New on probiotics-bloating & cramping now!

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bunny23
Regular Member


Date Joined Apr 2010
Total Posts : 64
   Posted 4/7/2010 9:16 PM (GMT -6)   
confused This is my 4th day on Align and I've been having moderately to severe bloating and cramping after every meal! Is this normal? Has anyone had the same experience with probiotics??? Please help-a bit confused...
Diagnosed with UC 1998. Currently on Asacol 3 tablets, 3 times a day. Also Probiotics (Align) - 1 tablet a day (just started). One month ago was on hydrocortisone for 2 weeks with no relief & terrible side effects. RowASA seemed to help wonders (2 week treatment). Also taking Flaxseed oil at least 3 times a day. Currently getting over a flare-up but still with loud tummy noises!


imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 3491
   Posted 4/7/2010 9:53 PM (GMT -6)   
I take Lactobacillus acidophilus daily and have never had any reactions like yours so can't offer any suggestions. But I have tried digestive enzymes (bad reaction), yogurt (bad reaction), organic sauerkraut-has probiotic flora(bad reaction). I quit within days when bad reactions occur.
Ulcerative colitis 10 years
Jan 2010 started SCD diet but modified by me (tried 5 years earlier no improvement)
Jan 2010 first time in 10 years bleeding stopped, better behaved colon
Started reducing meds 6 weeks after colon improved with diet-all OK
Diet: Protein(meat/fish/eggs,no soy),nuts(soaked),non-starch veg(no potatoes),no grains or bread
eliminated carbohydrates, no dairy except small amt. hard cheese, no fruit/juice (blueberries OK)
Daily: fish oil, Vit D3 1000 2Xday with oil/fat, greens juice, sunflower seeds, probiotic acidophilus pill
Highly recommend: the book "Life without Bread" and the SCD Diet


quincy
Elite Member


Date Joined May 2003
Total Posts : 25142
   Posted 4/8/2010 1:20 AM (GMT -6)   
When are you taking them? You could take them before bedtime about 2 hours after your meds. I take mine on an empty stomach. No gas from them.

But If I used them during the day, I'd have gas for sure.



Oh, and if you're flaring, you'll have lots of gas and bloating too.



How are your bms?




q

justwrong
Regular Member


Date Joined Feb 2007
Total Posts : 230
   Posted 4/8/2010 2:17 AM (GMT -6)   
Hi bunny23..
When I first started VSL probiotics I got the gas, bloating etc.. I wanted to keep trying, so I reduced the amount I was taking and slowly built up the amount per day. That seem to help me. - Worth a try taking them at different times of the day (as Quincy says)..
Good luck!
Male, 29yrs old -
Diagnosed with UC 2004, untreated for 5 years before diagnosed/treatment started.
Meds.. Azithiropine (Enuram) 125mg per day, Asacol 400mg x2/3 times a day..VSL#3 (09/02/10)
Hospitalised in 2007 for one week & Hopefully the last!! - IV Therapy


Wooky
Regular Member


Date Joined Sep 2007
Total Posts : 41
   Posted 4/8/2010 4:28 AM (GMT -6)   
I've tried probiotics and while I did have the bloated symptoms I stopped them. But i've done some reading and apparently thats normal for those who don't have UC.
So I say if you can persist it may be cleansing you and help in the long run.
Wooky
27yr old female
All drugs induce pancreatitis
herbal iron supplement
chai herbal tea
anti-inflammatory herbal tonic
Progesterone Hormone 4% 2xday


Dr-A
Veteran Member


Date Joined Jul 2006
Total Posts : 1845
   Posted 4/8/2010 4:46 AM (GMT -6)   
I inform everyone that starts them to expect that. Shouldn't last very long though.
Proctitis DX 1999, Pancolitis DX 2008
Remicade, Sulfasalazine 3g/day, Rear meds as needed
Psyllium (palm full twice daily)
Probiotis/VitD3 5000IU+Ca/1000mg DHA


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 21765
   Posted 4/8/2010 5:44 AM (GMT -6)   
I bloated and had cramping too but I got used to them in about a week or two.
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Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(6 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate ALL mesalamines**~Allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome~Sacroiliitis~bulging and herniated discs C5/C6 & C6/C7~Epidural injections (2 series of 3), OA (hands and spine)-Tylonel Arthritis, Celebrex, Fibromyalgia (diagnosis pending)
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bunny23
Regular Member


Date Joined Apr 2010
Total Posts : 64
   Posted 4/8/2010 7:30 AM (GMT -6)   
Wow, your responses make me feel better-I'm not alone! Quincy: I'm actually feeling better after months of flaring and my bm's are usually only in the mornings -solid but small stools (no blood). Yesterday, I had bad cramping, bloating, and gas with some blood in my stools. I'm going to take your advice and take it different times of the day (I'll try at night like Q suggested) and even try on an empty stomach. Gotta stick with it I suppose!

Imagardner2 response making me question whether I should try another probiotic other than Align??
Diagnosed with UC 1998. Currently on Asacol 3 tablets, 3 times a day. Also Probiotics (Align) - 1 tablet a day (just started). One month ago was on hydrocortisone for 2 weeks with no relief & terrible side effects. RowASA seemed to help wonders (2 week treatment). Also taking Flaxseed oil at least 3 times a day. Currently getting over a flare-up but still with loud tummy noises!


Ugh Just Ugh
Veteran Member


Date Joined Jan 2010
Total Posts : 1004
   Posted 4/8/2010 7:37 AM (GMT -6)   
Yeah, I've been trying to get on probiotics during this flare a few times and it makes me super gassy and I haven't been able to cope with it so, waiting until the flare simmers down enough and the I will start super duper slow and build up. Some of us just have a harder time with them than others. :o)
Jennifer
Originally Diagnosed: 7/08 Mild left sided UC
Current Flare started 12/26/09: Severe Inflammation through Entire Colon, some patchiness indicates might be Crohn's.
Current Meds: Prednisone 30mg (tapering form 60mg since 4/1/10)
Imuran 100mg, Ambien CR 12.5mg, Xanax.
Past Meds: Mesalamine Enemas, Canasa Suppositories, Hydrocortisone Enema & Supp. Asacol.


Queen of the Colon
Regular Member


Date Joined Dec 2009
Total Posts : 143
   Posted 4/8/2010 9:30 AM (GMT -6)   
do you take just one type of probiotic or lots of different strains? as many different types as you can helped me. But if probiotics can help they might also have side-effects. Maybe if it is hurting you , after giving it a go, stop the probiotics and see if the problem goes away

they really helped me but that doesn't mean they will help everyone
Female, 36. Diagnosed December 2009 after 4 months of pain, blood and mucous.
sulfasalazine prescribed but never taken as my flare went away with small liquid meals, probiotics and vitamins.


capecodder33
Regular Member


Date Joined Oct 2009
Total Posts : 69
   Posted 4/8/2010 3:49 PM (GMT -6)   
yup, the cramping & bloating during the 1st week on probiotics (or a switch to a new probiotic) is completely normal. culturelle gave me the worst cramps i've ever had, haha.

what you're experiencing is called the "herxheimer reaction" - the bacterial flora in your gut is changing (for the better). the good bacteria are fighting the bad bacteria inside you & the good guys will sooner or later win the war.

http://www.probiotics-lovethatbug.com/herx-reaction.html
Male, 30 years old. dx ulcerative proctitis 1987; left-sided ulcerative colitis in 1993.
Tried sulfasalazine, asacol, colazal, rowasa, prednisone, imuran, 6-MP, remicade, and humira. Achieved remission for 3 1/2 years with remicade & 6-MP after a nasty flare.


Now UC free! :-) J-Pouch Step 1 on 12/10/09, Step 2 on 2/11/10 and DONE.


bunny23
Regular Member


Date Joined Apr 2010
Total Posts : 64
   Posted 4/9/2010 7:15 AM (GMT -6)   
Thank you thecapecoddah for providing me that information on "herxheimer reaction" - explains so much! I'm taking Align and seems to have only 1 strain (bifi infantis) if I'm reading label right - to answer Queen of the Colon's question (love your name BTW).

I will continue to take them and hope that good bacteria wins SOON! : )
Diagnosed with UC 1998. Currently on Asacol 3 tablets, 3 times a day. Also Probiotics (Align) - 1 tablet a day (just started). One month ago was on hydrocortisone for 2 weeks with no relief & terrible side effects. RowASA seemed to help wonders (2 week treatment). Also taking Flaxseed oil at least 3 times a day. Currently getting over a flare-up but still with loud tummy noises!


Queen of the Colon
Regular Member


Date Joined Dec 2009
Total Posts : 143
   Posted 4/9/2010 8:34 AM (GMT -6)   
Hey Bunny, thanks! I declared myself Queen of the Colon when I conquered it and subdued it to my will. I rule the roost now down there :) But I am kind to my subjects :) :)

If you only have 1 strain, in my humble opinion, you need more different strains because variety is the spice of life.

Plus you have thousands of different strains in your gut, you don't want a monoculture taking up the real estate there.

I tried about 5 different brands with as many strains as possible... like:
Polybac 8 (8 strains)
Yakult drink (shirota strain)
Nourishing Flora (several bugs)
IB Support
and something else i forget without looking at my diary.

I think you should get some other strains into you.

You should get them or their equivalents (there will most likely be different products/brands where you are) in the refrigerated section at the chemist.

just check the label and try to get ones with lots of different types of bugs in there.
Female, 36. Diagnosed December 2009 after 4 months of pain, blood and mucous.
sulfasalazine prescribed but never taken as my flare went away with small liquid meals, probiotics and vitamins.


bunny23
Regular Member


Date Joined Apr 2010
Total Posts : 64
   Posted 4/9/2010 4:29 PM (GMT -6)   
Queen of the Colon: thank you for being kind and offering a wealth of knowledge because I so need it (and the humor is awesome)! Here's a another question for you: Should I stick to Align and add another probiotic or get rid of it and buy one with different strains?

Again, your help is so much appreciated!

: )
Diagnosed with UC 1998. Currently on Asacol 3 tablets, 3 times a day. Also Probiotics (Align) - 1 tablet a day (just started). One month ago was on hydrocortisone for 2 weeks with no relief & terrible side effects. RowASA seemed to help wonders (2 week treatment). Also taking Flaxseed oil at least 3 times a day. Currently getting over a flare-up but still with loud tummy noises!


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 4/9/2010 8:11 PM (GMT -6)   
Align has worked good for me but some find others better.  Took about 2 weeks to get rid of the GAS!!
ElaineNY
 
Senior - diagnosed with proctosigmoiditis - 6/2008 Cannot tolerate mesalamines including rectal meds, etc. 
Prednisone for about 5 months - tried 6 MP with no help. 
No prescriptions now except for Cortifoam about once a week.  Now treating only with Imodium and Pepto Bismal and below....
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 

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