Rectal Pain after J Pouch Surgery

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benjwl123
Regular Member


Date Joined Dec 2008
Total Posts : 21
   Posted 4/11/2009 7:35 PM (GMT -6)   

I am looking for advice from people who have undergone stage 2 J pouch surgery where the rectal region has been literally dissected and connected to the J pouch for future voiding.  I am having more rectal pain than abdominal pain post surgery and no pain meds are even elevating any of the pressure or pain I feel when standing, sitting, lying on my side or urinating. 

 

We have an anesthesiologist in the family who told me that rectal pain is one of the worst pains to treat because of all the nerve endings and how they send signals to your spinal cord then to your brain to signal pain.  I guess that is why when I was on the epidural with the numbing agent I was comfortable in the hospital. 

 

I am looking to those who have found ways to relieve the pain rather than throwing in the towel and suffering from it.  I just can't believe that pain medication does nothing for this type of pain.  Nobody except those who have undergone this type of surgery can begin to understand what this pain feels like.  That is why I trust any methods that may have worked to make your recovery easier and more bearable. 

 

I am afraid that my surgeon will do an internal exam for the third time since surgery on Monday's Post surgical exam and make it that much worse.  He already did that twice in the hospital to make sure the "J was connected to the anus".  I thought it was a sick ploy to make me suffer longer but that is just my opinion since I did not start to bleed when I stood up until after his exam. 

 

Does this get any better?  Was this worth it?  Is there a light at the end of the tunnel?  How long until I feel like I can sit on my butt without feeling like I have a wooden stick stuck up there.   Geez, UC symptoms are looking like a close tie to this pain I am feeling in my rectum.  I guess the grass is always greener on the other side.

 

Thanks for your insight!!!!

 

 
 
Diagnosed with UC since 1999
Current Meds:
 
Sulfasalizine 500 mg tabs 2x's daily
Rowasa enema 2x's daily
Colocort Enema 1x daily
Prednisone during active flares
Imuran 6 months in 2006 (Joint Pain) Stopped
Florastor Probiotoic
Bentyl for cramping
 


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5309
   Posted 4/11/2009 8:12 PM (GMT -6)   

I never had rectal pain with my surgeries.  This does not sound normal and should be investigated.  You might meet others who have experienced this at www.j-pouch.org

 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


bbc
Veteran Member


Date Joined Mar 2008
Total Posts : 1580
   Posted 4/11/2009 9:21 PM (GMT -6)   
You might have an infection...get it checked out and perhaps call in another specialist for a second opinion. Hope you feel better soon.
Moderate Pancolitis
Dx'd 05/2007
8 Pentasa per day (4/2)
Corti Foam p.m. 3-4X per week
Curcummin and Probiotics/Rueteri.
Bowel Soother and IntestiNew, Fish Oil, Calcium/Mag/Zinc, Multi Vitamin and Melatonin
Eliminated Fructose and Corn Syrup
Could never tolerate artificial sweetners
I try to excersice/swim daily
Did I happen to mention I HATE this disease!!!
 
*Recent Changes In Blue*


PSA
Regular Member


Date Joined Jan 2009
Total Posts : 498
   Posted 4/12/2009 2:08 AM (GMT -6)   
Well a little pain is normal but in your case I feel the pain is too much and abnormal. Please take a second opinion. Did you get pouchogram before getting the J pouch working (2nd stage). It may also be because of pouchitis or infection. Please have it diagnosed properly.
Keep us posted.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005 Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"Faith is the bird that sings when the dawn is still dark."
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracl: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."
 


benjwl123
Regular Member


Date Joined Dec 2008
Total Posts : 21
   Posted 4/14/2009 2:59 AM (GMT -6)   
You were all right!  After a trip to the surgeon he advised I get things checked out back at the hospital under anesthesia since I could not tolerate an in office rectal exam.  He found an abcess filled with at least a liter of fluid.  Boy what a relief I felt when he drained it.  Now I have a drain and no abcess.  He also said that part of the J seperated from the anal wall due to the size of the abcess.  He advises now that I wait 6-9 mos before the connection surgery.  I am a little bummed I have to wait that long but he wants to be sure that the separation reattaches on its own without any further intervention.   Thanks for all your advice.  This site is a godsend.  Hope everyone enjoyed their Holiday this weekend. 

Diagnosed with UC since 1999
Current Meds:
 
Sulfasalizine 500 mg tabs 2x's daily
Rowasa enema 2x's daily
Colocort Enema 1x daily
Prednisone during active flares
Imuran 6 months in 2006 (Joint Pain) Stopped
Florastor Probiotoic
Bentyl for cramping
 


Y2K Bug
Regular Member


Date Joined Jul 2008
Total Posts : 114
   Posted 4/14/2009 4:05 AM (GMT -6)   
Hi
 
Sorry to hear that you suffered all that pain but glad to hear that its resolved. Its a real bummer that you have to wait 6 to 9 mos before the reconnection, but that time will fly by. Hopefully the reconnection which is a really minor surgery will go smoothly.
 
I suggest that you spend the time watching how the bag fills up after meals and during the day and night and what gives you gas. Once its removed, it will be the J-pouch filling up which u can't see and i think it would help you plan ahead and understand your j-pouch if you knew how much and how fast and when it filled up. I wish i had been more diligent and
kept a log. But too late!
 
turn

Lots of luck.

PF
Peter
 
dx 1985
gave up on meds after infliximab (remicade), humira, salofalk (5-asa enema), entocort, Azathioprine, steroid emenas, abadacept and of course the steroids.
 
J-pouch operation completed early Mar 2009.


JenniferRD
New Member


Date Joined Dec 2013
Total Posts : 3
   Posted 12/23/2013 7:25 AM (GMT -6)   
I had j pouch surgery 1 on Nov 5. No rectal pain til week 2 when access diagnosed. Drain and abs meant no rectal pain. I got an upper resp infect week 5 and the pain- the rectal pain bores in and is constant. It makes me want to do anything to get rid of ir. It makes me crazy. Went on abs 5 days now and no change. Ct showed still a 2 cm by .9 cm abcess and inflammation is way down.

I still have temp ileo and my original surgeon said pouchitis. My 2nd opinion said based on ct it's inflammation and separately I have a uri.

All I know is I'm going crazy. I had to stop abs day 5.5 because they were causing excruciating pain in abdomen and back and making me very nausepus. But the pain was completely overwhelming.

Don't know what to do. Help!!!
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