Never stop bleeding...

New Topic Post Reply Printable Version
51 posts in this thread.
Viewing Page :
 1  2  3 
[ << Previous Thread | Next Thread >> ]

spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 180
   Posted 3/9/2009 12:42 PM (GMT -6)   

Hi! I was just wandering if someone had the same situation. My UC doesn't really bother me a lot. I have 1-2 times BM pretty formed everyday. No pain or anything...However, every time I go to the bathroom I have blood and mucus for a year now. It never stops! My GI says that I have to start Pred., but I'm scarred that even if it help, symptoms will be back as soon as I stop. Not my choice! Does anybody know any other ways how to stop the bleeding? I just don't want to go farther on the drugs... shakehead


Diagnosed with left-sided UC on Sept 08 Colazal 5x2day, Lialda 2 per day (so unusual to take just 2 pills)
Canasa 1 supp. every nigh Cortifoam 1 at night
Vitamins: Zinc, B complex, Fleexsead Oil capsules, Multi. Digestive Enzymes (helps a lot)
***I'm not sick with UC, it's UC sick with me!***






quincy
Elite Member


Date Joined May 2003
Total Posts : 25561
   Posted 3/9/2009 12:45 PM (GMT -6)   
It seems that your inflammation would be very low in the rectum, maybe if you used suppositories, that could help. The Canasa?

Are you still on the cortifoam?  for how long nightly?
One of the side effects can be thinning of the mucosa, that could be part of the reason for your bleeding.

It sure would be nice for you to get some relief.

quincy


*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 180
   Posted 3/9/2009 12:50 PM (GMT -6)   
yes, last time when I had colonskopy, it showed like an inch of inflomation in the rectum area. I use canasa for a week now, but there is no effect. Plus, I always confuse it with hemorroids blood. I don't use Cortifoam (trying to stay away from steroids). What is the best for rectum area? I heard it the hardes to heal.... rolleyes
Diagnosed with left-sided UC on Sept 08 Colazal 5x2day, Lialda 2 per day (so unusual to take just 2 pills)
Canasa 1 supp. every nigh Cortifoam 1 at night
Vitamins: Zinc, B complex, Fleexsead Oil capsules, Multi. Digestive Enzymes (helps a lot)
***I'm not sick with UC, it's UC sick with me!***






quincy
Elite Member


Date Joined May 2003
Total Posts : 25561
   Posted 3/9/2009 1:20 PM (GMT -6)   
yep, that's what my doctor states as well. You could consider a hydrocortisone suppository, less steroid than the enemas.

If you're using the Canasa...you could use them twice daily, one in the morning and before bedtime.

quincy
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/9/2009 1:42 PM (GMT -6)   

spluxa - I had continuous bleeding for about a year until I went to prednisone.  However, I tried and failed at all mesalamines, steroid enemas, etc. before going to prednisone.  After a year of trying I finally gave in to prednisone since either I was allergic to meds or they weren't working.  Don't give up yet!  Try everything first - and give it time.  If you see even a little improvement that is going in the right direction.

I have tapered to 20mg. prednisone now for two weeks and started 6MP about 8 days ago.  Today bleeding returned after being gone for a month so nothing is certain.  Mine is also confined to small rectal area.  I see doc next week.  Hoping he will add a steroid suppository as those work best for me to administer.  I do want to get off prednisone someday but if I can't - that is the way it will be - one day at a time.

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008
Tried all mesalamines and enemas, Canasa, etc.  Colonoscopy 10/28 showed only few cm. left to heal -hydrocortisone enemas 12 days - much worse. Cannot tolerate mesalamine!
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 Feb. 21 - down to 20 mg. - no blood, no pain, no bad side effects so far. Starting 6-MP Feb. 28 along with 20 mg. prednisone.
Probiotic Align, Prilosec for GERD
 
 
 


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 3/9/2009 2:13 PM (GMT -6)   
Jini Patel Thompson's book Listen to Your Gut has dietary recommendations to help stop bleeding. I've found l-glutamine and George's aloe vera helpful for gut healing.


Diagnosed with ulcerative colitis spring 1999.
 
Maintenance dose sulfasalazine. Probiotics, l-glutamine, vitamin D and fish oil caps. George's aloe vera juice. Oregano oil antibiotic, antiviral, antifungal. Mostly grain-free and dairy-free diet. Long-term remission with only minor blips.
 
 


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5449
   Posted 3/9/2009 2:17 PM (GMT -6)   
     Try the Cort enemas for a week or so..once in the a.m. and once in p.m..  If you still see blood, then by all means go on the prednisone.  It isn't good to be bleeding all the time.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Update 11/03/08...finally in remission!!  Hope I don't jinx myself.  Off the prednisone since 11/01/08...now see if I can stay off for longer than two weeks.  Other meds: 6MP (75 mgm), colazal (6 per day), Benicar and Toprol (high blood pressure meds), Probiotic (2 per day), fish oil capsule and multi-vitamin and calcium with vitamin D.


Test Flyer
Regular Member


Date Joined Feb 2009
Total Posts : 27
   Posted 3/9/2009 4:40 PM (GMT -6)   
I have very similar symptoms - same amount of blood and mucous every time - always right before stool passage, accompanied by gas.  Then, once that passes, it's my normal bowel movement, soft, but reasonably formed for me...

Left side UC
diagnosed 1990
Azulfidine medicated
 


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3053
   Posted 3/9/2009 6:36 PM (GMT -6)   

me too, constant bleeder here... same as you, TestFlyer- initially pass blood & mucous a couple times, then it's soft formed stools, then I'm pretty much done. Sometimes thruout the day I pass mucous a few times, but no blood. My GI knows about it...he didn't suggest pred, probably because my last pred course was less than helpful. I don't know how to stop it. I suppose enemas, they haven't stopped it for me, but I don't use them regularly. It's just become part of my "normal" daily bathroom habits. I expect surgery will be sometime in my future, so I'm no too concerned with it. Either it'll stop, or it'll get much much worse & I'll go for surgery. Either way, I'm alright for now.


diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- since 4/07
Imuran- 150mgs/day
Primal Defense Ultra
Fiber supplement
 
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 21905
   Posted 3/9/2009 8:59 PM (GMT -6)   
Suppositories, enemas, steroid enemas, steroid foam enemas - I used all of these and sometimes they would help but everytime I stopped them I would almost instantly start bleeding again even after slow tapering. I am an easy bleeder - always have been. I've been anemic more times than I can count. That is one of the reasons I am on 6mp.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/9/2009 9:15 PM (GMT -6)   

OK - red - why do you say that is why you are on 6-MP (bleeding/anemic?)  Just didn't quite understand.  You also take Colazal, right? 

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008
Tried all mesalamines and enemas, Canasa, etc.  Colonoscopy 10/28 showed only few cm. left to heal -hydrocortisone enemas 12 days - much worse. Cannot tolerate mesalamine!
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 Feb. 21 - down to 20 mg. - no blood, no pain, no bad side effects so far. Starting 6-MP Feb. 28 along with 20 mg. prednisone.
Probiotic Align, Prilosec for GERD
 
 
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 21905
   Posted 3/9/2009 9:23 PM (GMT -6)   
I was placed on 6mp because I couldn't get off the steroid enemas without being thrown into a flare - which in turn made me bleed and become anemic from losing too much blood. And because I couldn't get off the steroid enemas, the doctor put me on 6mp.
 
And yes, I'm still on Colazal but it wasn't enough to keep me from flaring. 


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-second series starts 2/17, OA in my fingers -Celebrex, Tylonel Arthritis and Voltaren Gel
To help Healingwell - click here: DONATE
 
 
 
 

 
 


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 3/9/2009 9:32 PM (GMT -6)   
I don't bleed. But I have red, ribbony stools together with well-formed stools in a BM. Sometimes I see a pool of "thick blood" underneath the well-formed stools. And the blood doesn't dissolve in the water and turn it pink.
What does it indicate?
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 2/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C, psyllium capsule (Metamucil) and bee propolis.


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/9/2009 9:42 PM (GMT -6)   

My NP told me that most likely the "thick" blood is blood mixed with mucous from the rectal area ulcer.  I have that too and rarely red, thin blood (sometimes on TP).  She says very "normal" with proctitis.  I have that first BM in mornings usually - comes out first so in bottom of toilet.  No blood after that!

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008
Tried all mesalamines and enemas, Canasa, etc.  Colonoscopy 10/28 showed only few cm. left to heal -hydrocortisone enemas 12 days - much worse. Cannot tolerate mesalamine!
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 Feb. 21 - down to 20 mg. - no blood, no pain, no bad side effects so far. Starting 6-MP Feb. 28 along with 20 mg. prednisone.
Probiotic Align, Prilosec for GERD
 
 
 


burnabygirl
Regular Member


Date Joined Jun 2008
Total Posts : 205
   Posted 3/9/2009 11:20 PM (GMT -6)   
Thank you Elaine for letting me know.
No wonder my GI doctor didn't seem to be concerned when I told her I saw "thick blood" almost everyday.
Ulcerative proctitis diagnosed in July 2006. Medications: Salofalk enema nightly.
Remission from Nov 2006 to Oct 2007. Then a bad cold and a bad flare for 1 year till Nov 2008.
Pancolitis diagnosed in April 2008. Current medications: Salofalk enema, Salofalk tablets 1000mg x 2/day, Entocort enema (tapering).
Supplements: Calcium with Vitamin D, Vitamin B Complex, Vitamin C, psyllium capsule (Metamucil) and bee propolis.


Ouchie2
Regular Member


Date Joined Jul 2006
Total Posts : 303
   Posted 3/10/2009 6:17 AM (GMT -6)   
Im on 6MP too but im still having problems...seems every time i start a new medication it works for 6 months then stops working now....i go to the toilet up to 10 -20 times a day no actual BM just blood and mucus...and gas of course....
HELLO FROM NEW ZEALAND

38 year old female
UC - Diagnosed 2006
HLA-B27 Gene
Iritis 2008
Asacol
Mercaptopurine


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 721
   Posted 3/10/2009 8:05 AM (GMT -6)   
The Cortifoam has very little steroid absorption, and therefore few typical side affects. Don't fear it. It is easier than the liquid enemas, and quite helpful for rectal bleeding.
Daughter,15 diagnosed 1-08 w/ UC .
Asacol, Prevacid, Flagyl, Prednisone 50mg, major flare, now off!, Hosp. four x this yr. Low residue diet still, an
6MP, Colazal ,horrible acne/moon for awhile- No more Pred,but 6mp isn't working. Cortifoam enemas 4xweek
Trying probiotics, Niferex, fish oil, and Mangosteen for kicks.
update:
Had 4th infusion of Remicade(12-08), and still on all of the other drugs, except Flagyl and Pred. Better, no remission. In a drug trial for children. Living on a flare's edge.


spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 180
   Posted 3/10/2009 8:20 AM (GMT -6)   
Katmom said...
The Cortifoam has very little steroid absorption, and therefore few typical side affects. Don't fear it. It is easier than the liquid enemas, and quite helpful for rectal bleeding.

I have all my bleeding back as soon as I stoped using it... shakehead
Diagnosed with left-sided UC on Sept 08 Colazal 5x2day, Lialda 2 per day (so unusual to take just 2 pills)
Canasa 1 supp. every nigh Cortifoam 1 at night
Vitamins: Zinc, B complex, Fleexsead Oil capsules, Multi. Digestive Enzymes (helps a lot)
***I'm not sick with UC, it's UC sick with me!***






WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 3/10/2009 10:14 AM (GMT -6)   
I too have been bleeding since last January! Hospitalized twice already. I am now on 6MP and have been on it since January 20th. I thought by now the bleeding would stop. I wish I had an answer. I too am scared and frustrated.
severe ulcerative proctitis - march 05 diagnosed
proctosigmoiditis - january 09 diagnosed
hospitalized - 3/08 for 6 days of IV steriods
hospitalized - 1/09 for 5 days of IV steriods / put on 6MP
past meds: colozol, sulfasalzine, hydrocortisone enemas, canasa, rowasa and prednisone 
current meds: 6MP (75mgs), Asacol 12 pills,  Rowasa Enema, Primal Defense Ultra Probiotic, fish oil, calcium w/ vitamin d 2x a day, prenatal vitamin & extra vitamin c and b12.
 
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/10/2009 10:18 AM (GMT -6)   

Wishful - are you still on prednisone?  Don't you just hate it when things seem to be going pretty good and OOooppsss!

I am on prednisone 20 mg. now third week and bleeding returned yesterday after 4 weeks without any and feeling pretty good.  I am to see the GI doc next Monday.  I was hoping yesterday was a one time but blood on stool again today - formed, etc. but mucous w/blood - darn!  Just takne the 6MP for 10 days so, of course, no help there - seems like yours should "kick in" soon. 

