Remicade every 6 weeks now, more hair loss?

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Yazzy
Regular Member


Date Joined Feb 2010
Total Posts : 21
   Posted 1/6/2011 2:23 PM (GMT -7)   
So, I started Remicade and have had 5 infusions. Finally they started working a little. I am not in remission by all means but I am having more good days than bad days. I actually had a 17 day streak over the holidays where I didn't have an accident or blood in the stool! I started having symptoms return badly about 4 weeks into my last infusion so my doctor changed it to where I am going to start getting them every 6 weeks now. I am excited to see what this does. The only thing that concerns me is that I am losing my hair so bad now at every 8 weeks, do you think that will get worse going every 6 weeks. Seems like it will to me. Do you guys know of any supplements I could take to combat the hair loss?
Diagnosed with ulcerative colitis summer of 2008. I have had symptoms for 10 years.
Last diagnosis was pancolitis and chronic pancreatitis.
Have tried asacol, lialda, steroids, imuran, and currently on Remicade. Started having symptoms 3 weeks before next infusion so the doctor changed it to every 6 weeks.

fruitgirl
Veteran Member


Date Joined Feb 2009
Total Posts : 6980
   Posted 1/6/2011 2:29 PM (GMT -7)   
I'm guessing the hair loss might be because you've been so ill, and not due to the remicade. It takes several weeks (I'm sure quincy will chime in as to how many) after being ill for the hair to start falling out. I lost a lot of hair near the end of my first flare...part of it was the "extra" pregnancy hair I'd grow, but I think it thinned even beyond my pre-pregnancy normal. I noticed it got thicker again once I'd been in remission a while.

I think some people on here have had good luck with Noxin shampoo.
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son
Diagnosed with pancolitis on 1/30/09
Meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, multivitamin.  Used prednisone (starting dose 40 mg) to get into remission.
 
 

Ugh Just Ugh
Veteran Member


Date Joined Jan 2010
Total Posts : 1004
   Posted 1/6/2011 5:52 PM (GMT -7)   
Have you been on prednisone recently? I lost a TON of hair after I tapered off pred. I haven't noticed any hair loss related to Remicade.

journey2health
Veteran Member


Date Joined Oct 2009
Total Posts : 2698
   Posted 1/6/2011 6:14 PM (GMT -7)   
I had all the hair loss, but from Asacol and sickness. It has come back, but nowhere nears what I had.

Daffodil
Regular Member


Date Joined Nov 2010
Total Posts : 90
   Posted 1/6/2011 6:38 PM (GMT -7)   
Hello to All!
 
Yazzy- I am glad you are having better days now, and I am most interested in the fact that you have had 5 infusions. I have had 3 and have been kinda disappointed that I am not considerably better. I am better, it just seems SO slow in coming. I still have all of the same symptoms, but not as severe. I have heard it can take up to 7 infusions to notice a difference. I haven't noticed a hair loss, though...I did have that before when tapering off Prednisone. I am doing that again, now at 5 mg. daily. Can't wait to be OFF...
 
Happy New Year to All!!
 
Daffodil
 

Yazzy
Regular Member


Date Joined Feb 2010
Total Posts : 21
   Posted 1/6/2011 6:47 PM (GMT -7)   
I have been weaned off the prednisone for over 6 months. But I have been really sick until here recently so that makes sense, thank you fruitgirl. Daffodil, I had no improvement of symptoms at all and many trips to the hospital and finally on the 4th treatment I saw improvement for 4 weeks. I know what you mean about it coming on slow, I read about people going into remission after their first treatment and I was so disappointed. I hope you see some results soon.
Diagnosed with ulcerative colitis summer of 2008. I have had symptoms for 10 years.
Last diagnosis was pancolitis and chronic pancreatitis.
Have tried asacol, lialda, steroids, imuran, and currently on Remicade. Started having symptoms 3 weeks before next infusion so the doctor changed it to every 6 weeks.
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