Hacking cough that won't go away-should I see someone?

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Supa
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Date Joined Jul 2008
Total Posts : 748
   Posted 3/19/2010 2:06 PM (GMT -6)   
My hubby caught a cold, then it traveled through the family. I have it now, and it has been lingering on for a week now. I have head congestion, but it has also settled into my chest (It did not do that with the other family members) and I have been coughing like nothing else for at least 5 days now. I do cough up some mucus, but sometimes the cough is dry as well. I am also exhausted and getting sinus headaches.

My acupuncturist was a bit concerned about it since I am on the Remicade and pred-and she said not to let it go on too long unchecked. (she was trying to work on loosening things up when I saw her this week)

It hasn't gotten a whole lot better since I saw her-I am still tight in the chest, coughing a ton, still blowing my nose a million times a day, no fever though.

Would you be seen about this or just assume that it might just be taking a while to resolve? I don't have much confidence in my GP-they don't tend to listen and try to give me antibiotics that I know are bad for my UC, so I hesitate to see them (and yes, I am shopping around for a new GP), but at the same time, I don't want to let something go that should be taken care of.

Is this kind of thing going around right now? I just can't seem to get over it!
Laura
CURRENTLY FLARING
34 years old, stay at home mom of 2 girls, ages 4 and 3
Diagnosed in March 2007, symptoms started Dec. 2006
Currently on:
OUT of Humira trial-it stopped working
Back on pred (40mg), started remicade 2/26/10, otherwise taking Asacol (6/day), slow-fe iron, milk thistle, multivitamins and vitamin C but off all other supplements for the time being at the request of my GI.


quincy
Elite Member


Date Joined May 2003
Total Posts : 25589
   Posted 3/19/2010 2:20 PM (GMT -6)   
I've had it now for 3 weeks and am in a mental crisis. I also have asthma and doing allll I can do to function.

Take pseudoephedrine which will help with your sinuses, take tylenol for headaches, take expectorant to help keep things flowing and use DM and antihistamine sparingly.

Drink lots of fluids, eat well, get rest....

I'm also taking l-lysine and upped my vitamins, doubled my asthma steroid inhaler, taking a 12 hour reliever...shaking like crazy (fun doing a haircut or putting on my make up..lol).

My chest is rattling, not much is coming up and it bugs the heck out of me. My husband has the same, as does a few people I've heard about. Oh, my doctor had the same thing when I was there last week. I was put on Zithromax for 5 days. It improved initially, but the cough and rattling..didn't.

Let's see if we can get to some nice scenery considering we're paddling up the same river in the same boat going in the same direction.

I've called the doc, but she didn't call back. I see her on Wednesday anyway...I'll either be better or worse by then. sheesh. I'm thinking I have bronchitis, but if it's viral, all I can do is wait it out.

Hope all gets well on your end. I think I want an x-ray if I don't improve.

q

thatfield
Veteran Member


Date Joined Jul 2008
Total Posts : 822
   Posted 3/19/2010 2:58 PM (GMT -6)   
Sometimes coughs associated with a common cold can last or linger for weeks. Since you have no fever I would probably give it a few more days to improve. I would not wait more than another 3-4 days though because you are on medications that supress your immune system. Make sure you are resting and getting fluids. If you don't see improvement soon I would go get it checked out. You don't want it to turn into Pneumonia.
Dx 2006 right after the birth of my daughter, currently pregnant with #2!
Lialda 3 pills a day
Cort-enema nightly
Pred. 5mg
Canasa as needed
Probiotics and Multi-vitamin Daily
 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 21924
   Posted 3/19/2010 3:36 PM (GMT -6)   
My son just got over something similiar. It took his cough about 2 weeks to go away. Do you have Mucinex where you are? If so, try Mucinex DM and see if this helps. But I agree that maybe you should give it a few more days to see if it clears up on its own. If you feel that a heavy weight is sitting on your chest get in to see the doc as this can be a sign of bronchitis or pneumonia.


