Colocort enemas

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landcruiser
Regular Member


Date Joined Jun 2008
Total Posts : 80
   Posted 7/23/2008 9:32 AM (GMT -6)   
I was wondering if anyone has had experience with these enemas.  I am currently almost through a 2 week course.  ASA meds make me worse off, and since pred was the usual savior.  The question I have is how much of the enema is absorbed by the body?  I feel like I am experiencing the same side effects of the oral Pred....yes I do feel they are helping, but I am wondering about the side effects and if I am just really back on pred again even though in enema form.  I was down to 2mg Pred and tapering when I started this and relatively stable...some good days and a few bad ones, but definately tollerable.  If I stop using these abruptly I am concerned I will crash like coming off of Pred without tapering.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 21751
   Posted 7/23/2008 9:37 AM (GMT -6)   
With enemas it's always best to taper no matter what the docs say. Especially with any sort of steroid based med. I have been on and off Colocorts for 2 years - 1 year of almost constant use. Yes they can cause steroid type side effects but not nearly as strong as the oral. Only about 5-8mgs of steroid actually enters your bloodstream. Though I think that if you already have steroid in your body that it may make the side effects show up quicker. I know that was the case with me. After going off them and a month or so goes by and I have to start them up again, it's like I never stopped. The side effects hit me full force within a few days of starting them again.

Btw, welcome to Healingwell! :)
 @--->--SHERRY--<---@
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~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs), Hydrocortisone E's, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra
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malka
Regular Member


Date Joined Apr 2006
Total Posts : 171
   Posted 7/23/2008 2:20 PM (GMT -6)   
I have used colocort for years on and off. Yes, you can get pred side effects, but much less is absorbed by the body. I agree with Sherry to taper off. I also don't listen to my doctor and use them for shorter periods of time than suggested, but tapering off when I do. I have also found that when in remission, if I have any symptoms at all, I can use an enema once a week for a while and the symptoms go away. I am hesitant to suggest ignoring doctor's instructions, but I know what works for me.

And - welcome to HealingWell.

M
Diagnosed UC 1975. 
Azulfidine Entabs 500 mg. 4 twice a day
Azathioprine 100 mg per day
Colocort - as needed
Folic acid, vitamins C and D, multivitamin, metamucil, fish oil, turmeric 
 
Hospitalized 1997 - intravenous cyclosporine.


munchkindd
Regular Member


Date Joined Oct 2007
Total Posts : 348
   Posted 7/23/2008 7:35 PM (GMT -6)   
Definitely taper them for sure. I've never really noticed any side effects from them, just from the oral pred.
*******Donna*******
 
diagnosed with uc 27 years ago.  Enojoyed 20 year remission with just minor blips here and there (approximately 16 of those years without any meds)
 
In a flare for 2 very long years which Asacol didn't help at all.  Finally in remission again since Jan 2008, can't believe it..............
 
currently on Sulfasalazine 2 tabs 3x day. Folic acid, mesalamine enema once a week. Omega 3, Probiotics, multi vitamin, calcium supplement, Biotin 5000mcg, Fibercon.
 

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