I suffer with UP too, I was diagnosed 18months ago and am suffering with it at the moment too, I've not been out of remission properly since I started getting symptoms 2 years ago. I don't seem to be getting anywhere with any of the meds I've been on, apart from the Pred, and my quality of life is pretty poor...I cannot manage full days at work and don't do anything much other than going to work - I suffer from fatigue with this really badly! I'm thinking about surgery and have been advised on here to look into Remicade.
I'm afraid I don't have any advice for you because it looks like you've been taking pretty much the same sort of meds as I have, and you have had it way longer than me so probably know way more about it than me! But take a look around the site, there are a lot of experienced people on here who really know what they are talking about. :)
Thanks again Qwerty. Sorry to hear that this has been a chronic thing for 2 years. I can't imagine the frustration you feel. I was lucky. My family doc got me in with a specialist right away when he realized he was out of his depth. The specialist I have is like 100 years old, but very experienced and diagnosed me right away. Salofalk works like a charm so far. But I do know that this was originally brought on by a suspected listeriosis outbreak in my city last year and has since flared up with viruses and stress. And my paternal grandmother had colitis and Crohn's...so someone in the family was sure to get it. Lucky me.
I like your idea of spreading out activities and using days off to recover. I have to learn to do that more. Again, I am lucky in that I work for the government, so breaks are mandated. But even then, I still feel so exhausted all day long.
I just got back from the family doc who told me that this is totally normal, and that the aching could be the inflammation travelling elsewhere or it could be the starts of arthritis, which he said is common with inflammatory bowel diseases. Yay! Another thing to look forward to. He is running some blood, so we'll see what comes from that.
BTW, I should add a signature like everyone seems to have. I am a 35 year old female from Toronto, Ontario, Canada.