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Gargamel
Regular Member


Date Joined Apr 2006
Total Posts : 172
   Posted 12/28/2007 4:19 PM (GMT -7)   
Hi everyone,

I have recently tried Culturelle after reading good things about it.

Its reduced by bowel movements from 10 to 5 within a week. I also feel the muscle spasms I used to get are now gone and I have less urgancy as well, this is truley great stuff...

I plan on using it as a maintainance drug from now on - something that 5 ASA failed to do for six years.

G

Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 12/28/2007 4:26 PM (GMT -7)   

Hey G,

  OH Yea, Culturelle is definatley wonderful stuff, I've been on it for a year and a half and it has enabled me to eat a more varied diet, and I can even enjoy a bowl of cereal now and then, which was a big NO-NO when I was flaring before because I couldnt tolerate the milk. I've been feeling much better since being on it, and won't ever give it up!! Plus, it's not expensive at all, only about 16 bucks for a month's supply!

 

 


Diagnosed with U/C January 31st, 2004, IBS on July 21st, 2006 
Meds: Rowasa enema's - Back to every night... probably forever!!!
         Canasa 1000mg. AM Only when needed - Bentyl 10mg. As needed - Nexium - 40mg 1x per day - Xanax .5mg as needed - Effexor 37.5mg. - Culturelle 1x a day 
         Matthew 11:29   Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls.     http://www.myspace.com/77016897         


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 12/28/2007 4:29 PM (GMT -7)   
I actually give it to my son. He has had a couple of bouts of the tummy bug and it really helps. I sprinkle his over applesauce.

Glad to hear it is working well for you!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 3770
   Posted 1/30/2008 10:33 PM (GMT -7)   
I just got some Culturelle and took my first one tonight. I've tried a couple other probiotics (have been taking primadophilus reuteri for past few months) but can't really tell if they've done anything. Gargamel - Are you still having success with it? How long did it take before you noticed results? Do you just take 1 per day?
24 years old
Diagnosed with UC March 2007; yet to go into remission
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D); fish oil


Susiebuddy
Veteran Member


Date Joined Feb 2005
Total Posts : 1373
   Posted 1/30/2008 10:45 PM (GMT -7)   
Hey Sara14
 
  Just thought I'd share my experience wtih Culturelle with you.... I started taking it when I was flaring pretty badly and I could hardly even tolerate a sip of milk or certain other foods. I noticed things changing after only a couple of days, but it took a week or two to fully see a big difference. The only bad part, and it's not even that bad, is that can make your tummy a little bit grumbly for the first couple of days until your body adjusts to the new bacteria growing inside there. Other than that, it's awesome stuff!!!  I swear by it....   Good luck!!!
Diagnosed with U/C January 31st, 2004, IBS on July 21st, 2006 
Meds: Rowasa enema's- Been off them since leaving Montana, praying I stay off them.
         Bentyl 10mg. As needed - Nexium 40mg. 
         Xanax .5mg as needed - Effexor 37.5mg. - Culturelle 1x a day
 
    Matthew 11:29   Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls. http://www.myspace.com/77016897         


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 3770
   Posted 1/31/2008 1:01 PM (GMT -7)   
Hi Susiebuddy,

Thanks for sharing your experience. I'm glad it worked so well for you. If anyone else has experience with Culturelle, please feel free to share.
24 years old
Diagnosed with UC March 2007; yet to go into remission
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D); fish oil


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 1/31/2008 2:32 PM (GMT -7)   
No experience here, but I'm definitely going to look for it. Were you able to find it at your local drug store or do you have to order it online? I know I have to order Primadophilus Reuteri online because no one around here carries it and I just hate doing that.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
10mg Lexapro (for depression/social anxiety)
125mg Azathioprine
4800mg Asacol (Four 400mg tablets, three times a day)
10meq Potassium
 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 3770
   Posted 1/31/2008 2:56 PM (GMT -7)   
I ordered mine online from iherb.com. It was fairly cheap for a month's supply. If you go to Culturelle's Web site, it says they carry the product at Wal-Mart, Whole Foods, Wild Oats, CVS, Walgreens and most other major pharmacies and grocery stores. It doesn't need refridgeration, either, so that's kind of nice.
24 years old
Diagnosed with UC March 2007; yet to go into remission
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D); fish oil


smitharoo
Regular Member


Date Joined Apr 2007
Total Posts : 25
   Posted 2/1/2008 11:57 AM (GMT -7)   
I have been taking Reuteri for several months and can't say that I've noticed any measurable difference. I usually take it first thing in the morning - is that a problem?? I noticed that others talk about taking it at night or mid-day. Is the Culturelle a more potent formula than Rueteri?

