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NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 7/30/2010 1:00 PM (GMT -6)   
So this is an issue that I've noticed for awhile.

When my last flareup started, I started taking prednisone sometime in October. A couple of weeks later I noticed some darker circle like things around my collar bone and shoulder area. They aren't red or extremely dark, nor do they hurt or do anything really. Just darker colored circle spots on my collar bone.
Well, I didn't think anything about them, so I never mentioned them to my doctor. But, I was so busy trying to put up with the UC stuff and work, I didn't really have enough time to think about them anyway.

Anyway, I'm almost 9 weeks post first surgery and I feel great. But I've noticed the spots are still there and I've noticed some new ones on my neck. These are have more of a red color than the ones on my collar bone and shoulders. I've also noticed that when I go out in the sun or heat, I start getting itchy around the same areas.
And even though I was prescribed an inhaler a couple of weeks ago for my asthma, I'm still coughing. It's like a tickling sensation in my throat area. My doctor doesn't notice any sinus drainage and my xrays came up perfectly clear and my lungs sound clear too.

One of my friends mentioned lupus (and me being a House friend said that it's never lupus) but I don't know exactly what lupus causes other than skin rashes that hurt and that it is an auto-immune disorder.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010


quincy
Elite Member


Date Joined May 2003
Total Posts : 25562
   Posted 7/30/2010 1:37 PM (GMT -6)   
You wouldn't know unless you had testing for it...which is a process of elimination or affirmation.

A rheumatologist would be the one doing the testing...maybe it's time you discussed a referral from your doc.

You could, however, in the meantime, see a dermatologist.

q

NewShinyCD
Regular Member


Date Joined Oct 2009
Total Posts : 474
   Posted 7/30/2010 2:08 PM (GMT -6)   
Yea I'm going to call my doctor Monday.
21 y/o male livin' in Georgia. Diagnosed with Left-Sided Colitis in 2002; re-diagnosed with Pancolitis in Nov. 2009.
June 2010 I beat UC by having surgery.
Drugs tried: Just about every 5ASA medicine, enemas, prednisone, turmeric, fish oil, Remicade, psyllium seed powder, Metamucil.
Unable to take 6MP.
Step one of Jpouch surgery - 6/2/2010
Readmitted back to hospital because of blockage (my fault cause I ate Steak n Shake 3 days after being released from surgery) - 6/10/2010
Step two of Jpouch surgery - 9/?/2010

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1754
   Posted 7/30/2010 3:37 PM (GMT -6)   
See a rheumatologist. Even if you can't get in to see one, ask your primary doctor for an ANA test. It's typically the first step for diagnosing lupus or rheumatoid arthritis.

UC in UT
Regular Member


Date Joined Jul 2010
Total Posts : 36
   Posted 7/30/2010 4:22 PM (GMT -6)   
Hey NewShinyCD,

I agree with all of the posts that you need to see a Rheumatologist. I noticed in your signature that you had been on Remicade prior to surgery. Remicade can cause "Drug Induced Lupus". I know because it happened to me. My symptoms started like yours, in about the same area, and soon I had the most horrible, dark purple, itchy rash all over my back, chest and the trunk of my body (which by the way left permanent scars all over my back).
A Rheumy will run a multitude of tests to diagnose you - an ANA is just one. My Rheumy ran 14 specific blood panels when I first saw her one year ago - all 14 came back positive for things ranging from positive ANA, RH Factor, Cryofrinigens, Cryoglobulins, etc. In short meaning I tested positive, in every way, for Lupus and Rheumatoid arthritis.

The good news is that in most cases after cessation of Remicade the symptoms of Lupus and arthritis will go away. Last week my Rheumy ran the same 14 blood panels as she did one year ago -- and good news! I am now only positive for Cryoglobulinemia - which causes "Raynaud's" syndrome and other problems - but this too may go away with time.

Remember it took me a full year after being taken of Remicade for the symptoms to stop and the blood work to normalize.

Moral of the story? Let a really good, "vampire-like" Rheumatologist go to town on your blood work!

Good luck,
"I come from the suburbs. You know the suburbs? It's where they tear out all the trees and name the streets after them." David Lee Roth

Male, Age 40
Diagnosed with Pancolitis, August 2005
Diagnosis changed to Pancolitis not including Sigmoid colon, rectum Jan. 2006
Past drugs: Azathioprine, Asacol, Remicade, Humira, Cimzia, Methotrexate, Prednisone. All had side effects or stopped working.

Currently suffer from drug induced Lupus, Raynaud's, Cryoglbulinemia and mild arthritis - all attributed to use of Remicade.

April 2010: underwent total colectomy with ileorectal anastomosis with temporary loop ileostomy. Awaiting take down.
Current meds: Rowasa enemas, 10mg prednisone/day
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