New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5521
   Posted 3/12/2010 4:02 PM (GMT -7)   
     Was wondering how I could do this without having an IV stuck in my vein.  Yesterday, since I didn't have to move my bowels at all, I had a great day.  That is because I had the flex sig done on Wed and hadn't eatin much of anything since Tuesday.  I ate yesterday and today I went about eight times.  After the first BM, which looks normal but soft and kinda thin, the dam sort of breaks and I have urgency and cramping.  Sig showed inflamation but classified as mild/moderate.  Maybe if I could just give it a break for at least three days or so it could heal.
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Flare May of 09 thru Aug of 09.  Very short remission.  Flared again Nov 1st.  Started Remicade Nov 18th.  Felt great after first two infusions.  Suffered a set back after 3rd infusion on Dec 31st.  Meds: Benicar, Colazal, Prednisone (hopefully short course), Calcium with D, multivitamin, probiotic.  Rectal meds..Proctofoam, cort suppositories....cannot retain the enemas.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5428
   Posted 3/12/2010 4:59 PM (GMT -7)   
Christine,

It might take more than 3 days for bowel rest to work for you. Standard treatment for those as ill as you is about 14 days in the hospital on IV fluids. It certainly won't hurt for you to do this at home but be sure to get adequate fluids.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 3/12/2010 5:04 PM (GMT -7)   
It took me 6 days in the hospital for my bowel rest. I honestly wouldn't do it at home just because in that TPN bag are essential nutrients and stuff so even though you aren't eating you'll still getting nutrients. I don't know, it just doesn't seem safe to me IMO...
Sam(antha)
21 year old college student diagnosed in March 2005
Remission since January/April 2006-->FOUR years!
Meds: 3 750mg Colazal 2x, 25mg Elavil, 75mg Effexor XR for GAD, ortho lo
"It is not the strongest speices that survives, nor the most intelligent that survives. It is the one that is most adaptable to change"
Charles Darwin


Ugh Just Ugh
Veteran Member


Date Joined Jan 2010
Total Posts : 1004
   Posted 3/12/2010 5:14 PM (GMT -7)   
There are Enteral Nutrition shakes you can buy. Sometimes if your doctor will prescribe them they will be covered by insurance.
Jennifer
Originally Diagnosed: 7/08 Mild left sided UC
Current Flare started 12/26/09: Severe Inflammation through Entire Colon, some patchiness indicates might be Crohn's promethius test coming later this month.
Current Meds: Prednisone 60mg, starting Imuran 3/5/2010.
Past Meds: Mesalamine, Canasa, Hydrocortisone Enema & Supp. Asacol.
I've hit rock bottom. Trying to get healthy!


killcolitis
Veteran Member


Date Joined Dec 2009
Total Posts : 2396
   Posted 3/12/2010 5:54 PM (GMT -7)   
Jini Patel sells one called Absorb Plus. It's very pricey, but much much healthier than the alternatives (ie. boost). She has a book called the IBD remission diet - it explains how to use the shakes (I think you add oils to them as you can tolerate them) to reach remission for both UC and CD. It's available at the library here, I don't know if you can get a copy if you're interested?

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2838
   Posted 3/12/2010 6:17 PM (GMT -7)   
I don't think keeping food out of your bowel will actually heal it...but that's just my opinion and I don't really know. I know that when I was flaring, if I didn't eat at least a little something my gut would be even more gurgly and gassy. Bowel rest was never suggested for me. I think you would be able to tell in a day or two if it's working!

But if you wanted to do a liquid diet, there are so many different kinds of shakes, I think you would have to try a few to see what works best for you. I like the AE Edge carb control, which has a lot of protein, as the occasional meal replacement.
49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol for 20+ years with Prednisone & Rowasa for flares (But nothing since Remicade). 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow


Veg Happy
New Member


Date Joined Feb 2010
Total Posts : 12
   Posted 3/12/2010 6:38 PM (GMT -7)   
 I often wondered if doing a liquid diet would help to rest the colon and clean up the flare.  I know when I had to prepair for a colonoscopy - after that I was good for a couple of weeks.  I'm still trying to understand why that was.  Certain foods cause me to have to go quickly to the bathroom.  I wonder if you went a month on a liquid diet if that would help clear up the flare and put you back into remission.  Hum.......

quincy
Elite Member


Date Joined May 2003
Total Posts : 25828
   Posted 3/12/2010 11:26 PM (GMT -7)   
You'd have to make sure you got the right nutrients and the absorb plus or something like that would be the only way I would think.

Unless you were in the hospital for bowel rest.

Any type of stool going through the rectum will hurt since you're so inflamed. With the intake of any food source except for an IV will have you still pooping.

Yours isn't the colon, it's the rectum....moderate inflammation that's active still hurts like freaking hell.

Maybe you should discuss it with your doctor.

Keep us posted.
q

lemonhead
Veteran Member


Date Joined Dec 2007
Total Posts : 1010
   Posted 3/13/2010 8:21 AM (GMT -7)   
I am reading a book now by Joel Furhman called "Fasting and Eating for Health". In this book it says we have enough stores of nutrients to fast for up to a month on just water. I'm not sure I would want to do that or advocate that, but he has a website that is worth checking out. Lots of links to published literature on the fasting for bowel rest issue.
www.drfuhrman.com
the book is really interesting and has a lot of great information. Hope this helps.

Oh, and I did a 3-day fast using Absorbplus and it did seem to help me out a bit.
diagnosed with left-sided UC in 1997. (45cm)
Currently on 10mg Prednisone
12 caps of colazal    9 caps Colazal
2  1 rowasa enemas nightly every other night
magnesium citrate, calcium, VSL#3DS, bee propolis, multivitamin and MILA
35, female


Mackster
Veteran Member


Date Joined May 2007
Total Posts : 718
   Posted 3/13/2010 11:37 AM (GMT -7)   
I often wonder if being on a lifeboat for a couple of weeks after the rations have ran out could put a UCer into remission.

pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 3/13/2010 12:07 PM (GMT -7)   
Mackster said...
I often wonder if being on a lifeboat for a couple of weeks after the rations have ran out could put a UCer into remission.


I couldn't eat for several weeks at a time when I would get really bad nausea and I never went into remission
26 year old female
Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 First part of J-Pouch surgery; recessed stoma
12/30/09 Second part of J-Pouch surgery too soon; RV fistula
1/9/10 Second Ileostomy Surgery with sparing of the J-Pouch
1/25/10 Stoma Revision Surgery and Fistula Repair
4/10 Going to try to go back to the J-Pouch again
Imodium (8/day), Questran (3/day), TPN 12 hours/day, IV fluids 4 hours/day


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5521
   Posted 3/13/2010 1:14 PM (GMT -7)   
     Thanks for all the suggestions.  I tried the cort enema this morning.  This is the first time since my flex sig on Wednesday.  I was so badly inflamed that I daresent put anything up my butt until today.  Amazingly, I was able to inject almost the entire contents.  For the last several weeks I was only able to inject about 1/4 of the bottle and even that just bubbled up and oozed on out.  It actually stayed in for about fifteen minutes too before I had the urge to evacuate.  The doctor wants me to try this every day even if I cannot retain it for long because he said it will at least coat the rectum.  I only went three times this morning, still with urgency but no bleeding and no pain.
     I talked to a friend of my daughter's boyfriend who had the J pouch surgery done in 2000.  His case is different from mine in that he has Crohn's Colitis and still has his rectum in tact although it is constantly getting infected.  Why he doesn't go in for a bag is beyond me.  He takes a lot more meds than I do and goes to the bathroom ten times a day and twice at night.  Well, I have a better quality of life than he does!!!  He said Remicade almost killed him...he developed serum sickness and his white count was ten times the normal limit.  He was hospitalized for over twenty days...this was prior to his surgery.  UGH!
    
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Flare May of 09 thru Aug of 09.  Very short remission.  Flared again Nov 1st.  Started Remicade Nov 18th.  Felt great after first two infusions.  Suffered a set back after 3rd infusion on Dec 31st.  Meds: Benicar, Colazal, Prednisone (hopefully short course), Calcium with D, multivitamin, probiotic.  Rectal meds..Proctofoam, cort suppositories....cannot retain the enemas.


potato
Regular Member


Date Joined Jun 2008
Total Posts : 281
   Posted 3/13/2010 4:31 PM (GMT -7)   

When I had my big flare in Oct., the colonoscopy prep felt like heaven, believe it or not.  The stuff just went straight through with no cramping.  Unfortunately, everything came back the next day, although not as bad and it's gradually improved.

I would consider a liquid diet too for a day or two anyway just to see how it goes, but I can't get around the needing to eat with some of my meds, like the iron. 


Potato...  Female, 59, dx 11/07 mild left sided ulcerative colitis (50 cm), 10/09  progressed to panulcerativecolitis
 
Asacol 4 3x a day.  Hydrocortisone enemas every other night.  Cholestipol.  Trying Probiotic enemas.  Considering Remicade. 
 
Imuran caused liver function tests off the chart    
 
omeprazole 2xday, lomotil, atenolol, oxazepam (anti anxiety med) prn, VSL#3, primadophilus reuteri, childrens centrum plus 2 adult gummy vitamins, caltrate, slow FE, nicorette gum, metamucil wafers, spinach and sunflower seeds or butter
 
 


Gentle Now
Regular Member


Date Joined Jan 2010
Total Posts : 142
   Posted 3/13/2010 5:28 PM (GMT -7)   
Hi Christine,

My first GI tried to explain to me why I needed to take it easy on myself by saying, "your entire colon is inflamed... that's like having your entire upper body burned. Imagine your arms and torso burned, would you need to slow down and rest? And you wouldn't rub a tomato or a chile pepper, or corn chips on it, would you? You need to give your colon the same care."

I still let that echo in my head now and then and try to give the damaged area a wee chance to heal before I make it work some more. I don't know if it always makes a difference, but logically a little bowel rest feels like the right thing to do. I know when I was too sick with a cold recently and couldn't eat, I felt better than I had in months.

Potato's right though that it makes it hard to keep your nutrients up (even taking supplements) as well as a healthy weight.
diagnosed with UC in Feb 2007
taking 12 Asacol/day since then
take Rowasa enema as needed
Mega-dosing on iron due to anemia
 
Have tried dozens of alternate remedies: 
glutamine, sunflower/spinach, omega3, Ayurveda, reflexology, herbal prescriptions, blood allergy testing (avoiding dairy and eggwhites), tried no nightshades, tried SCD (not very strict to be honest), tried Guts to Glory program, briefly tried David Klein diet, mega-probiotics, probiotic enemas, slippery elm enemas, etc. etc. 
I know that the right combination for what my tender tummy needs is out there!

New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, November 26, 2014 2:46 AM (GMT -7)
There are a total of 2,278,182 posts in 253,218 threads.
View Active Threads


Who's Online
This forum has 158682 registered members. Please welcome our newest member, Clovis47.
230 Guest(s), 5 Registered Member(s) are currently online.  Details
manawela, THE HAPPY TURTLE, xfmlg, Scholiosiskid, Clovis47


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer