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babygreens
New Member


Date Joined May 2009
Total Posts : 16
   Posted 5/15/2010 11:30 PM (GMT -6)   
OMG! Do not take Melatonin! The bottles say to check with your doctor if you have an autoimmune disease and they are not kidding! I was doing pretty well on the Remicade infusions and then, boom, I started bleeding and have UC symptoms again. I always have trouble sleeping so I thought I should try Melatonin again, something I used to take occasionally. HUGE mistake! Not worth it! cry
Ulcerative Colitis since 2001.


quincy
Elite Member


Date Joined May 2003
Total Posts : 25775
   Posted 5/15/2010 11:36 PM (GMT -6)   
I've made that suggestion to others to not take it....thanks for the actual experience...sing the tune!

q

Ugh Just Ugh
Veteran Member


Date Joined Jan 2010
Total Posts : 1004
   Posted 5/16/2010 7:27 AM (GMT -6)   
Ack! I hope everything settles down again soon! :o(
Jennifer
Originally Diagnosed: 7/08 Mild left sided UC
Current Flare started 12/26/09: Severe Inflammation through Entire Colon, some patchiness indicates might be Crohn's.
Current Meds: Prednisone 25mg (Trying to taper again!), Imuran 150mg, Asacol (trying to add it back in), Lexapro (5mg), Xanax (.25mg) as needed.
Past Meds: Mesalamine Enemas, Canasa Suppositories, Hydrocortisone Enema & Supp.
Supplements: Multi, Fish Oil, C, Iron, D, Calcium, Potassium, Bio-K probiotic, Tumeric.


Lynn4221
Regular Member


Date Joined Jan 2010
Total Posts : 195
   Posted 5/16/2010 7:48 AM (GMT -6)   
This is interesting to me. A MD that I have, who is supposed to be just the best, prescribed me a supplement that includes melatonin and he knows all about my UC--
Thanks,
L
UC dx in 2008
4g Mesalamine nightly
Healthy Trinity x4/daily
DigestaLac x2/daily
Nordic Naturals Ultimate Omega x2/daily
Curcumin Plus
Following Ageless Nutrition Colorectal Recovery Program x2.5 months


downgarden
Regular Member


Date Joined Jan 2010
Total Posts : 73
   Posted 5/16/2010 9:18 AM (GMT -6)   
I did try it for a month, and I didnt make me either worse or better.

babygreens
New Member


Date Joined May 2009
Total Posts : 16
   Posted 5/16/2010 10:26 AM (GMT -6)   
Well, now I'm in a full-blown flare up. It was not worth it.

It just goes to show that everyone is different and no two bodies are the same. However, if a supplement says to check with your doctor if you have an autoimmune disorder, I suggest erring on the side of caution.
Ulcerative Colitis since 2001.


beeswax
Veteran Member


Date Joined Dec 2009
Total Posts : 545
   Posted 5/16/2010 10:38 AM (GMT -6)   
Thanks! Good information. My mom takes melatonin to help with her sleep and was just visiting and and we were talking about it a week ago. I like the idea of a natural supplement but I guess I will stick to my Tylenol PM. Thanks for the warning!
Present: Lialda 4.8 gm a day; Fish Oil, Calcium/Vitamin D, Folic Acid, Potassium, Boswellia/Curcumin/Tumeric; Vitamin D 50,000 unit once a week; Diagnosed UP 1993/Diagnosed UC 8/08; Reclast for Osteoporosis 12/09; Past: Remicade/Asacol /Rowasa/Anucort/Canasa/Prednisone 2/10/10 last day! (this time...)


mudua
Regular Member


Date Joined Apr 2007
Total Posts : 459
   Posted 5/16/2010 2:33 PM (GMT -6)   
Whenever I have an important appointment very early in the morning than I take 20mg of melatonin the evening before. Taking 20mg of melatonin is the only thing that works for me in preventing the frequent morning toilet visits. I take melatonin every evening without any problems

beeswax
Veteran Member


Date Joined Dec 2009
Total Posts : 545
   Posted 5/16/2010 3:18 PM (GMT -6)   
Mudua, Thanks for your input too. I guess it is just one of those individual things.
Present: Lialda 4.8 gm a day; Fish Oil, Calcium/Vitamin D, Folic Acid, Potassium, Boswellia/Curcumin/Tumeric; Vitamin D 50,000 unit once a week; Diagnosed UP 1993/Diagnosed UC 8/08; Reclast for Osteoporosis 12/09; Past: Remicade/Asacol /Rowasa/Anucort/Canasa/Prednisone 2/10/10 last day! (this time...)


babygreens
New Member


Date Joined May 2009
Total Posts : 16
   Posted 5/16/2010 3:20 PM (GMT -6)   
Exactly, beeswax! Everyone is different. Not just in personality, but physiologically as well! yeah
Ulcerative Colitis since 2001.


sca721
Regular Member


Date Joined Jun 2004
Total Posts : 47
   Posted 10/4/2012 8:59 PM (GMT -6)   
Ditto on "everybody is different" theme - I've been using 1-3mg of melatonin per night (includes B6 as well) and I was shocked by the improvement in my UC symptoms.

On a par with the improvement brought about by mesalamine and psyllium.
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