Good GI dr in NYC?

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:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 3/17/2008 4:11 AM (GMT -6)   
Already being seen by a decent GI. Though I want to see an expert in New York City, preferably one that is affiliated with Mt. Sinai hospital....(the alma mater of CD/UC).
 
Thanks in advance!

julee70
Regular Member


Date Joined Oct 2007
Total Posts : 475
   Posted 3/17/2008 7:09 AM (GMT -6)   
Dr. Daniel Present is widely considered to be one of the best UC doctors in NYC. He is affiliated with Mt. Sinai and has a private practice on the Upper East Side.

I was a patient of his for about a year. This was about 6-7 years ago. I assume that he still does not take insurance and you must pay before you leave the office. I did not feel that I had the same relationship I have with my current GI. I did not feel that we were working together to figure out how to get me better. I felt that the atmosphere in his office was impersonal and rushed. Maybe he has better people in his office now. He was able to get me into remission for a short while. But we did not have a good plan for dealing with recurring flares. I eventually found a doctor (outside of NYC) with whom I have a great relationship and who is amazing at working with me so that we've found what drug combos help me the most.

Another Mt. Sinai doctor who I met once for a consultation and liked a lot is Dr. Charles Gerson. He has an office on the Upper West Side. He has a more holistic approach, which you can read about on his website: http://www.mindbodydigestive.com Just in terms of office setting and staff, going to his office is a pleasant experience. I believe that they might take some insurance there. I can't remember.

Gerson's daughter is a psychologist who leads (I assume she still does) hypnotherapy sessions for people with IBS. That course of hypnotherapy (8 sessions) was one of the best things I ever did for myself and my UC.

If you see either of these doctors, I'd be curious to know what you think! They are both very knowledgeable. If you want a consultation and not on-going care, either would be great, I think. I just wouldn't pick Present for my on-going care.
-------
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)


LWW1993
Regular Member


Date Joined Oct 2006
Total Posts : 82
   Posted 3/17/2008 8:57 AM (GMT -6)   
Sorry, I don't have a recommendation for you, but I saw this thread and it reminded me of my GI doctor when I used to live in NYC.....Dr. Guttman! No joke. He has since retired. Good luck finding one. I'm sure there are some incredible GIs in NYC.
Diagnosed UC - 1993
32 year old female

Current Meds:
Prednisone - 40 Mgs
6-MP - 50 Mgs
Colazal (3 pills three times a day)
Probiotic, Folic Acid, Lysine


malka
Regular Member


Date Joined Apr 2006
Total Posts : 171
   Posted 3/17/2008 9:17 AM (GMT -6)   
While living in Massachusetts, I was referred to Dr. Present about ten years ago, in the midst of a terrible flare. I liked him a lot and I think he saved my colon. I was hospitalized and treated with IV cyclosporine. Since then, I have had only minor flares (knock wood).

I recently moved to New York and decided not to use him as my regular GI because he doesn't take insurance. I now see Dr. Leon Kavaler who I like and who takes my insurance. He is associated with Mt. Sinai and promised to refer me to Dr. Present, if a problem arises. I should add, however, that I have only had one office visit with him and a colonoscopy. He was recommended to me by a cousin who is a doctor at Mt. Sinai, but not a GI. Hope this is helpful.

M
Diagnosed UC 1975. 
Azulfidine Entabs 500 mg. 4 twice a day
Azathioprine 100 mg per day
Colocort - as needed
Folic acid, vitamins C and D, multivitamin, metamucil, fish oil, turmeric 
 
Hospitalized 1997 - intravenous cyclosporine.


ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 2789
   Posted 3/17/2008 10:46 AM (GMT -6)   
I go to Dr. Present's office but I use his partner Dr. Steinlauf; I've been in the hospital a few times and probably seen over a dozen different GI's and by far Dr. Steinlauf is my favorite. He doesn't take insurance either but his prices are reasonable and his care is exceptional. $225 an office visit.

I can usually get an appointment with Dr. Steinlauf within 2-3 days. When I am really sick he will spend 30+ minutes during an office visit.

--Keith
DX'd with Pan-Colitis June 2005
Current Status: Flaring since May 2007
 
Current Meds:  50 mgs 6-mp, Colocort, Oral Cyclosporine (250 mgs), Hyoscyamine .375 mgs
Supplements:  Forvia multi-vitamin
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 3/17/2008 1:21 PM (GMT -6)   
I'd highly recommend Dr. Ronald Hoffman.

He's got a great, informative Web site:

http://www.drhoffman.com/


Diagnosed with ulcerative colitis spring 1999.
 
Therapeutic dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal. Oregano oil antibiotic, antiviral, antifungal.
 