 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA (hands and spine)-Tylonel Arthritis, Celebrex, Fibromyalgia (diagnosis pending)
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Post Edited (Red_34) : 3/19/2010 6:33:40 PM (GMT-6)


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 3/19/2010 6:00 PM (GMT -6)   
Thank you all-your thoughts are about the same as my own on this. I will give it through the weekend and see how things go. I think I may even have some mucinex-I know I have the children's version if all else fails. My concerns have been it turning into bronchitis or pneumonia as well. My oldest has developed the same cough-but hers has a fever too-so we will watch how things go.

q-I am so sorry you are dealing with this as well. It is miserable!!! I want an x-ray also if things don't improve. I really don't want to have to take any antibiotics if I don't have to--and it sounds like it didn't even do the trick for you anyway-blah. I hope things get better on your end as well.

Sherry-I am sorry also your son had this. The coughing is just awful! My chest doesn't feel too heavy, but I definitely can't take deep breaths without going into a coughing spell.

Thanks again-I'll see how the weekend goes and go from there. Feel better, q!!
Laura
CURRENTLY FLARING
34 years old, stay at home mom of 2 girls, ages 4 and 3
Diagnosed in March 2007, symptoms started Dec. 2006
Currently on:
OUT of Humira trial-it stopped working
Back on pred (40mg), started remicade 2/26/10, otherwise taking Asacol (6/day), slow-fe iron, milk thistle, multivitamins and vitamin C but off all other supplements for the time being at the request of my GI.


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5452
   Posted 3/19/2010 6:04 PM (GMT -6)   
      Laura, have you had a chest xray since starting Remicade?  My doctor ordered one for me after my second infusion just to make sure everything is ok.
      I wouldn't fool around with chest congestion while on Remicade.
 
Diagnosed with ulcerative proctitis in 1998 in hospital
Hospitalized (2nd time) in May 2008 for ten days.
Remission Nov 08 thru May of 09.
Flare May of 09 thru Aug of 09.  Very short remission.  Flared again Nov 1st.  Started Remicade Nov 18th.  Felt great after first two infusions.  Suffered a set back after 3rd infusion on Dec 31st. 
But suffered thru a 4th infusion...nada.  Starting Humira Mar 24th.


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 3/19/2010 6:06 PM (GMT -6)   
No, Christine, I haven't. I had one before I started on Humira, but haven't had one since.

If things haven't gotten significantly better by Monday morning, I will call the GI and let them know what is going on and ask about getting a chest x-ray. I think you are right that with the biologics, it is not something to mess around with.
Laura
CURRENTLY FLARING
34 years old, stay at home mom of 2 girls, ages 4 and 3
Diagnosed in March 2007, symptoms started Dec. 2006
Currently on:
OUT of Humira trial-it stopped working
Back on pred (40mg), started remicade 2/26/10, otherwise taking Asacol (6/day), slow-fe iron, milk thistle, multivitamins and vitamin C but off all other supplements for the time being at the request of my GI.


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 21924
   Posted 3/19/2010 7:32 PM (GMT -6)   
Correct, with Biologics or immune suppressors a cough is not something to take lightly but I can't tell you how many times I have gone to the docs with a sniffle or a cough (while being on 6mp) and for her to tell me "Well, it's a virus. Ride it out if you can." Someone with Uc doesn't want to be on antibiotics if it can be helped but please look out for yourself and if you feel yourself get worse over the weekend, don't hesitate to go to urgent care.
 @--->--SHERRY--<---@
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA (hands and spine)-Tylonel Arthritis, Celebrex, Fibromyalgia (diagnosis pending)
To help Healingwell - click here: DONATE
 
 
 
 
 

 
 


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 3/19/2010 7:36 PM (GMT -6)   
Thank you Sherry-I am trying to find that line between being a hypochondriac about things and being too lax about them! I have always struggled finding that line...

