Coconut for UC?

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WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 2/22/2009 5:48 PM (GMT -6)   
My grandparents just called and read me this article :
 

The People's Pharmacy

Sunday, February 22, 2009

Question: Thank you for writing about coconut for treating ulcerative colitis. I was diagnosed with colitis in 1980 and had 3 feet of my colon removed. My condition was moderate to severe, and I was taking eight tablets of sulfasalazine every day to control it, along with Rowasa enemas daily.

I started ingesting shredded coconut twice a day after reading your article, though I had no expectation it would help. Within a few weeks, my symptoms had lessened, and in about a month, I had gone into complete remission. A year later, I had a colonoscopy showing a healthy colon.

<!--endtext-->
 
I gradually cut back my medication and have not taken anything for the condition for five years. I feel well and have had no GI problems. I read that coconut has anti-inflammatory and anti-viral properties and think it must be true.

Answer: We have heard from others who suffered from severe diarrhea associated with inflammatory bowel disease that coconut macaroon cookies or shredded coconut alone can be helpful. We doubt that many people with ulcerative colitis would respond as dramatically as you have, but we certainly are delighted to learn that this remedy was beneficial for such a serious condition.

Anybody have experience with this?????

Thanks so much always for your support!


severe ulcerative proctitis - march 05 diagnosed
proctosigmoiditis - january 09 diagnosed
hospitalized - 3/08 for 6 days of IV steriods
hospitalized - 1/09 for 5 days of IV steriods / put on 6MP
past meds: colozol, sulfasalzine, hydrocortisone enemas, canasa, rowasa and prednisone 
current meds: 6MP (75mgs), Asacol 12 pills,  Rowasa Enema, Primal Defense Ultra Probiotic, fish oil, calcium w/ vitamin d 2x a day, prenatal vitamin & extra vitamin c and b12.
 
 


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17876
   Posted 2/22/2009 6:29 PM (GMT -6)   
Many have raved about having success eating coconut macaroons on a daily basis (but the store bought sugar content is probably too high, therefore not beneficial when fighting inflamation)...I eat fresh coconut a few times a week, along with drinking the coconut milk/juice that's contained in the coconut.

It is very healthy for you and it is a good fat.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


suebear
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Date Joined Feb 2006
Total Posts : 5388
   Posted 2/22/2009 6:36 PM (GMT -6)   

Coconut is most definitely not a good fat!  Coconut oil and palm oil are two of the worst fats out there.  I have never heard of someone gaining remission from eating coconut but it is true that if you have diarrhea it really slows it down.  It won't hurt to try it but take you arteries in consideration.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


subdued
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Date Joined Dec 2008
Total Posts : 3231
   Posted 2/22/2009 6:58 PM (GMT -6)   
I can not eat coconut. It is high in fructose.
Joy - 47 yrs and counting
Diagnosed w/ UC Dec 06 (also have IBS)
Currently in remission

Lexapro (for stress)
Probiotics and Vitamins (a whole bunch of them)
Anti-inflammatory foods: turmeric, seaweed, garlic...
Avoid: anything with high-fructose corn syrup, foods high in fructose, artificial sweeteners
Previous treatments: Fecal transplantation (worked), Prednisone (stopped working), Colazal (stopped working), Asacol (stopped working)


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 17876
   Posted 2/22/2009 9:53 PM (GMT -6)   
suebear said...

Coconut is most definitely not a good fat!  Coconut oil and palm oil are two of the worst fats out there.  I have never heard of someone gaining remission from eating coconut but it is true that if you have diarrhea it really slows it down.  It won't hurt to try it but take you arteries in consideration.

Sue


Yes it most definitely is a good fat, you're going by OLD and wrong information....

Modern researchers have discovered important health benefits and critical bodily functions that are supported by the pool of MCFAs available to the human body. The high concentration of Medium Chain Fatty Acids (MCFAs) of 62% is the critical aspect of why this tropical oil not only behaves differently to any other saturated fat, but is also deemed healthier than most unsaturated oils, the latter often having a much higher concentration of long chain fatty acids.. Generally MCFAs are of a smaller particle size thus requiring less energy and fewer enzymes for absorption, placing less strain on the digestive system .

This is further enhanced by the fact that short and medium chain fatty acids are made soluble and absorbed in the aqueous phase of the intestinal contents and transported directly via the portal vein to the liver where they are consumed as an energy source similar to carbohydrates. MCFA have also been shown to assist the absorption and retention of calcium, magnesium and some amino acids as well supporting the healthy functioning of the thyroid.

Notwithstanding all the bodily functions that may be enhanced by the consumption of MCFAs the most outstanding finding of modern research has been the capacity of certain MCFA to enhance the human immune system and actively participate in the capacity of the human body to fight virus, bacteria and fungi.

 

:)


My bum is broken....there's a big crack down the middle of it! LOL :)


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 2/22/2009 9:56 PM (GMT -6)   
I love coconut. My mom made a bunch of coconut goodies over the holidays. I ate them for days, not thinking anything of it. Now looking back, I did feel good during that time period. Maybe I should add it back into my diet.
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
LDN - 2/17/09 1.5 mg.
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10081
   Posted 2/22/2009 10:01 PM (GMT -6)   
I eat a lot of coconut, I put coconut oil in smoothies and I also use coconut flakes in yogurt or granola. When I was on the SCD diet I seriously ate coconut every day and I still suffered badly from UC. This was when I wasn't taking medication - my flare got out of control and I was desperate to find something to help so I tried the SCD diet with no luck.

Diagnosed with proctitis in March 2007 - Treated with Canasa 2x Daily
Diagnosed with UC December but had symptoms months ago - Treating with Asacol (feel hopeless)


vega19
Regular Member


Date Joined Sep 2008
Total Posts : 91
   Posted 2/22/2009 10:56 PM (GMT -6)   
When I was hospitalized for my 1st severe flare the medications weren't working very well and the doc was talking surgery. My husband had read about the benefits of coconut oil and bought some supplements for me to take. After a few days I noticed huge improvements. I just realized that I don't have them in my meds/supplements list. I'll have to edit that.
31 year old female diagnosed with UC (entire colon) Feb 2008
(4) 400mg Asacol 3x a day
Remicade 10mg/kg every 8 weeks
Omega 3 supp, calcium supp
probiotic


WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 2/23/2009 9:16 AM (GMT -6)   
I ordered the supplements last night from vitamin shoppe.

Vega19...how many mgs do you take?
severe ulcerative proctitis - march 05 diagnosed
proctosigmoiditis - january 09 diagnosed
hospitalized - 3/08 for 6 days of IV steriods
hospitalized - 1/09 for 5 days of IV steriods / put on 6MP
past meds: colozol, sulfasalzine, hydrocortisone enemas, canasa, rowasa and prednisone 
current meds: 6MP (75mgs), Asacol 12 pills,  Rowasa Enema, Primal Defense Ultra Probiotic, fish oil, calcium w/ vitamin d 2x a day, prenatal vitamin & extra vitamin c and b12.
 
 


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 2/23/2009 9:27 AM (GMT -6)   
I tried a diet of coconut macaroons, but it didn't work for me (which was hugely disappointing because I LOVE coconut); however, I have IBS in addition to pancolitis, and I know that coconut can aggravate IBS very much.  Maybe that's why it didn't work.  Something to consider if you have IBS, as well.

DX:  Pancolitis as of 9/08 (Proctitis as of 1/08) and IBS
Current Treament:  Spinach/Sunflower Seed Diet
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol, Iron, Zoloft, Acidophilus.
Status:  Remission
 
 
 
 


WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 2/23/2009 10:05 AM (GMT -6)   
Kiss...how ya feeling these days? are you still doing the spinach diet? I still can not believe you are in remission. I also can not believe I do not motivate myself to give it a whirl.
severe ulcerative proctitis - march 05 diagnosed
proctosigmoiditis - january 09 diagnosed
hospitalized - 3/08 for 6 days of IV steriods
hospitalized - 1/09 for 5 days of IV steriods / put on 6MP
past meds: colozol, sulfasalzine, hydrocortisone enemas, canasa, rowasa and prednisone 
current meds: 6MP (75mgs), Asacol 12 pills,  Rowasa Enema, Primal Defense Ultra Probiotic, fish oil, calcium w/ vitamin d 2x a day, prenatal vitamin & extra vitamin c and b12.
 
 


vega19
Regular Member


Date Joined Sep 2008
Total Posts : 91
   Posted 2/23/2009 10:56 AM (GMT -6)   
I take one with each meal. I found that if I stop taking them for a while some slight UC symtoms stir up.
31 year old female diagnosed with UC (entire colon) Feb 2008
(4) 400mg Asacol 3x a day
Remicade 10mg/kg every 8 weeks
Omega 3 supp, calcium supp
probiotic


beartooth
Veteran Member


Date Joined Dec 2006
Total Posts : 517
   Posted 2/23/2009 11:27 AM (GMT -6)   
I heard about the coconut thing and I gave it a try. The only thing it did was increase my calorie intake because cocnut milk has lots more calories than the soy milk I was using. Plus I use coconut oil cooking, but I was adding it on sandwiches which also added a couple of hundred calories to everything.

Recently I saw some coconut juice in the hippy store I go to and on the can it says it is a good source of magnesium and potassium. It is possible that the coconut diet works based on the same properties as the spinach/sunflower seed diet. Lots of magnesium seems to do a body good. Soomething to think about.
 
36 y.o. male
Diagnosed w/ UC in May '06, had symptoms since '99
Meds & supplements: VSL#3, Lialda, Allegra, multi-vitamin, buproprion, fluoxetine, and vit E, D, zinc.
Started LDN: 1.5mg for now


Kiss520
Veteran Member


Date Joined Jun 2008
Total Posts : 742
   Posted 2/23/2009 1:26 PM (GMT -6)   
WishfulMA said...
Kiss...how ya feeling these days? are you still doing the spinach diet? I still can not believe you are in remission. I also can not believe I do not motivate myself to give it a whirl.

I'm doing just great!  Thanks for asking. :-)   In the craziness of my flare last year, I forgot that one of my doctors told me he believed I have IBS.  So although I've been in remission, I've still had occasional stomach problems.  Now that I'm addressing BOTH issues, I'm doing even better. 
 
I think that's kind of a tricky thing about the spinach/sunflower thing - both of those foods are extremly fibrous and rough on the stomach, so its important (especially for people who also have IBS) to eat those foods along with soluble fibers like white bread or pasta.  I learned all about soluble vs. insoluble fiber on www.helpforibs.com.  Great website.
 
I also wonder how many people have IBS in addition to UC, and how much one feeds into the other.  I'm going to write a post about that...
 
Anyways, do you think you'll try the diet?  It's so worth a shot.  When I read about all the meds and doctor visits and side effects that people deal with on this forum, I just can't believe I'm done with all of it.


DX:  Pancolitis as of 9/08 (Proctitis as of 1/08) and IBS
Current Treament:  Spinach/Sunflower Seed Diet
Previous Treatment:  Canasa suppositories, Cortifoam, Prednisone, Colazal, Symex DuoTabs, Rowasa, Bentyl, Cortenema, Asacol, Iron, Zoloft, Acidophilus.
Status:  Remission
 
 
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5464
   Posted 2/23/2009 3:14 PM (GMT -6)   
     When I was flaring my nutritionist gave me a low residue diet to follow and I believe coconut was a no no.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 2/23/2009 4:19 PM (GMT -6)   
As I posted earlier, I love coconut so I bought some today and am going to make me some macaroons. Even if they don't help w/the UC, at least it'll be something yummy to eat. LOL!! My appetite has sucked lately so I'm allowing myself to eat whatever sounds good. :)
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
LDN - 2/17/09 1.5 mg.
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1754
   Posted 2/23/2009 7:52 PM (GMT -6)   
I drank coconut water (first from an actual coconut, and then from a box from Whole Foods) when I was flaring last year, but it didn't seem to help my UC. I quit after a while b/c I got sick of the taste. I have yet to try macaroons!
Female, Age 20 (formerly ComedyDork)
9 Asacol, Rowasa1000 mg Canasa, Proctofoam, Rifaximin 2/day
Digestive Advantage (Crohn's & Colitis)1 Florastor, 50 mg 6MP,1 Primadophilus reuteri, Remicade (6 infusions), 2.4 g Lialda, Forvia, 6 Colazal, 1 Anucort, Culturelle, Fish Oil, Calcium/Vit D supplement, 20 mg Prozac, VSL #3
 


VerM
Regular Member


Date Joined Feb 2009
Total Posts : 82
   Posted 2/23/2009 9:39 PM (GMT -6)   
Coconut butter FTW!!!
I will not be passive.  I will fight until I win.  -VerM


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 21963
   Posted 2/24/2009 8:14 AM (GMT -6)   
I read about the macaroon cookies a couple years ago and I thought I would try it. I had a couple a day and know what happened? I got sick of eating macaroons! I can honestly say that it didn't affect my Uc either way.
 @--->--SHERRY--<---@
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AshNH
Regular Member


Date Joined Jul 2007
Total Posts : 208
   Posted 2/24/2009 9:16 AM (GMT -6)   
This has been brought up before. You may wish to search for previous posts. I drink coconut water all the time. Calories seem to be less than a can of soda. In India, coconut water is used to treat for all sorts of internal healing. You can order the water on Amazon, if your local health or Indian grocery stores don't carry it.
L-glutamine, probiotics, Coconut Water, Rowasa(as needed)

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