I jsut saw my GI specialist yesterday, and she has recommended cutting pills in half and going to 2.5mg doses, until we start either a new investigative study, or go on Cimzia or Humira. So yes, cut in half or Qrts, whichever you feel is right for your daughter. I feel for you. She is way to young to struggle with this terrible disease.
OK, Question, I've struggled with UC for over 8 years, I'm 47, and frustrated. One GI says, lets just go for the Surgery, get you well, get you a J pouch, and life will resume to normal within 8 weeks! So I saw another GI yesterday, in Wisconsin, and she said NO do not have Surgery, not YET.. it will cause more surgerys- potentially, Ive had 4-5 to date, and way to much Delauded Morphine, after 8 day hospital stay 4 weeks ago. I now only weigh 135 lbs, and I would lose another 20 from the surgery, not good... that's a huge worry of Doctors with Surgery. I'm in tough spot, if I had all the money in the world, I could afford Cimzia or Humira, but I dont. This disease over the years has cost me 75k-100,000 in medical bills.
So I need help.. Cimzia or Humira, or Surgery, YOu guys are the real experts- Us the patients, I can help allot of you as well, after 8 years, but now I need your help. I also need lots of help from my insruance company - They told me they could cover the first 2 cimzia, at $3500 per injection, but when the new year arrives, I will have to pay my family deductiable of $7500, the 20%.
What is everyone finding? is this true, false, and what has been everyone's results. I know everyone is different. I reading all the posts and find the cost to be reasonable, or nothing.
Meds: 8 years
currently on pregnisone taper down to 4 pills of 5mg daily, so I have 4 weeks until, I flare again, or maybe 6-7, that's not much.
Imuran, Azathiaprine, Methotrexete, REmicaide- 2 years, 6mp, Cortisteriods, entorcourt, Asacol- Alergic, Azathiapriune, allergic, 6mp -Allergic- all caused Pancreatitis!! No fun. So, I have no choice but to take Humira, cimzia, or the new study- its call Vedliumab They are taking patients now. Cost nothing..
Thanks Young Johnnie