Hi, I have been on Remicade for over five years. I have not had a UC flare up since then. That is the good news!
In the past two years I have had repeated staph infections. Joint pain that has been unbearable. Lots of flu-like symptoms and for the last year pleuracy.
I thought my joint pain was maybe arthritis, (although I did not have arthritis before my remicade) because it gets really bad right before I have an infusion around 6 weeks. I get my infusion and I almost instantly feel better with my joints. Its like a miracle.
Since reading these forums, I've notice a lot of people having joint pain. Wow, when I talked to my doctor about this, he knew nothing about the joint pain and remicade. I can't believe how many people say they have joint pain. He did test me for lupus and I was not positive. The pulmonary dr. tested me for rhematoid arthritis but I have not gotten my test results back.
Since I have not really felt good for a long time I am considering quitting my Remicade. The thing that scares me the most is the pain in my joints before my infusion. But I'm wondering if the joint pain is being caused by the Remicade instead of the remicade helping my joints
Sorry I am rambling on, but I just found this site and hope that you guys have had some of the same things and could help. Thank You