people would have been committed to an institution or killed themselves by now!" I was surprised, I thought everyone was under tons of stress..
It is funny how we perceive our stress as no big deal compared to everyone else.. stick with it.
Hope all goes well :)
Celiac
total colectomy with ileo rectal anastomosis 1/12

DanST
New Member


Date Joined Aug 2012
Total Posts : 12
   Posted 10/12/2012 4:01 PM (GMT -7)   
Hi everyone,

I finally got my blood test results after several calls.

This is 9 days after I stopped taking the Synthroid:
TSH 4.960
Free T4 1.17
TPO 61
No Free T3 or Adernal Test which I asked to be done.

So from my reading it looks like I have Hashi because the TPO is high. General Doc wants me to take Armour. I never did start it. I've been having a hard time with my IBS since I stopped taking the Synthroid. I guess that was the only good thing about taking it was my IBS was under control.

Going to call next week to see an Endo doctor to atleast find where I stand with my thyroid. Had a customer come in today telling me about her husband having thyroid cancer. That really scared me. It is amazing how many people are actually having problems with their thyroid. I was getting my hair cut earlier this week and the lady said she could not take Synthroid either. about the same side effects as me. She said she was doing very good on Leovxyl (sp?).

So I guess my next step is to see Endo doc. Tired of all these doctors. Was suppose to see my heart doctor last week and they called wanting me to come early because it was friday and the doc wanted to leave early. I just cancelled the appointment. Gets frustrating after awhile.

Thank you all for reading :)
Dany

maggiemay
Regular Member


Date Joined Feb 2011
Total Posts : 153
   Posted 10/12/2012 5:53 PM (GMT -7)   
Hi Dany,

Yes, at this point you might just want to see an Endo and see if he/she can help you. I did think
about you when I read the book Hypothyroidism Type 2 that I posted a thread on. The author said
that he has found that a lot his patients who can't tolerate even small amounts of thyroid hormones
often have problems with their adrenal glands which might have to be treated before treating the
thyroid dysfunction. So hopefully your endo can help with that. Good luck. Let us know what the
Endo says.
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