Too much VSL???

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IBDISTHEPITS
Regular Member


Date Joined Dec 2009
Total Posts : 357
   Posted 3/1/2010 8:26 PM (GMT -6)   
Can you take too much VSL?
 
What symptoms might you have if you are taking too much?
 
My daughter has been on a Prenisone wean for 3 months and we are
finally down to 4.5mg a day. She is starting to have a slight increase in stool
and also a tiny amount of blood(mucus).
She is taking 2 VSL packs a day for about 5 months-
 
Any thoughts?
Daughter, age 9, diagnosed with indeterminate colitis in Oct 09.
Currently on Prednisone taper, VSL#3, Omega 3,Ca,Iron,Vitamins
Unable to tolerate 5 ASA's


songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3252
   Posted 3/1/2010 8:47 PM (GMT -6)   
A good question!
Does the stool smell particularly odd in a VSLish way?

At one point early on in my taking it, I thought I was taking too much because I had some gassy stomach discomfort.

When did you get down to the 4.5 of Pred? Any chance the blood and increase in stool is from the taper?

Maybe read up on slippery elm and see if that might help her get over the hump of the tapering....? I have used the tincture, 40 drops in a glass of water. Has a faint nutty/almond/peach taste. Helped with my bleeding some when I was coming off a flare and tapering cortenemas.
Age 54. Diagnosed UP 1983, Azulphidine
Diagnosed UC 1986 Prednisone almost 2 years
Asacol - 16 pills/day, cortenemas, Rowasa
Metamucil - 2 doses/day since '86, and psyllium seed powder
VSL#3DS, Multivitamin, Calcium and D, Flax Seed Oil
melatonin
homemade yogurt each day
Ryzolt for arthritis pain
Son, 16, dx pancolitis 2007, in remission :-)


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5419
   Posted 3/1/2010 8:53 PM (GMT -6)   

The symptoms you are describing are not caused by VSL.  If you suddenly increased her dose the result might be increased gas but not blood.  It sounds like UC and it's not uncommon to have increased UC symptoms as pred is tapered; especially at the lower doses (less than 5mg).

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


quincy
Elite Member


Date Joined May 2003
Total Posts : 25775
   Posted 3/2/2010 12:14 AM (GMT -6)   
I'd say it's the pred decrease as well.

you could try alternating dosages as she's weaning down further.

Ask the doc possibly for rectal meds in steroid form such as foam or suppositories.

q

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 3/2/2010 1:00 AM (GMT -6)   
Same here. It is typically for the blood to come when the prednisone dosage is decreased. The body produces less cortisol while on prednisone. It takes awhile for it to ramp up its production of cortisol when the dosage is decreased. The result is increased blood.
In remission.
 
Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No crystalline fructose, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, Vitamins, Lexapro (for stress).


Levi
Veteran Member


Date Joined Nov 2009
Total Posts : 1597
   Posted 3/2/2010 7:14 AM (GMT -6)   
I'm taking 4 packets of the DS per day and have not seen a problem. It has reduced the blood, no change in frequency.
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