I should be fine through the weekend-I don't feel like things are getting worse so far. But if they aren't better by Monday, then I think is should call.

It is always something, isn't it???
Laura
CURRENTLY FLARING
34 years old, stay at home mom of 2 girls, ages 4 and 3
Diagnosed in March 2007, symptoms started Dec. 2006
Currently on:
OUT of Humira trial-it stopped working
Back on pred (40mg), started remicade 2/26/10, otherwise taking Asacol (6/day), slow-fe iron, milk thistle, multivitamins and vitamin C but off all other supplements for the time being at the request of my GI.


jessiesmom
Regular Member


Date Joined Jun 2008
Total Posts : 36
   Posted 3/19/2010 9:29 PM (GMT -6)   
I was just discharged yesterday from a 6 day hospital stay.  Had pneumonia.  I am on both Remicade and Prednisone.  Started out 2 months ago with coug and shortness of breath.  My primary did chest X Ray, Stress test, Pumonary Function studies.  No antibiotic yet.  Then I started a UC flare, increased my Pred from 5 mg/day to 40 mg/day.  Flare cleared up in a few days and the s.o.b. improved.  Started tapering the Pred, decreasing 10 mg/wk.  Cough and S.O.B. came back  by last week I was coughing up blood and so S.O.B. I could hardly walk around in my house.  Saw my doctor on Friday, my PO2 was 77 and I was gasping for air.  Was admitted that day.  After enduring every test in the book, I was diagnosed with pneumonia.  (They had to rule out TB, pulmonary embolism and did a bronchoscopy for good measure.) 
 
By now I'm being followed by a pneumonologist who thinks the UC meds lowered my resistance so I picked up a bug of some sort,  the Pred. masked my symptoms and by the time I tapered down on the Pred, I had developed pneumonia.  There is also some thinking that UC can cause bleeding in the lung.  This is a very long way to say, don't mess around with that cough.  Go to some doctor and get checked out. 
Ulcerative Colitis (Pancolitis) diagnosed November 2007.  Hospitalized with C.Diff. January 2008 following a series of antibiotics taken for bronchitis.  Recent flare required 5 day hospitalization (August 2009) for treatment of dehydration.
 
Prednisone 30 mg. daily (Tapering).  Colazal 3 capsules three times a day.    Cozaar 1 tab daily, Lasix 40 mg. daily, Vytorin 1 tab daily, Acidophilis 100 mg. 3 tabs/day,  Potassium Chloride 40 mg. daily, Ferrous Gluconate 400 mg. daily, Cholestyramine Granules I packet daily, 6 Mercaptopurine 50 mg. daily.  Glyuride 2.5 mg daily.  Remicade every 8 weeks.


quincy
Elite Member


Date Joined May 2003
Total Posts : 25589
   Posted 3/20/2010 4:00 AM (GMT -6)   
Thanks Laura....tonight was a tough one emotionally because it's really something I've never dealt with. Just tired of coughing so much for so long. I'm exhausted.

I'll definitely push for an x-ray as well as request a referral to a respirologist just because....

q

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3060
   Posted 3/20/2010 7:09 AM (GMT -6)   
I don't think you need an xray, necessarily- but definitely some antibiotics! Call your PCP first, not your GI- do not ignore it! You have to be extremely vigilant & proactive about respiratory stuff while on those meds. I had pneumonia twice while on Remicade, first time also on pred, 2nd time just on Remicade & Imuran. However, difference being- 2nd time I caught it I went to my PCP right off, & was put on antibiotics. Cleared right up. First time landed me in the hospital for a week! Call first thing Monday AM, even if your cough seems better- if you're using OTC meds the improvement could be solely due to them. Your PCP may want an xray, they may not- they'll be able to tell if it's pneumonia by listening to your lungs. They generally use a Z-pak for this, & it's never bothered my UC too much.
diagnosed with UC '02
meds-
Asacol- 8 tabs/day
Remicade-10mgs/kg- from 4/07 thru 1/10
Humira- started 1/10
Imuran- 150mgs/day
various probiotics & fiber supplement, kefir, turmeric
 
