I have yet another question about these colocort enemas...I've been on them for about 10 days now, and I'm overall noticing a good difference. However, I noticed a HUGE difference on hte first 2 days (went from 10 non-formed bloody stools a day to like 2 or 3 much more formed not bloody at all), and then it's kind of going back in the other direction... :(
I had a lot of trouble at the beginning with feeling really crampy and gassy, and got advice on here to squeeze the air out of the applicator before doing the enema so I didn't contribute by adding more air. I think that helped, but as time goes on I'm having more and more trouble with that. I'm having more trouble retaining the enema as well. The first few nights were no problem, but now I'm lucky if I can keep it in an hour. The gas is getting out of control and that's usually why I'll have to expel the enema. :( I feel like i'm wasting the enema, and it's not even getting in me, and of course my symptoms can't get any better if I can't hold the enema in. I'm getting so frustrated.
Does anyone have any suggestions as to how to remedy this? I'm just not sure what to do anymore. Right now I'm on medical leave from work due to a bladder surgery I had, but I have to go back in a week and I seriously don't even know how I could work in the condition I'm in (my bladder is fine! But the diarrhea is horrible.). Thanks in advance :)
28 Year old Female
Diagnosed with Crohn's Colitis March 2000
Recent possible diagnosis of IBS-D
Tried Meds: Asacol, Remicade, 6mp, Humira, Xifaxan, Apriso, Rowasa Enemas.
Currently on: 25mg Prednisone (Tapering SLOWLY from 60), 100mg Imuran, Psyllium Seed Powder, VSL #3 DS, Colocort Enemas, Prenatal Vitamin, Vitamin B 12 Complex, Vitamin D/Calcium, Flomax (for urinary retention).