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UC Momma
Regular Member


Date Joined May 2009
Total Posts : 113
   Posted 4/7/2010 11:34 AM (GMT -6)   
Anyone take Asacol HD? What do you think of it? Is it crazy expensive? Right now, I'm take 9 Asacol 400mg per day, and I mentioned to my GI that I feel like I'm popping pills every time I turn around. He gave me a bunch of samples of the HD, and a discount card. I have decent insurance, just wondering what you all think. I had a miscarriage just over a month ago, and flared after that. I feel much better now; almost in the clear (hope I didn't jinx myself there! :) ). Just sick of so many pills.

I wish I was NORMAL! Don't we all?? :)
Diagnosed in 2007 w/ left sided colitis a year after birth of first child
First major flare after diagnosis in March 2009, flare free until miscarriage in March 2010
Currently taking 9 Asacol/day, Align probiotic, prenatal vitamin


Levi
Veteran Member


Date Joined Nov 2009
Total Posts : 1591
   Posted 4/7/2010 12:15 PM (GMT -6)   
I'm on Asacol HD. At my full dose, 6 800mg pills per day, it was $50/mo.
 
Diagnosed 10.2009 w/ proctosigmoiditis, possible IC/CUTE. 26 y/o
Symptoms since 10.2007
Asacol HD 4.8 3.6 2.4g/d
Rowasa enema daily
VSL#3 DS four packets/day
Metamucil Citrucel daily
Turmeric, Simalese digestive enzymes, Slippery Elm
Liver-Milk Thistle; Heart-Hawthorn


UC Momma
Regular Member


Date Joined May 2009
Total Posts : 113
   Posted 4/7/2010 1:42 PM (GMT -6)   
Thanks Levi! So far, it doesn't look like very many people take it. Did you take Asacol 400mg before??
Diagnosed in 2007 w/ left sided colitis a year after birth of first child
First major flare after diagnosis in March 2009, flare free until miscarriage in March 2010
Currently taking 9 Asacol/day, Align probiotic, prenatal vitamin


Levi
Veteran Member


Date Joined Nov 2009
Total Posts : 1591
   Posted 4/7/2010 1:47 PM (GMT -6)   
Nope. Started out with an HD prescription.

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 6890
   Posted 4/7/2010 1:50 PM (GMT -6)   
Lialda and Apriso are also once-daily mesalamine drugs, so you could check with your insurance and see which is cheaper. I believe both also have co-pay assistance programs.
Co-Moderator, UC Forum
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son
Diagnosed with pancolitis on 1/30/09
Meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, multivitamin.  Used prednisone (starting dose 40 mg) to get into remission.
 
 


juju0010
Regular Member


Date Joined Mar 2010
Total Posts : 312
   Posted 4/7/2010 2:12 PM (GMT -6)   
I paid $30 for my Asachol HD. I forgot how many pills were in it.

Aetna Health Insurance FTW!
juju / UC since July 2001
Flares: Jan 2006, March 2010
Currently: Flaring since 2/25/10 :(
Meds: Prednisone 10mg/day, Asacol HD 800mg x4/day, Fish Oil 3g/day


Levi
Veteran Member


Date Joined Nov 2009
Total Posts : 1591
   Posted 4/7/2010 2:26 PM (GMT -6)   
juju0010 said...


Aetna Health Insurance FTW!


Seriously. cry

I do get 120 packets of VSL #3 DS for $50. Wonder how that would compare?

AZYooper
Veteran Member


Date Joined Mar 2010
Total Posts : 1124
   Posted 4/7/2010 8:23 PM (GMT -6)   
I was taking 6 asacol hd/day at first. The best price in the area was just over $600 for a 180 tabs(a months worth). My copay is $125. I did pass some partially dissolved pills at the higher dosage which really made me mad.

I don't think the cost is much different than regular asacol at the same dosage level. Asacol HD is definitely just a minor tweak to extend patent protection when that runs out in a couple years on asacol.