 
 


Mitzo
Veteran Member


Date Joined Dec 2007
Total Posts : 536
   Posted 3/20/2010 9:24 AM (GMT -6)   
I had something similar for 5 or 6 weeks or so, it gradually went away. Friends and colleagues had similar things, it has been going around since December, it seems.
23 years of UC which started after quitting smoking. In and out of flares which are usually triggered by antibiotics. Latest issue is endless diarrhea without blood or mucous.
 
 

 


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 3/20/2010 10:34 AM (GMT -6)   
Ok-wow, maybe I am not overreacting about this cough still hanging on!! I will call first thing Monday and get it checked out-I have never had problems from z-packs either, if that is what they end up doing. I'll push for that if antibiotics are needed.

Q-I am exhausted too! Are you feeling any better today? I can't get a good night's sleep-between the pred and this cough, I am worn out. It stinks.

The entire time I was Humira, I had no issues with getting sick more often-in fact I tended to stay healthier than the rest of the family. I was hoping the same would be true on Remicade, but maybe it won't be. I am going to think positive though-I'll get past whatever this is and be good to go through summer at least!
Laura
CURRENTLY FLARING
34 years old, stay at home mom of 2 girls, ages 4 and 3
Diagnosed in March 2007, symptoms started Dec. 2006
Currently on:
OUT of Humira trial-it stopped working
Back on pred (40mg), started remicade 2/26/10, otherwise taking Asacol (6/day), slow-fe iron, milk thistle, multivitamins and vitamin C but off all other supplements for the time being at the request of my GI.


jessiesmom
Regular Member


Date Joined Jun 2008
Total Posts : 36
   Posted 3/20/2010 1:14 PM (GMT -6)   
I was tired all the time.  Actually, I was sleeping all the time when I wasn't coughing.

Ulcerative Colitis (Pancolitis) diagnosed November 2007.  Hospitalized with C.Diff. January 2008 following a series of antibiotics taken for bronchitis.  Recent flare required 5 day hospitalization (August 2009) for treatment of dehydration.
 
Prednisone 30 mg. daily (Tapering).  Colazal 3 capsules three times a day.    Cozaar 1 tab daily, Lasix 40 mg. daily, Vytorin 1 tab daily, Acidophilis 100 mg. 3 tabs/day,  Potassium Chloride 40 mg. daily, Ferrous Gluconate 400 mg. daily, Cholestyramine Granules I packet daily, 6 Mercaptopurine 50 mg. daily.  Glyuride 2.5 mg daily.  Remicade every 8 weeks.


quincy
Elite Member


Date Joined May 2003
Total Posts : 25589
   Posted 3/21/2010 2:54 AM (GMT -6)   
Hi..not necessarily feeling better, still tired and coughing a lot without anything coming up even though it's "rattling".

I started some echinacea just to see if it would help...lol...interestingly, my butt is quiet. I'm sure it won't last long.

I also have weaned my antidepressants to 37.5 and the emotions have opened a lot. Could be coincidence, however....I did a lot of pacing and feeling sorry for myself this evening (my husband is working)...so had to let it out and then try to calm myself. I'm actually more angry at this point...but I'm not used to things not being taken care of "eventually"...even my flares don't last like this!

Hope you don't get any worse and that it doesn't hang on as it has for some.

Just think of all the standing or sitting stomach exercise we're getting....

q

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2838
   Posted 3/21/2010 11:08 AM (GMT -6)   
It's worth checking out, make the call. You don't want to get pneumonia or if you have it you want to get treated.

BTW, I read a couple years ago that Aleve actually tested to be better for coughs than the usual expectorants and supressants. I find it really does work. Something about easing inflammation of those hairy things in your lungs. So I like to take Aleve Cold/Sinus.

When a cold would settle in my chest, it would takes weeks and weeks to get over the coughing. Ugh.
49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol for 20+ years with Prednisone & Rowasa for flares (But nothing since Remicade). 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow


quincy
Elite Member


Date Joined May 2003
Total Posts : 25589
   Posted 3/21/2010 12:46 PM (GMT -6)   
Aleve is an antiinflammatory. I'm very sensitive to it, but for some it might work if inflammation in the lungs is an issue. Makes my asthma worse, but I've never used it when I had UC.


q

Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 3/21/2010 1:47 PM (GMT -6)   
Q-lol-we definitely are getting some ab exercise with this. I'm sorry you aren't better. I am rattling too-but sometimes my coughs are productive. I have been getting phlegm up throughout the day, then other times the cough is dry.

I did get some sleep last night-I propped myself up more and that helped a bit. But I am still hacking away, so I will be calling first thing tomorrow AM to see if they can squeeze me in.

Are you seeing any improvement at all with your cough? Are you going to get an appointment tomorrow also?

I have not used aleve. Is it generally fine to use for us UC'ers?
Laura
CURRENTLY FLARING
34 years old, stay at home mom of 2 girls, ages 4 and 3
Diagnosed in March 2007, symptoms started Dec. 2006
Currently on:
OUT of Humira trial-it stopped working
Back on pred (40mg), started remicade 2/26/10, otherwise taking Asacol (6/day), slow-fe iron, milk thistle, multivitamins and vitamin C but off all other supplements for the time being at the request of my GI.


quincy
Elite Member


Date Joined May 2003
Total Posts : 25589
   Posted 3/21/2010 5:24 PM (GMT -6)   
It's not recommended to take it with UC...it's classified as a NSAID. But I take aspirin for headaches...doesn't bother me. One can only find out by trying it I guess.

I'm somewhat better today....last night coughing took me to the limit already. I downed Robitussin cough suppressant (not the one with expectorant), and it helped in the way that when I woke up, I actually coughed up something. My husband calls them loogies....lol. It was more satisfying than just foamy saliva.

I'm getting the ticklies now (but still rattles in that one upper chest area around and just below the larynx....I stopped the expectorant and will be drugging myself with the suppressant. I think the very act of coughing a thousand times a day is what's perpetuating this particular virus. After three weeks of this crap, I'm ready to move on, but oh my....I'm absolutely zonked.

I told my husband I need to be rebooted...like my brains have been scrambled and should be set straight again.

Do make an appointment if you're getting worse or not improving at all. If you have any colour to the phlegm (loogie), you likely have a bit of an infection. Otherwise, maybe a suppressant will be a good thing now that the virus has had a run for over a week already.

Let me know what happens....I truly feel for you.

I see my GP on Wednesday...for a physical. I'll see if she's any better as well, since it seems we had the same thing. I have the option to stay home...she talks all day...ugh. I hope her empathy factor is good that day, I have a few things I need to discuss, but still ticked I never got called on Thursday. I have to formulate a question as to what to think when I don't get called.

Hope you get more sleep tonight.
quincy

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2838
   Posted 3/21/2010 10:30 PM (GMT -6)   
Yes, I meant to mention that UCers are warned against taking NSAIDs like Aleve, and forgot.
But if you are really suffering it might be worth it, to take it for a little while.
49 year old female attorney, diagnosed UC/pancolitis 1985. 
Asacol for 20+ years with Prednisone & Rowasa for flares (But nothing since Remicade). 
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. 
Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 3/22/2010 6:51 AM (GMT -6)   
Q-I am glad you were able to actually cough something up-I hate the foamy stuff myself. And glad to hear you are somewhat better. Still-3 weeks is just too long!!! Mine has been about half of that and I have just HAD it with this.

