Fecal Transplant - I took the plunge! PART I

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LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 10/11/2009 1:54 PM (GMT -6)   
Summary version - I did a fecal transplant, after 2 1/2 weeks I have seen amazing results. Worked better than any drug or diet modification </end summary>


This morning I decided to try a fecal transplant. I've been reading about it for months, and figured I might as well try before I go back to my old diet (very low carb). I used my enviably regular wife as my donor, and while the process was a little gross it was easier than I anticipated. For anyone who is interested (and not grossed out), below is the process I used:

Equipment:
- 1 donor sample in covered Tupperware bowl
- 1 cup distilled water mixed with 1 teaspoon salt (non-iodized)
- 1 fork (I didn't want to throw away a blender)
- 1 enema bottle from Walgreens (emptied contents and washed out first and foam backstop removed)
- Tiny bit of lubrication for the bottle tip (not sure if this is normally done, but I'm a wimp)

Basic prep process was to mix everything together until smooth, then use the enema bottle to suck up the mixture (I didn't want to pour it in and risk making a mess, this also ensured that everything in the bottle would also come out). I then just inserted the bottle and squeezed (per bottle's directions). Once done, I wrapped everything in a double plastic bag and threw it out.

I had never done put anything "where the sun doesn't shine", so I was surprised to find that there was no mess. I kept my rear elevated for a few minutes afterward, and then went and laid on my right side and took a short nap. This was ~4 hours ago, and I still haven't gone to the bathroom, which is pretty rare for me right now since I'm eating carbs per the doc's suggestion. I'm pretty excited to see how this works out.

Note that I didn't prepare beforehand by taking antibiotics or eating extra fiber. I'm also only going to try one "implant" to see how it works. If it doesn't, I'll go through the full procedure (1 week Flagyl & Cipro + extra fiber beforehand + 3 implants).

I'll keep everyone updated on my results (unless folks are not interested).

Post Edited By Moderator (Red_34) : 11/18/2009 5:29:01 AM (GMT-7)


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 10/11/2009 2:00 PM (GMT -6)   
Well done...I'm strongly considering giving it a try too but want to make sure I use a suitable donor. I have heard that it's better to get the fecal transplant from a baby.

Definitely interested to know how this goes for you...and hope it goes well.
Rio, 33 year old male. Diagnosed with UC in 2006
Azathioprine (stopped), 4800 mg Asacol
VSL#3 and Natren Trinity probiotics, Metamucil
Vitamin E enema or Canasa/Mesacol suppository occasionally


Judy2
Forum Moderator


Date Joined Mar 2003
Total Posts : 9479
   Posted 10/11/2009 2:21 PM (GMT -6)   
Good luck, I hope this helps you!
Judy
Co-moderator, Ulcerative Colitis
 
Diagnosed in 2001, finally in remission since March 2006.
Mesalamine is not my friend and steroids are from the devil.


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10350
   Posted 10/11/2009 2:24 PM (GMT -6)   
I would definitely try it I need be. Who was the donor? That's always the big question! turn
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
Horrible relapse: August 08 - December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
Canasa nightly + Asacol (9/day) + Probiotics + Iron
 


AMK77
Veteran Member


Date Joined Mar 2008
Total Posts : 678
   Posted 10/11/2009 2:45 PM (GMT -6)   
I definitely want to hear how this works out for you.
32 yr old female, mommy to 2 girls
Mild Pancolitis
UC since 2000/Dx'd 2008 - in remission for most of those 8 years med free.
Cannot tolerate mesalamine. Currently take probiotics and fish oil. Trying Applied Kinesiology & supplements and Reiki.


LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 10/11/2009 2:55 PM (GMT -6)   
notsosicklygirl said...
I would definitely try it I need be. Who was the donor? That's always the big question! [img]/community/emoticons/turn.gif[/img]


My wife was the donor. We've been together for 14 years, so I didn't have much to worry about.
33 year old male
diagnosed severe pancolitis in 2004, unresponsive to all drugs
turned down recommendation to have j-pouch surgery
have been mostly symptom free since 2004 via diet modification (removed all carbs)


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 10350
   Posted 10/11/2009 3:03 PM (GMT -6)   
Goodluck to you! It is a pretty simple thing to try so why not give it a shot?
 
I hope you see positive progress.
 
Keep us updated!
Diagnosed with mild proctitis in March 2007: Treated with Canasa (as needed)
Horrible relapse: August 08 - December 08: Began treating with Asacol 400mg (9/day) + Canasa 2x/day - Anemic
Canasa nightly + Asacol (9/day) + Probiotics + Iron
 


Bobella
Regular Member


Date Joined Oct 2009
Total Posts : 61
   Posted 10/11/2009 3:34 PM (GMT -6)   

I am very very very interested to see how this works for you!

I have been considering trying it myself but I feel weird bringing it up with my GI doctor. I have a new baby that is 9 weeks old and he has very normal expressly breastfed baby poop. It doesn't even stink yet...it just smells like butter popcorn. I figure it can't get much more pure than that.

Good luck! smilewinkgrin


LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 10/11/2009 4:23 PM (GMT -6)   
Yeah, I definitely didn't bring it up with my GI. If it works, I'll tell him. 6 hours in, solid poop. WooHoo! :)
33 year old male
diagnosed severe pancolitis in 2004, unresponsive to all drugs
turned down recommendation to have j-pouch surgery
have been mostly symptom free since 2004 via diet modification (removed all carbs)


passer
Regular Member


Date Joined Dec 2007
Total Posts : 47
   Posted 10/11/2009 5:12 PM (GMT -6)   
definitely keep us posted!

LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 10/11/2009 8:28 PM (GMT -6)   
Here's my End of Day Report (don't worry, I won't give hourly reports or anything from now on):

Today was the best day I've had since increasing my carb intake ~6 months ago (on doc's suggestion). Performed the fecal transplant first thing in the morning, even though I felt really gassy and ready to go. Since then I've gone once, and it was SOLID. I felt just as good as if I was eating low carb, and even ate 6 pieces of GF toast (something that would have put me in the bathroom 5 or 6 times by now a week ago).

I know, one day is nothing to get excited about, but even if it's only one day I'm pretty happy. Since going back to the doctor in the Spring, I've spent over $3,000 in deductibles and copays, coughed down over 2,000 pills, lost some hair, had sleeping problems, and only saw my symptoms get FAR worse (since he convinced me to eat higher carbs, or "more normal").

In the past 5+ months, I've never had a single day like today ... it's like I'm on my old low carb diet but with lots of energy too! I even went out for a run, and made it almost 14 miles without stopping (something I haven't come close to accomplishing in 16 years)!

I'll keep you all posted ... I am keeping my fingers crossed that today wasn't a fluke.
33 year old male
diagnosed severe pancolitis in 2004, unresponsive to all drugs
turned down recommendation to have j-pouch surgery
have been mostly symptom free since 2004 via diet modification (removed all carbs)


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 10/11/2009 10:41 PM (GMT -6)   
Hi LuckyLindy,

I did fecal transplantation and it was the best thing I did. I'm hoping it works for you too. I believe that more people might be inclined to try it if there are others who have successful results.

I did the fecal transplantation three times, one time per day for three days. You are supposed to do it five to 10 times. I only did three times due to the fact that my daughter could visit only for the extended weekend. (I used my granddaughter's poo.) I highly recommend doing it at least five times. Good luck!
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission.

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 10/11/2009 10:47 PM (GMT -6)   
Thanks Joy! I usually work from home, so i had hoped to do it 3-5 times, but my work schedule is off this week (I'm at the whim of someone else's GI tract, and didn't want to use a 12 hour old sample). I may revisit and do a 5 day trial in a few weeks once I'm at home again. I'm so glad you've found success (you're one of the reasons I tried it)!

BTW - what anti-inflammatory foods have you found to be most beneficial?
33 year old male
diagnosed severe pancolitis in 2004, unresponsive to all drugs
turned down recommendation to have j-pouch surgery
have been mostly symptom free since 2004 via diet modification (removed all carbs)


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 10/12/2009 1:55 AM (GMT -6)   
LuckyLindy said...
Thanks Joy! I usually work from home, so i had hoped to do it 3-5 times, but my work schedule is off this week (I'm at the whim of someone else's GI tract, and didn't want to use a 12 hour old sample). I may revisit and do a 5 day trial in a few weeks once I'm at home again. I'm so glad you've found success (you're one of the reasons I tried it)!

BTW - what anti-inflammatory foods have you found to be most beneficial?


Yah. I agree about not wanting to use a 12 hour old sample.

The fecal transplantation worked so well for me that I thought I was cured after doing it. But I got another flare after having to be on antibiotics three times. That flare went away with probiotics.

After I did the fecal transplantation, my poo returned to what it was like when I was young and I no longer have IBS. So even though I had that flare after having to be on antibiotics again, my poo is still way better than it was before I ever did fecal transplantation. In fact, it looks just like it did was I was in my teens and early 20s. Fecal transplantation really did save my colon.

I've heard of others having great results from fecal transplantation, but then they disappear soon afterward. I also heard of others not getting any benefit from doing fecal transplantation. So it doesn't work for everyone. I haven't heard of anyone being worse off though.

I really hope it works for you.

I find turmeric and ginger to really help calm my colon and keep my poo in perfect condition.
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission.

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6412
   Posted 10/12/2009 8:37 AM (GMT -6)   
Good luck, keep us posted!

Carol

Remicade - will have my 30th infusion on September 2 
Vitamin B-12/Biotin, Probiotics, Vitamin D-3 (2000 IU)
 
Co-Moderator for the UC Forum
 
 


LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 10/12/2009 2:40 PM (GMT -6)   
What's really strange is that my "poo" suddenly smells like my wife's (at least both times today and once yesterday). Solid, normal looking, and no longer horrid smelling.
33 year old male
diagnosed severe pancolitis in 2004, unresponsive to all drugs
turned down recommendation to have j-pouch surgery
have been mostly symptom free since 2004 via diet modification (removed all carbs)


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 10/12/2009 3:46 PM (GMT -6)   
I'm so glad to hear that. I really hope you continue to show improvement.

Remember, though, you can do fecal transplantation again if your improvement slows done. It's supposed to be done at least five to 10 times.
Joy - 47 yrs and counting; Dx Colitis Dec 06 (also had IBS); Currently in remission.

Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 6910
   Posted 10/13/2009 3:39 AM (GMT 0)   
Glad it seems to be working!
And on the running 14 miles...gee, I've never even had the urge to run like that!
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son
Diagnosed with pancolitis on 1/30/09
Meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, OrthoNovum, multivitamin.  Used prednisone (starting dose 40 mg) to get into remission.


natty34
Regular Member


Date Joined Jul 2007
Total Posts : 37
   Posted 10/13/2009 5:01 PM (GMT -6)   
I'm so glad to hear that other people are trying the fecal transplant. I have been doing a lot of reading about it lately and I too will be attempting it here soon. I even went to the extent of getting my husband fully tested. My GI is completely on board with this and has even brought up wanting to do my first one via colonoscopy to get it throughout my colon since I have pancolitis. I havent talked to her recently though, but last time I did, she said the "clinic" is giving her a hard time about it and may not be able to help me afterall. I am keeping my hopes up that she still may, even if I sign a waiver releasing them of any responsibility. I'm very grateful to have such a great doc =) I did want to comment on the baby feces that some have used. I am no expert, but when i brought it up to my GI about using my new born nephew's poo, my doc was against it. She stated that adult samples from a healthy individual would be best b/c they have more bacteria. She states babies have not been exposed to enough to be a great benefit. Now if it worked for others, i think that is wonderful, but I just thought I would throw that out there b/c it does make a little sense. I am curious how it works out for everyone who trys it and I will definitely post once I complete it too.
29 y/o female diagnosed with UC 2/06
Active Flare (with short periods of relief d/t prednisone) for approx 2 years
Experimented with every class of drugs with no complete remission
Currently in remission with the help of a naturopathic doc
Meds currently taking:
       *Remicade 500mg every 8 weeks (10 tx under my belt)
       *Fish oil, Natren Probiotics, Vitamin D3, L-Glutamine Powder, DHEA
   


LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 10/13/2009 6:09 PM (GMT -6)   
natty34 - If your GI doc goes for it, definitely let us know where she practices ... I'm sure many people here, including myself, would love to have this done via colonoscopy (I have pancolitis as well). I'm still noticing an improvement, but with only 1 small treatment I'm not expecting the world. Maybe in a few months I'll do the 5-10 day course instead of a single shot.
33 year old male
diagnosed severe pancolitis in 2004, unresponsive to all drugs
turned down recommendation to have j-pouch surgery
have been mostly symptom free since 2004 via diet modification (removed all carbs)


ucisnotforme
Regular Member


Date Joined Aug 2009
Total Posts : 37
   Posted 10/13/2009 10:36 PM (GMT -6)   
awesome. a lot of people have been waiting for some info on this. keep us posted!

pan colitis diagnosed in 2003

6 mp 50 mg/day
asacol 4800 mg/day
metamucil nightly
lots of live culture yogurt


LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 10/16/2009 9:29 PM (GMT -6)   
5 day update:

Each day seems to get better, which is a nice surprise. I am having 2-3 solid BMs per day, almost no urgency, and all but one was well formed. For the first time in 5 1/2 years, I've been able to eat a normal diet with little problems. Last week I was eating normal and having 6+ BMs per day with lots of urgency, this week it has been completely different.

So far so good!
33 year old male
diagnosed severe pancolitis in 2004, unresponsive to all drugs
turned down recommendation to have j-pouch surgery
have been mostly symptom free since 2004 via diet modification (removed all carbs)


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 2031
   Posted 10/16/2009 9:43 PM (GMT -6)   
I attempted this about 6 months ago with my newborns stool. I had a very slight improvement, but nothing big. I wonder if he may have more established bacteria now, and if it may be more beneficial.
Proctitis DX 1999, Pancolitis DX 2008
Golimumab study (100mg every 4 weeks)
L-Glutamine 5000 mg + 600 mg pyridoxal alpha-ketoglutarate
Probiotis/VitD3 5000IU+Ca/1000mg DHA


toastneggs
New Member


Date Joined Oct 2009
Total Posts : 14
   Posted 10/16/2009 9:48 PM (GMT -6)   
what is a fecal transplant?? sorry im new to all this....

LuckyLindy
Regular Member


Date Joined Feb 2009
Total Posts : 226
   Posted 10/16/2009 10:02 PM (GMT -6)   
toastneggs - You take a healthy donor stool sample and "implant" it into your own colon. The easiest way to do this is to mix up someone's poo with homemade sterile saline solution and use an enema bottle to squirt it in (then hold it there as long as possible, I made it 6 hours).

This has become the gold standard last resort for sufferers of C Diff, and some studies have shown it to be remarkably effective for UC. The theory is that UC could either be caused, or exacerbated, by an abnormal mix of bacteria in the colon (too many bad bacteria, not enough good). Proponents of the technique say that healthy individuals' bacteria can colonize and help the colon of UC sufferers.

So far I've found it to be extremely worthwhile, but it's only been 5 days. I don't think it's a placebo effect either, as my BMs no longer smell rank (and smell exactly like my wife's, who was my donor). Even my 4 year old the other day came in surprised and said "daddy, your poop didn't stink!" after leaving the bathroom.
33 year old male
diagnosed severe pancolitis in 2004, unresponsive to all drugs
turned down recommendation to have j-pouch surgery
have been mostly symptom free since 2004 via diet modification (removed all carbs)

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