Post Edited (Probiotic) : 2/3/2010 4:52:10 PM (GMT-7)
Thank you so much for this thread. I wrote one awhile ago about how long people have used pred, and in the meantime my NP called me yesterday and seemed pretty down on me for not having tapered off pred by now. I started it at the end of Nov at 20 mg and have been at either 5 or 2.5 for at least a month. Any day I stopped taking it, I'd bleed. So I figured I'd do a very slow taper.
When I talked to her yesterday, though, she let me know that my GI would not prescribe anymore for me (I didn't even ask since I don't need any... 2.5 is like 1/4th of a pill!) Apparently for them my only option now is Remicade.
It feels so horrible to be disregarded in your own health care. I'm so tired of having to follow whatever regimen is popular at the time. I'm glad you were a great advocate for yourself! I'll consider asking for an adrenal function test if I fail with Remicade, assuming I begin that. What a great idea, thank you!