Cholestyramine to bulk stools

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Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5391
   Posted 3/3/2010 9:52 AM (GMT -6)   
     Anyone else take this for bulking up the stool?  My doctor prescribed it.  You mix it with orange juice.  I have been afraid to start it because my hubby took it last week and it gave him stomach cramps but then he has no bowel issues.  He took it because he was constipated.  My problem is the opposite.  I also have diverticulosis in addition to the UP.
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Flare May of 09 thru Aug of 09.  Very short remission.  Flared again Nov 1st.  Started Remicade Nov 18th.  Felt great after first two infusions.  Suffered a set back after 3rd infusion on Dec 31st.  Meds: Benicar, Colazal, Prednisone (hopefully short course), Calcium with D, multivitamin, probiotic.  Rectal meds..Proctofoam, cort suppositories....cannot retain the enemas.


WIMOMOFTHREE
Veteran Member


Date Joined Apr 2009
Total Posts : 654
   Posted 3/3/2010 9:54 AM (GMT -6)   
I take this first thing in the morning.  I take a full scoop mixed with water.  I drink it really fast because it is NASTY.  I was taking a half a scoop they told me to take a full scoop about a month ago.  I do notice a difference.  I had alot of D in the morning and not so much now.  I've never had problems with cramps.  Good Luck!!
Mom of Three(Two Boys and One Girl)
30 years old

Ulcerative Colitis(severe,whole colon)

Diagnosed March 2009

Allergic to Asacol, Lialda, and Imuran

Currently on Remicade

It took a couple infusions but the Remicade is really working. Also on Vitamin D, Calicium Citrate, Chewable Multi-Vitamin, Zyrtex, Prilosec, Zinc, Omega 3, and a Probiotic, I also give myself a B12 shot every month.


BCGirl
Regular Member


Date Joined Jan 2010
Total Posts : 135
   Posted 3/3/2010 11:57 AM (GMT -6)   
I have been on this since December 2008.  It was prescribed for me because I had D since 1993 when I had my gallbladder removed.  It originally took 4g twice a day, mixed with water but have since reduced it to 4g once daily.  I originally used the orange flavored one but switched to the sugar free lemon-lime flavor.  It works like a HOT darn!  I love it because now, other than when I am flaring, I RARELY ever have D.  Thoughts of "where is a bathroom" no longer rule my day.  I am no longer scared to go on road trips, snowmobiling, boating, etc.
 
 I don't find the taste bad at all, but the texture is a bit gritty.  If I let is sit for a few minutes before mixing it, it lessens the grittiness.  Make sure you don't take it within a few hours of other meds in case it binds with them.  The only problem I have with it, is that it gives me heartburn occasionally so I usually take a Zantac (150mg) about an hour before I drink it. 
You don't know how strong you really are until being strong is your only option.
My best friends are stain resistant..... I can spill anything on them.
 
Age 39
Diagnosed with Ulcerative Proctitis December 2005
Diagnosed with Left sided Colitis January 2009
Pentasa, Salofalk, Prednisone


kweeks
Regular Member


Date Joined Dec 2009
Total Posts : 395
   Posted 3/3/2010 12:09 PM (GMT -6)   
can you take this for IBS? My mom has ISB-D and this really sounds like it would help her. Right now a lot od D isnt my issue, more cramps :(

BCGirl
Regular Member


Date Joined Jan 2010
Total Posts : 135
   Posted 3/3/2010 12:26 PM (GMT -6)   
It is used for lowering cholesterol and as an anti-diarrheal.  She could ask her doctor about it.  There are some meds that can't be taken within a few hours of it so that might be a concern if she is on other meds.......
You don't know how strong you really are until being strong is your only option.
My best friends are stain resistant..... I can spill anything on them.
 
Age 39
Diagnosed with Ulcerative Proctitis December 2005
Diagnosed with Left sided Colitis January 2009
Pentasa, Salofalk, Prednisone


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 3/3/2010 12:44 PM (GMT -6)   
I take it 3 times a day. I mix it with orange gatorade or orange juice. I don't mind the taste--it's just the texture that's kinda gross. I don't know that's it's helping me much, but with how much output I have WITH it, I'm afraid to cut it out
26 year old female
Diagnosed with unspecified UC 11/08
Asacol, Prednisone, 3 infusions of Remicade with no success
8/09 colonoscopy shows that the whole colon is affected
12/18/09 First part of J-Pouch surgery; recessed stoma
12/30/09 Second part of J-Pouch surgery too soon; fistula
1/9/10 Second Ileostomy Surgery with sparing of the J-Pouch
1/25/10 Stoma Revision Surgery and Fistula Repair
Now just trying to hold out as long as possible until we can try the next surgery
Imodium (4/day), Questran (3/day)


Fathertimema
New Member


Date Joined Jun 2011
Total Posts : 1
   Posted 6/22/2011 6:10 AM (GMT -6)   
   I have had Colitis for 7 long hard years. I was going 10 to 15 times a day and married to my toliet.
   My Dr try many drugs to treat me with little luck.
  I saw   Cholestyramine mention on the internet and told my DR about it.
I got a Pres. from him and today is my 5th  day on this med. I now go to bathroom 1 to 3 times a day. I feel like a new person. I just hope this med keeps working over time.
   I do have some cramping BUT what a small price to pay to be well.
  This drug is worth trying  if your DR says its ok.
  Good luck all. !

Boxermom2
Veteran Member


Date Joined Dec 2008
Total Posts : 574
   Posted 6/22/2011 7:43 AM (GMT -6)   
I just started on Welchol on Monday night.  It is the same thing only I am taking it in pill form.  It comes in powder also.  I think I read the Welchol pills might take a while for full effect. 
 
 It seems to have bulked things up a bit more.  I am taking at bedtime to help with my mornings that are my worst time.  Yesterday it seems like it just postponed things now until I am not home.  Ugh.  I used to go about 4-5 times after waking up and be good for the day.  Now it is later in the morning when I am already out.  I just want to go once instead of several small times.
 
I hope it works for you Christine. 
Sally (40yrs old)
UC since 2002
Humira and Remicade (discontinued), Asacol, Immodium, Rowasa, Canasa,Proctofoam,Transdermal LDN, Calcium, Vit D, Folgard, VSL#3, 6 Metamucil capsules daily, Culturelle
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