H Pylori and UC flare!! - HealingWell.com Forum

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Numb78
Regular Member

Date Joined Sep 2007
Total Posts : 60

Posted 1/7/2008 7:05 AM (GMT -7)

I've currently been dealing with a 3 month long flare up and now after a gastroscopy and colonoscopy I've been told I have a H Pylori infection. My doc perscribed Flagyl and another antibiotic as well as a PPI drug.

My question is for those who have ever been on Flagyl what side effects were experienced and how bad were they? I'm seriously considering stopping the antibiotics as I've experienced some nasty side effects.. numbness in hands, nausea, can't sleep....

Sorry this doesn't make much sense but I need to vent and I haven't slept in two days...

Another UC wife
Regular Member

Date Joined Jun 2007
Total Posts : 493

Posted 1/7/2008 7:16 AM (GMT -7)

Thank you for posing this question....I am very interested in the responses as hubby has it too. The Dr wanted to wait until the prednisone was weaned off totally and our cruise is over with before starting him on his regimine for treatment. I also had a blood test done to see if I also have it. If so we will both start the treatment simultaneously. We see her Feb 4th and I will now have your info and others' responses to be more prepared with.

(I am especially annoyed as this was discovered in July 06 by a different doctor from an endoscopy and LEFT UNTREATED unbeknownst to us. The Mayo Clinic Dr discovered it when examining his records and asked us to be sure to follow up on it to see if by chance he was treated and we forgot which I doubted. Untreated it doesn't go away as we now know. I am certainly ticked off as this would have been treated and done and gone away with long before the UC stuff occurred. Now to have to be on a bunch of additional meds to rid him of this and maybe mess with the progress of his UC definitely has me very angry. I am praying that these meds don't put him in a real tailspin.)

One big question for the HW community with experience relating to this is the Pro Biotic issue and trying to keep a balance of the gut flora that might be compromised by the anti biotics????

61 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 (now UC) & hospitalized 5/07-currently heading towards a remission. Osteopena of spine from prednisone DX 8/07 Oct 07 feeling quite normal most days. 150mg Imuran ~~Zero mg prednisone~~ 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 1X day, DanActive, chewable calcium, fiber capsule 1x day, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 40 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Cortifoam enema PM, Canasa suppositiry AM, folic acid 1mg, Fosamax 1x month

Sideshowbob
Veteran Member

Date Joined Sep 2005
Total Posts : 691

Posted 1/7/2008 9:51 AM (GMT -7)

I had the h.pylori last year and took a triple dose of antibiotics. i also was on prednisone. no side effects from the antibiotics, if anything i actually got out of my flare while on them. but i had other complications so its hard to judge all what each drug did, etc.

35 year old Male, Husband, Father of the best three kids in the universe.
First Flare was February 2005. Diagnosed June 2005-left-sided Colitis, suspect it has since spread. Started 4000 mg Oral Salofalk June 2005-stopped January 2007. Remission until November 2006. Been in a flare to various degrees since November 2006 to February 2007. Currently in remission.
Presently on 0 mg Prednisone-down from 60 mg!
Weekly 4000 mg Salofalk enemas.
Daily 4000 mg Salofalk oral.
Started Omeprazole 20 mg February 2007.
Co-Moderator-UC Forum

MitzMN
Veteran Member

Date Joined Feb 2007
Total Posts : 590

Posted 1/7/2008 11:46 AM (GMT -7)

I had no side effects from Flagyl except the metalic taste, and I think I got thrush afterwards (though I could be confusing that with a different time and a different drug.)

Whatever you do, do NOT drink alcohol while on Flagyl. You will get violently ill if you do.

Mitz

Sporadic proctitis since about 1985. Mother had J-pouch surgery 1983.
DX'd with clostridium difficile in 2000. Pred, two courses of Flagyl, then Vancomycin finally got rid of it. 2001 colonoscopy dx'd left-sided UC. . Treated with prednisone, Rowasa, Asacol. Asacol not working, switched to Imuran. Three small flares since in 2002, 2005, and 2007, brought under control with steroid and Rowasa enemas. Lap Chole performed October 26, 2007, after gall bladder attack in June, '07.
Daily meds: 100 mg Azathioprine and 225 mg Effexor XR (for chronic, longstanding depression), many vitamins and Primadophilus Reuteri

callalily22
Veteran Member

Date Joined Feb 2005
Total Posts : 1598

Posted 1/7/2008 1:06 PM (GMT -7)

Ooooh h-pylori is fun stuff....I had this prior to being diagnosed with UC. My primary dr gave me antibiotics and I really started to feel better and then we were going on vacation for a couple days and we asked if we could continue the antibiotics for a couple more days. He said it was fine but be careful beause it will wipe everything out. Well, it did and to this day my mom is convinced that that was what caused my UC. Anyway, I don't remember any side effects besides the metal taste (which was completely disgusting...) If you are going to stop the antibiotic, definitely be sure to tell your doctor, they might be able to prescribe something else?
Good luck! :)

Sam

Diagnosed in September 2004

Currently on...4800mg Asacol, 25mg Elavil, Ortho Tricyclen and some immodium

"If you don't like something, change it. If you can't change it, change your attitude"

Maya Angelou

relativelyquantum
Regular Member

Date Joined Sep 2007
Total Posts : 196

Posted 1/8/2008 2:18 PM (GMT -7)

Some time ago I posted something on what probiotic(s) to take and I think it was directed to AnotherUCWife, as a matter of fact (maybe a search in this forum on some of the keywords). I believe the gist of it was that studies have shown that probiotics with the antibiotic therapy can be very effective. The study looked at a particular probiotic used in Europe and the equivalent is found in the probiotic milk drink called "Dan Active". Sadly there is often a bunch of sugar in most of these mainstream products, but it may be worthwhile compromise and I think the "plain" version has less added sugar. Try other probiotics too, because a variety may also help and it will lessen the symptoms the antibiotics may cause.

I just posted something similar on the post "Bacteria rebound after antibiotics for UC" that might be helpful.

Pancolitis '04

Yet to ever go into remission, additional Flare-up since Aug 12th

Time off work since 10/17.

Finally seeing some improvement; likely was complicated with a digestional yeast overgrowth.

~~On Lialda (2/dy),~~ Probiotics, Fish Oil, Folic Acid, Alpha Lipoic Acid, Borage Oil

princesscolon
Veteran Member

Date Joined Apr 2006
Total Posts : 707

Posted 1/8/2008 3:44 PM (GMT -7)

I have taken Flagyl several times and always feel good when I am on it. I think that is the first time I can say that about any medication.

Diagnosed with Left-sided Ulcerative Colitis 1995 at 15

Tried: Prednisone, Rowasa & Hydrocortisone Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Canasa, Enotcort, Colazol, Proctocort, Anamantle, etc...

Diagnosed with Ulcerative Proctitis with almost rectovaginal fistula in 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed with Psoriatic Arthritis & Fibromyalgia Current meds: ~~Remicade 700mgs every 6 wks~~ (had reaction, will start Humira Jan 29) Clorazepate, Proctofoam HC, Glucosamine 500, Vitamin B, Lomotil as needed, Darvocet, Tylenol pm

Sara14
Veteran Member

Date Joined Mar 2007
Total Posts : 1787

Posted 1/8/2008 6:54 PM (GMT -7)

When I first started Asacol, I was also on a 10-day course of Flagyl, so I'm not sure what side effects were from which drug. I had mild headaches that would come and go throughout the day for about 1 1/2 to 2 weeks. I had the horrible metallic taste...everything tasted disgusting, even water. I got dizzy and lightheaded often. If you're having numbness in your handss you should talk to your doctor.

23 years old
Diagnosed with UC March 2007; yet to go into remission
Current inflamation in the rectum
Asacol 4 tablets 3x/day

Rowasa (generic) - daily

Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D)

Numb78
Regular Member

Date Joined Sep 2007
Total Posts : 60

Posted 1/8/2008 6:59 PM (GMT -7)

Well the side effects just got too bad so my doc advised that I stop the meds. I stopped the Flagyl 2 days ago and I'm still dealing with the side effects. I have a spots of pain throughout my stomach, sore jaw, dizziness, muscle aches, and a general feeling of unrest. I've taken plenty of antibiotics in my life but I've never dealt with anything like this before. I would be happy to be back were I was 2 weeks ago, just dealing with a flare up. I've been flaring for 3 months and now I feel worse then I have the entire 3 months.

Currently in a flare since summer 07.
Current Meds: 35mg Pred, 2000mg salofalk, calcium supplements
Just about to start 100mg Imuran.

Sara14
Veteran Member

Date Joined Mar 2007
Total Posts : 1787

Posted 1/8/2008 9:45 PM (GMT -7)

Sorry to hear that the side effects are persisting. Is your doctor going to put you on a different antibiotic to get rid of the H. Pylori? Hope you feel better soon.

23 years old
Diagnosed with UC March 2007; yet to go into remission
Current inflamation in the rectum
Asacol 4 tablets 3x/day

Rowasa (generic) - daily

Nature's Way Primadophilus Reuteri 1/day; Chewable multivitamin; Metamucil; Viactiv (Calcium and Vit. D)

Another UC wife
Regular Member

Date Joined Jun 2007
Total Posts : 493

Posted 1/8/2008 10:09 PM (GMT -7)

thanks for the responses so far....certainly not looking forward to Flagyl which sounds like the antibiotic needed to treat this in particular..I'm not sure the results of my test if we will be doing this on the "buddy plan" Hate to see him have to go through this now since he has more better days than bad. Maybe he'll get lucky and be able to tolerate this and not have it set him back.

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