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Scotch
Regular Member


Date Joined Jul 2005
Total Posts : 88
   Posted 11/18/2010 2:25 PM (GMT -6)   
I'm not sure why I am having this problem, but for the last 3 weeks my lips have been burning.  I even get cracks on both sides of my mouth.
Just putting my finger on my lips make it hurt. They also peel and it looks like I used a lip pencil to trace my lips.  I don't think it is chapped lips
as they burn with anything I put on.  I have tried Chapstick, Vaseline, Aquafor, Bert's Bee lipbalm, and Lip Therapy by Vaseline. 
Nothing helps...has anyone had this?  Here is the medication I take (I am wondering if it is medicine related?):
 
18 pills of Colazal a day (750 mg each)
2 pills of 6MP (50 mg each)
2 amitriptyline (25 mg each)
1 Canasa (1000 mg)
4 Fibercon tablets
 
I don't know if I should call my regular doctor or my Gasto doctor. 
 
HELP!

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 6865
   Posted 11/18/2010 3:03 PM (GMT -6)   
Have you started using any new products, like soap, laundry detergent, dish detergent, shampoo, facial cleanser, moisturizer? Have your meds changed recently? Have you recently started spending time in a building you used to not spend time in?

Sorry, that sounds painful.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son
Diagnosed with pancolitis on 1/30/09
Meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, multivitamin.  Used prednisone (starting dose 40 mg) to get into remission.
 
 

Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 22020
   Posted 11/18/2010 3:27 PM (GMT -6)   
It could be the 6mp. I started having somewhat of the same issue after I started it. My lips always seem to be chapped and they slightly burn when I put stuff on them. I have used a lot of things too but the one that I find to be the most effective is Carmex.
SHERRY
Moderator-Allergies/Asthma and Alzheimer's, Co-moderator-UC
~Left sided Uc-'92**Unable to tolerate ALL mesalamines**
Colazal(9 daily)/6mp(25mgs), Allopurinol (100mgs)/Bentyl-Prilosec~allergies-Singulair/Zyrtec~Reynauds Syndrome~OA-Tylonel Arthritis~Scoliosis~Sacroilitis~Dry eye-Restasis/GAD - Klonopin (.25mgs)

quincy
Elite Member


Date Joined May 2003
Total Posts : 25716
   Posted 11/18/2010 4:00 PM (GMT -6)   
When did you start the 6MP?

Why are you on 18 Colazal? you would be better off to use a higher % more efficient rectal med such as Rowasa.

You could try an L-Lysine lip balm...to see if that helps, an antibiotic cream or a fungal cream to see if any help.

Do NOT use anything with beeswax, mint or eucalyptus which will exacerbate your symptoms.

Have you changed your toothpaste over the past month?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Ranitidine; Effexor XR 37.5mg (depression), Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime
~Metamucil capsules 6 twice daily with meals; Vitamin D 4000 IU
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Nor_TX
Regular Member


Date Joined Nov 2008
Total Posts : 360
   Posted 11/18/2010 4:07 PM (GMT -6)   
I have the same issue.  I went to the Dermatologist and was told it was a fungus.  She gave me a combination of Topicort and Protopic samples.  I used the Topicort for three days, twice per day and then I use Protopic every morning.  It has stopped the cracks at the corner and my lips only start burning when I haven't used the daily protopic for a few days. 

quincy
Elite Member


Date Joined May 2003
Total Posts : 25716
   Posted 11/18/2010 4:15 PM (GMT -6)   
Nor_TX..what meds for UC are you on?

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Ranitidine; Effexor XR 37.5mg (depression), Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime
~Metamucil capsules 6 twice daily with meals; Vitamin D 4000 IU
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Nor_TX
Regular Member


Date Joined Nov 2008
Total Posts : 360
   Posted 11/18/2010 4:16 PM (GMT -6)   

Not sure why my signature only shows up sometimes.... it's all in my signature...


Nor_TX
Regular Member


Date Joined Nov 2008
Total Posts : 360
   Posted 11/18/2010 4:19 PM (GMT -6)   
Let's try this one more time.... errrrrrrr

quincy
Elite Member


Date Joined May 2003
Total Posts : 25716
   Posted 11/18/2010 4:21 PM (GMT -6)   
just to a quick reply...it will show up there. I've emailed Peter asking to click on the siggies to show up...Hope he'll change it.
 
or if you click on the reply, edit or new topic, you'll have to click on the  box under the text box that includes signature.
q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Ranitidine; Effexor XR 37.5mg (depression), Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime
~Metamucil capsules 6 twice daily with meals; Vitamin D 4000 IU
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Nor_TX
Regular Member


Date Joined Nov 2008
Total Posts : 360
   Posted 11/18/2010 4:26 PM (GMT -6)   
I just sent an email to admin asking them to check why my signature doesn't always show up.  Just a technology glitch probably.
Presently on: 600 mg. Remicade every 5 weeks
                   Venofer infusion every 5 weeks
                   B12 every 5 weeks              
                   12 Asacol daily
                   Zofran as needed
Dealing with Colitis since 2003, Gastro-Paresis, Reflux, IBS, GERD and Gluten and Dairy Intolerance and last but certainly not least - Arthritis.  Am officially a senior citizen - how lovely :P
"Food is in my dreams and in my nightmares!"

Scotch
Regular Member


Date Joined Jul 2005
Total Posts : 88
   Posted 11/18/2010 4:41 PM (GMT -6)   
Qunicy - I have been on 6MP for 5 years, no new toothpastes or face wash or anything that I haven't used for awhile, not sure why 18 Colazal other than it is what has worked. I definitely don't like taking all the pills, so you think I should switch to something rectally to get the amount I need???? I have tried to lower my dosage several times but I end up having to go back to 18. I have also tried neosporin around my mouth and in the corners but that didn't help either. UGH! I am so frustrated with this!
UC since 1995 - Entire colon
Currently on Canasa, 6MP, & Colazal, Levsin

Nor_TX
Regular Member


Date Joined Nov 2008
Total Posts : 360
   Posted 11/18/2010 4:43 PM (GMT -6)   
You probaby should see the Dermatologist... they will give you the best advice.
Presently on: 600 mg. Remicade every 5 weeks
Venofer infusion every 5 weeks

B12 every 5 weeks

12 Asacol daily

Zofran as needed

Dealing with Colitis since 2003, Gastro-Paresis, Reflux, IBS, GERD and Gluten and Dairy Intolerance and last but certainly not least - Arthritis. Am officially a senior citizen - how lovely :P
"Food is in my dreams and in my nightmares!"

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 6865
   Posted 11/18/2010 4:45 PM (GMT -6)   
You know, looking at your signature, I find it odd that you're on colazal when you have pancolitis, as colazal doesn't treat the entire colon. If you'd really like to take fewer pills a day, you could consider asking your doctor about Apriso or Lialda. I do understand not wanting to rock the boat if you're in a pretty good remission.

I'd call your regular doc, as it doesn't seem to be an issue with your UC meds, since you've been on them all for years. Or, if your insurance doesn't require that you get a referral to see a specialist, you might see if you can get into a dermatologist quickly.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son
Diagnosed with pancolitis on 1/30/09
Meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, multivitamin.  Used prednisone (starting dose 40 mg) to get into remission.
 
 

quincy
Elite Member


Date Joined May 2003
Total Posts : 25716
   Posted 11/19/2010 3:50 AM (GMT -6)   
Colazal does treat the entire colon.

There's no need to be on 18, however...and I would question the no rectal meds... get on them.

Hope the doc helps regarding your lips...oh..forgot to add, please get checked for Sjogren's. Do you have a dry mouth or dry eyes? any other autoimmune issues?

Keep us posted.

q
*Heather* I give suggestions, do with them what you will.
Status: ...Asacol 3 @ 2x daily; Salofalk enema @ 3rd night (nightly/ flares, tapered/maintenance)
~diagnosed January 1989 UC (proctosigmoiditis)
~Bentylol 20mg as needed; Ranitidine; Effexor XR 37.5mg (depression), Pulmicort/Airomir (asthma)
~vitamins/minerals/supplements; Probiotics....(RenewLife Ultimate Flora Critical Care+Primadophilus Reuteri capsules @ bedtime
~Metamucil capsules 6 twice daily with meals; Vitamin D 4000 IU
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Lynn555
New Member


Date Joined Dec 2011
Total Posts : 4
   Posted 12/24/2011 12:28 AM (GMT -6)   
What works for my dry, itchy lips is Lansinoh cream (pure lanolin) and 1% hydrocortisone ointment, mixed together in the palm of my hand. You must be sure to get hydrocortisone ointment, not cream because the ointment contains only hydrocortisone and petrolatum. Avoiding irritants on the lips is very important -- the reason products like Blistex sting when applied is that they contain ingredients like menthol and camphor which are the worst things possible for skin. Hope this helps.

Mary A.
Regular Member


Date Joined Dec 2011
Total Posts : 217
   Posted 12/25/2011 5:34 PM (GMT -6)   
Sounds like a fungal infection??
Basic ingredient/natural chapsticks (not Bert's Bees Wax) to help with symptoms.
Get to the dermatologist ASAP.
Just my 2 cents.
Mary A.
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