Elimination Diet

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murf28
Regular Member


Date Joined Jan 2003
Total Posts : 78
   Posted 7/25/2008 4:22 PM (GMT -7)   
I went to a new doc today because I would like to get off of Remicade.  This doctor uses a combination of natural remedies and meds to try to get patients feeling well.  He would like me to try a few supplements including high doses of fish oil and probiotics.  He would also like me to try the elimination diet for one month.   This diet eliminates almost all meat, wheat, dairy, sugars, etc...  I am going to wait until September to start so that I can get through the summer gatherings and have to research what  I "can" eat.   Has anyone tried this?  How did it go?
 
murf

kim123
Veteran Member


Date Joined Jul 2006
Total Posts : 1190
   Posted 7/25/2008 4:37 PM (GMT -7)   
For me, fantastically! My symptoms literally disappeared within 2 weeks, after 8 years of UC misery, and I felt better than I had in a very long time, with much more energy to boot. Still no meds at all now. My diet wasn't as strict as yours sounds. I could eat most veggies, a few choice fruits, like berries, eggs, yogurt, and any unprocessed meat/fish/poultry. I also took natural antifungals to help speed the process. Be mindful, you may feel a lot worse before you feel better as the fungus dies off. For me it started on day 2 and lasted for 4-5 days. Felt like a terrible flu with headaches, pains, fatigue, D. Don't give up. You need to be very strict with the diet. Here's hoping you feel better on the other side!

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3202
   Posted 7/25/2008 4:52 PM (GMT -7)   
I'm so intrigued by this concept- I do wonder if I stop eating all the "bad" stuff, my UC would go away. I eat fairly well anyway, mind you- tons of fruit, home grown veggies, very little chicken/fish, no red meat, lots of vegetarian protein. The bad stuff? Cream in my coffee, frozen yogurt or ice cream, chocolate, sometimes potato chips with a sandwich, cheese, processed crackers like Ritz... I'm too lazy to really do the elimination diet/SCD, so I stick to my meds. I don't really have any issues with being on meds for the rest of my life, & it's not ignorance- I have done my research. I've gone off meds in the past with disastrous results. I'm terrified to stop Remicade! Murf, why do you want to stop it? Has it put you in remission? Do you take an immune suppressant with it?

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


murf28
Regular Member


Date Joined Jan 2003
Total Posts : 78
   Posted 7/25/2008 5:33 PM (GMT -7)   

I have been on Remicade for about 2 years with good results, but it has always scared me.  It is a realatively new drug, and I wonder  about the long term effects.  We just don't know what the consequences might be.  I am 34 and have 3 small children.  I want to be around for them.  I don't want to end up with a cancer or another disorder caused by Remicade.

My fear about all of this peaked about 2 months ago when my platelets dropped.  This can be a symptom of Lymphoma, and I freaked out!  So far things look okay...but I just wonder  what will happen if I stay on the drug.  My GI could not say for sure if the platelet drop is due to Remicade, but he believes it may be.  All of this is enough to make me want to try something else.  For now I will stay on Remicade, until  I am feeling really good.   We will then try to go off of it and add back Asacol, and just see how it goes.  I am not any immunosuppressants.  I have tried them but had severe nausea and vommiting with them.

murf


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3202
   Posted 7/25/2008 6:04 PM (GMT -7)   

I hear you loud & clear- I have a 5 1/2 yr. old daughter, & I can't stand to think of myself not being around for her. My labs have always been good, but if they do ever show low platelets I don't know what I'd do. I'm terrified of going off Remicade, really. I suppose I'd muddle thru with whatever meds helped, & if nothing did I'd pursue surgery. Have you thought about surgery? No meds, no special diets, no colon cancer/lymphoma fears..... Jeez, I'm starting to convince myself! tongue Well good luck with the new GI & diet- definitely keep us posted!


diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


AnnaG
Regular Member


Date Joined Apr 2008
Total Posts : 188
   Posted 7/26/2008 9:25 AM (GMT -7)   
Hi I too am very interested in what Kim had to say about diet,I have severe left sided UC,I'm on Azathrioprine 150mg a day,and although I don't think it has put me in remission,I think it may be limiting the severvity of the flares basically keeping it livable with,so I can work,and look after my kids,I think what I eat seems to control the UC day to day ie worse if I eat bread,dairy,sugar,and better if I stick with the scd diet.
I'm in a bit of a dilema now because,I don't want to be taking a drug like Aza indefinatly but I am scared to stop
taking it in case I have a massive flare and end up in hospital again,with the surgeons standing round my bed.
My consultant is pushing for me to have infliximab,and says if he showed any surgeon the pics of my colon they would'nt hesitate in taking it out straight away.I've gota few questions really for Kim,
what is the extent of your UC,were you ever on Azathrioprine,and I'm intrigued about what sort of anti-fungal meds you took were they pescribed,or can you just buy them because I feel I may need these too.
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