Currently, the only way I can describe how I feel is that it's similiar to having the flu...queasy, heartburn, indigestion, horrible gas (no matter what I do or don't eat), days of loose stools - just once a day though (but I'll also have days when I'm unable to have a bm), bloated, lack of energy, etc. I had a flare this past summer and just don't seem to be able to recover. I weened off the prenisone which has left me with a wonderful rash on my face that is some sort of new wrinkle resulting from prednisone withdrawal. I had to take a low dose antibiotic to get the rash under control. Now, after being off the antibiotic for about 3 weeks, the rash is coming back. Also, another new problem - I have ulcerations on the inside of my mouth.

I know that many of you will understand when I say that there are days when I feel so depressed about not being able to be healthy. I'm sick and tired or being sick and tired. I also know that many of you are suffering much more than I am -I try to put that into perspective when feeling sorry for myself.

Any thoughts or suggestions are always appreciated.
Ulcerative Pancolitis diagnosed in 2000
Colazal (6-9 daily)
Off and On Prednisone
Rowasa When Needed
Most Recent Flare: May, 2007
Probiotics - Reuteri
 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 3770
   Posted 2/1/2008 6:26 PM (GMT -7)   
Hi smitharoo,

I don't think it matters when you take the reuteri. I take mine before bed, just because it's easiest for me to remember it then. Culturelle says it has a guaranteed minimum of 10 billion cells of Lactobacillus GG at the time of use. It also contains 245 mg of Inulin, a prebiotic that feeds the probiotics. At the time of manufacture, there are 30 billion live cells. It also says it is the most clinically studied probiotic and has been the subject of over 250 clinical studies. I haven't looked for any of those yet, but maybe they're out there on the Web somewhere. We'll see if it works for me... =)

Sorry to hear about your rash and mouth ulcers. I've never had those, but I do get nausea, a bloated feeling and the lack of energy quite often. I also am sick and tired of being sick and tired, although I'm not really flaring all that badly at all...just a few symptoms. Totally know how you feel.
24 years old
Diagnosed with UC March 2007; yet to go into remission
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D); fish oil


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 674
   Posted 2/1/2008 6:41 PM (GMT -7)   

I have been using Culturelle for several months now and it always helps to slow down bm's and makes them more solid. It's not a cure, but it's the best probiotic I have ever used...much better than Primal Defense and many others that I've tried. Usually, I take one pill twice a day.

:-)  

NBT

 


Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


relativelyquantum
Regular Member


Date Joined Sep 2007
Total Posts : 196
   Posted 2/1/2008 9:57 PM (GMT -7)   
Lactobacillus GG is something that has been well studied and shown effective in many case studies for a multitude of conditions (including UC), so it is definitely a good choice and culturelle has all the signs of being a quality product from what I recall.  Good to know it has worked so well for many here.  Maybe I'll start it up again after I've tried some of these other ones.  This was good information http://www.sciencedaily.com/releases/2008/01/080115085347.htm I found today.  I forgot how good science daily is with info (thanks for reminders pb4 and Sara14).  They mention that even though such small numbers, say 10 billion microbes, in comparison to the 100 trillion+ in our gut, taking in probiotics has a very definite affect on our metabolism, because there appears to be a cooperative part with other microbes.
Pancolitis '04
Yet to ever go into remission, additional Flare-up since Aug 12th
Time off work since 10/17.  Returned to work on 1/11 and doing much better.
 
On Lialda (2/dy), Probiotics, Fish Oil, Folic Acid, Alpha Lipoic Acid, Borage Oil, Iron


blankslatejoe
Regular Member


Date Joined Jun 2006
Total Posts : 71
   Posted 2/2/2008 7:00 PM (GMT -7)   
someone once told me that the major differnence between culturelle and other bactera supplements (primaldefence, vsl3) was that it had a better delivery mechanism. More of the bacgteria was able to survive the stomach environment and get to the gut. i dunno if that's true or not though.

Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 2/2/2008 8:19 PM (GMT -7)   
I was just checking out the Culturelle Website and they mention that it strengthens the immune system. Since our immune systems are already over-active, is this a good thing for us? I am on Remicade, so would it work against that or would it help me fight infections and such?

You've all had such good results with it I definitely would like to give it a try. I am planning on heading to the GNC tomorrow anyway to pick up some fish oil capsules and other supplements -- all in an effort to successfully wean off Prednisone I am going to try just about everything I can think of!

Meesh
Diagnosed UC April 27, 2006
Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, starting yet another taper attempt, 1/30, 30 mg.
12/1/07 - 12/29/07 weekly Venofer (iron sucrose) injections; 9 mg Entocourt EC; Xanax as needed; Lexipro 10 mg, Rowesa; Asacol; Colazal three 750 mg capsules 3X day; Bad reactions: Imuran (2/07)


relativelyquantum
Regular Member


Date Joined Sep 2007
Total Posts : 196
   Posted 2/3/2008 4:29 PM (GMT -7)   

Meesh, I know what you mean.  Strengthening the immune system is quite vague, in fact.  The idea is for the immune system to strengthen the function of the immune system to work "properly", which may involve communicating with the regulating portion of our immune system in such a way that may restore the order of the rest of the immune system (maybe by dendritic cells to the lymphocytes).  I am way over simplifying, but the immune system is more complex than this.  The inflammation is more likely due to the phagocytes or some other destroying type of cell.  Click on my homepage in my profile for more info on this: I uploaded a chapter on it as an attachment or just send me an email.


Pancolitis '04
Yet to ever go into remission, additional Flare-up since Aug 12th
Time off work since 10/17.  Returned to work on 1/11 and doing much better.
 
On Lialda (2/dy), Probiotics, Fish Oil, Folic Acid, Alpha Lipoic Acid, Borage Oil, Iron


NuffinButtTrouble
Veteran Member


Date Joined Mar 2007
Total Posts : 674
   Posted 2/3/2008 7:47 PM (GMT -7)   
Meesh,

I was on Remicade when i first took Culturelle and it really helped and still helps now that I'm off it...but I guess everyone is different. Culturelle is simply a probiotic, good bacteria so it shouldn't cause any problems other than minor bloating or stomach upset (which has never happened to me, by the way.)

NBT
Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
Currently taking herbal meds in the search to regain full health.


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 3770
   Posted 2/3/2008 10:05 PM (GMT -7)   
I started bleeding again 2 days after starting the Culturelle. Not sure if there's a connection with the Culturelle or if it was because I was tapering my Rowasa? Probably the latter, which really sucks because I used to be able to go weeks without it.

Meesh - I think most probiotics say they can strengthen the immune system. I know DanActive (probiotic drink) and Naked probiotic smoothie both say this. Good question though, but I don't know the answer.


24 years old
Diagnosed with UC March 2007; yet to go into remission
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D); fish oil


quincy
Elite Member


Date Joined May 2003
Total Posts : 25893
   Posted 2/4/2008 1:18 AM (GMT -7)   
Regarding probiotics and Culturelle, the immune system they're referring to is the digestive tract immune system. It doesn't rev it up or increase it, it makes sure that the proper bacterial balance (flora) is maintained....with proper bacterial maintenance (which is part of the digestive immune system), the mucosal layer will be protected and won't be breached by invaders that can enter our bodies via the digestive tract.

Culturelle seems a well balanced and effective probiotic.

quincy
*Heather*Status: mini flare Dec 28... tapered to every second night
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol (6 daily) + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals/supplements 
~Probiotic 3(Natural Factors Protec) bedtime + 1 (Primadophilus Reuteri) occasionally
~multi-digestive enzymes as needed ....bromelain 1 - 2x daily
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 3770
   Posted 2/7/2008 2:33 PM (GMT -7)   
So, after seeing blood, I quit taking the Culturelle for a few days and was fine. I took another one last night, and today I saw more blood than I did last time...like blood dripping in the toilet. I don't think a probiotic would do this though, would it? Anybody have input/similar experiences? I have a call in to my GI...
24 years old
Diagnosed with UC March 2007; yet to go into remission
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D)


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 2/7/2008 2:48 PM (GMT -7)   
I've been taking it since Sunday, so just five days so far, and aside from some pretty loud and humorous gas the first couple of days (it's settled down) I feel great. I dropped the Pred down to 20 mg yesterday and will be there for one week, then dropping down to 15 mg -- that's when I typically start having problems with my taper, so hopefully the Culturelle will make a difference. For now I feel very normal, dare I say ... in remission?
Diagnosed UC April 27, 2006
Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, starting yet another taper attempt, 1/30, 30 mg. Daily supplements: multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums
12/1/07 - 12/29/07 weekly Venofer (iron sucrose) injections; 9 mg Entocourt EC; Xanax as needed; Lexipro 10 mg, Rowesa; Asacol; Colazal three 750 mg capsules 3X day; Bad reactions: Imuran (2/07)


relativelyquantum
Regular Member


Date Joined Sep 2007
Total Posts : 196
   Posted 2/7/2008 7:08 PM (GMT -7)   
My initial thoughts are:
a.) Herx reaction - temporary reaction, worsening symptoms
b.) Some additives in culturelle or other probiotics that are not agreeing with you
c.) Some other change you've made (you mentioned something about going on and off of Rowasa)
d.) If you have hemorrhoids, which can occationally bleed
 
Hopefully with a process of elimination, something will become evident.  Maybe you'll have good luck with pro-bio, which seemed to stop other ppl's blood and I believe it did the same for me.  Try giving them a call, others have gotten a free sample out of it!  Just wanted to throw that out there as another option.
Pancolitis '04
Yet to ever go into remission, additional Flare-up since Aug 12th
Time off work since 10/17.  Returned to work on 1/11 and doing much better.
 
On Lialda (2/dy), Probiotics, Fish Oil, Folic Acid, Alpha Lipoic Acid, Borage Oil, Iron


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 3770
   Posted 2/7/2008 9:47 PM (GMT -7)   
Good to hear it's working well for you, Meesh. Good luck with the pred taper!

Matt - Thanks for the thoughts. Yeah, I did taper Rowasa for about a week. I'm back to doing them nightly now since about 3-4 days ago, so that could definitely be it. I don't have any hemorrhoids that I know of...never have had one. I did drink some alcohol last Saturday, but it didn't seem to affect my UC, at least it didn't right away. I saw no blood the day after drinking, so I don't know. Maybe my symptoms are totally unrelated to the Culturelle...I don't really think a probiotic that has been tested so much would cause this.
24 years old
Diagnosed with UC March 2007; yet to go into remission
Asacol 4 tablets 3x/day
Rowasa (generic) - daily
Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D)


relativelyquantum
Regular Member


Date Joined Sep 2007
Total Posts : 196
   Posted 2/8/2008 5:57 PM (GMT -7)   
I wouldn't think it was Culturelle, but who knows. And sometimes this stuff just happens. It is really hard to know unless there is a lot of control in the study, which is hard when you have to study yourself and see if any little factor is really significant or not. This is true with the hard sciences, in my experience, but far more difficult when it comes to the complex biological systems, such as ourselves. I am a little too impatient with the elimination process, though it is the proper way to do it. Occationally I get blood and mucous when nothing seemed to change. But then again I get immediately concerned and then make sure I haven't been slacking on my probiotics and diet, just in case.

I think on the other post, everyone is giving good advice. Worth pursuing a better GI, it sounds. I didn't try the rectal steroids, only the pills, and the side effects sucked and only seemed to help when I was in a more severe state. The foam sounds like a more mild and effective treatment with little side effects. Still curious as to why this happened all of a sudden, if there is clear answer.

Sorry to hear you are going through all this. The nice part is that you have friends that care and can actually understand :)


Pancolitis '04
Yet to ever go into remission, additional Flare-up since Aug 12th
Time off work since 10/17.  Returned to work on 1/11 and doing much better.
 
On Lialda (2/dy), Probiotics, Fish Oil, Folic Acid, Alpha Lipoic Acid, Borage Oil, Iron


Forgiven & Loved
New Member


Date Joined Jul 2005
Total Posts : 13
   Posted 2/8/2008 8:17 PM (GMT -7)   
I have been taking Culturelle faithfully for about a year now (I get it for about $25 for 30 pills at Earthfare in the refridgerated section - it is supposed to be refridgerated).  I swear, it is the one thing that I know has helped me.  I'm still doing the same meds that are in my signature and sometimes I'm tempted to quit the others and just do the Culturelle!  The Lialda/Asacol/Colazal/Rowasa etc. do not seem to help me at all.  The only thing that puts me in total remission is the EVIL prednisone - yuck!  However, I haven't had to go on pred for almost a whole year, not in total remission, but, hey, I'll take it!
Take care!
UCinTN

hana24
Regular Member


Date Joined Dec 2007
Total Posts : 354
   Posted 2/9/2008 12:05 AM (GMT -7)   
I think I only pay $17 at walmart - a little cheaper if you have on close enough and you don't mind shopping at walmart. I would shop somewhere else if I could afford it but thats how it goes sometimes...
Jessica 26/F
Asacol 4pills /three times a day(from 2 pills/ three times a day)
Prednisone 40Mg/day taper every 5 days(at 20 mg currently)
Culturelle once daily/ three times a day
Tried (Entorcort EC 9ml/day)

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