 


:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 3/17/2008 5:01 PM (GMT -6)   
Thanks all, for your replies. I have heard of some of the Dr.'s you wrote abt. Dr. Daniel Present is the supposed to be the top expert.

Julee70 - Thanks for sharing your experience. Thats very helpful when considering the dr. to see.

I am looking for a good dr. pref. one that takes insurance, though for a 2nd opinion, i see it as being a one time visit and not an ongoing thing, so if i have to pay out of pocket, thats ok. I envision it as just asking him if all is going well and if he agrees with my GI's opinion.
 
specifically, anyone heard of or used these 3 dr.'s at Mt. Sinai?
 
Dr. Thomas Ullman
Dr. Lefkowitz
Dr. Lichtiger
 
thanks!

Post Edited (Ani Maamin) : 3/17/2008 4:08:16 PM (GMT-6)


Old Hat
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Date Joined Feb 2007
Total Posts : 4565
   Posted 3/17/2008 7:20 PM (GMT -6)   
Ullmann is to be avoided, from what I've read, as he obsesses on colorectal cancer: wants to yank out colons at the 1st hint of dysplasia. Daniel Present disagrees with his approach & has debated him in several professional & public forums. Have you looked at the CCFA Website Physician Finder (NYC section), by the way? That would clue you in to the GIs subspecializing in IBD who are readily available for consultation. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 Colazal daily for maintenance of remission)

:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 3/17/2008 7:55 PM (GMT -6)   
Old Hat - thanks, i'll look into their site.
Dx: Dec. 2006 with UC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements


uc_free
Veteran Member


Date Joined May 2007
Total Posts : 645
   Posted 3/17/2008 7:56 PM (GMT -6)   
I have never been to Dr. Present myself, but I did receive literature from him on Imuran in pregnancy while pg with my son. Because of his research, I now have two healthy children! I too have heard that he is top notch.
Tara

Diagnosed April 1998 - Pancolitis
Currently on (per day):
Pentasa 4 gms
Imuran 100 mgs


:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 3/17/2008 8:05 PM (GMT -6)   
Thanks for sharing your experience!
Dx: Dec. 2006 with UC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements


MisKay
Regular Member


Date Joined Jan 2008
Total Posts : 21
   Posted 3/17/2008 8:44 PM (GMT -6)   
I am currently firing my GI and making an appointment with Dr. Moishe Rubin. He's also on the CCFA doctor's list.

My brother in law had terrible colitis in his late 20's and he made the trek to NY to see Dr. Rubin and he really helped him!

So I want to see him because I am so dis-satisfied by the treatment I was getting from current GI.

:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 3/17/2008 9:54 PM (GMT -6)   
Sounds like you really don't like your current doc. what didn't you like about him/her?
Dx: Dec. 2006 with UC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 4565
   Posted 3/22/2008 8:15 PM (GMT -6)   
Hello, :) -- one of the Mt. Sinai gastros you asked about was Lichtiger. There is an informative blurb about him if you click on the "On the Road Again" ad atop this Website. It's in the "about On the Road" section. / Old Hat (nearly 30 yrs with left-sided UC ... etc.])

:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 3/22/2008 11:01 PM (GMT -6)   
Thanks Old Hat - I saw that page and read the blurb, when it was first posted, a week ago. It's helpfu, though I was looking more for someone's personal experience with the dr.'s . I know that each person experience may be different, though a good reccomendation always helps.


Dx: Dec. 2006 with UC
F, 23, NYC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements


Mamas Boys
Veteran Member


Date Joined Oct 2005
Total Posts : 1460
   Posted 3/23/2008 2:14 PM (GMT -6)   
Just FYI - the doctors have to pay membership to the CCFA in order to be listed on their doctors list.  A better source of information on doctors is Castle Connolly http://www.castleconnolly.com.  There is no fee to be listed - and it lists America's top doctors in every field. 

KTM


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 4565
   Posted 3/23/2008 4:32 PM (GMT -6)   
Absolutely, :), I agree with you that recommendations based on personal experience with doctors can be especially valuable. I don't think that CCFA compromises anything by charging doctors membership fees to list on their Website; they use the money to run the organization & they provide disclaimers along with the list. Castle Connolly may depend at least in part on peer review, which is not purely objective, either. The doc who is very collegial & impresses peers may give patients short shrift. Getting back to your Qs re Mt. Sinai, it seems there is now a gastro named Suzanne Rose who subspecializes in women's issues. Like Dr. Present, she's also a professor in CUNY Medical School. I'd be curious to find out if any members here know of her; she apparently spent some time in Cleveland before coming to NY. She'll be participating at the Third Annual Conference on Women's Issues in Gastroenterology to be held in Philadelphia April 4-6. / Old Hat

:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 3/25/2008 2:13 AM (GMT -6)   
Hat Tip to Old Hat - I can always rely on you for practical and prevalent words of wisdom, succintly. Thanks:)

Thanks for your opinion and informing about Dr. Rose and background info, another person to look into...
Dx: Dec. 2006 with UC
F, 23, NYC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements


lad22424
New Member


Date Joined Mar 2008
Total Posts : 13
   Posted 3/31/2008 1:50 PM (GMT -6)   
Hey,
in case you are looking for more personal experiences...

my stepbrother has crohns and uses both Dr. Present and Dr. Legnani. He really likes both of them.

I also go to Dr. Legnani. I have UC, diagnosed in Aug 07 and in remission since mid fall 07. I really like this dr. I was very scared when I was diagnosed and he has a great bedside manner and made me feel better about getting back in control of my life. He has me on Lialda, twice a day. And whenever I have concerns, I just call him up and he returns my calls pretty quickly too.

Hope this helps!

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 4565
   Posted 4/1/2008 7:03 PM (GMT -6)   
When we did a thread on Mt. Sinai/NYC last year, a member also wrote then praising Dr. Legnani. I think Dr. Agus was recommended, too, at that time. One detail I would find helpful in determining which gastro to consult concerns the c-scope arrangement. Does the gastro have an office-based facility where the procedure can be done? This is usually more patient-friendly than the hospital ambulatory unit routine. / Old Hat

julee70
Regular Member


Date Joined Oct 2007
Total Posts : 475
   Posted 4/1/2008 9:53 PM (GMT -6)   
Good point, Old Hat. I know of one doctor who does c-scope in his office... without total sedation. The idea of it makes me wince. A small out-patient procedure facility is indeed far nicer than going to a hospital.

I think another factor for me is accessibility of the doctor. Can you get emergency visits on short notice? Will someone really call you back? These are things that I worry about with bigwig doctors who are booked out with appointments for the next six months.
-------
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)
5ASA drugs don't work for me. Canasa seems to make me worse.


:)
Regular Member


Date Joined Feb 2008
Total Posts : 182
   Posted 4/2/2008 1:15 AM (GMT -6)   
thats why i decided against even thinking abt going to Dr. Present. Same with some other top names.
In this case, (mild UC) and bec. of this reason, the "2nd tier" doctors and their level of care are prob just as good or even better, bec they can give individual attention.
Dx: Dec. 2006 with UC
F, 23, NYC
Thank G-d - Prednisone then 6MP, Rowasa and Asacol brought remission
Now Asacol 4tabs 2x a day.
Muiltivitamin, Iron and Folic Acid supplements


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 475
   Posted 4/2/2008 6:55 AM (GMT -6)   
My guess is that Dr. Charles Gerson on the Upper West Side might be a top-tier guy with enough time to call people back. I didn't get that sense of franticness from his office that you usually sense. I liked my one consult with him and I'm hoping that one of my friends in the city will give him a try and let me know whether he really is as good for on-going care as I suspect.

Just since we're on this subject: My favorite pet peeve from the frantic, New York City doctors -- offices that are bursting at the seams. When they are storing equipment and boxes in the exam rooms, I get a little annoyed. But the WORST was seeing patient records stacked up in the hall. Talk about HIPAA violations. (That wasn't at any of the doctors' offices we discussed here!)

I think that 2nd tier in NYC, probably still means top-tier. It's just not someone who might be doing research and have all the professor/researcher credits that the others have, which, quite honestly, is irrelevant as long as your doctor *reads* the research.
-------
UC for the last ten years
Current Meds: 6MP since 2006, Cortifoam
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine)
5ASA drugs don't work for me. Canasa seems to make me worse.


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 4565
   Posted 4/2/2008 6:55 PM (GMT -6)   
The docs are now being encouraged to convert patient "charts" (love the way they call 2-inch thick file folder a "chart") to online records. That is supposed to improve accuracy/security, but likely has caveats aplenty. My gastro went thru a period when office desk + 2 nearby chairs were stacked with charts, an amazing sight! / Old Hat





=

malachy72
Regular Member


Date Joined Oct 2005
Total Posts : 99
   Posted 4/2/2008 7:13 PM (GMT -6)   

I was under the care of Dr. Burton Korelitz on the upper east side.

I can't speak for the other physicians whom I am sure are fine. My GI doc in Westchester was impressed that I was able to see Dr. Korelitz and said that he was one of the "fathers" of IBD when he was at Mt. Sinai.

If you only have "mild" UC I don't see the need to call in the big guns. I had trouble getting the UC under control, that's when I used a big gun.

 

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