Female, 23, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in femur head & lumbar region of the spine from long term prednisone use. Currently unmedicated and flaring :( Waiting for my appointment with the new GI on July 18th. Insurance finally kicked in, hooray!
I am like you, i have UC and i do my best when i am on prednisone. However as we all know it is not good to be on it for a long time. I have a hard time tapering past 10mg myself without starting up a flare. Asacol only made things worse for me as well. My doctor recently took me off the Asacol and is having me try to taper down from 20mg of pred while also taking 9mg daily of Entocort. Each week he is having me taper the pred 5mg until i am off of it and just taking the Entocort daily. He said that you can be on Entocort for a lot longer as it is safer than the prednisone, yet also a steroid. If this doesnt work he is going to look into either 6-MP or Remicade.
hi jon, have you tried prednisone enemas? i think that the side effects are not as bad as with the tablets.
i'm the same its very frustrating.
i've been on 100 mg azathioprine for about 12 years now, i think its pretty safe long term as long as you have regular blood tests.
prednisone is definately bad long term though.