VSL#3DS Probiotics

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UniG
Regular Member


Date Joined May 2009
Total Posts : 110
   Posted 8/17/2010 8:05 PM (GMT -6)   
Hi folks, On this forum I've seen mentioned the prescription probiotic called VSL#3DS. Anyone try it? I currently take a high quality probiotic; HMF Superpowder by Genestra. Going thru quite a flare right now - can't believe how weak I was today - totally bedridden and it was a gorgeous day. :(
41 yrs.
Last sigmoidoscopy Jan 2009, 17" inflammation of lower colon.
Naturals: probiotics, ground flax, salmon oil, Glutagenics, Aloe Vera juice, mega vitamin supplements, Glutamine, Vegan diet.
Pharma: Salofalk enema every other night and oral 2 500mg tablets a day
My brother had UC and ended up with an illiostomy after years of struggle.

C_G_K
Veteran Member


Date Joined Dec 2006
Total Posts : 905
   Posted 8/17/2010 10:54 PM (GMT -6)   
I've taken VSL#3DS for several years. I can't say for sure that it has helped limit my symptoms, but I think it has. Colitis is unpredictable and it is hard to correlate the effects of different things on it.

"Primal defense" (another probiotic) had a much more clear-cut impact than VSL#3DS.
DX Pancolitis 2003. Subsequent flares limited to left side
Flare every 2-3 years.
Apriso 2 x 4 tabs daily, Mesalamine enema 2 X daily.
Probiotics: Primal defense and VSL#3DS. Fiber: Psyllium and "super seed".
Allergic to Imuran

Currently mild flare last 6 months. Limited to Rectum and lower sigmoid. No diarrhea.
Added cortifoam.
Prednisone 5 mg 2.5 mg (tapering)

UniG
Regular Member


Date Joined May 2009
Total Posts : 110
   Posted 8/18/2010 7:49 AM (GMT -6)   
Thanks for mentioning the Primal Defense. I looked it up - solid!
41 yrs.
Last sigmoidoscopy Jan 2009, 17" inflammation of lower colon.
Naturals: probiotics, ground flax, salmon oil, Glutagenics, Aloe Vera juice, mega vitamin supplements, Glutamine, Vegan diet.
Pharma: Salofalk enema every other night and oral 2 500mg tablets a day
My brother had UC and ended up with an illiostomy after years of struggle.

puffed rice
Regular Member


Date Joined Feb 2008
Total Posts : 495
   Posted 8/18/2010 8:45 AM (GMT -6)   
Hello UNiG,  You might want to look into Renew Life-Ultimate Flora Critical Care Probiotic .  Many of us here are using this one and for me it has worked great.  I take 2 a day morning and evening on an empty stomach.  When flaring I have taken up to 4 per day.  Each capsule has 50billion live cutures and if you are in the US they make one with 80billion live cultures per capsule.
Diagnosed with Ulcerative Colitis 1995
Salofalk Tablets  2pills -3xday
 cortifoam nightly when needed
hycort enemas nightly when flaring/vitamin E enemas
Bio-K Probiotic (evening) + Renew Life - ultimate flora critical care probiotic (morning)
metamucil nightly
cut out all wheat and flour

songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3252
   Posted 8/18/2010 9:09 AM (GMT -6)   
I've taken VSL for about 16 months and the DS strength since January - I just upped that to two packets per day, along with cortenemas, and averted a flare.....(so I don't know which helped more, the VSL or the enemas...)
In the first few months I'd started VSL, I was chasing a minor but persistant flare, and I stopped the VSL twice to see if I could get by without it - within 2 days the bleeding resumed, and stopped again within a few days when I restarted the VSL, so I guess I have to say it works for me.
Co-Moderator, UC Forum
Age 54. Diagnosed UP 1983, UC 1986
Prednisone 2 years! 86-88
Now:Asacol - 16 pills/day, Cortenemas
Metamucil - 2 doses/day since '86
VSL#3DS, Multivitamin, Calcium and D
homemade yogurt each day
hip replacement 4/5/10
flare averted....?
Son, 17, dx pancolitis 2007, in remission

napacabs
Regular Member


Date Joined Jan 2010
Total Posts : 90
   Posted 8/18/2010 10:27 PM (GMT -6)   
I use VSL#3DS. I am very fortunate in that it is covered by my health care insurance. I have used it in conjunction with a rather strict diet that is pretty consistent with the SCD diet, with a few modifications. I noticed with the initial dosage of VSL#3 that I did have some increased gas and an increase/change of odor of the stool. After a week, this really settled and I have enjoyed a wonderful remission. I use the VSL#3 twice to three times daily and mix it with plain homemade yogurt. Good luck.

34 yo male physician
Diagnosed Severe Pancolitis 10/07.
Currently in remission with SCD, VSL#3DS, Curcumin

aguywithuc
Veteran Member


Date Joined Jun 2010
Total Posts : 2507
   Posted 8/18/2010 10:55 PM (GMT -6)   
It worked like a miracle over and over for me.

Then their supplier ran out so I switched pharmacies.

It failed to help twice which struck me as odd. So everyone is out of it but this one chain and theirs seems inneffective, I switched back yesterday.

I got thru my 4 hour interview and lunch with a good company today no problemo.

Primal defense did nothing for me, but I have been seeing endorsements of it here lately.

Intestimine wrecked me. The yogurt with Bifodus Regularis is bad news as well and have seen IBS/IBD people saying they lost all control of their bowels from taking it.

Post Edited (aguywithuc) : 8/18/2010 10:19:11 PM (GMT-6)


C_G_K
Veteran Member


Date Joined Dec 2006
Total Posts : 905
   Posted 8/18/2010 11:19 PM (GMT -6)   
I usually have gas out the wazoo. I often wonder if the VSL#3 makes it worse. My wife is really getting sick of it, and of course having constant gas is really uncomfortable, especially with an inflammed rectum! Sometimes when I first wake up in the morning, I have to pass a huge about of wind, enough to wake my kids up if they are sleeping with us. It's hard to differentiate whether it is just from the colitis or if the probiotics are mostly the cause, or at least making it worse. Anyone else have this problem while taking probiotics?
DX Pancolitis 2003. Subsequent flares limited to left side
Flare every 2-3 years.
Apriso 2 x 4 tabs daily, Mesalamine enema 2 X daily.
Probiotics: Primal defense and VSL#3DS. Fiber: Psyllium and "super seed".
Allergic to Imuran

Currently mild flare last 6 months. Limited to Rectum and lower sigmoid. No diarrhea.
Added cortifoam.
Prednisone 5 mg 2.5 mg (tapering)

songlady
Veteran Member


Date Joined Aug 2009
Total Posts : 3252
   Posted 8/19/2010 8:43 AM (GMT -6)   
I've not had any gas from probiotics.... I've been on PB8, Digestive Advantage, ULtimate Flora CC, VSL and VSLDS.... I do get gas from flaring and also from Rowasa.....
We're all different.
And we react to the different probiotics in different ways, too. Frustrating, no "one remedy fits all...."
Co-Moderator, UC Forum
Age 54. Diagnosed UP 1983, UC 1986
Prednisone 2 years! 86-88
Now:Asacol - 16 pills/day, Cortenemas
Metamucil - 2 doses/day since '86
VSL#3DS, Multivitamin, Calcium and D
homemade yogurt each day
hip replacement 4/5/10
flare averted....?
Son, 17, dx pancolitis 2007, in remission

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1754
   Posted 8/19/2010 10:50 AM (GMT -6)   
Probiotics have never helped my UC, but they have helped my IBS. One VSL DS packet usually lasts me 2-3 days. (I hate the flavor!)
Female, Age 21
Remicade, Asacol, VSL #3 DS, Vitamin D, Calcium, Prozac, Turmeric, Biotin, Zyrtec

Serenity Now
Veteran Member


Date Joined Jan 2009
Total Posts : 1512
   Posted 8/19/2010 2:11 PM (GMT -6)   
I used to get terrible, painful gas which I finally figured out was from my probiotic.  I now take it at night, two hours after eating anything, right before bed.  I no longer have the problem. 
 
______________________

Female, 44, Vancouver BC 

DX: UC (Pancolitis) as of Jan2009.  Symptoms first began June2008.  Currently in remission.
Current Meds: 
None

Previous Meds:

 -Asacol 800 mg (1 pill x 4 daily), Jan-Mar2009
 -Ferrous sulfate, Jan2009-Apr2010 
Supplements:
Probiotic, cod liver oil, Multi-vitamins, Calcium-Magnesium, L-glutamine 

 


quincy
Elite Member


Date Joined May 2003
Total Posts : 25775
   Posted 8/19/2010 2:22 PM (GMT -6)   
I totally agree with taking them at night on an empty stomach. I would get lots of gas if I took them during the day, regardless of what kind.

The worst offender is yogurt, however...I've now stopped eating it again...nice snack after supper, but wow. Owie.

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Ranitidine; Effexor XR 37.5mg (depression), Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime
~Metamucil capsules 6 twice daily with meals; Vitamin D 2000 IU
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

HippieKas
Regular Member


Date Joined Jun 2013
Total Posts : 22
   Posted 9/17/2013 3:52 PM (GMT -6)   
I absolutely love VSL# DS.  It's the one thing that finally put me into remission and I was able to stop using all my prescription drugs while on it.  I was in remission for 22 days, ran out, starting using a 100 million probiotic and am starting to have symptoms again.  My doc just called in another prescription for me and I'm so excited to pick it up again because of how great it made me feel!

Madcat25
Veteran Member


Date Joined Oct 2012
Total Posts : 1111
   Posted 9/17/2013 4:53 PM (GMT -6)   
Tried VSL #3 and Ultimate Flora (no DS in Canada). I don't really know if any of them helped or not, so wasn't worth the money to keep on going.
ASK THE CAT
Ulcerative Colitis Forum Moderator

UC DXed 2007. ?Remission? by Remicade from flare (Oct. 2012).
Currently on: Imuran 100 mg/1 day, Remicade 600 mg/6 weeks.
Supplements: Vit D 1000 IU/day

dvisionone
New Member


Date Joined Dec 2013
Total Posts : 1
   Posted 12/9/2013 5:07 PM (GMT -6)   
I had UC for 15 years before it got so bad I had to have a colectomy/illeostomy. Went through many same meds. thought I would be off pred for my life, but 2 years later started having other autoimmune related conditions occur. Currently on humira and imuran and small pred for some form of +ana related conditions. More to the point on this thread; my 20 year old son came down with severe UC, ITP (look it up), Evan's syndrome, and pre-lupus all at once 2 years ago. Was in hospital 4 times. last time for 20 days; lost 40 pounds in one month and came an inch short of having his colon removed. Had his spleen removed instead to control bleeding and raise platelets. He started humira and VSL#3 6 months ago and has been feeling great, except for some flare weeks that seem to coincide with final exams. Tried remicade, rituximab, many IVIGs, huge IV doses of prednisone.
If you have not tried the VSL, DO. he swears by it. Yes, it is not cheap, but neither is living miserably. If you have not tried humira either, DO.
We never suspected UC could be passed on, but it was, along with other medical conditions he is suffering from. They didn't have approval for humira for UC 20 years ago when I had UC. Or many other things back then. I don't regret the collectomy. Not a big deal. Feel great, can eat anything. If I knew it would stop the misery of UC I would have done it much sooner.
Try the VSL!
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