I think it is good you'll be seeing her on Wednesday-but I hope you keep seeing improvement between now and then.

My loogies do have color to them. Not as much being coughed up today, but I am still going to call. They usually can squeeze me in same day if I call first thing, and I would rather have it checked out to be on the safe side. I'll let you know what they say...

As far as the aleve-I guess if I need to, I will try it-I avoid NSAIDs, but am not really sure if I am sensitive to them or not, to be honest.
Laura
CURRENTLY FLARING
34 years old, stay at home mom of 2 girls, ages 4 and 3
Diagnosed in March 2007, symptoms started Dec. 2006
Currently on:
OUT of Humira trial-it stopped working
Back on pred (40mg), started remicade 2/26/10, otherwise taking Asacol (6/day), slow-fe iron, milk thistle, multivitamins and vitamin C but off all other supplements for the time being at the request of my GI.


TP177
Regular Member


Date Joined Feb 2010
Total Posts : 37
   Posted 3/22/2010 8:08 AM (GMT -6)   
Welcome to the club, it seems.   I have been suffering with a chronic cough since the first week of December after a WICKED cold.  Have seen an ENT practice during that whole time trying: mucinex/sudafed/claritin at first to clear things up....no luck.  Quick pack of predinose...no luck.   Finally resorted to 10-antibiotic which put me into a flare (but helped the cough a fair amount - so must have indeed had infection).   Cough improved a LOT but is still lingering.
 
Is March now and have appt tomorrow with infectious disease specialist to assess (just in case is something weird like a fungal infection, etc.)  But honestly - the more I read and talk to folks....it sounds like "persistent cough" is the number one health complaint of patients.   If you were really sick, it just takes a long time to go away.  Charming for our friends and family to be around!
 
(now on prednisone 40 mgs to try and conquer flare...)
UC since May 2005; no flares at all for 3 years; on and off flares for past 2 years
Asacol 12/day; Rowasa when needed


Supa
Veteran Member


Date Joined Jul 2008
Total Posts : 748
   Posted 3/22/2010 12:32 PM (GMT -6)   
UGH Tinypete!!! That is awful. I guess you are right-when we are already sick, I suppose these things take longer to resolve. But December is a LONG time to be dealing with that-I am sorry. And then to end up flaring too-that just plain stinks.

I went to the GP today and he said my lungs sound fairly clear, but my sinuses are infected. He wanted to try levaquin, which I have never taken. I told him I had never taken it, and told him I needed to clean whatever I take with my GI first. I had also mentioned I have taken z-packs without UC problems, so he said let's start with that and if it doesn't clear up in 3-4 days, add the levaquin. So I filled the z-pack and called my GI and left a message to make sure all of this is ok by him. Levaquin looks to be int he same family as cipro-which I have only taken once, but it was before UC.

Hopefully I can get all this junk knocked out and stop coughing so much!
Laura
CURRENTLY FLARING
34 years old, stay at home mom of 2 girls, ages 4 and 3
Diagnosed in March 2007, symptoms started Dec. 2006
Currently on:
OUT of Humira trial-it stopped working
Back on pred (40mg), started remicade 2/26/10, otherwise taking Asacol (6/day), slow-fe iron, milk thistle, multivitamins and vitamin C but off all other supplements for the time being at the request of my GI.


argirl
New Member


Date Joined Aug 2011
Total Posts : 1
   Posted 8/10/2011 8:43 PM (GMT -6)   
I too have had this chronic cough, early morning mostly, seems like forever! I have had heart burn alot too.  So after reading many posts, I have been taking prilosec and mussinex everyday.  My cough is much better, more productive and fewer caughs.  I feel like it's almost cleared up.  I still take zyrtech everyday too.  I live in Arkansas and have bad allergies.  I also smoke so I know that didn't help.  But I feel really relieved that it's clearing up.  Didn' think the prilosec would make such a difference.
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