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lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1010
   Posted 2/17/2008 11:03 AM (GMT -7)   
Question for all of you who have tried the SCD diet.  After 2 days on the diet I am feeling worse than when I started.  My stools are very liquidy (but not quite diahhrea), and I am needing to go much more than "normal", which is already a lot.  Is this normal, do I need time to adjust to the diet or is this a sign that I should scrap it and go back to eating my normal way.  I was so hoping this would be my saving grace, but I am so discouraged right now.  Have you all ever felt like it is never going to get any better?  I am so frusterated.  I can not go on the Remicade right now because my job is in medical research and I work with Histoplasma, so I can't take the Remicade without getting another job, and my doc doesn't want to do more prednisone.  (I just weaned off a dose in late December).  I love and trust my doc, but do I need a second opinion?  I feel so lousy that I don't want to leave the house, and that is making me feel like a crappy mom and wife.....any encouragement???
diagnosed with left-sided UC in 1997.
Currently on 10mg Prednisone
12 caps of colazal
rowasa enema nightly
35 years old, white, female


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 2/17/2008 11:53 AM (GMT -7)   
Can you tell me what you are eating?  I have been on the scd for 5-6 weeks and am doing great on it.  i am on stage 1 and stage 2 foods and have 2 bm/day and they are formed.  the diet is working great, but i wasn't doing well on it the first three weeks because i was eating too many foods that i couldn't tolerate(ie yogurt and nut breads).
 
my diet for the past two weeks has consisted of meats, cooked fruits(pears, apples, pinepples), hard cheese, and cooked vegetables.  i am also able to tolerate orange and grape juice.  i would advise sticking to the intro diet for 5 days, then moving to stage 1 foods according to pecanbread.com.
 
 
i was on 40 mg of prednisone for three weeks straight and it wasn't making a dent in my symptoms.  during my last visit, my gi doc prescribed me 6-mp which i refused to take because of the numerous side effects.  i decided to give the diet a one month trial and here i am doing very well.  i have diffuse colitis throughout my colon, and was going 8-9 a day. 
 
the diet is tough to follow especially those first couple weeks because you feel deprived, but i don't miss the bread and pasta too much these days.  plus, i feel fantastic.  it beats being chained to a toilet. 
Pharmacy Student, Midwestern University
Class of 2009
 
I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.
 
If you have any questions about medications/drugs, feel free to contact me here privately.  I will attempt to answer them ASAP.
 
3200 mg Asacol
 
HAVE YOU CONSIDERED THE SCD DIET?  IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1010
   Posted 2/17/2008 1:21 PM (GMT -7)   
I am eating the nut muffins. 1 a day with cultured butter, the banana cake ( for breakfast a small peice). I eat meat (usually chicken) for lunch and dinner with cooked veggies....(usually peas or green beans) I HATE veggies. I am trying though. I do eat raw fruit in the mornings with the banana cake. Sometimes in with lunch. I have only been on the diet for 2 days. I only drink grape juice and orange juice and water. I just started the products made with the nut flour today, so I don't think that is it. I wonder if my body was reacting to the lack of sugar....a staple in my previous diet??
diagnosed with left-sided UC in 1997.
Currently on 10mg Prednisone
12 caps of colazal
rowasa enema nightly
35 years old, white, female


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 2/17/2008 2:25 PM (GMT -7)   
well let me correct several mistakes you are making so far and ones by the way that i did as well. nut muffins aren't to be eaten until well into the diet, which is at stage 5 or thereafter. cooked veggies may be causing you the diarrhea, and aren't to be eaten until stage 2 or stage 3. you do need to give your colon time to heal particularly if you are flaring.

you really need to start with the intro diet which consists of chicken soup(you can find the recipe on pecanbread.com or on the breaking the vicious cycle website), roasted/or broiled meats, and grape juice. you may even want to attempt eating boiled pears or boiled apples to have some sort of carb source. i anticipate you seeing good results in a week with this diet. after thatn you can move to stage 2.

please look at pecanbread.com and check out the stages.

the nut flours maybe causing you diarrhea especially if they have honey in them. and RAW fruit is out at this stage particularly if you are flaring. i made the mistake of eating everything that was legal according to BTVC book and suffered for three weeks. after following it according to the guidelines of pecanbread.com(starting at stage 1 and stage 2 foods) i am on the way to recovery.
Pharmacy Student, Midwestern University
Class of 2009
 
I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.
 
If you have any questions about medications/drugs, feel free to contact me here privately.  I will attempt to answer them ASAP.
 
3200 mg Asacol
 
HAVE YOU CONSIDERED THE SCD DIET?  IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!


chili123
Regular Member


Date Joined Jan 2007
Total Posts : 300
   Posted 2/17/2008 3:19 PM (GMT -7)   
Everybody is different and I did the SCD diet for like 6-7 mths and still do it but I use to be 100%.  I have certainly figured out that diet plays a huge part (atleast for me) in my UC symptoms.  I cannot drink orange juice and grape juice gives me a belly ache.  No way on banana's so there are a few things that you are eating that even when I was perfect (symptom free) that if I ate it....I would have symptoms.  My advice is to really eliminate some foods and then try one at a time (even if they are on the SCD diet).  Just because it is on the diet does not mean that you will not have adverse reactions to it.  I ate very bland foods when I 1st started the diet.   I did do the chicken noodles soup which, as I recall, is suppose to clean out your system.  I do think that the SCD strongly encourages you to follow it 100% to expect to see any improvemnt.  Good luck......I hope you find success with it.
Pancolitis - July 2006
Medications:  Predisone - 5mg ,asacol - 12 tablets per day
Supplements:  multi-vit, calcium, folic acid
My wish:  get off prednsione....been on straight since 8/2006


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1190
   Posted 2/17/2008 5:39 PM (GMT -7)   
Could be the dreaded "Herxheimer's response"...the die-off of fungal toxins in your body. Could be a tell-tale sign your symptoms are fungal related. I had terrible die-off symptoms...major D, tired, achy, flu-like symptoms for a few days and then felt so much better. Hang in there. If you do start feeling better within the week, then you'll know. I'm thinking the grape juice/orange juice has a lot of sugar. Could be the culprit. Nuts can also be affecting you. Why not just drink lots of water with lemon?

lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1010
   Posted 2/17/2008 8:13 PM (GMT -7)   
Thank you all for your great advice. I read the book and found the intro diet (very hard for me, very restrictive)but saw none of the stages in the book. So, thank you for giving me the pecanbread website. I read another book before breaking the vicious cycle called The Self-help Way to Treat Colitis and Other IBS Conditions. In that book, it is recommended that you remove all sucrose, fructose, lactose, sorbitol and mannitol. I was going to follow that diet but decided on the SCD diet instead basically because I can eat fruit. I guess I need to remove fruit for a while. I will try the water alone for a couple of weeks as well. Thank you all so much for your advice. If you can think of anything else that I need to change, please let me know.
diagnosed with left-sided UC in 1997.
Currently on 10mg Prednisone
12 caps of colazal
rowasa enema nightly
35 years old, white, female


blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 2/17/2008 8:53 PM (GMT -7)   
you definitely need some carb source because you're body could go into ketogenic shock. the grape juice diluted should be good because your small intestine has no problem absorbing it. it's the complex carbs like pasta and rice that give me problems. check out pecanbread.com and do stage 1 foods. i can almost guarantee you'll see results soon!!!!

keep us posted.
Pharmacy Student, Midwestern University
Class of 2009
 
I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.
 
If you have any questions about medications/drugs, feel free to contact me here privately.  I will attempt to answer them ASAP.
 
3200 mg Asacol
 
HAVE YOU CONSIDERED THE SCD DIET?  IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!


lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1010
   Posted 2/18/2008 7:15 AM (GMT -7)   
HOw long did it take you to see results?  I'm trying to be patient.

diagnosed with left-sided UC in 1997.
Currently on 10mg Prednisone
12 caps of colazal
rowasa enema nightly
35 years old, white, female


kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1190
   Posted 2/18/2008 8:16 AM (GMT -7)   
Within two weeks on a similar diet (antifungal diet), I was significantly better. It is a lifestyle change for me, and I will never be able to throw caution to the wind again. I still need to be aware what goes into my mouth, as it does have a direct effect if I eat too much sugar, grains, yeast. You may want to look into taking probiotics eventually, if you aren't already. They have helped me, as well. How long will you be on the stage 1 diet?

blueclassring
Regular Member


Date Joined Feb 2007
Total Posts : 385
   Posted 2/18/2008 11:31 AM (GMT -7)   
it really took 4 weeks because i wasn't doing the diet right. after a week of being on stage 1 and doing the diet right, my stools decreased and were somewhat formed. i
Pharmacy Student, Midwestern University
Class of 2009
 
I decided to become a pharmacist to understand these drugs, and to help fellow sufferers of IBD.
 
If you have any questions about medications/drugs, feel free to contact me here privately.  I will attempt to answer them ASAP.
 
3200 mg Asacol
 
HAVE YOU CONSIDERED THE SCD DIET?  IT HAS PUT ME IN REMISSION AND I PLAN ON GETTING OFF THE ASACOL SOON TOO!


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 2/18/2008 12:02 PM (GMT -7)   
Sounds like the almond flour is your main culprit at the moment. Alot of us make that mistake... we're virtually addicted to baked goodies so when we get on the SCD, we go crazy with the almond flour and it's too much, too soon.
 
I also think the diet has to be tweaked for individual food reactions. I could never tolerate the wonderful homemade yogurt that's such a huge part of the diet. I tried everything before concluding I just couldn't handle any kind of dairy. I also had to eliminate all but very small amounts of cheese.
 
It's a frustrating process, but it's going to take time for you to figure out which allowable foods are your "safe" foods. Once you have a base of safe foods to work from, then you can start slowly adding in the allowables that can be more difficult to digest like almond flour, raw veggies and beans. For me, the safe foods are tender white meat of chicken or turkey - baked, grilled or broiled, scrambled eggs, soft cooked green beans and carrots, soft cooked winter and summer squashes. Baked pears and apples and very ripe bananas. Fruits and veggies need to be peeled. Nut butters are easier to digest than whole nuts. Supplementing with healthy oils - Udo's, fish, flax and olive will help you feel less hungry.
 
For some reason, I never did well on the recommended beginning diet. Too much red meat, though allowable, seems to disagree with me and some folks have reactions to eggs. Figure out what works for you and avoid your personal problem foods. Keeping a daily food journal can be a big help in tracking reactions.
Diagnosed with ulcerative colitis spring 1999.
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.
 
 

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