Collapsed Colon???

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123UC
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 2/21/2010 10:05 PM (GMT -7)   
Hi everyone, I was diagnosed with UC 8 years ago but have not been unwell since 2005, until 12 weeks ago. I have been in considerable pain, the doctors have found nothing other than a 'collapsed colon' consistent with active distal colitis. The thing is I have no colitis symptoms just this chronic pain in my lower left side which I assume is the 'collapsed colon'. Does anyone know what causes this or how to fix it! I don't want to take any drugs as I am otherwise healthy and my husband and I are trying for a baby at the moment. HELP PLEASE! The doctors tell me nothing! confused

ElephantPipe
Veteran Member


Date Joined Jun 2009
Total Posts : 1809
   Posted 2/21/2010 10:09 PM (GMT -7)   
I have no idea... did you ask them?
20yr old female diagnosed with UC (mod-sev pancolitis) in 2005 at age 15
125mg Azathioprine 1xday
500mg Vitamin C 1xday / 1000IU Vitamin D-3 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Raynaud's Syndrome


123UC
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 2/21/2010 10:16 PM (GMT -7)   
The doctors & public health system in New Zealand is free but useless. I am on a 6 month waiting list to see a specialist! and my GP just says 'I dont know'!!

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 2/21/2010 11:17 PM (GMT -7)   
When I was told that I'd have to wait two months to see the GI, I found another one. Can you switch GPs? If you have a collapsed colon and abdominal pain, then you could have a small bowel obstruction. You need to see a doctor ASAP, not six months from now. Don't take no for an answer.
Flaring very, very slightly.
 
Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No crystalline fructose, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


123UC
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 2/21/2010 11:52 PM (GMT -7)   
I have had ultrasounds xrays and exams in the hospital and at the GP, no-one ever said anything about a bowel obstruction! I have been having colonic hydrotherapy for last 2 weeks as I have heard it helps colitis symptoms I am thinking that would have cleared a bowel obstruction if I did have one? Hmm I think I might change GPs. Thanks!

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18198
   Posted 2/22/2010 12:23 AM (GMT -7)   
Hi 123UC...I found this link for you about collapsed colon...it does mention that it can be caused by a blockage in the small intestines (this would be more related to crohn's and not UC since UC is limited to issues in the colon/rectom, so you may want to get so small intesines checked out to rule out CD if this is the reason behind your collapsed colon).
 
 
Google collapsed colon to find more links....good luck, feel better soon!
 
:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


123UC
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 2/22/2010 12:29 AM (GMT -7)   
Great thanks for that :)

When I was first diagnosed they did say they thought I might have CD but as ulceration was present and colon main cause of upset they went with UC. Will take this info to my GP.

pb4
Elite Member


Date Joined Feb 2004
Total Posts : 18198
   Posted 2/22/2010 12:33 AM (GMT -7)   
Brother, CD has polyps (like ulcers in UC), it all depends on what the inflammation looks, like....patchy inflammation is CD, if the entire area is inflamed with no patches (skipped patterns of inflammation) then that's UC. CD can affect any part of the GI tract, UC is limited to the colon/rectom.

Did they ever check your small intestines to confirm their DX of UC? I shake my head at alot of these docs.


:)
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


123UC
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 2/22/2010 1:11 AM (GMT -7)   
I dunno, I had a colonoscopy but it was 8 years ago and I was only 19 at the time. The docs have always been very vague and unable to answer my questions and I have always searched for alternative therapies cos they don't usually have the answers!

quincy
Elite Member


Date Joined May 2003
Total Posts : 25894
   Posted 2/22/2010 2:31 AM (GMT -7)   
Hi..welcome to the forum!

I suggest you put the baby-making goal on hold until you get a proper diagnosis and treatment. Then go from there.

It all sounds unnerving that things are in limbo regarding any kind of treatment, even from the hospital.

quincy

123UC
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 2/22/2010 2:38 AM (GMT -7)   
Yeh I know, it's been nearly 5 weeks since I was in hospital and no-one has followed up to see how I am not even my GP. I guess we are responsible for our own health, I obviously have little faith in doctors as this has been the story of my life since being diagnosed. Baby plans are on hold, but it sucks cos I had a miscarriage last year so really want another bubs to ease the sadness. Thinking the UC may have played a part in the miscarriage tho as I have read chances of this are higher when in flare. Thanks for your advice x

quincy
Elite Member


Date Joined May 2003
Total Posts : 25894
   Posted 2/22/2010 10:12 AM (GMT -7)   
Yeah, we have to be proactive....doctors are busy. I only had one doctor follow up with a call and that was after a myelogram (sp?).

It's hard to know exactly why each miscarriage happens, and I would think that risking while flaring would be more heartbreaking and worrisome. I hope you have the support you need (friends, family, spouse...)in order to get this all figured out.

Please do as much research as you can on collapsed colon.

Where exactly was your colon collapsed? I know you said distal....but where exactly?

quincy

123UC
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 2/22/2010 3:17 PM (GMT -7)   
The report didn't say but the pain is lower left hand side. I do have support, a good hubby :) Just am over feeling like this and want to be well! Thanks for your advice :)

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 2/22/2010 4:43 PM (GMT -7)   
Yes. One cannot rely on their GP. GPs aren't specialists. Conditions such as IBD are outside their expertise. You really need to see a GI and as soon as possible.
Flaring very, very slightly.
 
Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No crystalline fructose, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


ElephantPipe
Veteran Member


Date Joined Jun 2009
Total Posts : 1809
   Posted 2/22/2010 5:46 PM (GMT -7)   
Okay, random question. Do people in New Zealand and Austrailia call babies bubs? 'Cause you're the second person I've seen. And I think that's awesome by the way lol


20yr old female diagnosed with UC (mod-sev pancolitis) in 2005 at age 15
125mg Azathioprine 1xday
500mg Vitamin C 1xday / 1000IU Vitamin D-3 1xday
Arthritis in both knees
Also: asthma, acid reflux, and Raynaud's Syndrome

Post Edited (ElephantPipe) : 2/22/2010 6:25:37 PM (GMT-7)


123UC
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 2/22/2010 6:35 PM (GMT -7)   
LOL I guess so. It isn't weird to refer to babies as bubs here :)

Old Hat
Veteran Member


Date Joined Feb 2007
Total Posts : 4615
   Posted 2/23/2010 1:27 AM (GMT -7)   
I'm wondering if the lumen (hollow tube) of your colon is closing on the left side due to inflammation. That can be very painful & feel like a ball is bouncing back & forth-- which is actually waste trying to pass through. It sounds like you should consult a gastroenterologist who is experienced with IBD treatment without further delay. As Quincy says, 1st things 1st-- you just put yourself at risk of serious complications trying for pregnancy with unresolved colon issues. Take care of yourself 1st! (My take on the situation.) / Old Hat (30 yrs with left-sided UC; presently in remission taking brandname Colazal)

123UC
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 2/23/2010 2:07 AM (GMT -7)   
Hmm that sounds interesting. Could be. Can't do much about seeing gastro, just waiting on my call in to the hospital. unless I pay to see a specialist. Might have to do that. Thanks!

mudlark
Regular Member


Date Joined Feb 2010
Total Posts : 29
   Posted 2/23/2010 3:51 AM (GMT -7)   
Hey 123UC, Where are you in NZ? I'm in Auckland and my GP knows heaps about UC because her daughter has it, managed to get me seen in the public health system within a month (which got me a diagnosis but was soso at best) and has put me onto someone who seems to be a great specialist (but costs a whole lot more than the people at Middlemore did!)

123UC
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 2/23/2010 2:48 PM (GMT -7)   
I am in Auckland too, would love the name of your GP! :)

mudlark
Regular Member


Date Joined Feb 2010
Total Posts : 29
   Posted 2/24/2010 1:46 AM (GMT -7)   
I just updated my profile so my email address is visible - email me?

123UC
New Member


Date Joined Feb 2010
Total Posts : 17
   Posted 2/24/2010 2:05 AM (GMT -7)   
Great thanks have emailed you :)

Muscblis25
New Member


Date Joined May 2013
Total Posts : 1
   Posted 5/10/2013 7:30 AM (GMT -7)   
I just got out of the hospital yesterday and was diagnosed with a collapsed colon and I also have colitis. My Dr didn't seem too worried about the collapsed colon. He just said that it was from my severe vomiting and diarrhea during my flare up and since my colon/stomach was completely empty it just contracts... I'm not sure if this is true but just some other advice :)
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