Lovemyboys....prednisone has given me osteoporosis. My GI doctor calls it the best/worse drug. I have a close friend who suffers from COPD and when she has flare ups she also is put on prednisone. Of these two diseases....I think you and I are better off, even though it is painful, it sure beats not being able to breathe.
I am now tapered at 15 mgm of prednisone. The doctor took me off the 6MP for a few weeks. He had me on much too high of a dosage...100 mgm. My WBC dropped to 1.4. At the end of next week I have to go for a stat CBC. I have concerns about going back on the drug. I was at a maintenance dose of 50 mgm for seven years, but after the first two years on it, I still started flaring, so guess my body developed an immunity to it. Remicade is not an option for me.
I have an appointment with a GI specialist at the Univ of PA hospital on Sept 24th. Hope he can give me a solution, but I heard he is a Remicade specialist and I flat out refuse to go that route.
Have you ever gone to a GI surgeon and gotten his opinion on your condition? I saw one after my hospitalization last year. He said my condition was moderate (hate to see what severe is like) and with surgery comes a whole new list of complications which would be worse than my present condition.
62 yr old granny. South Jersey
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008
Meds as of June 09: Colazal (6 per day), 6MP (50 mgm), Probiotic (upped to 3 per day), Fish oil capsule, calcium, multivitamin, Cort enema nightly, Canasa in morning. Also taking Benicar and Toprol to control high blood pressure. Getting old is a b****.