Mental illness and UC

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PumpkinMilk
Regular Member


Date Joined Sep 2010
Total Posts : 21
   Posted 9/2/2010 8:16 AM (GMT -6)   
Hello all! I just joined this Forum yesterday and honestly completely new to forums in general/ about a month and half ago I was diagnosed with a severe case of Ulcerative colitis and simultaneously told I was allergic to ALL dairy products (lactose). Just like everyone else here in this forum it was a life changing kick in the butt.
This leads me into my question Before this I had been going through treatment for bi-polar disorder, explosive disorder and OCD. My doctor told me that there are a lot of other cases out there where people with UC also have mental problems. In fact there are studies on the two being related.
Has anyone ever heard about this? If so I would love to hear anything yo know or your experience with all of that.
Thanks, PumpkinMilk tongue

imagardener2
Veteran Member


Date Joined Jan 2010
Total Posts : 3716
   Posted 9/2/2010 9:19 AM (GMT -6)   
I have never heard of the connection and I personally don't have any mental disorder other than the fact that past UC symptoms caused enormous stress, but that was normal. Who wouldn't feel enormous stress when their bowel cannot be trusted?

My first thought, because you mentioned being allergic to dairy, is that food sensitivity can create many personality changes, especially in children. I never had food sensitivities until UC came to roost but since being successful on the Specific Carbohydrate Diet I have seen so many positive results, the most notable of course is recovering normal bowel function.

I'm not a scientist but have read enough to know that just because "A" is present and "B" is present doesn't mean "A" caused "B" or the reverse. UC alone is such a frustrating disease, adding bi-polar would make things even more complicated.

Good luck.
In remission April 2010 after 10 years of suffering and no remission ever
Jan 2010 started SCD diet (modified to remove dairy, fruit & juices)
Gluten-free=bleeding stopped in 3 days, 95% remission in 5.5 months on SCD
at 5.5 month stage homemade yogurt, hard cheese and some fruit OK :-)
SCD Diet: Gluten/grain-free, starch-free, low carb, low-sugar
Supplements: tsp. fish oil, Vit D3 5000 with oil/fat, veggie juice, sunflower seeds, VSL#3, (4) Citrucel, (1) turmeric capsule, (1) calcium
Highly recommend: the book "Life without Bread" and the Specific Carbohydrate Diet
Rx: (6) balsalazide daily, mesalamine enema occasionally

quincy
Elite Member


Date Joined May 2003
Total Posts : 25695
   Posted 9/2/2010 11:01 AM (GMT -6)   
Well, mental disorder runs in my family...I have depression/anxiety.
I don't see that there's a connection, but it's possible that the mental disorders can put a strain on one's body if one is prone to autoimmune disease...which also runs in my family.

One can go crazy dealing with all this crap...but it seems an off the cuff remark as a definite connection.

I will say, however, that prednisone can trigger bipolar disorder....

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Ranitidine; Effexor XR 37.5mg (depression), Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime
~Metamucil capsules 6 twice daily with meals; Vitamin D 2000 IU
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

maud
Regular Member


Date Joined Jan 2008
Total Posts : 90
   Posted 9/2/2010 11:22 AM (GMT -6)   
get uc and your bound to get some depression or feeling down thats for sure x

basa0806
Veteran Member


Date Joined Feb 2005
Total Posts : 2103
   Posted 9/2/2010 11:25 AM (GMT -6)   
I agree with q, I don't think they are necessarily connected. I have generalized anxiety disorder with a bit of OCD but anxiety issues run in my family as well.
Sam(antha)
21 year old college student
Diagnosed in March 2005 at 15. Flared for almost two years. Got into remission in Jan 2006 through a bowel rest. Got bad case of mono in Feb 2006 from being on 6-mp but went back into remission in Mar 2006. It's been FOUR blissful years!!!
Meds: 3 750mg Colazal 2x, 25mg Elavil, 75mg Effexor XR for GAD, ortho lo
"It is not the strongest speices that survives, nor the most intelligent that survives. It is the one that is most adaptable to change"
Charles Darwin

MMMNAVY
Veteran Member


Date Joined Jul 2006
Total Posts : 6923
   Posted 9/2/2010 11:53 AM (GMT -6)   
there is research that shows a correlation between mental health issues and physical health issues
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…

MyUC
Veteran Member


Date Joined Mar 2010
Total Posts : 640
   Posted 9/2/2010 12:04 PM (GMT -6)   
Your GI is out of line in my opinion.  In my 20 years of dealing with UC and having quite of bit of information on it I have never heard of mental illness being associated with UC.  I don't know what context your doc was bringing it up in but from my point of view it's basically untrue.  Here on this forum you will come by hundreds if not thousands of people who have UC and very well informed.  I would say many of them have a better grasp of this disease than the docs who treat them.  Very rarely if ever have I come across mental illness being associated with UC.  Mental illness is very prevalent in the world but it is a seperate entity unfortunately there will be people who have both UC and mental illness.  Not causative just probable.
 
Sorry if I sound offended but I am.
 
MyUC

IamCurious
Veteran Member


Date Joined Jan 2010
Total Posts : 2222
   Posted 9/2/2010 2:48 PM (GMT -6)   
Casually browsing the signatures here it seems many are on antidepressants. But it just may be a sign of our times, many people on the outside without IBD will admit to taking antidepressants once you get to know them.

Big Pharma encourages doctors to prescribe them and now even anti-psychotics with dangerous side effects are advertised on TV. Many school children are routinely medicated nowadays but when I was growing up very few children were on behavioral meds.

Many UCers claim that stress can set off a flare but I don't think there is a connection with IBD and mental problems. But I wish someone would study to see if there is a link between MMR vaccine and children subsequently contracting IBD. I hate seeing innocent children suffer.
58 y/o male. DX ulcerative colitis Feb08, possible Crohn's colitis DX March 2010.
No Meds, allergic to Mesalamine. Allergy to shellfish contributed to 1st major flare.
Watch diet to maintain remission. Powdered Psyllium seeds especially helpful.

Boswellia, E. Coli Nissle (Mutaflor), turmeric, fish oil, S. Boulardii, VSL3, resveratrol, multivitamin, extra D3, K2, C, high gamma E, magnesium, slippery elm, phosphatityl choline, glutamine. Copious amounts of fruit and vegetables, no soda, no HFCS, no trans fat, tea instead of coffee, very few processed foods, no carrageenan.

Nature created all of the locks, therefore Nature has all of the keys

Post Edited (BabeintheWoods) : 9/2/2010 2:11:26 PM (GMT-6)


PumpkinMilk
Regular Member


Date Joined Sep 2010
Total Posts : 21
   Posted 9/2/2010 3:38 PM (GMT -6)   
I appreciate everyone's opinion and did not mean to offend anyone, I am having a difficult time dealing with all of this much like the rest of you. I was already in therapy for my mental illnesses 8 months before I was diagnosed with the UC that's why when my doctor said that I was shocked.

MyUC
Veteran Member


Date Joined Mar 2010
Total Posts : 640
   Posted 9/2/2010 3:58 PM (GMT -6)   
No offense taken.  I wish you the best in dealing with your UC and mental health issues.  Seriously, it's tough work to deal with all that thrown at you in one's life.  I just think you doc was slightly out of line and more importantly just plain wrong.  I wouldn't put much faith in what he/she told you.  Two seperate issues, plain and simple.  This forum will help you cope and deal with the UC.  It's helped me.
 
MyUC
39 Year Old Male, Dentist
Dx: Ulcerative Colitis 1996 via colonscopy and biopsy.  Pancolitis with chronic and moderate inflammation.
Started UC around 92.
Past Meds: Asacol and occasionally Prednisone
Have had 6 colonscopies throughout my hx with UC.
Current Meds: Imuran, started with 200 mg and recently lowered it to 150 mg
Most recent colonscopy 2009 after 6 months of Imuran, colon is 90% healed
Currently in remission
 
 

