Prednisone and Probiotics

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

ll
Regular Member


Date Joined Mar 2010
Total Posts : 56
   Posted 4/20/2010 1:20 AM (GMT -7)   
I've been on Prednisone for over 2 weeks now at 40mg. I read somewhere that Probiotic use is not recommended while a person is on immunosuppressants. My GI did not recommend it until I brought it up. He said that some people find Probiotics helpful but for some, they can cause diarrhea, bloating, etc. My symptoms have improved from my current meds: Prednisone and Asacol, and to this day, I haven't started taking any Probiotics. I have made a lot of progress from the meds and low residue diet. By progress I mean no blood on stool (although sometimes my stools are very dark). I have a BM once or twice - some days only little poops come out or skinny in form (and feel somewhat constipated), but I've had a couple days where I had decent amount of BM and thicker in circumference. I'm really confused about whether I should start Probiotics or keep going without. I'm interested to know from as many of you if you find Probiotic is beneficial, or no difference, or stopped because it made things worse or gave you discomfort or diarrhea. Also what Probiotic do you think is best. I really appreciate your comments.

quincy
Elite Member


Date Joined May 2003
Total Posts : 25894
   Posted 4/20/2010 12:41 PM (GMT -7)   
You should also be on rectal meds, by the way. I'd suggest the Rowasa retention enemas (or if you're not in the US to use Salofalk, etc)

Regarding probiotics....doctors have their opinions, we have ours. I take them, and if my doc said not to...I'd still take them.

I would suggest you take them at night before bedtime on an empty stomach....
Don't take any medications just before you take the probiotics...make sure it's at least 2 hours before the probiotics.

There are lots of postings on probiotics....the general concensus is they're beneficial.

You can read on my signature what I take at this point...I've tried a few different ones.....others are listed on theirs.

quincy

songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3252
   Posted 4/20/2010 1:32 PM (GMT -7)   
My son's GI prescribed prednisone and recommended probiotics at the same appointment - 3 years ago. My GI prescribed cortenemas for me and recommended probiotics at the same time. I don't think there are clear cut rules about this... I also could be wrong, but I thought the pred was primarily an anti-inflammatory which happens to have some immunosuppressant qualities - it's not a heavy duty immunosuppressant like cyclosporin.

As I've said in other threads here, when I've stopped my probiotics, bleeding has resumed within a few days. So I'm a believer.
Age 54. Diagnosed UP 1983, UC 1986
Prednisone almost 2 years, 86-88
Asacol - 16 pills/day, cortenemas, Rowasa
Metamucil - 2 doses/day since '86
VSL#3DS, Multivitamin, Calcium and D
homemade yogurt each day
hip replacement 4/5/10
Son, 16, dx pancolitis 2007


Christine1946
Veteran Member


Date Joined Aug 2008
Total Posts : 5535
   Posted 4/20/2010 1:45 PM (GMT -7)   
The first time my doctor suggested a probiotic was in May of 08 when I was hospitalized. They placed me on Flora Q at the time. I have continued with a probiotic, Powerdolphilus, suggested by my nutritionist a few months after being discharged from the hospital. It says on the bottle to take with food, but I notice a lot of people take their probiotic on an empty stomach. My doctor recently placed me on Humira, Remicade failed, and he told me to stop the probiotic. Not exactly sure what his reasoning is since I was taking it when on Remicade. Could be the fact that Remicade failed and he wants to see if stopping the probiotic will make the Humira more beneficial. Anyway, I still take one a day, not two.

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 4/20/2010 1:58 PM (GMT -7)   
There are different kinds of probiotics. Some are used to treat diarrhea.

I definitely find probiotics helpful. They, in addition with a change in diet, got me out of my third flare.
Colitis is in remission. No longer get IBS.
 
Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No crystalline fructose, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, vitamins & supplements, Lexapro (for stress).


baconeggsyum
Regular Member


Date Joined May 2010
Total Posts : 303
   Posted 9/22/2010 4:06 PM (GMT -7)   
Soooo... Taking 40 of Pred right now -- down to 30 on Friday. Can I take VSL#3?? If so, when? At night? I take my Prednisone at 8 AM as recommended (when I eat Breakfast). Nothing on the packaging or write-up inside says anything about not taking it with steroids etc... also doesn't say to take with (or without) food, simply says to take with glass of water. Should I start it? Thoughts? Pred is doing it's job but this is my third cycle this year and I really don't want the troubles to come back after I wean off.
Ulcerative Col - 20 years
White Male Northern Canada - 6x800 asacal
3 Flare-ups -- all this year, first one's ever 50 Prednisone, does the trick right away then taper to 25/20/10/5 etc.. but so far flares have come back. Last one brutal, lost 15 pounds, 9.3 G/L Hemoglobin levels!
Put on Imuran if this round doesn't work, won't go on it though
Hoping to get some Salofalk next visit to doc!

journey2health
Veteran Member


Date Joined Oct 2009
Total Posts : 2698
   Posted 9/22/2010 4:30 PM (GMT -7)   
Quincy, I am taking Align and I do it before I go to bed with my Asacol and some vitamins. I'm on an empty stomach. I didn't realize that I shouldn't take it with other supplements or pills.

I found these instructions on Align. What are your thoughts?


When is the best time of day to take Align?
It doesn't matter what time of day you take Align. We recommend that you take Align as part of your daily routine, at a time that will be easy to remember—such as when you take your usual vitamins or medications, or with your first cup of coffee.



Are there any special instructions for how to take Align?
No. You can take Align at any time of the day, with food or without. We recommend that you take Align as part of your daily routine, at a time of day that will be easy to remember—such as when you take your usual vitamins or medications, or with your first cup of coffee.
2nd remission 4/10. Diagnosed pancolitis 9/15/09. 9 Asacol, Rowesa two nights, off one. Prednisone, 3 mg. every other day, tapering one mg./month. Possible adrenal dysfunction/borderline osteoporosi from pred. Avoid greasy, spicy, citrus, dairy (except yogurt), caffeine, alcohol. Lots of vitamins. Align, Bipolar: lamictal; Depression/anxiety, Lexapro; Sleep: Zinc Magnesium B6, melatonin

Penang
Regular Member


Date Joined Jan 2013
Total Posts : 47
   Posted 8/23/2013 4:42 AM (GMT -7)   
Sorry for digging this old question out. I too, have been on a 6 week course of Pred, and finished it last Monday, only to Flare on Tuesday.. I am slowly getting better.

So, does the Pred mess up the Gut Bacteria? I noticed that I had a burning sensation whilst on Pred, and some acid reflux, which I don't normally get. I also had a general unhealthy feeling whilst on it, and lost weight rather than gained it.

I think the Pred unsettled and toxified my system, and it is only now that I am starting to recover again. My UC was fine whilst on Pred, however, I was fine before as well (my GI wanted to clear some inflammation seen on my latest scope).

Any thoughts?
Diagnosed UC pancolitis aged 39 (Aug 2012). Experienced flare up June 2012 but had earlier symptoms.

Presently take: Mezavant XL 1200g x 2 , Benebiotics x 2, Psyllium Husk x 1 tablespoon.

Avoid: Sugar, Dairy / Lactose, Gluten, Processed Foods. Cut back on Refined Carbs and try not to mix Carbs and Animal Protein in the same meal.

Trying to find a stable "Remission".

quincy
Elite Member


Date Joined May 2003
Total Posts : 25894
   Posted 8/23/2013 11:47 AM (GMT -7)   
Did you increase the Mezavant while flaring?
And are you on rectal meds?

You can increase the psyllium to twice daily and get on better probiotics in conjunction with the Benebiotics.

rectal meds...asap is my initial suggestion in conjunction with the increased oral 5ASA.
q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Summer4
New Member


Date Joined Aug 2013
Total Posts : 5
   Posted 8/25/2013 1:53 AM (GMT -7)   
I was on all those mess-- asacol ,prednisone you name it tried it. Rectal cortisone as well which helped the best until I tried probiotics! I only take probiotics one pill a day in the morning and in 3 years have had no flare ups!! Before probiotics I was having 1 flare up a month and spending $200 on asacol with no insurance! I say try it I just had a baby and continued my probiotics while pregnant and did just fine!!

garylouisville
Veteran Member


Date Joined Aug 2012
Total Posts : 7156
   Posted 8/25/2013 8:47 AM (GMT -7)   
Not to intentionally criticize but I really wish people would get specific on what probiotics they are using instead of just saying they are on probiotics. There are umpteen million different kinds of probiotics and they are not all created equal. Some improve a patients condition and some make our conditions worse and sometimes that applies to the very same probiotic. It is more helpful to the group as a whole if members would specifically name which probiotics they take. Some probiotics have just millions of CFU's while others such as VSL have hundreds of billions. That is an extremely huge difference all by itself, not to mention which strains are in which probiotic.
Asacol 800mgs 1 pillsX3; VSL#3 112.5mgs 1 pillX2; Prescrip Assist Probiotic 1 pill X 2;Vitamin D3 5000 ius 1 pillX2;Bentyl;DAO;Folic acid

Discontinued: Robinul; Natural - peppermint oil, Inflaguard (Boswellia), Pepto Bismol, Omega 3 fish oil, Imodium, Beano, Lactaid;Zymactive, Renew Life Probiotic 80 billion, Florastor, DGL, Monolaurin, slippery elm;black cherry concentrate

Summer4
New Member


Date Joined Aug 2013
Total Posts : 5
   Posted 8/25/2013 3:33 PM (GMT -7)   
I take Phillips Colon Health Probiotics I buy them at Costco.. My brother also has UC and tried Phillips probiotics and has had the same result as I did.. He just had his colonoscopy his GI Dr said he showed no trace of UC - I know not everyone will get same results but I wish you well!

garylouisville
Veteran Member


Date Joined Aug 2012
Total Posts : 7156
   Posted 8/25/2013 4:36 PM (GMT -7)   
Thanks for naming names. Might help someone.
Asacol 800mgs 1 pillsX3; VSL#3 112.5mgs 1 pillX2; Prescrip Assist Probiotic 1 pill X 2;Vitamin D3 5000 ius 1 pillX2;Bentyl;DAO;Folic acid

Discontinued: Robinul; Natural - peppermint oil, Inflaguard (Boswellia), Pepto Bismol, Omega 3 fish oil, Imodium, Beano, Lactaid;Zymactive, Renew Life Probiotic 80 billion, Florastor, DGL, Monolaurin, slippery elm;black cherry concentrate

DMC2011
Veteran Member


Date Joined Jul 2011
Total Posts : 1119
   Posted 8/25/2013 4:54 PM (GMT -7)   
I wish I read this earlier before I went blindly to cvs and picked up some! Next time Phillips from Costco,

quincy
Elite Member


Date Joined May 2003
Total Posts : 25894
   Posted 8/26/2013 12:15 PM (GMT -7)   
What ones did you pick up at CVS?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Zantac 150mg; Pulmicort/Airomir (asthma);Effexor XR 37.5 (depression)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime)
~Metamucil capsules 6 twice daily with meals; Vitamin D 4500 IU
~URSO for PBC(or PSC?) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 22, 2014 6:43 PM (GMT -7)
There are a total of 2,302,613 posts in 255,644 threads.
View Active Threads


Who's Online
This forum has 159886 registered members. Please welcome our newest member, lymedaisy.
302 Guest(s), 12 Registered Member(s) are currently online.  Details
Katebirch, notsosicklygirl, luckypenguin07, themiz, blueglass, Flip Flop, Redwing57, pmedic, bvalentine, Mattie2828, ISU-CycloneFan, beave


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer