What is urgency for you?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

journey2health
Veteran Member


Date Joined Oct 2009
Total Posts : 2818
   Posted 7/2/2010 9:55 PM (GMT -6)   
When I have to go, I have to go and I hoof it to the bathroom, pants coming off before I get to the toilet. It bothers me because I'm in remission and I would think I wouldn't have urgency. Of course, my bms are not as large and wide as they used to be so maybe that's one reason they want to come out quickly.

How urgent is urgent for you?
Ellen

In remission! Diagnosed pancolitis mild to mod 9/19/09. Now tapering 6 and 0 mg alternating days for one month each mg. to 0. Allegedly battling diminished adrenal function due to being on pred so long.
9 400 mg. Asacol daily, 1000 mg. Canasa every other day, Rowesa, enemas every third night, 1 tbs. psyllium husk powder daily, Mutaflor probiotic
multi-vitamin; calcium plus D, Biotin, turmeric. Eliminated dairy, caffeine, alcohol, fried, greasy, citrus, and artificial sweeteners, red meat on occasion for protein. For sleeping, Melatonin 4 mg, Zinc Magnesium and B6 compound- 2 cap and Zyprexa.
For alleged insufficient adrenal function, C, B6,B Complex, D, pantothesic acid and E.


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15081
   Posted 7/2/2010 10:08 PM (GMT -6)   
If I have to get up instantly to go when the urge occurs, I consider it URGENT. Lately, I can wait. It's nice to feel like I can wait a few moments before running off to drop my pants for a photo finish. I usually like to go when the urge hits because sometimes I find if I wait too long, the urge goes away and then I will want to go and I may not be able to. Today I waited too long but when I went in the bathroom I went and things were good! I was happy. It's the little things that make me smile, a decent size, firm poop, nothing on the paper.
March 07: DIagnosed with Mild Proctitis - Canasa as needed.
August 08 - December 08: FLARE & Anemic - Started Asacol!!
January 09 - December 09: REMISSION!! Asacol (9) + Canasa 1g AM/PM
December 09 - January 10: FLARE!! Asacol + Prednisone + Canasa
February 10 - April 10: Colazal + Prednisone + Canasa
May 10 - June 10: Lialda + Cort Enema + Prednisone
Current: Mild / Moderate Active Pancolitis: Prednisone, 6mp, klonopin FEELING OKAY!!


Heidi39
Regular Member


Date Joined May 2010
Total Posts : 205
   Posted 7/2/2010 10:36 PM (GMT -6)   
Yes, urgency is running as fast as I can pulling off stockings or unbuttoning pants while I run. My husband is lucky if I have enough time to shut the door. I'm down to about once a week with crazy urgency. My daily poo still gives me less than a minute but I'll take it! This last flare up was my first flare where I had no control anymore.
Diagnosed over 14 years ago.
Started mild but now pancolitis.
Apriso, Rowasa, SCD, probiotics, tumeric, vit. d, biotin, fish oil.
Ortho, Claritin, albuterol, Celexa.
Found Rowasa and SCD through this site and am looking back on my worst flare ever. So thankful to feel almost normal again!!!


journey2health
Veteran Member


Date Joined Oct 2009
Total Posts : 2818
   Posted 7/2/2010 11:19 PM (GMT -6)   
I'd say I have 30 seconds and it's a shart and/or poop, pretty good one. Could use a minute. It usually surrounds eating so when I eat there's often a bathroom nearby.
Ellen

In remission! Diagnosed pancolitis mild to mod 9/19/09. Now tapering 6 and 0 mg alternating days for one month each mg. to 0. Allegedly battling diminished adrenal function due to being on pred so long.
9 400 mg. Asacol daily, 1000 mg. Canasa every other day, Rowesa, enemas every third night, 1 tbs. psyllium husk powder daily, Mutaflor probiotic
multi-vitamin; calcium plus D, Biotin, turmeric. Eliminated dairy, caffeine, alcohol, fried, greasy, citrus, and artificial sweeteners, red meat on occasion for protein. For sleeping, Melatonin 4 mg, Zinc Magnesium and B6 compound- 2 cap and Zyprexa.
For alleged insufficient adrenal function, C, B6,B Complex, D, pantothesic acid and E.


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 7/2/2010 11:34 PM (GMT -6)   
journey2health...I wouldn't say you're in full remission if you have urgency like that....there are different levels of flares, but remission in my opinion, is feeling healthy again as you did before IBD including being able to hold urges back, which clearly you're not able to do (same as me).
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15081
   Posted 7/2/2010 11:43 PM (GMT -6)   
Oh come on. Do you really have accidents? You seem to be doing so well with your UC. I wonder if a lot of your urgency is caused by you're being anxious. You need to calm down and not think OMG, I am going to shart. If I were thinking like that all the time, I'd probably shart too.
March 07: DIagnosed with Mild Proctitis - Canasa as needed.
August 08 - December 08: FLARE & Anemic - Started Asacol!!
January 09 - December 09: REMISSION!! Asacol (9) + Canasa 1g AM/PM
December 09 - January 10: FLARE!! Asacol + Prednisone + Canasa
February 10 - April 10: Colazal + Prednisone + Canasa
May 10 - June 10: Lialda + Cort Enema + Prednisone
Current: Mild / Moderate Active Pancolitis: Prednisone, 6mp, klonopin FEELING OKAY!!


calm-on-the-outside
Veteran Member


Date Joined Aug 2009
Total Posts : 832
   Posted 7/3/2010 6:26 AM (GMT -6)   
Hmmmm, I don't know if I'd consider myself in remission if I had urgency like that.  It does sound like you are almost there.  Perhaps it is partial anxiety?  Also, with the Rowasa, do you always insert them fully or do you sometimes pull them part of the way out to hit the rectum more?  (Quincy suggested this and I've found it does help)
 
When I had urgency it was pretty bad but I had a minute or 2, mine was not necessarily related to eating so there was no pattern of when I should expect it.
 
Now that I'm in remission I still go every morning but it's usually a slow build up...some mornings it's a little faster but never urgent to where I don't know it's coming and can't make it.
 
Oh, and here's one thing my GI said 'you may never feel EXACTLY like you did before UC but you should be blood/mucus free and have control.  You should strive to be as 'normal' as possible but you may always have more stomach noise, etc. As long as there is no evidence of constant inflammation and you have your life back, that is what we are going for.'  So, in his opinion, having control is something you want to have to be considered in remission.  Just his/my opinion.
 
Hope you feel better soon!
*Amy, 33, dx with idiopathic colitis July 2009, confirmed UC Sept 2009


Asacol 4 pills 2 times daily
Rowasa (slow taper, skipping every 3rd night)
Probiotic: Not taking one now, experimenting
Metamucil


Cape Town Colitis
Regular Member


Date Joined Jun 2010
Total Posts : 58
   Posted 7/3/2010 6:35 AM (GMT -6)   
NotSoSicklyGirl, you make me smile! I'm exactly the same. Ever since being in remission (not so long ago), when I poop and see a nice firm big one I am soooo happy! hehe! It really puts life into perspective doesn't it? When 'normal' people says it's the small things that count in life, they have no idea that a normal poo for us contributes to our happiness in a BIG way! I suppose other people with diseases have other daily little things that make them happy too. xx
Cape Town Colitis
Diagnosed 2001 with Ulcerative proctitis. Used 1 suppository per night for maintenance.
Had a couple of flare-ups which were solved with use of Asacol suppositories - 2 per day.
Last flare-up: Mid Dec 2010 - very bad. Suppositories didn't work. Prednisone 20mg (4 tabs per day)+ asacol tabs 400mg helped slightly but no remission.
Cortizone enemas - 1 per night for 2 weeks resulted in remission.
Currently taking Asacol tabs 800mg and 1 Asacol suppository per night to maintain remission.


MyUC
Veteran Member


Date Joined Mar 2010
Total Posts : 640
   Posted 7/3/2010 6:45 AM (GMT -6)   

Urgency, it means when U have 2 go U have 2 go.  No exceptions.  If something or someone gets in the way they are pretty likely to get some poop on them.  That means I hate being in bumper to bumper traffic, being in a place where I don't know the bathroom is, etc...

Not having urgency is doing whatever you want and NOT thinking of a bathroom.  I have been doing  a lot of outdoor activities lately and I hardly ever think of the bathroom.  I go once in the morning, maybe twice and then I really don't go to the next day (for a #2).  It's peace of mind.  Now I don't mind sitting with a group of people I really don't know well and going for a long car drive. 

Urgency, it's the pits.

MyUC

 


39 Year Old Male, Dentist
Dx: Ulcerative Colitis 1996 via colonscopy and biopsy.  Pancolitis with chronic and moderate inflammation.
Started UC around 92.
Past Meds: Asacol and occasionally Prednisone
Have had 6 colonscopies throughout my hx with UC.
Current Meds: Imuran, started with 200 mg and recently lowered it to 150 mg
Most recent colonscopy 2009 after 6 months of Imuran, colon is 90% healed
Currently in remission
 
 


Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 7/3/2010 7:20 AM (GMT -6)   
not being able to wait 5 minutes or more I guess. I remember having urgency before I even knew I had colitis. No mucus, blood, or D just really had to go.

imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 5571
   Posted 7/3/2010 7:36 AM (GMT -6)   
Urgency and lack of control is THE issue isn't it? That's what changes our lives, the rest of it is just side issues that the doctor cares about (bleeding, inflammation, etc) but doesn't really affect our daily routine of how we live our life.

At my worst urgency for me was:
Not being able to have a telephone conversation without sitting on the toilet.

Not getting in the car without having an almost immediate stop planned out. I would sometimes get in the car, drive around the block and come back to use the toilet because the car always stimulated the urge to go.

Walking across a parking lot to get inside a store was too far and too much time.

Making excuses for not leaving the house

Not going out to dinner

Not doing anything before noon.

Getting up 3 hours before I had to leave the house

Not getting enough sleep because of getting up several times a night to use the toilet

Choosing clothes not for how I looked in them but how fast I could use the toilet (elastic not buttons).

Wearing a diaper (hard to type that)

It has taken 6 months and diet modification to get me to the point of talking on the phone and not even thinking about needing the toilet, I can get in a car without horrendous worry (but the past lives on in my brain). Urgency is the hardest and last symptom to heal for me. I know how to "shut it down" but am determined to not use Immodium or anything else in my quest to be totally healed. In the past 2 months I haven't used Bentyl, Immodium or anything similar. I feel 90% there with respect to urgency and 100% healed on all other symptoms.

What I finally understood was that the invisible inflammation was causing the bleeding and other symptoms including urgency and I needed to heal that before anything could improve. Duh, right? I took all the RX given to me but nothing ever got better until my last try at the SCDiet.

I KNOW what urgency is. When I read people writing about having a minute I think "I would have LOVED having a minute." because I had NO warning. That is urgency. Amazing I still have my colon but I am hard-headed.
In remission April 2010 after 10 years of suffering and no remission ever
Jan 2010 started SCD diet (modified to remove dairy, fruit & juices)
Bleeding stopped in 3 days, 95% remission in 5.5 months
Diet: Gluten/grain-free, fructose-free (blueberries OK), dairy free (swiss cheese OK), starch-free
I eat: Protein(meat/fish/eggs,no soy), nuts(soaked/roasted), non-starch veggies, nut-flour muffins
Daily: fish oil, Vit D3 2000 2Xday with oil/fat, veggie juice, sunflower seeds, probiotic VSL#3
homemade yogurt and some fruit OK at 5.5 month remission :-)
Highly recommend: the book "Life without Bread" and the Specific Carbohydrate Diet


kops2da
Veteran Member


Date Joined Jun 2008
Total Posts : 2865
   Posted 7/3/2010 9:17 AM (GMT -6)   
If you can remember back when younger - I have a problem with that - URGENCY was when you had a virus or flu or something and you had to go as soon as you felt it coming.  Lack of urgency is when you feel it coming and can hold it for a while - some 5 minutes - some longer.  Usually, most days, I can hold it indefinitely - until I want to go.  I feel nearly in remission - if not all the way when I have no constant urgency (I believe my IBS causes problems too) and no mucous or blood - formed stools and no rectal pain.  I do have stomachaches because of IBS - but if I behave and don't eat somethings I know better than to eat - I am ok!
ElaineNY
 
Senior - diagnosed with proctosigmoiditis - 6/2008 Cannot tolerate mesalamines including rectal meds, etc. 
Prednisone for about 5 months - tried 6 MP with no help. 
No prescriptions now except for Cortifoam and anusol about once a week.  Now treating only with Imodium and Pepto Bismal and below....
Probiotic Align, Prilosec for GERD, Gas-X, vitamins, Calcium/D
Tylenol for knees and arthritis.
 
 
 


pam222
Veteran Member


Date Joined Jun 2009
Total Posts : 985
   Posted 7/3/2010 9:44 AM (GMT -6)   
I'm with imagardener2. Urgency for me was VERY urgent--no control. So many accidents in my car...ugh. A diaper or pad would not have helped at all--it was a lot and it was bad. There were times I couldn't make it from my bedroom to my bathroom (just a few feet away)
27/F Diagnosed with unspecified UC 11/08 (symptoms for over a year before)
Asacol, Prednisone, Remicade with no success--no remission for over 2 years
8/09 colonoscopy shows that the whole colon is affected
12/18/09 Removal of colon, creation of J-Pouch and ostomy; recessed stoma; 12/30/09 Takedown too soon; RV fistula;1/9/10 Second Ileostomy Surgery;
1/25/10 Stoma Revision Surgery; 3/30/10 Takedown again; 6/9/10 Scope and Biopsy--Diagnosed with Crohns Disease (maybe...)
Tried gluten free and dairy free with no noticeable improvement; Was on TPN and IV fluids 2/10-6/10. Currently:Prednisone 40 mg, Culturelle, D, B12, Iron, Prenatal vitamin, Lomotil, Lortab, Humira, Rowasa


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 7/3/2010 11:14 AM (GMT -6)   
journey2health said...
When I have to go, I have to go and I hoof it to the bathroom, pants coming off before I get to the toilet. It bothers me because I'm in remission and I would think I wouldn't have urgency. Of course, my bms are not as large and wide as they used to be so maybe that's one reason they want to come out quickly.

How urgent is urgent for you?


It sounds like you could still be flaring, just not as severely as before.
Colitis is in remission. No longer get IBS.
 
Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No crystalline fructose, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, vitamins & supplements, Lexapro (for stress).


journey2health
Veteran Member


Date Joined Oct 2009
Total Posts : 2818
   Posted 7/3/2010 11:21 AM (GMT -6)   
I don't think it's going to get any better than this and the urgency is what it is- a brisk, hoofing it walk to the bathroom. I'm using enemas and canasa and asacol. There's only so much I can do.

So I guess I'm nearly in remission instead of in remission as it showed on the flex sig a few months ago..

The next step is 6 mp and I'll put up with some urgency to avoid that. If I complained about this to my GI he'd say let's try 6mp.

I like what "calm on the outside"

Oh, and here's one thing my GI said 'you may never feel EXACTLY like you did before UC but you should be blood/mucus free and have control. You should strive to be as 'normal' as possible but you may always have more stomach noise, etc. As long as there is no evidence of constant inflammation and you have your life back, that is what we are going for.' So, in his opinion, having control is something you want to have to be considered in remission. Just his/my opinion.
Ellen

In remission! Diagnosed pancolitis mild to mod 9/19/09. Now tapering 6 and 0 mg alternating days for one month each mg. to 0. Allegedly battling diminished adrenal function due to being on pred so long.
9 400 mg. Asacol daily, 1000 mg. Canasa every other day, Rowesa, enemas every third night, 1 tbs. psyllium husk powder daily, Mutaflor probiotic
multi-vitamin; calcium plus D, Biotin, turmeric. Eliminated dairy, caffeine, alcohol, fried, greasy, citrus, and artificial sweeteners, red meat on occasion for protein. For sleeping, Melatonin 4 mg, Zinc Magnesium and B6 compound- 2 cap and Zyprexa.
For alleged insufficient adrenal function, C, B6,B Complex, D, pantothesic acid and E.


calm-on-the-outside
Veteran Member


Date Joined Aug 2009
Total Posts : 832
   Posted 7/3/2010 11:53 AM (GMT -6)   
Hi Ellen:
 
I was just quoting my GI but I liked that too.  I was kinda under the impression that I was supposed to feel like I did pre UC to be considered in remission.  He said some people do, some don't.  His main concern was that there is not constant inflammation in my body.  And if I was happy with the way I felt then there was no need to change anything.
 
So, that being said...if you don't think you are inflammed (and you've had a recent flex sig) and that's causing damage to your body and you are fine with your current condition then I say keep things the way they are.  I don't blame you for going on the 'bigger' drugs, I will be doing my best to avoid them too.  I'll put up with a little more stomach noise, perhaps a little more gas than usual, etc.  But sometimes I wonder too if I'm just more in tune to my body since I know I have UC...heck I might've had this same stomach grumbles before but I didn't pay attention to it.  Who knows!  If you are comfortable then I'd stick with what you are doing. 
*Amy, 33, dx with idiopathic colitis July 2009, confirmed UC Sept 2009


Asacol 4 pills 2 times daily
Rowasa (slow taper, skipping every 3rd night)
Probiotic: Not taking one now, experimenting
Metamucil


notsosicklygirl
Forum Moderator


Date Joined Dec 2008
Total Posts : 15081
   Posted 7/3/2010 2:04 PM (GMT -6)   
I'd prefer a brisk walk to the bathroom over taking a drug like 6mp. I, personally, take it myself and it hasn't harmed me much so far (as I know) but I did everything I could to avoid starting it. It's just another thing to contend with... Although, I have to say, I've stopped 5asas and rectal meds for now and it's been so easy taking just one 6mp a day as opposed to 9 asacol.
March 07: DIagnosed with Mild Proctitis - Canasa as needed.
August 08 - December 08: FLARE & Anemic - Started Asacol!!
January 09 - December 09: REMISSION!! Asacol (9) + Canasa 1g AM/PM
December 09 - January 10: FLARE!! Asacol + Prednisone + Canasa
February 10 - April 10: Colazal + Prednisone + Canasa
May 10 - June 10: Lialda + Cort Enema + Prednisone
Current: Mild / Moderate Active Pancolitis: Prednisone, 6mp, klonopin FEELING OKAY!!


Micky3270
Regular Member


Date Joined Oct 2009
Total Posts : 119
   Posted 7/3/2010 2:45 PM (GMT -6)   
When I have to go, I'm lucky if I have 5 minutes to find a bathroom. Anyone find anything that helps with urgency?
Lialda 2 Xs/day
Canasa
Zofran as needed
Probiotics
Lexapro 20mg
Trazadone 50mg for sleep
past meds: Asacol, Prednisone
 


subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 7/3/2010 3:27 PM (GMT -6)   
journey2health said...
If I complained about this to my GI he'd say let's try 6mp.


Yes. Doctors are like that. If you complain, then they prescribe more medicine. If you don't, then they don't. It's all very predictable.
Colitis is in remission. No longer get IBS.
 
Figuring out how to reduce a flare or get into remission is a trial and error experience. Don't expect your GI to have all the answers. He was trained in making diagnoses, prescribing medications, and surgically removing the colon. He was not trained in alternative treatments. That's why they are called alternative treatments.

What works for me: Fecal transplantation, Probiotics, Anti-inflammatory foods, No HFCS, No crystalline fructose, No foods high in fructose, No artificial sweeteners, No pro-inflammatory foods when flaring, vitamins & supplements, Lexapro (for stress).

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, October 16, 2017 4:26 PM (GMT -6)
There are a total of 2,882,889 posts in 316,329 threads.
View Active Threads


Who's Online
This forum has 157670 registered members. Please welcome our newest member, onlinepassportproducers.
413 Guest(s), 13 Registered Member(s) are currently online.  Details
Inderjit Singh Madahar, carattop, Froggy88, Old Hat, Purrrsiankitty, MelW11, chikinnooodle, The Dude Abides, scorpio, InTheShop, sunny40, Ashleyann82587, mcloud


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer