Acupuncture and Ulcerative Colitis

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UCISNOT MYFRIEND
Regular Member


Date Joined Jan 2010
Total Posts : 195
   Posted 1/12/2010 2:11 PM (GMT -6)   
I am 24yrs old suffering from ulcerative colitis since the age of 18.  I went in last week for my first test trial of acupuncture with hopes that it would cure me 100%.  Well unfortunately, it did not.  I am not sure if I should continue to get several treatments or not.  Has anyone had any success from acupuncture?  If so, please share your story.  Also how many treatments did it take for you to see a difference?
 
UCISNOTMYFRIEND
Currently Taking Apriso-4x's a day

Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 1/12/2010 2:16 PM (GMT -6)   
I tried acupuncture, and though it didn't relieve my symptoms, it was very relaxing and worth trying.
Don't expect it to work for you on the first treatment, as these kinds of therapies can take some sessions to show any effect, if at all.

And if it doesn't work for you then keep trying different options out. With UC there obviously isn't any cure-all or magic pill so you just need to keep at it and find something that works for you. Good luck with it.
Rio, 34 year old male. Diagnosed with UC in 2006
Azathioprine (stopped), 3200 mg Asacol
VSL#3 probiotics, Metamucil capsules, Forvia multi-vitamin
Vitamin E enema or Canasa suppository occasionally


quincy
Elite Member


Date Joined May 2003
Total Posts : 25775
   Posted 1/12/2010 2:18 PM (GMT -6)   
Your first mistake is to believe you will be cured and put all your hopes in that one aspect.
It will serve a purpose to you overall....see what else it can do for you and maybe your UC will behave better.

You should also be on rectal meds plus the Apriso.

quincy

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2838
   Posted 1/12/2010 2:25 PM (GMT -6)   
I tried accupuncture in my early 30s. I could feel effects on my body, but my UC flare only got worse.
I gave up after about 6 sessions because it was expensive and didn't help my UC at all.
I believe accupuncture can help some conditions, but not UC.
49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol maintenance for 20+ years; Prednisone & Rowasa for flares. 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow


UCISNOT MYFRIEND
Regular Member


Date Joined Jan 2010
Total Posts : 195
   Posted 1/12/2010 2:42 PM (GMT -6)   
Quincy,
 
Thanks for the advice, I will keep the faith.
 
Peety,
 
Did acupuncture cause your UC to flare?
UC is not going to contol me
Trying to Conceive
Meds: Apriso 4x's a day and Folic Acid


quincy
Elite Member


Date Joined May 2003
Total Posts : 25775
   Posted 1/12/2010 4:21 PM (GMT -6)   
faith is good.....what about using rectal meds?

q

Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 1/12/2010 4:37 PM (GMT -6)   
I regularly go to acupuncture, and I love it. But I have to agree with quincy in that it is not a cure. If someone is promising you that it will be, they are misleading you.

Prior to being hospitalized in 2008, I was trying everything I could to manage this disease naturally, and was going to acupuncture every week. While it helps me immensely with my stress, and it gives me a wonderful overall sense of well being, it has never had a noticeable effect on my UC symptoms. I still go, and she does treat me for my UC, but it does not help me get our of flares, nor does it keep me from going into them with much success. It does not make my flares worse, but it doesn't really treat them either. I agree also with Peety-I think it is very helpful for some things (I have a friend who got pregnant after acupuncture treatments, which was her goal), but I do not think it is even remotely close to a cure or even a reasonable treatment for UC. I am moving away from UC treatment with her and trying to focus on things like stress relief and my screwy menstrual cycles, since those things negatively impact my UC, so if she can help ease some of my triggers, I figure it could indirectly help my UC.

After going that route, I have found that the best treatment program for me involves a balance of meds and alternative therapies and treatments. Even with all of that, I am currently flaring (and if my Humira injection doesn't help get me past it, I will be calling the GI tomorrow to push for a switch to a mesalamine enema). If you are flaring right now and all you are taking is Apriso, I would recommend calling the GI and getting on something else to help get you out of the flare.
Laura
34 years old, stay at home mom of 2 girls, ages 4 and 3
Diagnosed in March 2007, symptoms started Dec. 2006
Currently on:
Asacol 6pills/day
Biweekly injections for Humira clinical trial-perfection, it is not-but it helps
Back on Canasa nightly, hoping to be able to taper off at some point.
Also take multivitamins, milk thistle, VSL#3 capsules (6 daily right now), MegaZyme, cranberry and PepZin daily. P-seed powder is helping (1t. twice daily)


treebs
New Member


Date Joined Aug 2006
Total Posts : 19
   Posted 1/13/2010 3:25 AM (GMT -6)   
Tried it once, or some variation of it. Alternative medicine is interesting but not practical. Anyways the guy said there may have been a dental problem linked to the UC, but I didnt really have time to investigate it, the GI called me up saying I needed to a colectomy because I was showing signs leading to cancer or some crap
Complete Colon removal in Febuary 2007- temporary Illeostomy placed and Reversal in March 2007-  Any Questions about this operation please dont be shy!


