Depression and ulcerative colitis

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

chips mom
New Member


Date Joined Nov 2009
Total Posts : 8
   Posted 11/20/2009 3:27 PM (GMT -6)   
cry  I have been struggling with ulcerative colitis for about ten years now.  It seems that the oral meds are not working for me and I'm severly anemic now.  The gi doc recommends starting Remicade.  I was diagnosed with breast cancer in February 2008 and had a bilateral mastectomy.  I suffer from something called post mastectomy pain syndrome.  Lots of chest pain all the time.  That compounded with the severe colitis symptoms have me quite depressed.  Anyone else experienced this and did you find anything helpful?  I find the unpredictability of colitis is just horrible.  It seems to cause so much stress.  Have been on prednisone for a while too and even though I feel very tired I can't sleep or rest.    Thanks in advance for any help on this.  I'm worried about starting Remicade, but may get desperate enough to do so.  Also, does anyone else suffer from mouth sores?

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5419
   Posted 11/20/2009 4:11 PM (GMT -6)   
It's not uncommon to suffer depression if you have a chronic illness. And couple that with your breast cancer and use of prednisone which compounds the issue. I was depressed during a 2.5 year flare and blamed my depression on the varying doses of prednsione I took during that tie. However, nearly a year after my last prednisone dose I was still depressed. I sought treatment with antidepressants. It made all the difference in the world. I saw improvement within days of being treated. Sometimes we can intellectually process the things that our bodies do but we fail to realize that our emotional system doesn't use the same coping mechanisms.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


JM21204
Regular Member


Date Joined Dec 2008
Total Posts : 254
   Posted 11/20/2009 4:32 PM (GMT -6)   
Was wondering the same thing - if anyone is willing to share. What anti-depressants have you tried and did they work? I battle depression as well.
34 yr old female
Diagnosed with Pancolitis in 1/2007
Baby Girl 3/2009
Meds: Lialda, Prednisone on and off.
 


Judy2
Forum Moderator


Date Joined Mar 2003
Total Posts : 9471
   Posted 11/20/2009 4:41 PM (GMT -6)   
I absolutely broke down crying in my internist's office when she diagnosed me with steroid-induced diabetes. She said, "With all the things you have going on, you have every right to be depressed," and gave me a prescription for Zoloft. It worked very well for me.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5419
   Posted 11/20/2009 4:44 PM (GMT -6)   
In order to prescribe the right AD your doctor will need to note your symptoms and then will be best able to pick the right one for you. Not all ADs are the same and they are prescribed based on symtpoms eg. anxiety, sadness, etc. After my symtpoms were shared I was put on Celexa. It worked like a charm.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


greenenergy
New Member


Date Joined Oct 2009
Total Posts : 18
   Posted 11/20/2009 5:33 PM (GMT -6)   
Very common for patients with ulcerative colitis to be suffering from depression. I've suffered it myself.

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 6907
   Posted 11/20/2009 5:38 PM (GMT -6)   
Hi and welcome, chips mom!

My first flare started shortly after I had my son. I was also having problems with post-partum anxiety/depression. Now, whether the UC contributed to the PPA, who knows, but either way, I was a mess, both physically and emotionally. Before I was diagnosed with UC, I ended up starting Zoloft and seeing a counselor a few times. Both helped tremendously. Once I had been in remission for a while, I was able to successfuly taper off of Zoloft. It seems that many people on here are on medication for anxiety and depression.

Good luck, and feel free to vent on here as often as you need.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son
Diagnosed with pancolitis on 1/30/09
Meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, OrthoNovum, multivitamin.  Used prednisone (starting dose 40 mg) to get into remission.
Thread with links to UC resources and  information:
 


MoonShadow
Regular Member


Date Joined Dec 2007
Total Posts : 52
   Posted 11/20/2009 5:39 PM (GMT -6)   

 

Please see my juicing comments in the Raw Update thread started by HelloKitty.

 

You should avoid grape juice whilst taking certain medication, but other freshly prepared raw juices will do you the world of good in regards to your anaemic issues.

Here is some more information for you.

http://www.juicing-for-health.com/what-is-anemia.html

Sorry I can’t comment on the drugs.

I hope things improve for you soon

 

 


MoonShadow.

Australia.

Female 37.

Sick since 1998 – finally diagnosed 2003.

No drugs (last drugs were taken in 2005).

Healing myself thorough diet & natural methods.

Using plant derived MultiGest Enzymes capsules as part of diet.

 

Feeling fantastic!


tap
Regular Member


Date Joined May 2008
Total Posts : 472
   Posted 11/20/2009 5:53 PM (GMT -6)   
I have had very good success with Vitamin D3. Prior to starting to take it back in January, I was very sad several days each week. As noted in my journal back in January, "Just way depressed last night, angry, frustrated, and sad. Everything seems so pointless." And I wasn't even flaring at the time. It may have been Seasonal Affective Disorder (SAD) related but I had been experiencing the same feelings for years and years and years throughout the entire year.

Within days of taking 5000 IU of Vitamin D3 a day, I became content and haven't experienced the depressing feelings since. I have had two flares since starting the Vitamin D3 (one currently active) and the disease tends to just annoy me now rather than make me depressed. It should be noted that I did have my D3 level tested back in April (two months after starting to take Vitamin D3) and it was low (38ng/mL). I had it tested again in October and it was at an appropriate level (58 ng/mL).

Of all of the drugs and supplements that I take, Vitamin D3 is the last one that I would be willing to stop taking.
44 - male - Diagnosed with pancolitis in 1998
Psyllium Seed Powder (1 teaspoon) - twice per day; Flaxseed (2 tablespoon ground) - once per day;
Vitamin D3 - 5000 IU once per day; NSI Turmeric Extract with BioPerine - once per day;
Align, Culturelle, Sustenex, Ultimate Flora Critical Care probiotics;
Asacol - 2 400mg pills 3 times per day;
Pred - 40mg taper - started 10/30/2009 - finish 01/21/2009


MoonShadow
Regular Member


Date Joined Dec 2007
Total Posts : 52
   Posted 11/20/2009 6:00 PM (GMT -6)   

I fear I will soon start sounding like a broken record – sorry.

But I have suffered from depression most of my life, well before I got sick with UC. And when I was taking steroids for the UC, I was so seriously depressed that I felt suicidal.

I have found that my depression has vanished since I changed my diet. I changed to primarily a raw vegan diet and added daily fresh juices and green smoothies

In the beginning I could not understand how a simple diet change could be so beneficial to my mental health, until I read the following comment:

“Among the most interesting health benefits of juicing are its potential for alleviating symptoms of depression. The effects of juicing on depression are accomplished by providing a concentrated source of minerals like magnesium, potassium, iron, calcium, and folic acid. Deficiencies of these nutrients are associated with symptoms of depression”.

Of course if you are feeling suicidal, then go to your doctor. But for milder depression, diet may be of assistance to you.

Read more here:

http://www.bestofjuicing.com/

More info here:

http://www.squidoo.com/greensmoothies

Sorry to harp on but you did indicate that you were desperate. And I really can’t emphasise enough how diet has helped my UC and depression.


MoonShadow.

Australia.

Female 37.

Sick since 1998 – finally diagnosed 2003.

No drugs (last drugs were taken in 2005).

Healing myself thorough diet & natural methods.

Using plant derived MultiGest Enzymes capsules as part of diet.

 

Feeling fantastic!


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5507
   Posted 11/20/2009 7:30 PM (GMT -6)   
      Dear chipsmom...I am so sorry you are suffering so.  You certainly have a lot of obstacles in you path.  I've had UC for eleven years and it can get you down, but I do not have cancer.  Having  to deal with both illnesses is devastating.  I cannot tell you what to take for depression, you must see your family doctor about that, but I can tell you that my GI doctor advises against Remicade with someone who has had a diagnosis of cancer.  Something about the possibility of activating the cancer cells.  Now, this is just what MY GI doctor explained to me.  I know not all doctors are in agreement.
     I was very hesitant to start Remicade, which I did this past week.  Years ago I tested positive for the TB virus.  I remember getting a chest xray and it being negative.  The doctor explained that I must have been exposed to someone with TB (which I did have an aunt through marriage who suffered with it) and I also worked in a hospital lab.  However, I was tested at my doctor's office the week before I started Remicade and the PPD test was negative!  I am going the Remicade route because it is my last hope of keeping my colon.
     May God bless you.  I hope and pray you find some relief.
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Flare May of 09 thru Aug of 09.  Meds: Colazal, 6MP, prednisone taper, probiotics, Benicar, calcium and multivitamin
Remission...too short...Sept and Oct.  Now in bad flare again...blood and mucus...back on prednisone, off the 6MP, waiting for approval from ins co to start Remicade.


Gabby123
Regular Member


Date Joined Jan 2007
Total Posts : 113
   Posted 11/21/2009 11:16 AM (GMT -6)   
I understand the depression.  I have had colitis for about 6 months now and it sucks.  I feel like this disease is never going away.  I try my hardest to eat natural foods but no matter what I eat I get horrible pain in my colon/rectal area.  Everything down there is inflamed. 

chips mom
New Member


Date Joined Nov 2009
Total Posts : 8
   Posted 11/21/2009 11:39 AM (GMT -6)   
smurf  Thanks for all your help and input.  It's good to know that others suffer from depression with this illness.  Well not good to know, but at least you know you are not alone.  I suppose any chronic health issue, especially related to the intestinal tract, will lead to stress and anxiety.  My oncologist is not sure about the use of Remicade with breast cancer, so have to find out more about that.  Taking prednisone is no fun either.  Thank goodness for Ambien time release pills.  They give me a restful night's sleep, which I can't seem to get any other way.  Sadly, that's the best part of my day.  Not suicidal at all, just very down.  Will definitely seek help if that becomes a problem.

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5507
   Posted 11/21/2009 12:00 PM (GMT -6)   
     I have to take Ambien CR for sleep too.  That is from the darn prednisone.  It gives me insomnia every time I take it.  Hope to taper down since I see no blood this morning.  Right now on 40 mgm.  Doc wants me to taper to 30 mgm but I never tapered faster than a 5 mgm per week one.  Anxious about that.
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Flare May of 09 thru Aug of 09.  Meds: Colazal, 6MP, prednisone taper, probiotics, Benicar, calcium and multivitamin
Remission...too short...Sept and Oct.  Now in bad flare again...blood and mucus...back on prednisone, off the 6MP, waiting for approval from ins co to start Remicade.


Meesh
Veteran Member


Date Joined May 2006
Total Posts : 619
   Posted 11/22/2009 4:56 PM (GMT -6)   
A couple of years ago I was in a bad flare and my then 17 yr old daughter was in rehab with quite a lot of issues. My GI wanted to put me on Lexapro, which would then make the entire family on ADs and I was resistant, especially given all the other meds I was on at the time.

He explained to me that even though intellectually I knew my depression was what I was calling "situational" it was still depression nonetheless. My thinking was I knew what was causing it, I could just "handle" it. He explained to me the brain can actually rewire itself in times of depression that makes it more predisposed to remaining depressed or becoming depressed again in the future. Taking an AD would short circuit that rewiring.

So I did take the Lexapro and the results were subtle, but much improved. I didn't feel all happy all the time like I thought an AD would make me, I just stopped feeling so low and hopeless and tearful all the time. It helped me cope a lot better with what all was going on in my life.

about four months after starting on the Lexapro I decided to try Remicade after much agonizing. It was a godsend for me, and did allow me to keep my colon -- but not forever. It's going out in seven weeks but the Remi did give me the time to come to terms with that and get through to a time when I and my family are better able to withstand the rigors of the surgery.

Please get help for your depression and don't be afraid to take medication for it. If the first one you try doesn't work there are others out there, just keep trying.

For those battling to keep your colons, don't be afraid to explore the surgical option. I consulted with a surgeon long before I made the decision to have the j-pouch surgery. Knowing what would be involved helped me to make the decision in time, with all the information I needed. Prior to my consulting with a surgeon my decision to continue trying medication after medication was based more on fear of the surgery than anything else. I know that had I not spoken with the surgeon, now that the Remicade wasn't working as well I'd probably be fighting with my insurer to let me try Humira. Instead I am getting ready to put my years of UC behind me.

If the Remi was still working, mind you, I would have been quite happy to continue infusions indefinitely. But now I just want my colon OUT!!

Meesh
47 yr old female, dx'd UC April 27, 2006; mild arthritis in lower back, dx'd May 2008; Osteopenia dx'd 6/08 Achieved almost-remission mid October 2008 (rectum still inflamed). Having surgery January 12, 2010.

21 Remicade infusions: 1st: 7/21/07; final infusion: 11/21/09; Current meds & supplements: Lialda, 4 tabs in the morning; Canasa; multivitamin w/folate; Culturelle; Fish oil capsules, calcium chews and/or Tums; Vitamin D

Past meds: Prednisone 4/06-4/08; Entocourt EC; Asacol; Colazal; Roweasa; Venofer (iron) injections Dec '07; Imuran (extremely bad reaction 2/07); Protonix; Lexipro; Xanax


JM21204
Regular Member


Date Joined Dec 2008
Total Posts : 254
   Posted 11/22/2009 5:39 PM (GMT -6)   
I take Ambien as well, but I'm concerned I'm taking it too frequently that my body will become dependent on it. I try to mix in benedryl here and there instead. How often do you take Ambien and when is it considered too often? I try to keep it at 1-2 times a week tops.
34 yr old female
Diagnosed with Pancolitis in 1/2007
Baby Girl 3/2009
Meds: Lialda, Prednisone on and off.
 


journey2health
Veteran Member


Date Joined Oct 2009
Total Posts : 2687
   Posted 11/22/2009 5:58 PM (GMT -6)   
don't worry about getting addicted to ambien, you can break the pill up , or something like that, to taper off, your sleep is more important...
Ellen
diagnosed pancolitis mild to moderate on Sept. 15, 2009
2 heaping tsp psyllium husk powder daily, two doses
4 asacol 3 times daily, calcium plus D,
10 mg prednisone -- 2nd taper from 40
1000 mg fish oil
3 scoops l-glutamine, three times daily
Restoril for sleeping
no wheat and no sugar,
eliminated dairy, red meat,alcohol caffeine, spice
low residue, low oil, no fresh fruits/veggies,
bipolar med Lamictal
Fosamax for bone loss
multi-vitamin


chips mom
New Member


Date Joined Nov 2009
Total Posts : 8
   Posted 11/23/2009 10:31 AM (GMT -6)   
I take the Ambien every night.  I hope it isn't addictive, but for now I can't sleep without it.  Hate to say it, but often look forward to taking that pill.  It seems to be the best part of my day.  Sleeping and unaware of the ulcerative colitis problems. Sometimes I will wake up in a stupor having to run to the bathroom.  But better than being awake all night. 

JM21204
Regular Member


Date Joined Dec 2008
Total Posts : 254
   Posted 11/23/2009 2:52 PM (GMT -6)   
Glad I'm not the only one taking it often, good or bad. I look forward to it to which is why I was starting to get worried. I think my problem is not being able to relax and feeling anxious. So I've been weighing if I would be better off taking an anti-anxiety med vs. taking ambien.
34 yr old female
Diagnosed with Pancolitis in 1/2007
Baby Girl 3/2009
Meds: Lialda, Prednisone on and off.
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, October 23, 2014 10:46 AM (GMT -6)
There are a total of 2,249,274 posts in 250,212 threads.
View Active Threads


Who's Online
This forum has 157445 registered members. Please welcome our newest member, Kdbhokie.
431 Guest(s), 18 Registered Member(s) are currently online.  Details
MarieLS, pictureofhealth, BnotAfraid, Startech, gloopstar, hornet599, hypoHashimoto, Hawaii-Guy, Scaredy Cat, Dolph ziggler fan, chicagobulls11, turnpkegates, Healing98, Duffy72, Brewmaster, Walton, Cianna, Chrissysoul


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer