Metamucil better then Benefiber??

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ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 2/19/2009 8:53 AM (GMT -6)   
I've seen all the posts on Metamucil and perhaps I've been taking the wrong stuff. I haven't had a lot of success with Benefiber.
 
Presently flaring and not seeing any changes in BMs from taking Benefiber. Sparse mucous/blood loose stools only...I was expecting that I'd see some bulk happening.

quincy
Elite Member


Date Joined May 2003
Total Posts : 25142
   Posted 2/19/2009 9:13 AM (GMT -6)   
Hi...I've never taken it...which one exactly are you taking of the benefiber. What are the ingredients...exactly...could be something in it adding to your symptoms other than the obvious of flaring.

If you did change to Metamucil..try the smooth firstly or the capsules (maybe better for you?.but I've never tried them)..and don't get the powder that's "sugar-free".

Hope your flare gets under control soon.

You could,however, consider to call the doc and see if you can get a prescription of the Salofalk enemas and maybe they'll help better than the cortifoam...

Hit and miss sometimes. But the "bottom" line is patience.

q
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite..back to nightly (Jan 22)..tapered too fast
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 2/19/2009 9:20 AM (GMT -6)   
Hey Quincy,
 
From the website....
 
Ingredients

Wheat dextrin,
Gluten Free (less than 10 ppm gluten).

I haven't been enjoying this flare at all. Waiting to hear back from A.M.'s nurse today as she was away for the last few days.

 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 2/19/2009 9:21 AM (GMT -6)   
Oh yeah, it's the powder form

quincy
Elite Member


Date Joined May 2003
Total Posts : 25142
   Posted 2/19/2009 9:27 AM (GMT -6)   
I personally don't think it's enough "physical" fibre....my take on it anyway.

let us know what the nurse's response is...hopefully you can get in soon.

Sucks to have a flare...first few years are a pain.

q
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite..back to nightly (Jan 22)..tapered too fast
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 2/19/2009 9:35 AM (GMT -6)   
Psyllium is more of the active ingredient in Metamucil isn't it?
 
This one seems to be more pronounced than what I was experiencing over the last while...I guess things were starting to get under control prior to my stopping the Cortifoam and the meal from hell and so I likely have just forgotten how miserable a flare can be.
 
You should open a IBD counselling office in Winnipeg, so you could at least get paid for all the good stuff you provide!

burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 2/19/2009 4:44 PM (GMT -6)   
ZLSJ said...

You should open a IBD counselling office in Winnipeg, so you could at least get paid for all the good stuff you provide!


How about a branch office in Vancouver? tongue
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 2/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C, psyllium capsule (Metamucil) and bee propolis.


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 2/19/2009 4:47 PM (GMT -6)   
I take 3 Metamucil capsules everyday and I highly recommend it.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 2/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C, psyllium capsule (Metamucil) and bee propolis.


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 2/19/2009 4:57 PM (GMT -6)   

As long as she opens the Winnipeg office first!

Did U start with 3 a day? Were you/are you flaring? I've just been having the mucus/blood and other scattered remnants (for lack of a better term) for the last few days so I wasn't sure whether I should start with 3 a day or I should ease into things with one a day. 


Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 2/19/2009 5:46 PM (GMT -6)   
Hey ZLSJ,
 
I started taking the powder form of Metamucil (no taste, sugar free, no artificial flavor, etc...) and it was HORRRRRRIBLE.  Sooo I switched to the capsules on Tuesday.  I started taking 1 a day (the bottle recommends taking 2-6 a day) but i got a lot of good advice from pb4 to start low and then increase. 
 
I cant really tell whether its working yet only becuase it should take 48-72 hours for your body to start absorbing the fiber.  Also, Psyllium is the ingrediant that creates form/bulk in your stool (i believe). 
 
Good luck...I'll let you know in a few days how im feeling. 
 
Thanks!
Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Asacol - 2 x 3 day (waiting for results)
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Daily Green Tea, de-shelled sunflower seeds & spinach and 1 Multi Vitamin a day
Metamucil - 1/2 tablespoon daily


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 6625
   Posted 2/19/2009 5:51 PM (GMT -6)   
Do those of you who take more than one capsule a day spread them out over the day, or take them all at once? I'm thinking about trying adding fiber, but the timing (not taking it within 2 hours of other meds) might be difficult b/c I take Asacol 3x a day. I do it at breakfast, lunch, and dinner because I had a little bit of stomach upset if I take it without food. I could, though, take it at bedtime without problem.
Symptoms began in November 2008, ~4 weeks after giving birth to my son.
Eased for ~3 weeks in December, possibly b/c of probiotic use?
Returned in January 2009 (with a vengeance), diagnosed with pancolitis on January 30.
Currently taking Asacol (400mg 4 pills 3x daily), Rowasa nightly, Culturelle probiotic, and Zoloft (25 mg).


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 2/19/2009 5:53 PM (GMT -6)   
Thanks for the heads up Shadam.
 
I thought I saw that in one of the posts to start out with only 1. It would likely be pretty scary to hit the full dose right off the hop.
 
Are you flaring?

Shadam
Regular Member


Date Joined Jan 2009
Total Posts : 307
   Posted 2/19/2009 6:31 PM (GMT -6)   
It's hard to say if I'm flaring becuase I havent felt normal since I was diagnosed back in Nov of '08.  I have good days and I have bad days.  I generally avg 2-4 bm's a day which are mostly in the morning with no blood but some mucous which are all lose (hoping they form after metamucil kicks in).  I acutally just started feeling stomach pains since I've started the metamucil (which I hear is normal until your body accepts it). 
 
sooo, i guess it's hard to answer that question. 
Age: 25 / Male / Florida
Diagnosed: 11/08 / Pancolitis
Asacol - 2 x 3 day (waiting for results)
Prednisone / ended 1/09 (started at 30mgs and tapered down)
Daily Green Tea, de-shelled sunflower seeds & spinach and 1 Multi Vitamin a day
Metamucil - 1/2 tablespoon daily


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 2/19/2009 7:15 PM (GMT -6)   
ZLSJ said...

Did U start with 3 a day? Were you/are you flaring? I've just been having the mucus/blood and other scattered remnants (for lack of a better term) for the last few days so I wasn't sure whether I should start with 3 a day or I should ease into things with one a day.

I started with 1 a day last July with breakfast, as suggested by my GI doctor. I started to take another 1 after dinner a week later. And I finally added 1 after lunch 2 months later. Then it seems that this is the right dosage for me.
I was flaring when I started taking Metamucil capsules. And I still have symptoms like urgency and occasional mucus. Not 100% well but I feel good generally---no D or cramps.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 2/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C, psyllium capsule (Metamucil) and bee propolis.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17682
   Posted 2/19/2009 8:04 PM (GMT -6)   
I've been doing fibre supplements every single day for the last 5 yrs when my GI recommended I take them daily and indefinitely...starting with the smallest amount and then increasing only if necessary is the best route to go because adding fibre (via food or supplements) into your diet can naturally cause excess gas and bloating which is normal and will subside at some point and that varies for each person (for me it took 3 months)...always best to drink plenty of water with your fibre supplements and besides which, having IBD runs the risk of dehydration so that's another reason to keep up your water intake...any fibre supplement that contains psyllium is better than those that don't, some people even take just pysllium seed/husk.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 2/19/2009 8:23 PM (GMT -6)   

Do you take fiber AND  probiotics.  The Align has helped me so much but NP mentioned starting fiber when in remission.

ElaineNY


68 yr. old granny
New diagnosed with proctosigmoiditis - 6/2008
 Colonoscopy 10/28 showed only few cm. left to heal in rectum - tried Proctofoam for weeks - no luck.
Probiotic Align, Prilosec for GERD
Inderol for hypertension,Xanax,Lipitor, multivitamin, calcium w/D, Tylenol
Tried hydrocortisone for two weeks with no change.
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 
 
 
 
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17682
   Posted 2/19/2009 8:56 PM (GMT -6)   
I take fibre supplements and probiotics along with bee propolis, omegas 3-6-9, vitamins A, C-Calcium ascorbate, B12, and chamomile tea, all daily.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 2/19/2009 9:20 PM (GMT -6)   
Burnaby Girl,
 
Are the Salofalk enemas recent or have you been taking them since you were diagnosed with UP?  Those are the ones that Quincy says I should get my doc to precribe now that my Cortifoam is winding down.
 
Your bad cold is interesting in that I also have one and was wondering if my flare may have been ignited by the cold...it's been about 2 + weeks of feeling beat up....coughing, congestion, generally blah and I thought I was heading off to something closer to remission, then the weekend hit and I'm right back where I was.  

burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 2/19/2009 11:50 PM (GMT -6)   
When I was diagnosed with UP in July 2006 I was prescribed Salofalk enema. It's the only medication I had at that time. I used it nightly for 6 months before I reached remission. Then my GI doctor said I could taper it slowly, starting from 1 in 2 nights for 6 weeks, then 1 in 3 nights for 6 weeks, and so on.

I had a bad cold in Oct 2007 when I was using 1 Salofalk enema in 5 nights. A couple of days later I saw blood, followed by urgency. I upped the enema and started to use it nightly again right away. This time without luck. I had 10+ D everyday, got dehydrated and was sent to ER twice. I ended up taking Prednisone, which saved my life.

After I had tapered off Prednisone I started to have symptoms again, though much milder. And Salofalk enema didn't work well. My GI prescribed Entocort (steroid) enema which helped instantly. I used it for 7 weeks before tapering it off with Salofalk enema. I'm using Salofalk enema nightly now.

Lesson learnt: 1. I should use Salofalk enema at least 1 in 3 days from now on, and
2. Wrap up in fall/winter and don't ever get a cold again.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 2/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C, psyllium capsule (Metamucil) and bee propolis.


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 2833
   Posted 2/20/2009 8:35 AM (GMT -6)   
I have been taking Metamucil wafers pretty much daily for about a year now- they work great! I did switch to Benefiber for a bit, caue I couldn't find the wafers in my grocery store. It was awful- the only change I noticed was horrible, horrible gas & tons of it. It did nothing for my stools. I also tried the Fiber One bars for a weekend- same result, the most god-awful gas you can imagine. So I switched back to the Metamucil wafers & things have been fine again- I just stock up when I see them in a store! Sometimes I feel a little odd buying 3-4 boxes of fiber wafers, but whatever...

diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Culturelle
Fiber supplement
 
 
 


ZLSJ
Regular Member


Date Joined Dec 2008
Total Posts : 263
   Posted 2/20/2009 9:58 AM (GMT -6)   
Well, looks like Metamucil caps are the way to go for me. 
 
Took one as directed (around dinner time) and woke up around 5:00 or so with some stomach cramping..off to the bathroom I went and wow... results! First real formed bm in months. Amazing how something that most everyone else takes for granted excites those of us with bowel disease!
 
That was about 10 hours after I took the pill so have to decide on when I want to take them. Before bed as pb4 does sounds like it would allow for the best results timing wise assuming that would typically be the time it takes to get activate my system.
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