Asacol doesn't give assistance if you have any type of insurance even if you can't afford the copay. There is a coupon for Asacol HD on their website for a free 30 day supply.
Diagnosed with proctosigmoiditis as my 50th birthday present Dec 2009
4.8 grams Asacol HD plus 1000mg canasa daily for 8 weeks
Now on 1.6 gr Asacol HD daily


juju0010
Regular Member


Date Joined Mar 2010
Total Posts : 312
   Posted 4/7/2010 8:31 PM (GMT -6)   
Checked my bottle.

120 pills for $30. 4 pills a day, so $30 a month, or $1 a day
juju / UC since July 2001
Flares: Jan 2006, March 2010
Currently: Flaring since 2/25/10 :(
Meds: Prednisone 10mg/day, Asacol HD 800mg x4/day, Fish Oil 3g/day


songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3252
   Posted 4/7/2010 8:32 PM (GMT -6)   
My son's GI passed along a message, through the nurse, that regullar asacol was going to be discontinued. I wonder if she meant when the patent ran out?
We each pay 150 for three month's worth of regular Asacol. Luckil, for the pat 2 years, my son'd GI has been writing his script out for one more ill per day than he was actually taking, so 1) we were ready to up the dosage when we needed to and 2) we have a stash......
Age 54. Diagnosed UP 1983, Azulphidine
Diagnosed UC 1986 Prednisone almost 2 years
Asacol - 16 pills/day, cortenemas, Rowasa
Metamucil - 2 doses/day since '86, and psyllium seed powder
VSL#3DS, Multivitamin, Calcium and D
homemade yogurt each day
Ryzolt for arthritis pain
Son, 16, dx pancolitis 2007


UC Momma
Regular Member


Date Joined May 2009
Total Posts : 113
   Posted 4/8/2010 12:08 AM (GMT -6)   
Thanks everyone! My GI gave me a card for Asacol HD where supposedly I can get a month's supply for $20 or less for eligible patients. The card's not valid for prescriptions purchased under Medicaid, Medicare, other state or Fed programs, or private indemnity or HMO insurance that reimburses you for the entire cost of your prescriptions. It's a program Asacol is running through December 2010. It was pretty interesting for me, because with this offer, it would be less than what I'm paying for regular Asacol now for a month's supply. Either way, I'm checking to see what it will cost without the offer. Lialda and Apriso are interesting to me too, but my GI suggested this. Do you think some sort of kick backs for the doctors? ;)
Diagnosed in 2007 w/ left sided colitis a year after birth of first child
First major flare after diagnosis in March 2009, flare free until miscarriage in March 2010
Currently taking 9 Asacol/day, Align probiotic, prenatal vitamin


Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 1502
   Posted 4/8/2010 10:14 AM (GMT -6)   
I took the 800mg of Asacol ... I took 4 pills a day. I just looked it up, I paid $263.54 for two months. We claimed it back through my husband's insurance so I didn't really care but I guess if I had to pay that myself all the time, I wouldn't be too happy.
Female, 43, Vancouver BC
 
DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June 2008.  Currently in remission.
Current Meds: Ferrous Sulfate, plus various supplements
Previous Meds: Jan-Mar 2009: Asacol 800 mg (1 pill x 4 daily), stopped Mar14/09. 


AZYooper
Veteran Member


Date Joined Mar 2010
Total Posts : 1124
   Posted 4/8/2010 11:05 AM (GMT -6)   
The discount card for a 30 day supply will pay your copay or the entire price of the drug...which ever is less. They are basically paying the patients cost. I just handed it to the pharmacist instead of $125

Hopefully the generic version of Asacol will be imported from Canada when the patent runs out.

I can look up what BCBS-AZ pays for a drug. Asacol HD is exactly the same price for the same dosage as Asacol.

