prednisone belly

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kate22
Regular Member


Date Joined May 2009
Total Posts : 214
   Posted 7/22/2009 1:21 AM (GMT -6)   
i am taking pred for the 3rd time in my life, and this time my belly is large (i look pregnant).  i am 40 years old and have always been slim.  my stomach has not stuck out like this previously when on pred.  i am thinking now that i am older, things won't bounce back as well.  i am scared that my belly will not go away after i get off of the prednisone.  has any one had any experience w/this?  did your belly go away after you got off the pred?  can you lose the belly, or does one have to get a tummy tuck?  i don't want to have to have surgery - i've had enough of doctors!  it scares me!
UC since 1994
4 Lialda/day, 15 mg prednisone and tapering (down from 40 mg), rowasa, folic acid, VSL#3, flax oil, vegetarian diet


JLou
New Member


Date Joined Jul 2009
Total Posts : 8
   Posted 7/22/2009 3:06 AM (GMT -6)   
I just got off my first trial of prednisone and I can say I also have problems with my stomach sticking out. I look like Im pregnant or when I was first diagnosed almost a year ago. I don't know what the cause of it would be now besides the steroids, but a year ago it was because my intestines were swollen. It has been less then a week since I have gotten off prednisone but little difference in the size of my stomach. The good news is the bleeding is little to none every day, but Im thinking that has to do with a mixture of the vitamins and other medicines Im taking. I will let you know if the stomach thing changes for me, and I hope it goes away on its own for the both of us.
20 Year old female
Diagnosed Oct 08 with UC.
Currently taking: Canasa (1000mg) supp [twice daily]; Digestive Advantage-UC- Digestive health Probiotics [one daily], Flaxseed oil [1 Tbs daily], Iron supplements, a multivitamin daily.
Food I avoid: Dairy products, red meat, junk food, greasy food, fried foods.
Current Condition: Feeling a lot better since taking Prednisone for 5 weeks, little to no blood in BM since Pred and since started taking vitamins and flaxseed oil. My first time with no blood in BM since diagnosed!!!!


isergodur
Veteran Member


Date Joined Jan 2009
Total Posts : 820
   Posted 7/22/2009 4:38 AM (GMT -6)   
I had this and also gained 40 pounds but I all went away when I stopped taking pred.
don't worry about this.

and why on earth would you need a tummy tuck i your belly gets bigger?
it is not the worst thing in the world
24 year old female
Diagnosed with Crohn's disease in December 2008 Then UC in June 2009.
So now I just have UC..

Medication - Asacol, Remicade, Cipralex and Cerazette.
My wonderful dogs :) ~ www.poodle.is ~


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 7/22/2009 6:47 AM (GMT -6)   
thanks for asking cuz i am in same boat!! i have big fat moonface and it is just horrible and i hate it. when i smile OMG!
and my belly. omg. thank god its winter here. i hope it goes away before summer arrives.
i went to chemist today for some fluid retention tablets hoping it would help with my prednisone puffiness, but they said it wont and i have to just wait it out.
none of my pants fit, i look like a marshmellow and omg........i hope it goes away soon.

does anyone have any remedies to make it go away faster?
can i do anything? anything short of poking myself with a needle so it can drain out or blow out. haha
my face is just not right either.
how long til it disappears?

been on pred for around 2-3 months twice in a row. 40mg down to 5mg now for a few more days then im done.

i am all better now too so thats good!!!
just have this fat puffiness left to deal with
steph - 33 - female - gold coast australia - UC since 2000
was in remission until i quit smoking 5 weeks ago  o.O  now im flaring like a solar flare!
waiting for blood test to see if i can start imuran
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
just finished 3 months of prednisolone (worked) and now back on 40mg a day (ick)
quercertin tablets, tumeric capsules, vitamin d3, enteric coated fish oil
pre-conception vitamins and minerals (cuz we trying to make a baby)
oxycontin for pain every 4 hours.  plastic bags in the loo from the involuntary puking.
i still eat what i want, when i want, if i feel like eating at all ... diet doesn't affect my UC.
 
 
 


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 7/22/2009 8:04 AM (GMT -6)   
When I was on prednisone, I found that avoiding salt/sodium helped a lot in reducing the puffiness and moonface, as there was a lot less water retention.

Also, being on prednisone can give you a false sense of security that all is now well and you can eat whatever you like, but I'd advise that you watch your diet even more when on prednisone, especially when you get the prednisone munchies.
Rio, 33 year old male. Diagnosed with UC in 2006
100 mg Azathioprine (stopped), 4800 mg Asacol
VSL#3 & Primadophilus Bifidus, Metamucil
Vitamin E enema or Asacol suppository occasionally


lambkins
Veteran Member


Date Joined May 2008
Total Posts : 566
   Posted 7/22/2009 9:42 AM (GMT -6)   
Hi i put on loads of weight on pred as i had monster munchies have been off it for about 6wks and still have a huge pred belly i have just bought bigger clothes and am now trying to eat more carefully (going to buy a wii fit lol) my moon face has almost gone so thats one thing but it will take time it takes longer to get rid of than it does to put on.
  
  Diagnosed 22.5.08 with Lft sided U/C
  Meds Predfoam 20mg 2x day stopped started pentasa supps 1gm 26/6/08
 Asacol 800mg x2 twice daily
  Domperidone 10mg as needed
  co codamol 30/500 x2 when needed
  Asacol foam 2g nightly 19/3/09
  Prednisone 60mg 19/3/09 tappering after2wks


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2838
   Posted 7/23/2009 9:13 PM (GMT -6)   
I have to say it got harder and harder to lose the abdominal fat over the years.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


ickypoo
Regular Member


Date Joined Dec 2008
Total Posts : 224
   Posted 7/24/2009 5:33 AM (GMT -6)   
Does your belly feel flabby or firm? I ask this because for a number of years my belly was distended, but not because of excess fat. I thought I was just genetically destined to have a pot belly whether on drugs like prednisone or not - that was just me. As it turned out, I was merely bloated. Now my gut is gone (after 25 or so years!), and not because I have lost weight - still the same as it has been for a number of years.

My theory is that once I discovered probiotics and began to alter my diet a little, the bacterial community in my gut was altered, eliminating (or significantly reducing) bloating.
Diagnosed with UC in 1990.
Current Meds: Sulfasalazine & Folic Acid.
Supplements: fish oil, flax oil, glucosamine, CoQ10, fiber, aloe vera juice, probiotics.
Other: Raw Milk for breakfast. Currently exploring a raw milk fast one day/week.


kc70
Regular Member


Date Joined Nov 2008
Total Posts : 112
   Posted 7/24/2009 2:00 PM (GMT -6)   
Thanks for this thread. I didn't even think to ascribe my swollen belly to the darnable prednisone. I guess I can add that to my list of Nasty Things That Prednisone Has Done To My Body.
 
Currently I'm at 17.5mg and trying to get off it but my body isn't cooperating. I'm pretty much dependent now (been on since December) and not sure what to do. All I know is... I want off!
39 year old woman
Diagnosed October 2008

location: Vancouver, BC

Current meds: 30 mg Prednisone, 100 mg Imuran. First Remicade infusion April 6/09.

Failed meds: Asacol, Pentasa


Boxermom2
Veteran Member


Date Joined Dec 2008
Total Posts : 593
   Posted 7/25/2009 6:40 PM (GMT -6)   
Tell me about it.  My belly is huge and so is my poor face.  I have been on and off pred since Dec.  I am on 5mg right now and almost done.  I would rather be sick with my flare than have all the side effects I have with the pills.  I am getting ready to start the Remicade.  I hope it works because I can't stomach to think about any more steroids. 