ElaineNY


 
Senior - New diagnosed with proctosigmoiditis - 6/2008
Tried all mesalamines and enemas, Canasa, etc.  Colonoscopy 10/28 showed only few cm. left to heal -hydrocortisone enemas 12 days - much worse. Cannot tolerate mesalamine!
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 Feb. 21 - down to 20 mg. - no blood, no pain, no bad side effects so far. Starting 6-MP Feb. 28 along with 20 mg. prednisone.
Probiotic Align, Prilosec for GERD
 
 
 


spluxa
Regular Member


Date Joined Nov 2008
Total Posts : 180
   Posted 3/10/2009 10:22 AM (GMT -6)   
I was wandering, why taking drugs if they are not helping??? :((( All of us take soooo many pills, and still suffering...HATE IT!
Diagnosed with left-sided UC on Sept 08 Colazal 5x2day, Lialda 2 per day (so unusual to take just 2 pills)
Canasa 1 supp. every nigh Cortifoam 1 at night
Vitamins: Zinc, B complex, Fleexsead Oil capsules, Multi. Digestive Enzymes (helps a lot)
***I'm not sick with UC, it's UC sick with me!***






WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 3/10/2009 10:23 AM (GMT -6)   
I am sorry to hear that Eliane. That pretty much happened to me when I tapered down on the prednisone. I started to bleed again. My GI decided to continue the taper and get me off the prednisone and because I am taking the 6MP. I am just frustrated right now.

I also have bad pains in my left side...and I just read some posts...can this be pancreatitis? Now I am worried...
severe ulcerative proctitis - march 05 diagnosed
proctosigmoiditis - january 09 diagnosed
hospitalized - 3/08 for 6 days of IV steriods
hospitalized - 1/09 for 5 days of IV steriods / put on 6MP
past meds: colozol, sulfasalzine, hydrocortisone enemas, canasa, rowasa and prednisone 
current meds: 6MP (75mgs), Asacol 12 pills,  Rowasa Enema, Primal Defense Ultra Probiotic, fish oil, calcium w/ vitamin d 2x a day, prenatal vitamin & extra vitamin c and b12.
 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 25561
   Posted 3/10/2009 10:52 AM (GMT -6)   
spluxa said...
I have all my bleeding back as soon as I stoped using it... shakehead

were you tapering the cortifoam or stopping it abruptly?  Tapering could help, then you could find a maintenance dosage.
*Heather* Status..Asacol  (3 x2 daily); flaring /Dec 22, tapered to every 3rd nite
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(Natural Factors Protec, Primadophilus Reuteri Pearls, Natural Factors Ultimate). @ bedtime
~various digestive enzymes as needed; started Omega 3 
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 3/10/2009 10:57 AM (GMT -6)   
Probably not your pancreas - which is behind the stomach on right side.  Is left pain very low.  That is where I have it  - left-sided proctosigmoiditis (what a mouthful).  Keep track of it and discuss with your doctor.  ElaineNY

 
Senior - New diagnosed with proctosigmoiditis - 6/2008
Tried all mesalamines and enemas, Canasa, etc.  Colonoscopy 10/28 showed only few cm. left to heal -hydrocortisone enemas 12 days - much worse. Cannot tolerate mesalamine!
2/3/2009 - sigmoidoscopy showed about 30 cm. involved but mild - starting on prednisone only 40 mg. taper on 2/7/2009.
 Feb. 21 - down to 20 mg. - no blood, no pain, no bad side effects so far. Starting 6-MP Feb. 28 along with 20 mg. prednisone.
Probiotic Align, Prilosec for GERD
 
 
 


WishfulMA
Regular Member


Date Joined Jul 2008
Total Posts : 197
   Posted 3/10/2009 11:53 AM (GMT -6)   
yup Eliane...thats exactly where the pain is!
severe ulcerative proctitis - march 05 diagnosed
proctosigmoiditis - january 09 diagnosed
hospitalized - 3/08 for 6 days of IV steriods
hospitalized - 1/09 for 5 days of IV steriods / put on 6MP
past meds: colozol, sulfasalzine, hydrocortisone enemas, canasa, rowasa and prednisone 
current meds: 6MP (75mgs), Asacol 12 pills,  Rowasa Enema, Primal Defense Ultra Probiotic, fish oil, calcium w/ vitamin d 2x a day, prenatal vitamin & extra vitamin c and b12.
 
 

New Topic Post Reply Printable Version
51 posts in this thread.
Viewing Page :
 1  2  3 
Forum Information
Currently it is Wednesday, July 23, 2014 6:50 AM (GMT -6)
There are a total of 2,177,561 posts in 242,130 threads.
View Active Threads


Who's Online
This forum has 153457 registered members. Please welcome our newest member, JackLegofAllTrades.
357 Guest(s), 11 Registered Member(s) are currently online.  Details
Georgia Hunter, JackLegofAllTrades, hypoHashimoto, sierraluvr, A Yooper, SkeeterZX22v, Tudpock18, ks1905, fruitgirl, Coolpigeon, poorlybear


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer