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KSpace
Regular Member


Date Joined Jan 2008
Total Posts : 72
   Posted 2/24/2008 3:32 PM (GMT -6)   
Hi guys, Just wondering whats the longest you have been on Lialda. I've been on it for about 3 weeks so far and it has certainly helped. I was wondering if anyone has been on it for a prolonged period of time (>8 weeks).
15 cm left sided colitis
Currently on Cortenema and Lialda since Feb '08
Lialda has been amazing!


demchim
Regular Member


Date Joined Dec 2005
Total Posts : 124
   Posted 2/24/2008 3:58 PM (GMT -6)   
I just started it a few weeks ago.
I was wondering the same thing about using it for an extended period of time. I previously read that it is used for induction of remission but didn't hear anything about maintenance...and studies have only been done for 8 weeks max. Theoretically, it's the same active ingredient (mesalamine) as Asacol, Pentasa, etc...just a different delivery method so it shouldn't make a difference...but who knows.

jblue65
Regular Member


Date Joined Jan 2008
Total Posts : 381
   Posted 2/24/2008 4:24 PM (GMT -6)   
I have been on Lialda for 5 months- two tablets a day- although I was taking 2 tablets twice a day.
 
I think it has helped even though I am on so much other medication I am not sure what has helped the most
 
 
Jackie 42yr. old
Pancolitis - dx Jan. 07
 
Remicade- 5th infusion April 3rd
Lialda 2 tabs
 
Protonix, 6MP,
 
Lexapro, Synthroid
 
 


cycling_sasquatch
Regular Member


Date Joined May 2007
Total Posts : 162
   Posted 2/24/2008 6:26 PM (GMT -6)   
I 4 LIalda a day for about 8 months. I quit (per DR orders) because it didn't seem to be doing any good for me. Never had any side effects from it.
Dx Left-sided UC Dec. 2006
Currently:
Azathioprine 200mg/day
Prednisone 2.5; 7.5; 10/7.5mg(trying to taper-started at 60 6/1)
Lialda 2/day
Multivitamin, B complex vit., fish oil, calcium, fiber supplement, probiotic


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 2/24/2008 9:10 PM (GMT -6)   
I've been taking four a day for three months. Lialda has been somewhat effective, but never got me completely into remission. I have Remicade to thank for getting me into remission.
Diagnosed UC April 27, 2006
Remicade infusions: 7/21/07; 8/18/07; 10/13/07; 12/15/97; 1/26/08
Lialda, 4 tabs in the morning; Protonix; Prednisone 4/27/06-present, starting yet another taper attempt, down to 15/10 mg alternating daily. Daily supplements: multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums
12/1 - 12/29/07 weekly Venofer (iron) injections; 9 mg Entocourt EC; Xanax as needed; Lexipro 10 mg, Rowesa; Asacol; Colazal three 750 mg capsules 3X day; Bad reactions: Imuran (2/07)


AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 2/24/2008 9:34 PM (GMT -6)   
On Lialda since March and increased to 4 pills of Lialda in August. No problems with it and very grateful it exists. I, too, was worried when I read the clinical trials that stopped after 8 weeks! Believe you me, I had that date circled on the calander and NOTHING bad happened afterwards! ha
AlabamaBabs
Pancolitis diagnosed 5/07 
4 Lialda/day since 8/01/07
Started 40 mg. Prednisone on 9/16/07 and DONE as of 11/26/07!Canasa suppositories 1000mg 2X/day as of 1/22/08
 


KSpace
Regular Member


Date Joined Jan 2008
Total Posts : 72
   Posted 2/25/2008 2:42 PM (GMT -6)   
AlabamaBabs, that's pretty funny that you marked the date! Seems like not too many people on this forum are on Lialda. We'll have to keep a close eye and hope it goes well. Beyond 8 weeks, it's anyone's guess. Right now I'm on 4 tabs a day, hoping to eventually cut that down to 2 tabs... but first have to taper off of the Cortenema. Hopefully within the next week!
15 cm left sided colitis
Currently on Cortenema and Lialda since Feb '08
Lialda has been amazing!


OkieStateGirl
Regular Member


Date Joined Jan 2005
Total Posts : 81
   Posted 2/26/2008 12:59 PM (GMT -6)   
Hi, I've been on Lialda for about 8 months now with great success! I have no noticable side effects.
Jennifer, 21
Diagnosed 2002-age 16
 
Imuran 100 mg
Lialda 2.4 gm
Prilosec 20 mg
 


gdfairy
Regular Member


Date Joined Jun 2007
Total Posts : 86
   Posted 2/26/2008 2:08 PM (GMT -6)   
I've been on Dipentum, Colzal and Asacol and they helped but only somewhat. I switched to Lialda and I've been on it for about 5 months at 3 in the morning.  The first few months were fantastic--I went into complete remission on it.  I thought I had found the answer, but in January I went into a serious flare for some reason and the Lialda stopped working.  I'm still on it now, at 4 tabs a day this time, but I had to also go on prednisone for the past 3 weeks--still having problems and I have not reached remission.  I didn't experience any side effects.
Left sided UC almost 4 years
Not completely over flare since beginning of January
Current Meds: Lialda 3 in the morning, one at night
Prednisone 25mg still tapering down from 40mg
Cortifoam nightly
Dicyclomine 20mg--only anti-spasmotic that actually worked
Multi Vitamin/Mineral/Fish oil, Biotin, Extra Cal/Mag/D
GAS X


perach
Regular Member


Date Joined Apr 2007
Total Posts : 116
   Posted 2/26/2008 2:13 PM (GMT -6)   
I have been on Lialda for about six months and it helps keep me in remission, though it certainly did not put me in remission, for that I needed more medication. My understanding is that (as long as you have regular blood tests to monitor your liver) you can stay on Lialda forever. It's the same medicine as Asacol (mesalamine), just a different isotope.
-currently having a flare
-prednisone , rowasa enema, Lialda (4 pills 1 time a day), canasa, probiotic, multivitamin, calcium with vitamin d, iron


Cat72
Regular Member


Date Joined Oct 2006
Total Posts : 66
   Posted 2/28/2008 1:21 PM (GMT -6)   
I've been on Lialda for about 9 months now. At first I didn't think it was working, but my doctor said to stay on it. He said I can take 2 pills in the morning and two at night if I thought it helped. So that is what I've been doing and it seems to be working fine - I feel really good (I was taking 12 pills a day of Asacol).
 Lialda - 4 pills (once per day)
Asacol - 12 pills (4 pills/3X per day)


NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 3/7/2008 4:23 PM (GMT -6)   
I have been on Lialda now for about 4 days. I feel MUCH better, but the gas is awful! I feel like I could blow a hole thru a side of a boat! Have you guys experienced the gas and if so, what did you do to handle it (besides running outside every 1/2 hour to cut loose)?
Norene
Age: 48
location: Seattle, Wa
Diagnosed with UC in June 2006
Medications: Lialda 4 pills once a day, Canasa supps as needed
Supplements: vitamins, probiotics
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis
No flares since Jan, 2007


AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 3/7/2008 8:00 PM (GMT -6)   
LOL. It's true. Lialda caused me lots of gas, initially, too. I just made many trips to the bathroom to let it go and go and go and go! I would get worried that I was go ing to pass more than gas and usually it was just gas once the flare was reduced. Once I was on it for awhile, the gas decreased and only comes back when I'm in a flare-zone.
AlabamaBabs
Pancolitis diagnosed 5/07 and started 2 Lialda/day;
increased to 4 Lialda/day since 8/01/07
Started 40 mg. Prednisone on 9/16/07 and DONE as of 11/26/07!Canasa suppositories 1000mg as needed
 