Rio in Maryland
Veteran Member


Date Joined Nov 2007
Total Posts : 891
   Posted 1/13/2010 8:20 AM (GMT -6)   
Also, if you want to find a cheap way to get acupuncture, some places nowadays offer community sessions -- where there are several people having treatment at the same time and in the same room. This allows the practitioner to lower the cost.

The place I went to charged $25-$40 per 1 hour session because of this.
Rio, 34 year old male. Diagnosed with UC in 2006
Azathioprine (stopped), 3200 mg Asacol
VSL#3 probiotics, Metamucil capsules, Forvia multi-vitamin
Vitamin E enema or Canasa suppository occasionally


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5421
   Posted 1/13/2010 9:14 AM (GMT -6)   
I have used acupuncture for muscular problems with enormous success. When I queried my acupuncturist about using it for treating, not curing, UC she said I would have to be off all western meds in order to give it a shot of working, and even at that she had no guarantees that it would work. I opted not to eliminate western meds.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2838
   Posted 1/15/2010 3:03 PM (GMT -6)   
No, I really don't believe accupuncture caused the flare. I was already headed that way, it was just time for another one!

I think it would be a terrible idea to go off western meds to try it. Neither the accupucturist or my naturopath wanted me to do that.
49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol maintenance for 20+ years; Prednisone & Rowasa for flares. 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow


Burli
Veteran Member


Date Joined May 2003
Total Posts : 1045
   Posted 1/16/2010 2:43 AM (GMT -6)   
It's a waste of money for UC but it will give you some attention therapy if you need that.
43, male, UC diagnosed in 1985; Epilepsy; Lost hearing in one ear in 2005--unexplained


julee70
Regular Member


Date Joined Oct 2007
Total Posts : 475
   Posted 1/16/2010 5:08 PM (GMT -6)   
Acupuncturists, like other specialists, vary. Some of really competent and well-trained doctors. Others are not.

I went to well-trained acupuncturist who trained in China. I was ready to check into a hospital. Within a month, the bleeding stopped and I felt great. I went 2 times a week, then 1 time a week. I did that for months. You have to keep up with the treatments. Once I stopped, I couldn't really get back into remission.

I went to a different acupuncturist a few times who did nothing for me. He had a bunch of patients in different rooms "going" all at once. It was ridiculous. I wouldn't bother with someone who doesn't give you the full time to yourself.

Any acupuncturist who says you have to stop western meds is wrong.

I would only go to an acupuncturist who was highly recommended by the area doctors. They tend to know who is well-regarded. Orthopedists and neurologists are the usually the ones who would know.
-------
UC for the last ten years
Current Meds: 6MP since 2006, Lialda, Asacol foam, Lomotil
Past Meds: You name it; I've tried it. (Asacol, Colazol, Pentasa, DiPentum, Rowasa, Canasa, Cortenema, sulfasalazine, Cortifoam)
Alternative treatments I have had success with: Acupuncture, Hypnotherapy


Againstodds
Regular Member


Date Joined Nov 2009
Total Posts : 193
   Posted 1/16/2010 8:36 PM (GMT -6)   
I am just curious about the number of patients who try acupuncture. It is not a cure definitely, but how much does it help?

Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 1/16/2010 8:52 PM (GMT -6)   
Againstodds said...
I am just curious about the number of patients who try acupuncture. It is not a cure definitely, but how much does it help?


It doesn't help me with the UC symptoms much, if any. But it does help me with stress, which indirectly helps me with the UC, know what I mean? Plus as the mom of young kids, I enjoy having cause to lay on a table for an hour and take a nap! :) That always helps!!
Laura
34 years old, stay at home mom of 2 girls, ages 4 and 3
Diagnosed in March 2007, symptoms started Dec. 2006
Currently on:
Asacol 6pills/day
Biweekly injections for Humira clinical trial-moved to weekly 1/14/10
Canasa 1000mg nightly
Also take multivitamins, milk thistle, VSL#3 (4 packets daily right now), Ulimate Flora Critical Care (1 nightly), MegaZyme, cranberry and PepZin daily. P-seed powder is helping (2t. twice daily)

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