504 plan from my daughter

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ljf01
New Member


Date Joined Feb 2008
Total Posts : 18
   Posted 3/10/2008 10:39 PM (GMT -6)   
Hi all,
 
I'm sitting down with the school tomorrow to do the 504 for Hailey. Are there any ideas of things I should have in there? I have the basics but am not sure if I'm missing something.
 
Thanks!
 
Laura
Mom to Hailey(age 9)....she was just diagnosed with ulcerative colitis mid Feb 2008
Currently on 500mg pentasa 3x/day, 15mg prednisolone 2x/day, and 25mg 6mp 1x/day which was started Mar 6th


tjf
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Date Joined Dec 2005
Total Posts : 3238
   Posted 3/11/2008 7:21 AM (GMT -6)   
What is a 504?
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

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Bennie
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Date Joined Nov 2006
Total Posts : 550
   Posted 3/11/2008 7:49 AM (GMT -6)   

A 504 plan is a legal agreement between the school district and the student's family that is designed to plan a program of instructional services to assist students with special needs who are in a regular education setting. It is part of a federal law. Basically, it allows accommodations to students who need it.
I never met directly with anyone. Bratcat's guidance counselor asked what accommodations we thought she needed, the counselor suggested a few, she wrote up the plan, the correct people signed them in the district and then it was sent to me for approval. I wanted a change on there so I called, she had another one prepared and that was what I signed. It must be reviewed and signed each year (although we kept everything the same). DON'T SIGN UNLESS YOU FEEL COMFORTABLE WITH THE AGREEMENT!

As I said in a previous post, bratcat's doctor wrote a note saying she had ulcerative colitis. It said (in part) "...her symptoms have been medically managed with medications...currently doing well. ...intermittent flares and may need reasonable accommodations and as needed allow her extra time for testing and projects and bathroom privileges. ...allow her to self limit her activities and excuse her from physical education if needed. In addition she should be allowed food and drink in the classroom." 

On the 504 plan paper, it asks how the disability limits learning or major life activity.  The answer is "Anxiety induces symptoms. Bratcat is often absent based on symptoms and medication adjustments."

The accommodation plan list is: Unlimited access to restroom, no penalties for lateness due to use of restroom, drink fluids and snacks, separate location for test settings, extended time (50%) for test settings, self-limit her activities and excuse from physical education as needed.

At first, some of this seemed excessive to us (extended time, separate setting, etc). But for her, it has become peace of mind. If she is feeling good around test time (especially midterms and finals), she takes the test with everyone else (usually in a large room). If she is feeling under the weather (nerves, changes in her bathroom routine, etc), she has requested the separate setting. In some ways she prefers that. It is usually in a regular classroom, much smaller group of kids, and she knows she has the extra time (just in case).

As I wrote in another thread, down the road you may want to apply for accommodations for the major testing (SATs, Regents, etc). It is a one-time application for each company that administers the tests.

I think from your previous post, you have most of the things that I would suggest--unlimited use of bathroom (preferably nurses office), unlimited food and drink, extended time to complete tests, projects, etc., no penalties for any of these.

I would put as much accommodations in as possible to account for any curveball UC sends. I'd rather be overdramatic now in some ways than be behind the eight ball trying to get more accommodations when my child needs it.

Let me know if I can be of any other help. How was your daughter's first day back at school? I hope she had a good day!


--Mom of bratcat (16 years old)--
Daughter bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 3 pills/3Xday, 2 tabs 6-mp/1.5 tabs 6-mp every other day
 
11/14/06 - started prednisone; 1/28/07 - finished prednisone!
3/3/07 - began to taper off hydrocortisone sloowwly! Summer 2007 - slowly began tapering Rowasa. 9/07 -- flaring? Nightly Rowasa. 9/21/07 -- added hydrocortisone enemas. 9/30/07--added prednisone. 10/31--started 6-mp, stopped the enemas. Started lowering prednisone.


kb5
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Date Joined Jan 2007
Total Posts : 1015
   Posted 3/11/2008 9:01 AM (GMT -6)   
Bennie has pretty much everything covered! I would add that if your daughter's school has any rules against bringing a bag/purse to the bathroom tht Hailey be allowed. Some schools have rules against this while others don't. But to be able to bring wet wipes, a change of panties, or anything else she might need with her could give her peace of mind as well. You may want to ask your daughter if she would be more comfortable in a seat near the door in case of urgency, it's an easy change that can help alot.

Good luck!
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, started at 60 mg 1/07, 15 mg pred, down to 10 mg 1/11/08...down to 10/5...
75mg Imuran starting 8/23/07---bumped to 100mg 10/8/07--bumped to 125 11/14/07...
Taken off of Imuran temporarily 1/11/08-back on 1/16/08 now at 150mg imuran
waiting to be scheduled for remicade.
Prontonix once daily for acid reflux, zofran twice daily for nausea, darvocet for pain
antispasmodics didn't work.


ljf01
New Member


Date Joined Feb 2008
Total Posts : 18
   Posted 3/11/2008 12:45 PM (GMT -6)   

Thanks Bennie and Kelly!!

The school meeting went well and we are pleased with the 504 that was done. It seems to us the school wants to do everything they can to accomodate Hailey. Her first day back to school went well..........thanks for asking!

Have a great week!!

Laura

 

 

 

 


Mom to Hailey(age 9)....she was just diagnosed with ulcerative colitis mid Feb 2008
Currently on 500mg pentasa 3x/day, 15mg prednisolone 2x/day, and 25mg 6mp 1x/day which was started Mar 6th


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 3/11/2008 12:55 PM (GMT -6)   
Got it! Thanks for explaining to me. Hopefully this will help other families as well!
Tabitha (Tab)

100mg Azathioprine, 2 Fibercon, Colazal-9 a day, Acidopholis Pearls, Nexium

http://www.healingwell.com/donate
Co-Moderator UC Forum


FitzyK23
Veteran Member


Date Joined May 2005
Total Posts : 4219
   Posted 3/17/2008 10:17 PM (GMT -6)   
Also, if she is afraid of looking like she is getting "extra time" she can request clock stop testing. Usually she would still have to take the test in another room but would have the same time limit as the rest of the class. The clock just stops when she gets up to go the restroom and restarts when she returns. This is really good for standardized testing because she could still be ranked and compared with other students. The literature that goes to law schools with the LSAT results basically tells the school that an untimed score can not be compared to other students but a stopped clock score may be.

Also, I had a high school teacher that let me use the bathroom without asking. That really helped b/c I didn't have to interupt the class to ask permission. I sat by the door and slipped in and out as I needed to. Finally, if she does sports make sure you clarify that having to sit out a morning gym class does not mean she is too sick to play an afterschool sport. My high school had a rule that if you missed gym class for medical reasons you couldn't play sports that same day (it makes sense in a way)... but I had way more morning issues than after school issues so my doctor wrote a note explaining that and I could still play field hockey and track even though I frequently had to sit out gym class in the nurses office.
26 Year old married female.  Diagnosed w/ CD 3 years ago, IBS for over 10 years before that, which was probably the CD.  Currently on Pentasa 4 pills/4x day, hysociamine prn, nexium, and ortho evra.  Good times!!!
 
 

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