Peety
Veteran Member


Date Joined Mar 2008
Total Posts : 2838
   Posted 9/2/2010 4:26 PM (GMT -6)   
Nonsense, but no offense taken.
49 year old female attorney, diagnosed UC/pancolitis 1985.
Asacol for 20+ years with Prednisone & Rowasa for flares (But nothing since Remicade).
Food sensitivity test by Naturopath showed wheat/gluten, other intolerances, helped some. Remicade started April 2009 (Humira denied) and doing great~ learning what normal is~ wow

subdued
Veteran Member


Date Joined Dec 2008
Total Posts : 3231
   Posted 9/2/2010 5:14 PM (GMT -6)   
There are possible links between anxiety and autoimmune disorders; however, I do not think anxiety caused my IBD. I believe my case is due to having taken antibiotics for many years.

killcolitis
Veteran Member


Date Joined Dec 2009
Total Posts : 2396
   Posted 9/2/2010 5:22 PM (GMT -6)   
Don't know what studies your GI was talking about. Don't think depression or mental illness is offensive or shameful either. The gut is called the "second brain" and there's believed to be a "brain gut connection" so I wouldn't rule out a connection between bowel disease and things like depression, anxiety, ocd etc. THese might be considered "extra intestinal manifestions" which manifest in some but not others. Regardless, that's different than your doc telling you that people with UC often have "mental problems". Sounds a little idiotic.

seconder
Veteran Member


Date Joined Jun 2008
Total Posts : 600
   Posted 9/2/2010 8:16 PM (GMT -6)   
Heck, mental illness used to be considered the cause of IBD, but that's pretty outdated theory these days.  However, there are numerous current studies that create psychological profiles of IBD patients, usually distinguishing between Crohns and UC. 
 

PumpkinMilk
Regular Member


Date Joined Sep 2010
Total Posts : 21
   Posted 9/2/2010 8:28 PM (GMT -6)   
Thank you to all for your posts and to seconder for the article, this is something I am going to learn to cope with and I am now going to try not to take everything my GI says to heart.

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 21989
   Posted 9/3/2010 6:09 AM (GMT -6)   
Wow, 1967 Seconder??? That is realllllly old school for sure! lol

Pumpkinmilk, welcome to Healingwell. I hope you did not take any of these posts personal because it wasn't aimed at you but at your doctor. There is a lot of myth and speculations floating around about UC so you need to take pretty much everything with a grain of salt. I know you would think a doc would know better but that is not always the case. Some docs are stuck in the past unfortunately. To keep up with the latest research and to get more info about Uc, please visit www.ccfa.org

Anytime you should have other questions, please do not hesitate to post ok? We are here for you to help you cope with having this horrible lifelong condition. And we can all truly understand where you are coming from.
@--->--SHERRY--<---@
Moderator-Allergies/Asthma, Co-moderator-UC and Alzheimer's
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(6 daily)/6mp(50-100mgs)/Bentyl-Prilosec/Biotin/Forvia/Pro-Bio~allergies-Singulair/Zyrtec~Reynauds Syndrome~OA (hands and spine)-Tylonel Arthritis/Celebrex~Scoliosis~Sacroilitis~Dry eye-Restasis

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5402
   Posted 9/3/2010 8:50 AM (GMT -6)   
Your doctor is stupid! I had a stupid doctor too who told me that because I had UC I should quit my job because stress makes UC worse. He couldn't have been more wrong in my case. Stress did not cause my last flare which resulted in surgery. UC is unpredictable and one can't really understand the periods of flares although we all try to analyze it to death. I also wanted to ask him if I quit my job, would he support me. Some doctors are really clueless and it sounds like yours is one of them. Yes, many people on this board might be taking antidepressants but that's because chronic illness can lead to depression. It's not necessarily the UC that causes it.

I also agree that those who live with UC know it far better than the doctors who treat it.

Sue

MyUC
Veteran Member


Date Joined Mar 2010
Total Posts : 640
   Posted 9/3/2010 9:01 AM (GMT -6)   

Suebear:

Tell us how you really feel!  LOL, I agree with your post.

MyUC


39 Year Old Male, Dentist
Dx: Ulcerative Colitis 1996 via colonscopy and biopsy.  Pancolitis with chronic and moderate inflammation.
Started UC around 92.
Past Meds: Asacol and occasionally Prednisone
Have had 6 colonscopies throughout my hx with UC.
Current Meds: Imuran, started with 200 mg and recently lowered it to 150 mg
Most recent colonscopy 2009 after 6 months of Imuran, colon is 90% healed
Currently in remission
 
 

bookworm21
Veteran Member


Date Joined Mar 2008
Total Posts : 1754
   Posted 9/3/2010 10:59 AM (GMT -6)   
To repeat seconder, a lot of the early IBD research attempted to link IBD and mental illness. Some studies even focused on personality traits (type A personalities more likely to get IBD than type B personalities). There have been some recent studies done linking stress to flares and how complementary alternative medicine (meditation, yoga, etc) help with flares, but I think it just differs for everyone.
 
Of course some UC'ers are going to have mental disorders such as depression or anxiety...are we supposed to be super happy about having a pooping disease? Having your life revolve around a toilet is depressing and anxiety-producing.
 
BabeInTheWoods, there is no connection between the MMR vaccine and IBD. The "doctor" who is saying that there is link between MMR vaccine and autism first tried to link MMR vaccine and IBD. A connection was never found between the two.
Female, Age 21
Remicade, Asacol, VSL #3 DS, Vitamin D, Calcium, Prozac, Turmeric, Biotin, Zyrtec, Prilosec, Culturelle, Canasa

astar
Regular Member


Date Joined Feb 2010
Total Posts : 99
   Posted 9/5/2010 9:46 PM (GMT -6)   
hey babe in the woods, I've noticed the same, and I would also venture that a lot of people with uc are on antidepressants and anti anxiety meds because it is depressing, and causes a lot of anxiety:)

As for the the connection, I've heard scd diet recommended for autism and schizophrenia, so maybe it's more the theory that some of the same things can affect multiple diagnoses, and there might be some crossover in diet/treatment concepts.
diagnosed 8/08 with left sided UC
female, 36 years old
colazal currently 3 3x daily
entecort for a crazy arthritic flare
prenatal vitamin/iron supplement
vitamin d supplement
pre/probiotics

IamCurious
Veteran Member


Date Joined Jan 2010
Total Posts : 2222
   Posted 9/5/2010 10:36 PM (GMT -6)   
Antidepressants are everywhere not just those with IBD. Sometimes I think there is a bit of an overreach. There is one drug that was originally an anti-psychotic but is now being marketed as a supplement to antidepressants. I guess the drug company wants to enlarge its customer base and boost its profits. Anyway the TV ad mentions 'sudden death' as one of the potential side effects.

Zippy123
Veteran Member


Date Joined Feb 2009
Total Posts : 735
   Posted 9/5/2010 11:39 PM (GMT -6)   
yeah I think doctors give out mood altering drugs far to easily. Everyone has moods and being sick with a disease all the time can bring anyone down. Same with kids and ADD, kids are just naturally excitable and hyper, yet they give them drugs to calm them down as if it isn't normal for kids to act that way. I think they want everyone walking around like a drugged out zombie.

quincy
Elite Member


Date Joined May 2003
Total Posts : 25695
   Posted 9/6/2010 2:47 AM (GMT -6)   
I don't take antidepressants because of UC...I take it for depression..and I had to beg for them to at least take some of the edge off, about 11 years after diagnosis.

Coping with life in general for many is difficult. Add health issues, dysfunctional families and relationships, work, etc....not such a great combo many times.

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Ranitidine; Effexor XR 37.5mg (depression), Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime
~Metamucil capsules 6 twice daily with meals; Vitamin D 2000 IU
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

PumpkinMilk
Regular Member


Date Joined Sep 2010
Total Posts : 21
   Posted 9/6/2010 7:39 AM (GMT -6)   
I feel the same way Quincy I have alot of other issues to deal with besides my UC which is why I was in treatment for my mental illness before I was diagnosed. It was just shocking when my doctor made the remark they could be related.

quincy
Elite Member


Date Joined May 2003
Total Posts : 25695
   Posted 9/6/2010 11:24 AM (GMT -6)   
Related is a general term....maybe he used it that way.

We can find connections for almost everything if we look hard enough. But it's not across the board.

I neglected to say that therapy helped me with most of my "issues"...although, I'll always be the way I am, just more aware.

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Ranitidine; Effexor XR 37.5mg (depression), Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime
~Metamucil capsules 6 twice daily with meals; Vitamin D 2000 IU
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!
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