Has anyone done a probiotic enema? How do you do it?

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therearemiracles
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Date Joined Dec 2006
Total Posts : 2929
   Posted 1/24/2009 7:35 PM (GMT -6)   
I was wondering if anyone does or has done a probiotic enema if so, did it help and how did you do it?
Thank You.
Very mild left sided (could have fooled me with the "mild")  UC. No meds right now. Supplements: Beta Glucans, CO Q10, Cod Liver, Probiotics.


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/24/2009 7:56 PM (GMT -6)   
Yes. I did it every morning after my first BM when I was in my last flare. It helped clam my inflammation.

I emptied one capsule of the Probiotics into a cup and added a bit of warm water. It would make about one to two syringe worth of the mixture. I put that up my butt.

I felt it worked better than taking the Probiotics orally. I heard that Probiotics are made to work with the stomach; so I still took Probiotics orally. One a day in the evening.

Use whatever Probiotic you feel works best. I bought mine at the drug store. Nothing special.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 1930
   Posted 1/24/2009 9:49 PM (GMT -6)   
5 caps into 30 ml water in one of my empty hydrocort enema bottles. Made sure i wouldn't expel first by using 120 ml warm water in initially then just voiding.
Proctitis DX 1999, Pancolitis DX 2008
Lialda 1 day
Immuran
Golimumab study
Vitamin E Enemas as needed
Probiotis/GreenTea/VitD+Ca/SuperDHA


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2838
   Posted 1/25/2009 1:29 PM (GMT -6)   
I'm willing to try this, but we have suggestions of 1 or 5 capsules, probably different strengths, too.
I guess I want to know, can you "overdose" with too much?
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering.
Asacol/5ASA 6x400 mg maintenance for 20+ years; use prednisone & Rowasa for flares. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; started diet without gluten, soy, dairy, tomato etc. Replete$$ probiotic powder, then Forte, now a stronger one (50 billion). Doing much better, but still having some bad days. 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 1/25/2009 1:38 PM (GMT -6)   
Peety said...
I'm willing to try this, but we have suggestions of 1 or 5 capsules, probably different strengths, too.
I guess I want to know, can you "overdose" with too much?


I doubt it. I use one capsule, because Probiotics costs money and one capsule works for me.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics
Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 2/16/2009 10:31 AM (GMT -6)   
For those of you who do the probiotic enema, How long do you hold the enema in? Do you lay on your side for a while or do you put it in and go about your day or.....do you just put it in at night?
Female Currently Breastfeeding (All my meds are approved by the doc. for breastfeeding but they still make me nervous)
Left-sided colitis diagnosed at age 28 in 2001
3.5mg Low Dose Naltrexone, Prednisone 15mg and tapering,Zoloft,Prenatal vitamins,Juice Plus,Expecta DHA,Emergen C,Probotic Just ordered VSL $$$$$and Udo's Oil when I remember:(


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 2/16/2009 3:28 PM (GMT -6)   
mjw82704 said...
For those of you who do the probiotic enema, How long do you hold the enema in? Do you lay on your side for a while or do you put it in and go about your day or.....do you just put it in at night?


I think I was doing it twice a day when my flare was at its worst--once in the morning after going to the bathroom and once at night before going to bed. It's really a small amount. There was no need to lie on my side.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 2/16/2009 6:46 PM (GMT -6)   
Thank you Subdued,

It is a small amount. I could even put less water in the enema bottle. How long did it take for you to see a difference with this regimen during your flare? Even the smallest change such as less blood or bathroom trips etc.....Also, I notice that after I do the enema (I use an old hydrocort enema bottle w/ filtered water) I feel kind of raw down there. Did you experience this at all. Has anyone experienced this at all? At this point I am at the point where I am trying everything I can to get into remission so that I don't have to go onto Remicade. I don't want to give in with out trying all that I can. I just started flaring really bad again after I started the Augmentin (antibiotics) My last dose ends tomorrow Thank God!!!!I am hoping to see some change(even the smallest change) after this.
Female Currently Breastfeeding (All my meds are approved by the doc. for breastfeeding but they still make me nervous)
Left-sided colitis diagnosed at age 28 in 2001
3.5mg Low Dose Naltrexone, Prednisone 15mg and tapering,Zoloft,Prenatal vitamins,Juice Plus,Expecta DHA,Emergen C,Probotic Just ordered VSL $$$$$and Udo's Oil when I remember:(


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 2/16/2009 10:07 PM (GMT -6)   
mjw82704 said...
Thank you Subdued,

It is a small amount. I could even put less water in the enema bottle. How long did it take for you to see a difference with this regimen during your flare? Even the smallest change such as less blood or bathroom trips etc.....Also, I notice that after I do the enema (I use an old hydrocort enema bottle w/ filtered water) I feel kind of raw down there. Did you experience this at all. Has anyone experienced this at all? At this point I am at the point where I am trying everything I can to get into remission so that I don't have to go onto Remicade. I don't want to give in with out trying all that I can. I just started flaring really bad again after I started the Augmentin (antibiotics) My last dose ends tomorrow Thank God!!!!I am hoping to see some change(even the smallest change) after this.


I use a syringe that has a long removable tip. I bought it at a drug store. The syringe doesn't bother me.

It took me one and half to two months to get into remission. I went from lots of blood, huge blood clots, and diarrhea to no blood at all. It was a gradually process. Some days I did worse than others.

I was also eating/drinking lots of anti-inflammatory foods/beverages and avoiding pro-inflammatory foods. That also helped.

I have Colitis for a couple of reasons. One is that I was on antibiotics for many years. The antibiotics killed my good bacteria. That's why Probiotics work well for me. I had also done fecal transplantation two years prior. That worked instantly.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 2/17/2009 8:09 AM (GMT -6)   
Thank you for the information Joy. I am feeling more tender after I do the enema. Do you feel that way Joy or does anyone else who does these enemas?
Female Currently Breastfeeding (All my meds are approved by the doc. for breastfeeding but they still make me nervous)
Left-sided colitis diagnosed at age 28 in 2001
3.5mg Low Dose Naltrexone, Prednisone 15mg and tapering,Zoloft,Prenatal vitamins,Juice Plus,Expecta DHA,Emergen C,Probotic Just ordered VSL $$$$$and Udo's Oil when I remember:(


mjw82704
Regular Member


Date Joined Dec 2006
Total Posts : 251
   Posted 2/17/2009 7:01 PM (GMT -6)   
Bump
Female Currently Breastfeeding (All my meds are approved by the doc. for breastfeeding but they still make me nervous)
Left-sided colitis diagnosed at age 28 in 2001
3.5mg Low Dose Naltrexone, Prednisone 15mg and tapering,Zoloft,Prenatal vitamins,Juice Plus,Expecta DHA,Emergen C,Probotic Just ordered VSL $$$$$and Udo's Oil when I remember:(


DocGP
Regular Member


Date Joined Feb 2010
Total Posts : 183
   Posted 2/20/2010 6:53 PM (GMT -6)   
It sounds as though this is not a "one and done" kind of cure. If our flora is imbalanced, and this repopulates the gut with good bacteria, why would we need to keep doing it. Has anybody had good long term success with this?
Thanks

IamCurious
Veteran Member


Date Joined Jan 2010
Total Posts : 2219
   Posted 2/20/2010 7:12 PM (GMT -6)   
Fecal transplants are supposed to be more permanent. I wonder if anyone experimented with adding a couple of packets of VSL3 to the FT to make it more effective.

wolverine2
Regular Member


Date Joined Feb 2010
Total Posts : 98
   Posted 2/20/2010 7:25 PM (GMT -6)   
What brand is the probiotic? Im new to this malarky!

Is it just a short lived solution or does it last a while

Does anyone eat the pro biotic yoghurts?

killcolitis
Veteran Member


Date Joined Dec 2009
Total Posts : 2396
   Posted 2/20/2010 8:42 PM (GMT -6)   
Jini Patel has details on how to do one with Natren probiotics in her Listen to Your Gut. She also sells an herbal one through her website.

ickypoo
Regular Member


Date Joined Dec 2008
Total Posts : 224
   Posted 2/21/2010 8:10 AM (GMT -6)   
As a follow up to killcolitis, the probiotic retention enema developed by Patel-Thompson can be found here. It is now a free resource and provides detailed information.
Diagnosed with UC in 1990.
Current Meds: Sulfasalazine & Folic Acid.
Supplements: fish oil, flax oil, glucosamine, CoQ10, fiber, aloe vera juice, probiotics.
Other: unpasteurized milk every day.


chan37au
New Member


Date Joined Nov 2010
Total Posts : 2
   Posted 11/9/2010 5:56 AM (GMT -6)   
I went for human probiotic infusion at Dr Borody's clinic after a lot of to-and-fro ing. I was not comfortable with the idea. I had been on vancomycin and flagyl prior to that for a year and half. The first infusion was administered by colonscope. My doctor said I had an ulcer in the terminal ileum. After that I had 4 infusions. It was ok in the beginning and then started improving day by day. I had hypertension the prior year - after the infusion 20points were taken off my bp. For 6 weeks I was flying high. But I forgot the rule of moderation and had too much cake chocolates garlic bread etc (I didn't have that for a long time). Slowly the improvement deteriorated, so I thought let's go for a top-up. Immediately after the 2-day top-up infusion, my bp skyrocketed and things got worse. I am told it was the same donor.

I think the key to successful infusion is to get the 1st one by colonoscope - they go right to the terminal ileum and liberally spread the bacteria. I learnt my lesson on moderation. I am going to take vancomycin again and ask to be given infusion by colonscope the first time. By the way I also had blastocystis hominis few years ago but 7 day Batrim course got rid of it.

chan37au
New Member


Date Joined Nov 2010
Total Posts : 2
   Posted 11/9/2010 5:59 AM (GMT -6)   
They say that the human probiotic binds to the epithelial cens better than the artificial probiotics. Hence the probiotic enema is unlikely to be as effective as human priobiotic infusion (HPI)

MOMUC19
Regular Member


Date Joined Sep 2010
Total Posts : 155
   Posted 11/10/2010 12:03 PM (GMT -6)   
BabeintheWoods said...
Fecal transplants are supposed to be more permanent. I wonder if anyone experimented with adding a couple of packets of VSL3 to the FT to make it more effective.
We tried this with one of our FT.  I had a difficult time mixing the VSL#3 but I think it was b/c I was just rushing it so that we didn't let the donor sample sit around too long.
19 yo daughter diagnosed with UC
Meds ~ Lialda 3 a day ~ Prednisone 40mg
Began Pred. tapering 27.5 mgs current dosage
Probiotics..Allign, Florasmart Adv. Probiotic ,VSL#3 & Dr. O's
Psyllium powder 1 tspn.
Natrol~liquid iron 4 tspn (1x a day)
Vitamin B12 & Digestive Enzymes
Oscal1 pill 2 X a day
Protonix 40mgs
12.5 mgs Xanax when needed
Simethicone (GasX) when needed
Accupuncture

sheyna69
New Member


Date Joined Nov 2010
Total Posts : 1
   Posted 11/13/2010 9:36 PM (GMT -6)   
subdued said...
mjw82704 said...
Thank you Subdued,

It is a small amount. I could even put less water in the enema bottle. How long did it take for you to see a difference with this regimen during your flare? Even the smallest change such as less blood or bathroom trips etc.....Also, I notice that after I do the enema (I use an old hydrocort enema bottle w/ filtered water) I feel kind of raw down there. Did you experience this at all. Has anyone experienced this at all? At this point I am at the point where I am trying everything I can to get into remission so that I don't have to go onto Remicade. I don't want to give in with out trying all that I can. I just started flaring really bad again after I started the Augmentin (antibiotics) My last dose ends tomorrow Thank God!!!!I am hoping to see some change(even the smallest change) after this.


I use a syringe that has a long removable tip. I bought it at a drug store. The syringe doesn't bother me.

It took me one and half to two months to get into remission. I went from lots of blood, huge blood clots, and diarrhea to no blood at all. It was a gradually process. Some days I did worse than others.

I was also eating/drinking lots of anti-inflammatory foods/beverages and avoiding pro-inflammatory foods. That also helped.

I have Colitis for a couple of reasons. One is that I was on antibiotics for many years. The antibiotics killed my good bacteria. That's why Probiotics work well for me. I had also done fecal transplantation two years prior. That worked instantly.

 

 

 

Hey subdued, i read that you had a fecal transplant and that it worked, could you tell me more about it?  how long did your remission last?  i am seriously thinking about doing one, thanks


Tony V
Regular Member


Date Joined Sep 2006
Total Posts : 47
   Posted 12/1/2011 11:44 PM (GMT -6)   
Been in hospital almost 2 months on steroids. Scared of surgery or remicade or ciclosporin.

Gona do a propbiotic enema and/or home made fecal enema from my toddler nephew's healthy stool.

Thank you everyone for your stories.


Recipe:
50 ml poo or 50 ml VSL#3 (whisked)
200 ml warm luke water.
Insert in enema, in bum.
Hold at least 15 minutes to disseminate the good bacteria to colonize where they were booted out of thei nice comfortable abodes

therearemiracles
Veteran Member


Date Joined Dec 2006
Total Posts : 2929
   Posted 12/2/2011 3:21 PM (GMT -6)   
Hi Tony, Please keep us posted I'm almost going to do it, I just need more courage.
UC since '05, now asacol 9 pills.

Peace&Harmony
Veteran Member


Date Joined Jul 2010
Total Posts : 1121
   Posted 12/2/2011 7:03 PM (GMT -6)   
I was told to use a packet of VSL#3 in 2 cups warm water (body temp) before bed. Retain it..you can do a reverse colon massage to get the mixture through the entire colon...lay on your back with your knees bent and work up from the rectum to the ascending colon.

I reused my enema bottles from my meds - washed in warm water with dish soap. It takes about 7 x 60ml bottle to equal 1 cup. I also rinse first with just plain water.

I tried a rectal syringe but they are not very user friendly. There's no rubber stopper to and the opening is too small to pour into. You can try an enema bag..but need to hang it some where...maybe tie it to the bedpost or get a IV rack?

Wish you could just by the same enema bottle they use to make the enemas..but they won' sell to the public!
Diagnosed July 2010
As of 5/25/2011 procitis is now pancolitis!!
Pred 40mg started 6/4/2011, 15mg, as of 11/13/2011
LDN 4.5 mg 4/23/2011 / Apriso / Entocort EC / Microgestin
Folic Acid / Angstrom Mineral Blood Support / VSL#3 / Engery Multiplex / MucoaHeal / Burt's Bees Res-Q Ointment (great stuff for rectal pain!)
10/30 Absorb Plus 6 week bowel rest diet

Tony V
Regular Member


Date Joined Sep 2006
Total Posts : 47
   Posted 12/3/2011 6:55 AM (GMT -6)   
Did a probiotic enema on my own in hospital yesterday morning. Could only hold it in 30 minutes. I have to admit, my pain was zero all day even right now. Even the nurses were wondering why I didnt need morphine at all yesterday. I still have bloody mucus but thets not a bowel movement. Gona see how i feel today may do it again tomorrow.

Recipe:
1 container of BioK and 2 tbsp sterilized water
Put it in right away to get all those active good bacteria up there.

Tony V
Regular Member


Date Joined Sep 2006
Total Posts : 47
   Posted 12/17/2011 9:21 AM (GMT -6)   
Anyone else give this a shot?
UC since 2006. Treated w 2 weeks iv steroids then 3 months prednisone pills. Full remission until Sept 2011.
Diagnosed pancolitis. IV steroids not working anymore.
Desperate to get better. Scared of surgery.
Want to start SCD but cant do it until I get out of hospital ??
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