Recommendation for - Stay in remission diet/foods ?

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Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/13/2009 11:12 AM (GMT -6)   
Hej all
 
A lot of diet proposals are discussed here - all very informative. But for me also a bit confusing as some recommendations cover
1) Get rid of a flare (like the spinach recommendation)
2) what can out eat without irritating your bowel and get diarrea
3) What is forbidden when in flare / not in flare
4) What is allowed when xx etc etc
It all gets mixed up in my confused head!
 
What I will in particular appreciate if you could help me with is food for when you are in remission already and "just" wanna stay that way for as long as possible !!!
I have no bowel/diarreha (spelled wrong I know) issues, no pains. I feel perfectly normal and I WANNA STAY THAT WAY !!!
 
My UC condition when flaring is 15 cm up (worst ever was 30 cm, still no pain - but first time with diarreha - 3 years ago). Last 2 flares minor.
 
So, I would highly appreciate if you could help me sort in the recommendations to:
A) What food to include in your diet to help stay in remission
B) What definitely not to eat (e.g. sugar, coffee, beer I assume)
C) Most important vitamins, minerals, aimoacids to take.
 
What e.g. confuses me is whether bread in general, wheat, rice, pasta, potatoes etc are all bad also when in remission??
Some say raw vegetables/salat is good - others say bad
 
I start to be affraid of eating - to risk making myself sick. I also fear not to eat the good things as I don't know what they are......
 
Thank you all !! 

unclebubba
Veteran Member


Date Joined Dec 2008
Total Posts : 510
   Posted 1/13/2009 12:10 PM (GMT -6)   
It all depends on the individual. Keep a food journal of what treats YOU good and what doesn't. Where one of us can eat bread, wheat, gluten others, like myself can't. Where some see great results from probiotics or supplements, other with this diesase won't see any results from those same probiotics or supplements. All our bodies are different. You just have to find whats right for you. And a food journal seems to be the best way to do this.
 
38 yr old male, NE Ohio, diagnosed Aug 2008, but been with symptom since Nov 2007
30 mg pred, 9 balsalazide, rowesa nightly, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol, 2 probiotic, 2 aloe vera tabs
Following gluten free diet as well as spinach/sunflower regime
**down to 25 mg of pred 12/25/08 **down to 20mg of pred 1/7/09
MED CHANGE: 1/13/09-- 4 Lialda, 2 Pamine Forte, 1 Florajen3 probiotic, 2 Aloe Vera tabs, Rowesa every other night, 20 mg of Pred, Lomotil as needed, 2 gemfibrozil, 1 norvasc, 1 metoprotol, 1 allopurinol
 
 
 
 
 
 
 
 
 
 
 


sore_guts
Regular Member


Date Joined Jun 2007
Total Posts : 185
   Posted 1/13/2009 12:15 PM (GMT -6)   
It is overwelming to try to figure out which foods are o.k and which aren't.  There is conflicting info even in the medical world. 
I believe the reason for this is because every person is different when it comes to foods that can be eaten without any issues versus foods that cause trouble.  But I think if you are in remission then you shouldnt worry to much.  Eat what you want to and if a food bothers you then dont eat it again.  I dont think you should avoid foods just because they bother other people.  If you are o.k. now then the things you are eating are probably o.k.
I personally strongly believe in the spinach/seed posts because it put me in remission for the first time ever.  The same foods used to get in remission are used to stay in remission (just in less quantities).  If you are interested, look into foods high in magnesium and beta carotene - especially spinach, sunflower seeds, carrots.  I believe adding these foods would be beneficial and help stay in remission.
 sore_guts
 
Currently in Remission since June 2008!!
 
High magnesium/ beta carotene diet
36 year old female with left-sided UC
lialda 1 pill  3 2 times/day
multi-vitamin 1/day
Digestive Advantage Colitis formula 1/day
 
 


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/13/2009 4:00 PM (GMT -6)   

I understand. My "problem" (well it's not a problem of course, but) is that I don't flare that much.

I can be in remission for a year eating everything, no restrictions. Then suddenly after a year it flares up for no apparent reason. It's difficult to track the triggers and it's probably a combination of things.

Therefore I just searched for the absolute "No foods" and "Yes foods".

I have decided to remove all sugar from my diet, also cow milk.

I have decided to limit meat intake and not over-eat. And keep red wine to the weekends.

I have decided to add more Yoghurt.

.......... I am really in doubt concerning bread, rice, pasta?

To me it seems like I must be building up a flare over time?? possible??

 


LeafsFan
Regular Member


Date Joined Dec 2008
Total Posts : 249
   Posted 1/13/2009 4:15 PM (GMT -6)   

There is a difference in what you might bother you when flaring or what actually contributes to IBD or flaring. Nuts, seeds, fatty foods, raw veggies, lactose, spicy foods etc might bother you while flaring, but not neccesarily when not flaring.

Caffeine, Sugar and "bad fats" ie animal fats and deep fried foods etc have been diet items suggested to contribute to IBD. I think they contribute to many more health issues as well and should be eaten in moderation whether one has IBD or not.

Other than that, like everyone here says, it's very individual. Grains, wheat and gluten are foods that some people tolerate and some don't. A simple test can confirm if these bother you or not. If they don't, grains are part of a balanced diet, providing fibre etc.

Some people have suggested eating more fish and omega 3 supplements, which I do.  "Good fats" are said to have anti-inflammatory effects.

It really does help also to keep a food diary. If you have a problem, check what you ate in the last couple days that it could be and mark it. If it happens again, try harder to avoid that food.

Don't be afraid to eat. If you miss good nutrients from not eating, you could do just as much harm as good. Just be watchful.

Good luck staying flare free :-)


 
Chuck - 28 yrs and counting
 
Diagnosed w/ UC Dec 08 - currently feeling ok
 -----------------------------------
Pentasa 500mg 2pills-4x daily
Prednisone 50mg 45mg 40mg 35mg day - Calicium + Vit D
Multivitamin, vitamin C, probiotics, fish oil
 
"If you can solve your problem, then what is the need of worrying? If you cannot solve it, then what is the use of worrying?"


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/13/2009 4:40 PM (GMT -6)   
Qvist said...
I understand. My "problem" (well it's not a problem of course, but) is that I don't flare that much.

I can be in remission for a year eating everything, no restrictions. Then suddenly after a year it flares up for no apparent reason. It's difficult to track the triggers and it's probably a combination of things.

Therefore I just searched for the absolute "No foods" and "Yes foods".

I have decided to remove all sugar from my diet, also cow milk.

I have decided to limit meat intake and not over-eat. And keep red wine to the weekends.

I have decided to add more Yoghurt.

.......... I am really in doubt concerning bread, rice, pasta?

To me it seems like I must be building up a flare over time?? possible??


Adding more yogurt to your diet might help; however, you shouldn't have to give up healthy foods if they don't bother you (your BMs stay big and firm). Something else might be triggering your flareups. Allergies? Stress? Antibiotics? ... Some people are also prone to Colitis. Genetics also plays a role.
Joy - 47 yrs and counting

Diagnosed w/ UC Dec 06
Currently in remission

-------------------

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose


Randy1958
New Member


Date Joined Jan 2009
Total Posts : 3
   Posted 1/13/2009 7:52 PM (GMT -6)   
Just new here-so I don't know how much the Specific Carbohydrate Diet (SCD) has been discussed here. I was diagnosed with UC about 8 years ago. I was in terrible shape-taking high doses of meds and still flaring badly. Then I started the SCD diet and started improving in about a month. Staying on the SCD diet, I was off all meds in about 9 months and flare ups stopped. Have been doing very well now for many years. Its almost a cure for me- I say almost because occasionally I will get mild cramping-but never bad enough to go on meds. My Dr. says all UC patients should be on Cod Liver oil- by far the best type of fish oil for UC-because of its high omega 3 content and high vitamin d. Which is the other thing I wanted to add. Has vitamin d levels been discussed here? A Mayo clinic study has determined that most UC patients have very low vitamin d levels and that raising them significantly greatly decreases UC symptoms. My vitamin d levels were very low-my Dr. put me on massive doses of vitamin d. I take about 3000 per cent - yes 3000! of RDA. Dont do this without a Dr. supervision- mine monitors my vitamin d levels every 3 months with a simple blood test. Amazingly, taking those high doses of vit d puts me in the upper end of normal levels. And yes, I do get plenty of sun in the summer(when I can lower the doses) Winter are cold here (Iowa) and sun exposure is very minimal. Sorry for such a long message. Any comments?

50 years old- diagnosed with UC 8 years ago- totally med free for 6 years-Vitamin D therapy-Cod Liver oil- SCD diet

Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/14/2009 2:48 AM (GMT -6)   
Randy1958 said...
Just new here-so I don't know how much the Specific Carbohydrate Diet (SCD) has been discussed here. I was diagnosed with UC about 8 years ago. I was in terrible shape-taking high doses of meds and still flaring badly. Then I started the SCD diet and started improving in about a month. Staying on the SCD diet, I was off all meds in about 9 months and flare ups stopped. Have been doing very well now for many years. Its almost a cure for me- I say almost because occasionally I will get mild cramping-but never bad enough to go on meds. My Dr. says all UC patients should be on Cod Liver oil- by far the best type of fish oil for UC-because of its high omega 3 content and high vitamin d. Which is the other thing I wanted to add. Has vitamin d levels been discussed here? A Mayo clinic study has determined that most UC patients have very low vitamin d levels and that raising them significantly greatly decreases UC symptoms. My vitamin d levels were very low-my Dr. put me on massive doses of vitamin d. I take about 3000 per cent - yes 3000! of RDA. Dont do this without a Dr. supervision- mine monitors my vitamin d levels every 3 months with a simple blood test. Amazingly, taking those high doses of vit d puts me in the upper end of normal levels. And yes, I do get plenty of sun in the summer(when I can lower the doses) Winter are cold here (Iowa) and sun exposure is very minimal. Sorry for such a long message. Any comments?

50 years old- diagnosed with UC 8 years ago- totally med free for 6 years-Vitamin D therapy-Cod Liver oil- SCD diet
 
Are you fully on the SCD diet including home made yoghurt etc.??

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 1/14/2009 10:15 AM (GMT -6)   
I've also had a lot of success with a generally grain and dairy free diet, omega3 supplementation and just recently added vitamin D supplements. When in remission, I can get away with eating a wider variety of foods, but I find it eventually comes back to haunt me in the form of mild flares. Trial and error over time will show you what works for you.
Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine.
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Long-term remission with only minor blips.
 
 


Qvist
Regular Member


Date Joined Jan 2009
Total Posts : 145
   Posted 1/14/2009 10:29 AM (GMT -6)   
What is the way to find out whether you are dairy and grain/bread intolerant or not.
A blood sample or?

Judy2
Forum Moderator


Date Joined Mar 2003
Total Posts : 9385
   Posted 1/14/2009 11:38 AM (GMT -6)   
Subdued, can you please edit your signature to 10 lines or less? Thank you.
Judy
 
Moderate to severe left-sided UC (21 cm) diagnosed 2001.
Avascular necrosis in both shoulders is my "forever" gift from Entocort.
Colazal,  Remicade, Nature's Way Primadophilus Reuteri. In remission since April, 2006.
"My life is an ongoing medical adventure"
 
Co-Moderator UC Forum
Please remember to consult your health care provider when making health-related decisions.


love4cats
Regular Member


Date Joined May 2007
Total Posts : 458
   Posted 1/14/2009 11:43 AM (GMT -6)   
Your doctor can test you for lactose and wheat intolerances.
 
 
Dx:  UC Proctitis 2006 
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence. 
Started Meds:  Apr 9 08 500mg 5ASA (salofalk) to ease flare, tapering, stopped. 
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes). 
 Added: tumeric and probiotics.
 
 

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