How do you know if you have c-diff?

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Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 7/24/2009 7:22 PM (GMT -6)   
My colitis has been in remission since I started on Remicade. I am due for my next infusion in 10 days but I bumped up the appt to next Tuesday because I started having blood and frequency yesterday.
Today I've been to the bathroom 20 times, each time with blood. I have terrible stomach pain and a 102 fever. I've been taking antibiotics for strep and a sinus infection for about 17 days.

Of course I always get sick on Friday! I have a call into my GI but he hasn't called me back! Does anyone have an experience like this?
37 year old mom of 2.

Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.

Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22

Current Meds: Apriso 4/day, Remicade (3rd infusion 6/8/09)

Discontinued: Prednisone, 6MP


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18002
   Posted 7/24/2009 10:34 PM (GMT -6)   
I believe your doc can do a blood test to check for C-Diff...feel better soon.

:)
My bum is broken....there's a big crack down the middle of it! LOL :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 25764
   Posted 7/25/2009 2:19 AM (GMT -6)   
the blood test would only state if there are high white blood counts, not that a specific infection of c.difficile is present.

I believe stool samples are the only way to determine the exact bacteria.

q
*Heather* Status: flaring...Asacol 3 twice daily; Salofalk enemas nightly
~diagnosed January 1989 UC (proctosigmoiditis)
~UC meds: Asacol (3 @ 2x daily); Salofalk enemas nightly for flares & taper to maintenance 
~Bentylol (dicyclomine) 20mg as needed; Ranitidine (reflux);  Effexor XR 75mg(depression);  Pulmicort/Airomir (asthma) 
~vitamins/minerals/supplementsProbiotics....(RenewLife Ultimate Flora Critical Care + Primadophilus Reuteri). @ bedtime
~various digestive enzymes as needed
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!
 


nhmas
Regular Member


Date Joined Feb 2005
Total Posts : 44
   Posted 7/25/2009 6:11 AM (GMT -6)   
Quincy is correct. I've had c-diff twice in my life, the last time was this past May.  The way it was diagnosed both times was through a stool study, where they will check for other bacteria as well as c-diff.
Diagnosed with UC in 1992 (Left Sided - first few flares, Pancolitis 3rd flare). 
10 year remission
Flaring on and off since Jan 2005, currently suspected to have Crohn's
Current medications: Weekly MTX injections, monthly B12 injections, Calcium, Folic Acid, Xifaxan
Past Medications:  All 5ASA oral medications except Dipentum (no effect), Immuran (toxic reaction), Prednisone, Flagyl, Cipro, Bactrim (sulfa drug allergy), Augmentin, Rowasa, Cortifoam, Cortenema.
 


music4him
New Member


Date Joined Jul 2009
Total Posts : 3
   Posted 7/25/2009 8:01 AM (GMT -6)   
oh wow, i had c-diff one time and it is NOT fun!!! when i had it, my temp got up to 105 degrees and i was completely fatigued and couldn't keep any food or drink down. I finally went to the hospital and had to stay for about 2-3 days and i had to be quarantined because of the bacteria...do you have it?

Deacon Blues
Regular Member


Date Joined Oct 2006
Total Posts : 258
   Posted 7/25/2009 1:39 PM (GMT -6)   
I have not had it, but the test would be stool sample. The stool will be very strong in odor and have a "grainy" consistency. There is alot of abdominal pain that comes with it. If you go to the hospital you will be in an isolation room to avoid spreading it to others, which isn't all bad because you have a private room. Not sure what antibiotics are used...Good Health to you.
Diagnosed with UC in Dec of 1999
PANCOLITIS-mild to moderate (remission for 2 years +!!??...i don't know...I am just SO happy when I have a good day!!)
3X400mg Asacol 4x per day
Mild flares a couple times a year
45 yrs old


Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 7/25/2009 3:27 PM (GMT -6)   
Well my doctor told me to go to urgent care last night. After going to the bathroom 21 times before urgent care, I could only squeeze out about 15 drops - which they said was enough to get the culture done which they said is negative for c-diff. this seems much worse than my colitis and my doctor said I'd have to be tested for c-diff first because I shouldn't get Remicade if I had c-diff and I'm due for my Remicade on Tuesday. Does anyone know if c-diff would change your cbc? Ever since I started on Remicade in May I've been in complete remission then suddenly literally overnight I have the worst colitis ever! They weren't going to give me anything in urgent care but I made them call my GI and he prescribed Flagyl.

Has anyone ever had their colitiis come back more violently than before less than 2 weeks before they are due for Remicade?
37 year old mom of 2.

Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.

Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22

Current Meds: Apriso 4/day, Remicade (3rd infusion 6/8/09)

Discontinued: Prednisone, 6MP


Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 4564
   Posted 7/25/2009 8:02 PM (GMT -6)   
It sounds like strep/sinus infections while on Remicade are the heart of your seeming colitis relapse. Hopefully, Judilyn will sign on & advise you about this. / Old Hat (30 yrs with left-sided UC; taking brand-name Colazal)

redhah
New Member


Date Joined Jul 2008
Total Posts : 15
   Posted 7/26/2009 1:32 AM (GMT -6)   
I get remicade infusions every eight weeks and two weeks before i am due for one I always start to bleed/have a bit of a flare up. The remicade always makes everything go back to normal. My doctor says i can get it every six weeks but I am afraid that i will start to flare up two weeks earlier and then there is nothing else I can do, so for those two weeks I usually just stick it out and try to relax and may take an enema a few times before the next remicade infusion.
23 yr. old female
diagnosed age 15, current meds: Remicade every 8 weeks, iron
have taken: azathioprine, asacol,colazal, prilosec, prenisone, rowasa + cortisone enemas, flagyl + vancomycin for c-diff
hospitalized three times: 2002 April (2 weeks) 2003 December (1 week) 2006 (1 week), have had pick line,
have had 3 colonoscopies, had blood transfusion Feb 2008


glamourgirl
Regular Member


Date Joined Apr 2008
Total Posts : 460
   Posted 7/26/2009 3:27 PM (GMT -6)   
Typically 2 stool tests are done because they can have false negatives. Also, they need to test for both toxin A & B in both samples.  I would ask for a second test just to be sure.  It seems odd that your symptoms would change overnight like that.  Going 20 times a day, sounds exactly like how c. diff is for me. 
Female, Age 38
Diagnosed w/c.diff 7/02 when pregnant w/1st and only child during 2nd trimester(wasn't on antibiotics)
C.diff flare within weeks of delivering baby 1/03, Diagnosed with UC 2/03
Current Meds:
Lialda, 6MP
Ferrex Forte
Acidophillus, Sacchromyces Boulardii, Oil of Oregano


Shelliesv
Regular Member


Date Joined Apr 2009
Total Posts : 208
   Posted 7/26/2009 4:35 PM (GMT -6)   
glamourgirl said...
Typically 2 stool tests are done because they can have false negatives. Also, they need to test for both toxin A & B in both samples. I would ask for a second test just to be sure. It seems odd that your symptoms would change overnight like that. Going 20 times a day, sounds exactly like how c. diff is for me.


That is what it seems like to me. This is like sudden onset of my worst day of colitis ever. It usually doesn't happen so severe just overnight like this. I stopped eating on Friday because the abdominal pain is too severe and the frequency was killing me. Today I don't have a fever but I did take the liberty of putting myself on 30mg of prednisone yesterday, 20mg today and I have the flagyl. This just seems odd to me. I hope the Remicade resolves everything right away. I'm only concerned that they possibly didn't have enough stool to test.
37 year old mom of 2.

Diagnosed with Ulcerative Proctitis 1995 (24 years old) / Ulcerative Colitis in 2000 (29 years old)
In remission for 4 years from 2005 - 3/2009 with colazol maintenance only.

Hospitalized for flare 3/23/09 - 3/25/09. Hospitalized 2nd time for same flare 4/17 - 4/22
Hospitalized for 3rd time after 2nd Remicade for "opportunistic infection due to suppressed immune system" 5/13 - 5/15

Current Meds: Remicade (3rd infusion 6/8/09), 4th scheduled 7/28/09, Probiotics

Discontinued: Prednisone, 6MP, Colazol (hair loss)

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