Inflammation Blood Work

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AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 5/15/2008 8:00 PM (GMT -6)   
So I've had nausea for the past few weeks, pencil-sized stools, my hair is falling out, and extreme fatigue. Plus the weird twisty spasm feeling I've had today in my lower right side. I do not feel like I am in the middle of a bad flare though b/c I am not having diarrhea all day and I am only having 2-3 bm's a day. My doc called tonight and my inflammation level was +50 which he said was really high. My doc can't get me in until the 29th and my primary doc said tonight that is NOT acceptable and is going to call my gastro doc tomorrow morning. So hopefully all this worrying I've done over the past few days can end with a doc visit tomorrow. I am freaked out though. Feel free to tell me everything is going to be fine and I am worrying over nothing.  sad
33 year old female
Dx'd 4 years ago
Indeterminate Colitis, probably UC; precancerous polyps
Tried all meds including 6MP,Prednisone
Current Meds: Remicade, Prevacid, Lialda, Lexapro, Synthroid, Iron, vitamin, Fish Oil


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 5/15/2008 8:15 PM (GMT -6)   
I was told my inflammation level was 60 something, and 2 doctors said, well, you have that inflamed ulcer, what do you expect... they didn't care much about it. Everything you listed except for the pencil stools may be side effects of your meds. I would ask for rectal meds. I don't know how they would get the inflammation down without Prednisone. Everything will be ok. At least you aren't having bloody diarrhea. Primary docs have a different view from gastros, so just wait and see what your GI says.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08


princesscolon
Veteran Member


Date Joined Apr 2006
Total Posts : 733
   Posted 5/15/2008 8:16 PM (GMT -6)   
PS- the next time I had my blood tested, the inflammation went down to almost normal.
Diagnosed with Left-sided UC in 1995 at age 15, Prednisone, Rowasa & Hydrocort. Enemas, Proctofoam, Sulfasalazine, Asacol, Probiotics, Fish Oil, Aloe Juice, Canasa, Enotcort, Colazol, Anamantle, Remicade, etc... had 1 inch deep rectal ulcer 2004, put on Remicade, August 2007:Increased Remicade dosage-700mg every 6 weeks,diagnosed w/ Psoriatic Arthritis & Fibromyalgia Current meds: Clorazepate, Lomotil,  Tylenol pm, Lyrica started 1/17/08,  Humira started 4/4/08


AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 5/15/2008 8:38 PM (GMT -6)   
Thank you - that makes me feel better. We just got pregnant (using a surrogate) after two years of fertility battles so things are going so well. I just want everything to continue to go well! It's weird but I'd be less worried if I were having lots of normal symptoms. I'm just worried b/c of the history of pre-cancerous polyps. But worrying won't help anything. Thank you for the positive words. You are right - the primary doc doesn't see things the same way as the gastro. The gastro might not be that worried. I do think I need a colonoscopy though. Ah, the fun of getting ready for that... tongue
33 year old female
Dx'd 4 years ago
Indeterminate Colitis, probably UC; precancerous polyps
Tried all meds including 6MP,Prednisone
Current Meds: Remicade, Prevacid, Lialda, Lexapro, Synthroid, Iron, vitamin, Fish Oil


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 756
   Posted 5/15/2008 10:16 PM (GMT -6)   
Hang in there honey. We are here for you. You will get better. Keep on learning, and get to the gastro! Hopefully you have a good one, don't mess with the new-be's right now.
K
ps.s Congrat's on the surrogate. My best friend had 2 that way(13 and 14 years ago) and it has been fabulous!
Daughter,14 diagnosed 1-08 w/ UC .learning from you all.
Rowasa, Asacol, Prednizone 50mg, major flare, Hosp. @U of C, Comers. IV steroid, no food, then low residue, home.
Now, began mp6, beginning taper of Pred, now 45mg, horrible acne, moon face, and fearful of future.
trying probiotics, Omega 3, and keeping up with doc visits.


AngelTT
Regular Member


Date Joined Jun 2005
Total Posts : 213
   Posted 5/16/2008 6:45 AM (GMT -6)   
Thank you Katmom! :-)
33 year old female
Dx'd 4 years ago
Indeterminate Colitis, probably UC; precancerous polyps
Tried all meds including 6MP,Prednisone
Current Meds: Remicade, Prevacid, Lialda, Lexapro, Synthroid, Iron, vitamin, Fish Oil


Yorkshire Lass
New Member


Date Joined Apr 2008
Total Posts : 18
   Posted 5/17/2008 3:38 PM (GMT -6)   
:-)  How wonderful to hear some good news! 
 
It's awful that you are suffering right now, try and hold onto the thought that you have so much to look forward to... I wish you every happiness!
Louise

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