Asacol HD=$3.33 tablet

Asacol = $1.67 tablet

ouch

The direct kickbacks in the form of trips and cash are no longer legal...but they were. Doctors can still sell their prescription records to the drug company. Many doctors are paid as speakers by drug companies and the larger GI practices in this area make buckets of $$$$ running clinical trials from their practices. Makes you want to flair.
Diagnosed with proctosigmoiditis as my 50th birthday present Dec 2009
4.8 grams Asacol HD plus 1000mg canasa daily for 8 weeks
Now on 1.6 gr Asacol HD daily


UC Momma
Regular Member


Date Joined May 2009
Total Posts : 113
   Posted 4/8/2010 3:55 PM (GMT -6)   
Isn't that the truth! I'm crossing my fingers for the generic as well, although I did ask my pharmacist about that awhile back, and he said not to count on it. :(
Diagnosed in 2007 w/ left sided colitis a year after birth of first child
First major flare after diagnosis in March 2009, flare free until miscarriage in March 2010
Currently taking 9 Asacol/day, Align probiotic, prenatal vitamin


EmmaDog
Regular Member


Date Joined Mar 2010
Total Posts : 31
   Posted 4/14/2010 2:02 PM (GMT -6)   
I have been taking the Asacol HD for a few months now. I take 1 800mg 3x a day along with 2 400mg 3x a day. I think it seems to be helping more than just the Asacol 400mg. I did have samples from the doctor so I just got the prescription filled for the first time this week. I only had to pay $40.00 but I do see that it would have cost me $338.00 if I didn't have insurance. My pharmacy had to order it because it is something they usually don't carry.

Hope this helps.

UC Momma
Regular Member


Date Joined May 2009
Total Posts : 113
   Posted 4/14/2010 3:01 PM (GMT -6)   
Thanks!

I have been taking it now for about a week. It seems to work MUCH better than regular Asacol to me. I had a nightmare of a time dealing with my insurance. They won't cover it at all...they want me to take the 400mg, 12 pills per day. Crazy, because the HD is actually cheaper for them! Thankfully, I got the discount card from my doctor!

My pharmacists had to order it as well. He said to make sure I stock up if I travel anywhere, because most places would have to order it.
Diagnosed in 2007 w/ left sided colitis a year after birth of first child
First major flare after diagnosis in March 2009, flare free until miscarriage in March 2010
Currently taking 6 Asacol HD per day, Align probiotic, prenatal vitamin


steveow
New Member


Date Joined Apr 2011
Total Posts : 1
   Posted 4/7/2011 7:27 PM (GMT -6)   
Diagnosed in 1984w/ left sided colitis
Prescribed azulfidine
Major flare in November 1990 prescribed prednisone 1 wk Also took aloe kudzu and umabushi plum. March 2004 prescribed prednisone 1 wk. rowasa asacol 400mg 3x daily. I reduced dose to 1/day or 0/day.
November 2010 Major flare. Prescribed asacol 800mg 2 tabs 3times/day.

Asacol HD 800 free 72 tabs. December discounted $50 for 180 tabs. Then in January. this prescription burnt up my entire brand discount for the year. New discount for manufacturer -$50 from over $600 script. The doctor insisted I take asacol HD 800. Insisted how cheap it would be for a year. Called manufacturer customer service who told me it would be cheaper if I had no health insurance. The medication works well now on 1 tablet /day. Very disappointed that manufacturer had doctor stop prescribing 400mg. Doctors should not support this type of deception.

C_G_K
Veteran Member


Date Joined Dec 2006
Total Posts : 905
   Posted 4/8/2011 10:57 AM (GMT -6)   
I just started asacol HD this month. A one month supply cost me $220 (6 tabs/day) out of pocket for the co-pay. If you want low co-pays, don't get a job at the mayo clinic. You pay a co-pay of 30 to 40% for all your drugs :-(
DX Pancolitis 2003. Subsequent flares limited to left side
Flare every 2-3 years.
Salofalk 12 tabs daily,
Probiotics: Primal defense, Ultimate Flora and VSL#3DS. Fiber: Psyllium and "super seed".
Allergic to Imuran

Current flare last 9 months.. No diarrhea.
Switched from Cortifoam to Colocort 2x daily.
Flared again while tapering. Tapering again very slowly.

MImomof3
New Member


Date Joined Nov 2011
Total Posts : 2
   Posted 12/12/2011 10:22 PM (GMT -6)   
My husband has been taking asacol hd 800mg 6 pills a day for roughly a year now. He also has combined that with Imuran 75mg a/day for about the same time length. He is still taking both and is in remission for the most part. The asacol hd cost $70 for a 3 month supply through MEDCO mail pharmacy. If bought at walgreens it cost $75 for a month supply with our insurance.

He developed UC from taking DOXYCYCLINE for 6 months, for the treatment of folliculitis. From what I understand, doxycycline is very similar to accutane. Which, has a class action law suit becuase of UC side effects.

loosie
New Member


Date Joined May 2013
Total Posts : 6
   Posted 5/3/2013 9:14 PM (GMT -6)   
I take asacol hd 800 mg 1 tablet 3 x's a day. I also use MEDCO & it costs me 160.00 for a 3 months supply. Do you know who the manufacture is ? maybe they have some sort of assistance program. thanks

loosie
New Member


Date Joined May 2013
Total Posts : 6
   Posted 5/3/2013 9:16 PM (GMT -6)   
Do you know how to order this med from Canada ? - Understand it is cheaper and is the same thing.

journey2health
Veteran Member


Date Joined Oct 2009
Total Posts : 2683
   Posted 5/4/2013 9:14 AM (GMT -6)   
I take Asacol 400s twice a day, three pills each dose.

If I switch to Asacol HD, do I have to take one 800, 3 times a day or can I still take two doses, two and one?
Pancolitis since 8/09. Inflammation under control through mesalamines since 6/10 - Asacol 2400 mg. daily; Rowasa enemas nightly, calcium supplements. No gluten, corn, soy, peanuts, alcohol, processed foods -- eggs, dairy and sugar, only if unavoidable and in tiny amounts. Green Smoothies, Can't kick caffeine. Bipolar/anxiety/depression: lamictal 100 mg Lexapro 7.5 mg.

garylouisville
Veteran Member


Date Joined Aug 2012
Total Posts : 6607
   Posted 5/4/2013 9:22 AM (GMT -6)   
You could technically do it either way. I would personally go for one pill three times a day. I am currently taking the 400's, two pills, three times per day.
Asacol 400mgs 2 pillsX3; VSL#3 112.5mgs 1 pillX2; Prescrip Assist Probiotic 1 pill X 2;Vitamin D3 5000 ius 1 pillX2;Bentyl;DAO;Folic acid

Discontinued: Robinul; Natural - peppermint oil, Inflaguard (Boswellia), Pepto Bismol, Omega 3 fish oil, Imodium, Beano, Lactaid;Zymactive, Renew Life Probiotic 80 billion, Florastor, DGL, Monolaurin, slippery elm;black cherry concentrate

colliali
New Member


Date Joined Jul 2013
Total Posts : 1
   Posted 7/19/2013 2:06 PM (GMT -6)   
Just started taking anscol hd. I am now on my 4th day and having same symptoms as without it, even worse. Has anybody had any experience with this occuring. Does it take your body a period to adjust. Please help.

Robert.K
Regular Member


Date Joined Nov 2007
Total Posts : 137
   Posted 7/19/2013 2:15 PM (GMT -6)   
Is Asacol HD just a bigger tablet with twice as much mesalamine that standard Asacol? If so, it's a very safe drug with a low likelihood of causing negative side effects, and apparently it's very effective with many UC patients. It didn't really work for me, however. Maybe I should give it another spin, I remember reading that people who used Asacol over the long-term had a lower likelihood of developing colon cancer, and perhaps other serious illnesses, that are associated with individuals who have UC.
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