Remicade & Fatigue

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zeebeez
New Member


Date Joined Jun 2007
Total Posts : 11
   Posted 4/21/2009 8:45 AM (GMT -6)   
Hello all. I've been on Remicade since Oct. 08 and will be having my 6th infusion next week. My colon symptoms are 90% better, I have no blood or mucus whatsoever. I still have D, 6-8 BMs with urgency but overall I can live with this if this is as good as it gets. I'm still on all the meds listed below.

My main concern is that I am extremely fatigued. Comments please! :-)
42 yr old female diagnosed w/UC (30cm) in 2006
Remicade, Colazal - 12 daily, Imuran - 100 mg daily,
Mesalamine enemas - 8 g (2 daily A.N.),
Dicyclamine - 20 mg (up to 4 daily A.N)
Prednisone - last dose in 7/08
OTC Probiotic Acidophylus, Omega 3 Fish Oil, & Super B Complex vitamins


ks1905
Veteran Member


Date Joined Sep 2005
Total Posts : 2768
   Posted 4/21/2009 10:30 AM (GMT -6)   
Zeebeez,

I have had fatigue from 6-mp (which is very similar to Imuran); the days that I do not take 6-mp I have more energy. You could be having a reaction to the Mesalamine or just the UC flare itself.... it is really hard to place blame for the fatigue just on one medication.

The fatigue problem is probably a good conversation to have with your GI.

I am stopping the 6-mp and starting either Remicade or Humira soon... hopefully my energy levels will increase.

--Keith
DX'd with Pan-Colitis June 2005
Current Status: Flaring
 
Current Meds:  50 mgs 6-mp
Supplements:  Forvia multi-vitamin
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6410
   Posted 4/21/2009 11:01 AM (GMT -6)   
Zeebeez, welcome to HealingWell! I too am on Remicade, and when I first started it I was also on Imuran. My GI took me off of Imuran because of the possibility of getting Lymphoma while using the two meds together. Now that I think about it, I don't have the fatigue that I used to have while taking it, so you might want to check with your doc about this. Also, B-12 with Biotin helped me quite a bit; you might want to try the supplement out and see if this gives you a bit more energy.

Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


Katmom
Veteran Member


Date Joined Mar 2008
Total Posts : 785
   Posted 4/21/2009 2:26 PM (GMT -6)   
Fatigue is a factor for my daughter too. Turns out she is Anemic, among other things wrong with her last labs. Have your full profile checked. Fatigue can also be a rare side affect of Lupus induced by the Remicade. That is another possibility for us, as her ANA is 640. Have your blood work done to be safe.
Daughter,15 diagnosed 1-08 w/ UC .
Previous drug sampling: Asacol, Prevacid, Flagyl, Prednisone- 50mg to 0, 4 major flares '08.Hospital four x. Low residue diet,
6MP, Colazal , Cortifoam enemas,
Trying probiotics, Niferex, fish oil, Magnesium, Acupuncture.
Remicade 10mg per kilo@ 8wks, since 10-08. Still on 6mp and Colazal


bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1754
   Posted 4/21/2009 3:54 PM (GMT -6)   
I think fatigue is just a symptom of UC, even in remission. I'm not anemic and my ANA levels are normal, but I'm still exhausted all the time.

fargman
Regular Member


Date Joined Dec 2008
Total Posts : 74
   Posted 4/21/2009 11:07 PM (GMT -6)   
I'm currently coming out of a really bad flare and am starting to feel great. I just had my 5th Remicade infusion and I don't notice any fatigue at all. This is probably because I was so exhausted during my flare that anything is better than it was. I agree that fatigue is more of a symptom of UC than anything else.
Diagnosed '93. 
 
Asacol, Prednisone, Remicade, Imuran
 


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6410
   Posted 4/22/2009 8:23 AM (GMT -6)   
Very true; fatigue is part of UC. I think I've finally trained my brain to realize that I can't push myself too far or I'll hit the wall. I still have my days, but not as often and when I do...I just kick back and relax. I used to feel so guilty for that... but not anymore!
Carol

Remicade - will have my 27th infusion on March 19 Vitamin B-12/Biotin, Probiotics
 
Co-Moderator for the UC Forum
 
 


zeebeez
New Member


Date Joined Jun 2007
Total Posts : 11
   Posted 4/22/2009 3:24 PM (GMT -6)   
Thank you for all the replies...and wishing everybody a speedy and long remission!
42 yr old female diagnosed w/UC (30cm) in 2006
Remicade, Colazal - 12 daily, Imuran - 100 mg daily,
Mesalamine enemas - 8 g (2 daily A.N.),
Dicyclamine - 20 mg (up to 4 daily A.N)
Prednisone - last dose in 7/08
OTC Probiotic Acidophylus, Omega 3 Fish Oil, & Super B Complex vitamins

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