MissMindy
Regular Member


Date Joined Nov 2007
Total Posts : 27
   Posted 3/8/2008 3:58 AM (GMT -6)   
I have been on Lialda for about 5 months now. I am completly in remission. So far the only side effect I have experienced while taking the medication is hair loss. Which I am currently dealing with right now. Hopefully taking biotin will help with the situation. I just bought it today. So i will let you know how everything works out.
------------------------------------------------------------------------------------
A 20 year old girl that is newly diagnosed
Yet she still is determined to go out and live her life to the fullest...
Diagnosed 10/30/2007
Currently taking:
Lilalda
Prednisone -NO MORE! :)


KSpace
Regular Member


Date Joined Jan 2008
Total Posts : 72
   Posted 3/8/2008 8:48 AM (GMT -6)   
I've been on Lialda for about 6weeks, and yes I also experience a lot of gas. The great thing is that now, being on it a while, I know its gas and not an impending poop, so I feel comfortable letting it out. Mine tend to be silent, but suprisingly not deadly (whew!) so I haven't had to run to the bathroom every time. It has helped a lot.

I know, too much info, sorry.
15 cm left sided colitis
Currently on Cortenema and Lialda since Feb '08
Lialda has been amazing!


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 3/8/2008 8:10 PM (GMT -6)   
I've been on Lialda for a week now, I can't tell a difference just yet - is it too soon? When did everyone start to feel it working?

AlabamaBabs
Regular Member


Date Joined Jul 2007
Total Posts : 172
   Posted 3/8/2008 8:15 PM (GMT -6)   
I want to say I felt better within a week or two, at the very most. How many are you taking per day? I started off with 2 and increased to 4 later on. What did your GI tell you to expect? Hang in there!
AlabamaBabs
Pancolitis diagnosed 5/07 and started 2 Lialda/day;
increased to 4 Lialda/day since 8/01/07
Started 40 mg. Prednisone on 9/16/07 and DONE as of 11/26/07!Canasa suppositories 1000mg as needed
 


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 3/8/2008 8:30 PM (GMT -6)   
I'm taking 3 Lialdas per day. I didn't really get to talk to my GI about it, he gave me some samples and a Rx for it right after my colonoscopy. I'm going for a follow up in 2 weeks. I would say that my trips to the bathroom have been reduced so that has to mean something.

WindsofCreation
Regular Member


Date Joined Feb 2008
Total Posts : 30
   Posted 3/8/2008 10:46 PM (GMT -6)   
I was taking Asacol and was losing a ton of hair.I told my doctor about it and he told me to try Lialda. I seem to still be losing hair. I am thinking aobut swtiching to Colazol. Help anyone?

Rousel
New Member


Date Joined Mar 2008
Total Posts : 11
   Posted 3/9/2008 10:59 AM (GMT -6)   
I've suffered hair loss too while on Asacol.  The good news, it all came back even though I've continued to use 12/400mg a day.  I actually had fine baby hair with ringlets come in at the back of my neck, new hair came in wavey instead of the straight hair I've had as an adult.

KSpace
Regular Member


Date Joined Jan 2008
Total Posts : 72
   Posted 3/9/2008 8:56 PM (GMT -6)   
I started feeling better on Lialda in about a week. That's when I noticed that I wasn't having any more blood/mucous/urgency. I couldn't believe how quickly it began to work for me. So far its going well. I want to try phosphatidylcholine, but haven't figured out which store to go to get the delayed release form. I'm hesitant to buy it online.
15 cm left sided colitis
Now tapering Cortenema and alternating with Rowasa.
Lialda 4.8 gms since Feb '08
Lialda has been amazing!
I think I'm in remission. :)


ColitisIsTheWorst
Regular Member


Date Joined Mar 2008
Total Posts : 36
   Posted 3/9/2008 10:08 PM (GMT -6)   
Hey all, I find that fennel tea really helps absorb gas, I just put a heapfull of seeds that you buy in hot water, let it steep and then drain it. It takes a bit of honey to make it tasty, but it works. Lb
Asacol, 4 pills 4 X a Day
Rowasa at Night
Canasa in the Day
Prednisone 40 mg--I'm flairing right now.
VSL #3
Kariva (birth control)


marguerite
New Member


Date Joined Mar 2008
Total Posts : 8
   Posted 3/10/2008 5:17 AM (GMT -6)   
Hi,

I am a newbie here and don't want to come on too strong. I know from experience GI doctors do not talk about a very basic remedy just to the body around taking drugs, and thats taking probiotics...whether acidiphillus, bifidus, or several other strains that literally build up the flora in the intestinal wall. Unfortunately I am having a good flareup after around 5 years...I warded many blood spots and irregularities (say within a few day period) with Primal Defense HSO Probiotic Formula (health food store), by Garden of Life. I swear by them. Even though I have surpassed that and am now in the ugly stage, I still take because I know my intestine is getting stripped clean by diahreahh, to be blunt.

Your account of doing so well for 5 months and then....I am no doctor but I do deeply believe, based on studies, research, and my own experience, that ALL of us should be taking live probiotic form regularly...and I don't just mean yogurt.

My GI is technically retired but has been called back in twice due to staff issues. He used to totally foo foo me ten years ago when I would discuss food enzymes and probiotics with him. This time, when I told him what I was taking, he wrote it down. There are newer, inconclusive studies about the GI tract/UC colitis and it being triggered by sensitivity to bad bacterial strains. Good bacteria (probiotics supplies healthy bacteria back into the colon) is a major remedy. He admitted that while not as scientifically proven as some of the drugs, that many have found benefit by using probiotics to offset the body's natural sensitivity to bad bacteria in the colon...a massive admission for this old school doctor.

That was in line with a friend who is in nursing school and they just studied uc...there is a 70% verification that uc may be due to affects from bad bacterial strains in the colon wall, therefore, buy and take good bacteria for your colon. Some products are hokus...I'm sure mine not the only one thats good but I do highly recommend its effectiveness...Primal Defence, by Garden of Live.

NMcP
Regular Member


Date Joined Mar 2008
Total Posts : 212
   Posted 3/10/2008 2:54 PM (GMT -6)   
I forgot all about Fennel tea for gas! Thanks!

The gas has subsided a LOT over the past 2 days. I guess the Lialda needed a break in period : ) I still get gas, but now it's not nearly as bad and it tends to be at night. I love my husband dearly, but I'd rather blow him out of bed as opposed to "Sharing" it with my co-workers, on the bus, etc.

I noticed that the pushy feeling hasn't been as bad either. I am still using the canasa suppositories as well, but I may be able to start using them every other night now instead of every night. And the headaches have gone away!!
Age: 48
location: Seattle, Wa
Diagnosed with UC in June 2006
Medications: Lialda 4 pills once a day, Canasa supps as needed
Supplements: vitamins, probiotics
No. of colonoscopies: 1
Originally diagnosed with moderate UC, pancolitis
No flares since Jan, 2007


theklep
Regular Member


Date Joined Nov 2007
Total Posts : 75
   Posted 3/10/2008 10:51 PM (GMT -6)   
I have been on Lialda since July and have found it to be a life saver when I use Rowasa as a backup. Lialda seems to have no side effects, at least in my case, and ever since bumping up to 2 tablets a day I have felt it working wonderfully. The best advice I can give is to try if you want something that you take only once a day. Goodluck.
Jeff, 23, Diagnosed July 2007 probably had it since 2005 but no real symptoms till July 2007 *Left Sided UC*
Lialda - 2.4mg 2x Day
Rowasa 1x (for spot treating and flare ups)
Centrum Multi-Vitamin 1X Day
Lexipro- 1x Day 10Mg

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