Jratt
Regular Member


Date Joined Feb 2009
Total Posts : 104
   Posted 7/25/2009 7:36 PM (GMT -6)   
I've also been on Pred since about Jan, tapered a couple times but flare caused me to increase the dose. Currently at 5mg from 60mg, my face is less puffy but the belly is a little big. Could be the beer.

Now that I'm at 5mg I feel much better than when I was at higher doses. I didn't realize the prednisone was f*$(king my body and mind up as much as it did until I went to a low dosage. Wasn't so much the physical but the terrible mental state it put me in.

I hope I never have to go back on Pred..Remicade seems to be doing the trick. Crossing my fingers. mad
Diagnosed U.Proctitis 07

Flare Feb 09 - Diagnosed with Severe Pancolitis
Remicade, 50mg Prednisone, Cortenema PM, 1g 5 ASA suppository AM


Jratt
Regular Member


Date Joined Feb 2009
Total Posts : 104
   Posted 7/25/2009 7:37 PM (GMT -6)   
I've also been on Pred since about Jan, tapered a couple times but flare caused me to increase the dose. Currently at 5mg from 60mg, my face is less puffy but the belly is a little big. Could be the beer.

Now that I'm at 5mg I feel much better than when I was at higher doses. I didn't realize the prednisone was f*$(king my body and mind up as much as it did until I went to a low dosage. Wasn't so much the physical but the terrible mental state it put me in.

I hope I never have to go back on Pred..Remicade seems to be doing the trick. Crossing my fingers.
Diagnosed U.Proctitis 07

Flare Feb 09 - Diagnosed with Severe Pancolitis
Remicade, 50mg Prednisone, Cortenema PM, 1g 5 ASA suppository AM


ihaveucWOOHOO!
New Member


Date Joined Jul 2009
Total Posts : 1
   Posted 7/26/2009 2:23 AM (GMT -6)   

I had to join after reading this post....you all have brought tears to my eyes, remembering all the hell I went thru while on prednisone for about 18 months.

While on prednisone, I gained 52lbs. I came off prednisone in July 2008 and in about 6 months I lost aroud 30lbs. To date, I have lost a total of 60 (69 total, but I gained 9 back).

Every possible side affect that can come from prednisone, I had. I was MISERABLE and sat up many of nights, crying my eyes out and thinking I was going crazy. I developed Cushings Syndrome. Within a 10 month period, I was hospitalized 5 times, and for each visit I was on a high dosage of IV steroids. At one point I decided I had it with the side affects, stopped taking it, and went into adrenal crisis (WORD OF WARNING: NEVER, EVER DO THIS! IT CAN BE FATAL!). Prednisone is good for short term use if you have to use it, but thats about it.

I can tell you from my experience, the belly does go away. Just coming off of Prednisone made me lose weight, plus I started doing cleanses and TOTALLY changed what I now eat.

Keep the faith. It will all pass.

I look forward to reading and posting more here with you all wink


Staus: after about 8 months of remision, I am starting to have symptoms of a flare :-(

  • Diagnosed with UC early 2005
  • Also have Fibromyalgia (which worsens with flares) & Asthma
  • Currently on Remicade, every 4weeks @ max dose of 950mg 
  • Previous Meds (not in order):
    • Asacol/Mesalamine
    • Prednisone
    • Imuran
    • ProctoFoam HC
    • Rowasa, Mesalamine & Hydrocortisone Enemas 
    • Percocet
    • Ambien (developed insomnia from Prednisone)
    • Calcium Carbonate (Vitamin C) and Calcitrol (Vitamin D) to prevent osteoparosis from Prednisone
    • Omeprazole (developed heartburn from Prednisone)
    • Hydroclorothiazide (developed high blood pressure from meds)
    • Lasix (developed edema in legs & feet from meds)
    • Lovanox & Warfarin (developed blood clots)

Post Edited (ihaveucWOOHOO!) : 7/27/2009 8:31:46 PM (GMT-6)


kate22
Regular Member


Date Joined May 2009
Total Posts : 214
   Posted 7/27/2009 2:48 AM (GMT -6)   
thanks for posting everyone.  ihaveucwhoohoo! - i will pray that you can get out of your current flare without taking the dreaded pred.  i am down to 10 mg now, and my face, body, and belly are just freaking huge.  it really scares me.  i have been watching my salt intake, but it seems to  not make a difference.  pred just seems to be hitting me harder than ever (maybe it's because i just turned 40!).  all i can think of is "i don't think i can do this again".  but if i get in a bad flare again, i know i will have no choice. :(
UC since 1994
4 Lialda/day, 15 mg prednisone and tapering (down from 40 mg), rowasa, folic acid, VSL#3, flax oil, vegetarian diet


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 7/27/2009 6:02 AM (GMT -6)   
im off the pred now (thank god) but i seemed to have gained more weight the last few weeks (on 10 and 5mg of pred).
and moon face is still here. stopped the pred about 3 days ago.
no issues with symptoms. i am in remission (woohoo) ...

but im still puffy!
and not bloated puffy... like FAT and flabby puffy. omg its so weird to see after being so skinny.
make it go away.
will it go away or do i actually have to make my lazy ass work out?
steph - 33 - female - gold coast australia - UC since 2000
was in remission until i quit smoking 5 weeks ago  o.O  now im flaring like a solar flare!
waiting for blood test to see if i can start imuran
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
just finished 3 months of prednisolone (worked) and now back on 40mg a day (ick)
quercertin tablets, tumeric capsules, vitamin d3, enteric coated fish oil
pre-conception vitamins and minerals (cuz we trying to make a baby)
oxycontin for pain every 4 hours.  plastic bags in the loo from the involuntary puking.
i still eat what i want, when i want, if i feel like eating at all ... diet doesn't affect my UC.
 
 
 


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2838
   Posted 7/27/2009 5:23 PM (GMT -6)   
My experience is that its a kind of weight that working out doesn't help. It just takes time, and laying off the bad food you craved while on the prednisone (my weakness was chocolate frosted donuts)(absolutely uncontrollable). I work out anyway, but the weight would still come and go, and come and go...

I took a strong probiotic yesterday to see if that would help, and it made me so, so bloated!! I hadn't taken them for a while, I need to ease back into them.
49 year old female attorney, diagnosed UC/pancolitis 1985, no surgery but much suffering. Asacol maintenance for 20+ years; used prednisone & Rowasa for flares.  Probiotics (Ultimate Flora, 50 billion), salmon oil (omega-3) when I can remember. 
August 2008 sought care of naturopathic doctor. Food sensitivity test showed wheat/gluten, other intolerances; eliminated wheat/gluten from my diet.
Bad flare in March, used prednisone. Humira denied, started Remicade 4/12 and doing great~ learning what normal is~ wow


gurgling tummy
Regular Member


Date Joined Aug 2006
Total Posts : 166
   Posted 7/28/2009 4:47 AM (GMT -6)   
My last experience, I was only on the pred for 1 month and in that month I gained 40 pounds. I am still a very big girl. I cry everytime I go to try on clothes. I was a size 4 for the past 10 years and just recently had to by size 12 clothes as I had only bought one pair of "FAT" pants. It's been two months since I have been off of it and I haven't lost any at all. I did get some water pills becuase I was swelling so much I was unable to walk but they didn't even work. I'm not sure if it is because with all of the medication I have been on but something damaged my liver. Ther had to do an ultrasound to find it. By belly is still huge and it's like jello or a waterbed it just jiggles. I am goin to join a gym on the first and see if that can make any difference. I am supposed to visit some friends in a couple weeks and I know what they are going to think when they look at me, I just hope that I can get it down a little more.

It's amazing what we all are going through with the illnesses, the medication and all of their side effects, not to mention the mental stress that we all endure. So I declaire all of us superheros (capes will be shipped at a later date), we fight deadly infections with our powerful gaseous explosions, say "take that" to our unsupporting families (one hour of locking ourselves in the bathroom while they do the pee pee dance and beg to be let in, oh and when they do feel satisfied in knowing that their eyes are watering, nose hairs are frying and of course the nothing tastes right for the rest of the day because those smell particles flew into their mouths as tey were screaming, UHHHH WAS THAT YOU????), and don't forget our most powerful weapon (the "yes, yes you are going to drive for me, and don't think that we are going to get there early because I, yes, I have the power to make you stop at every rest stop, Mc Donalds, Burger King, gas station, row of bushes or any other location that is on our "clean bathroom" list, just because I can. mwaaaa haaa haa). So stand up tall and powerful for we have powers that no weapon can touch us, no one can get in our way (especially when we are running for the bathroom), who needs regular superheros when we are the poopie heros.
*~~*Emily*~~*
Diag. Aug 06 (Proctosigmoiditis), finally diagnosed with Fibromyalgia 12 August 08, Paxil (1 a day) for Depression & anxiety, Azathioprine, Morphine (three a day) for pain, Flexeril (three a day), Tramadol (as needed for breakthrough pain), Fioircit (for migrains), Phenergran (for nausea), Omeprazole (for gerd from the pred), Ambien (to actually get some sleep every once in a while), Calcium (for osteopenia), aloe juice (2Xs a day), B-12 (injections weekly and tabs daily), Folic Acid (1 tab daily), Tylenol Sinus (three times a day, darn you Florida), Acidophilus (of course).


kazygirl
Veteran Member


Date Joined Sep 2007
Total Posts : 955
   Posted 7/28/2009 7:17 AM (GMT -6)   
LOL!!!

i particularly like the bit about nothing tasting right for rest of day cuz of poo particles in the mouth.. hahahahahahahahahaha
too funny mate!
steph - 33 - female - gold coast australia - UC since 2000
im in remission ~ wOOhOO !  no symptoms for last 2 weeks!
waiting for blood test to see if i can start imuran
just finished 3 months of prednisolone (worked) -tapered with no issues -left with moonface + fat! o.0
mesalazine granules 3g x1 a day (much nicer than a million tablets a day)
tumeric capsules, vitamin d3, enteric coated fish oil, xango juice 30ml x3 a day
pre-conception vitamins and minerals (cuz we trying to make a baby)
i still eat what i want, when i want, if i feel like eating at all ... diet doesn't affect my UC.
 
 
 


medical truth plz
New Member


Date Joined Aug 2013
Total Posts : 2
   Posted 8/7/2013 2:45 AM (GMT -6)   
Hi everyone, New to this forum
I understand your frustrations. I have been on and off unfortunately more on that off prednisone for the last approx 5 years for asthma and COPD. Unfortunately my body has developed a addiction to it as I hear many others have had to deal with. I have tried to get off of it numerous times over the last year and get to a certain point where my body gets an infection either starting from an allergy or stress or ?? and I am right back on the cycle of having to take an antibiotic and you got it...prednisone again.
The breathing part is what is so scary. Many of you understand what it is like when you cannot breath...in or out and then of course you stress which makes it even worse.
I am currently tapering under Dr.s care and down to 8.5 dropping 2.5 weekly

Looking like I am 7 mos pregnant ( not possibal 62 yrs old) horribal fat roll around my stomach the moon face etc. I am normally a fairly thin small boned woman weight about 125 now I feel horribally bloted and cannot stand this hoping it goes away soon? Got real bad this last time I had to increase because of flair up again....I hate this drug

Good luck to all of you who suffer with this life altering drug. It certainly has changed my life the only good thing is that it allows me to breath. However i am scared to death of some of the side effects such as potential diabeties, chrones, heart attack etc etc.
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