White blood cell count while on Remicade

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Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5508
   Posted 3/6/2010 5:43 PM (GMT -6)   
     Does anyone know what their WBC is while they are on Remicade?  My infusion was two weeks ago yesterday.  I had my CBC drawn on Monday and got the results today....excellent!  My WBC was 7.5.  While I was on 6MP my white count had dipped way down to 1.6 at one time.   That was when I was taking 100 mgm.  On 50 mgm my white count was 3.5, which is where my doctor said he wanted it.  Seems like when it got higher than 3.5, my immune system would attack itself.  At least that is how my doctor explained it.  Could this mean that the Remicade is NOT suppressing my immune system?  Still wondering if the doctor would give me the max dose I may have better results.  UGH...decisions, decisions.
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Flare May of 09 thru Aug of 09.  Very short remission.  Flared again Nov 1st.  Started Remicade Nov 18th.  Felt great after first two infusions.  Suffered a set back after 3rd infusion on Dec 31st.  Meds: Benicar, Colazal, Prednisone (hopefully short course), Calcium with D, multivitamin, probiotic.  Rectal meds..Proctofoam, cort suppositories....cannot retain the enemas.


Imac Girl
Regular Member


Date Joined Aug 2009
Total Posts : 61
   Posted 3/6/2010 6:42 PM (GMT -6)   
I think they try to get it between 4 and 6. I think if it is any higher than 6 then your immune system is too strong and it won't help your UC. I would ask again for a higher does, as you really need to be a bit lower than that.

I was on it and my WBC count was 5.5 and I felt great, but when I had to come off it and go onto the imuran it went back up to 8 and I was really bad again. I am on imuran and humira now and starting to feel better so I would imagine it is after dropping again, but I am not due for another count for 3 weeks, so I will have to wait till then unless things get a lot worse.

HTH

IG
Diagnosed 24th July 2009
Started on Steroids and Asacolon orally, didn't work
Checked into hospital on 30th July for IV steroids, and feeding tube, as weight was just falling off me, still no improvement.
Started Infliximab / Remicade 6th August, still taking Asacolon
Just had 3 infusion and all is well. still on Asacolon
Stopped Remicade 21st Oct to go on Imuran, as getting a lot of pain.
Now taking 100 mg of Imuran 4 asacolon, multi vitamin, fish oils, omega 3, and probitics
Dose just upped to 150 mg of Imuran
Imuran not working started Humria 24/02/10. along with 150 mg of Imuran,4 asacolon, multi vitamin, fish oils, omega 3, and probitics Hopefully that will work


Judy2
Forum Moderator


Date Joined Mar 2003
Total Posts : 9480
   Posted 3/6/2010 6:48 PM (GMT -6)   
Remicade doesn't suppress your entire immune system, just one component of it. So many people don't see any difference in their white counts or susceptibility to infection. My white counts have always been normal.
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